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Uva Ursi
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Synthroid levels and Urso
Hi, My first post here. What a fantastic community this is and an important resource for us with PBC. I was dx'd with PBC at the end of 2015. Been on 600mg Urso. Here's my question- has anyone else had problems with Thyroid levels (TSH test numbers) changing dramatically after being on Urso? I had
Hi, My first post here. What a fantastic community this is and an important resource for us with PBC. I was dx'd with PBC at the end of 2015. Been on 600mg Urso. Here's my question- has anyone else had problems with Thyroid levels (TSH test numbers) changing dramatically after being on Urso? I had
EileenUSA
in
PBC Foundation
7 years ago
Organic Apple Cider Vinegar
I've had PBC for about 5 or 6 years now. Touch wood I have been ok. No itching and def no tiredness, in fact just the opposite, I hardly sleep at all. 3-4 hours a night is normal with the exception of 1 early night now and again ! I take 500mg of Urso daily. My specialist was very pleased on my recent
I've had PBC for about 5 or 6 years now. Touch wood I have been ok. No itching and def no tiredness, in fact just the opposite, I hardly sleep at all. 3-4 hours a night is normal with the exception of 1 early night now and again ! I take 500mg of Urso daily. My specialist was very pleased on my recent
sandgroundergirl
in
PBC Foundation
7 years ago
Not the worst thing I've had to live with....
I was diagnosed ten years ago and had a biopsy to diagnose PBC and have had two more, five year intervals, to stay on top of things. Also have upper endoscopies to check for varices (varicose veins in the throat and esophagus) every two years. My Alk-phos progressively got worse as time passed and pretty
I was diagnosed ten years ago and had a biopsy to diagnose PBC and have had two more, five year intervals, to stay on top of things. Also have upper endoscopies to check for varices (varicose veins in the throat and esophagus) every two years. My Alk-phos progressively got worse as time passed and pretty
Suzi8
in
PBC Foundation
7 years ago
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Throat swelling anyone?
Hi I was diagnosed with Pbc in Jan13 due to nodules on my liver( no other symptoms except raised Ggt-120)I cannot tolerate urso well and only take450mg daily when I should be over 1000 however my liver results are bordering on normal now.Was told at Christmas some of the nodules had got bigger so had
Hi I was diagnosed with Pbc in Jan13 due to nodules on my liver( no other symptoms except raised Ggt-120)I cannot tolerate urso well and only take450mg daily when I should be over 1000 however my liver results are bordering on normal now.Was told at Christmas some of the nodules had got bigger so had
cazz22
in
PBC Foundation
7 years ago
Diagnosed a week ago today
Hi all, I have been participating in a few posts and had some questions. First of all im in the US...Sterling Va, and feel very lucky to have a knowlegable PA who works under the Medical Director of Transplant Hepatology at Georgetown Medstar (among a lot of other jobs at the transplant center!) who
Hi all, I have been participating in a few posts and had some questions. First of all im in the US...Sterling Va, and feel very lucky to have a knowlegable PA who works under the Medical Director of Transplant Hepatology at Georgetown Medstar (among a lot of other jobs at the transplant center!) who
tonia66
in
PBC Foundation
7 years ago
Update
Since initial diagnosis and some doubt from me regarding medication and the hospital Dr saying once I take Urso I will stop itching and only on half dose I had spoken to Robert last week, his good advice led me to contact my GP and he was not happy with what had been done and tests not done. I am very
Since initial diagnosis and some doubt from me regarding medication and the hospital Dr saying once I take Urso I will stop itching and only on half dose I had spoken to Robert last week, his good advice led me to contact my GP and he was not happy with what had been done and tests not done. I am very
Jo_Br
in
PBC Foundation
7 years ago
SBP, arrhythmia, tachycardia
Last week I was hospitalized due to Spontaneous Bacterial Peritonits--- infection in abdominal cavity caused by/related to ascites. I was treated with IV antibiotics, after having a paracentesis where about 2liters of fluid was removed. This is my second episode of SBP. First was Dec. 1, 2016. The
Last week I was hospitalized due to Spontaneous Bacterial Peritonits--- infection in abdominal cavity caused by/related to ascites. I was treated with IV antibiotics, after having a paracentesis where about 2liters of fluid was removed. This is my second episode of SBP. First was Dec. 1, 2016. The
tntarheel
in
PBC Foundation
7 years ago
Does the PBC cause the itch or the urso?
Before diagnosis I had no perceivable itch. I've been on urso about a year now. Recent bloods came back normal lft. So I guess urso must be working. I have scabs on my arms from itching. I did start taking questran light but gave up after a few days. Is it worth trying again. My official diagnosis
Before diagnosis I had no perceivable itch. I've been on urso about a year now. Recent bloods came back normal lft. So I guess urso must be working. I have scabs on my arms from itching. I did start taking questran light but gave up after a few days. Is it worth trying again. My official diagnosis
Frances61
in
PBC Foundation
7 years ago
Questran Light, (cholestyramine) and other meds - timings of taking advice.
I finally have given in and requested Questran Light, no proper sleep for over a week no with the intense itch, the daytimes not any difference in itch but I can think about other things, chat etc. I was so low I think I would swap all this for any side effects for a bit. Really hope they will help.
I finally have given in and requested Questran Light, no proper sleep for over a week no with the intense itch, the daytimes not any difference in itch but I can think about other things, chat etc. I was so low I think I would swap all this for any side effects for a bit. Really hope they will help.
Jo_Br
in
PBC Foundation
7 years ago
Peri portal lymphadenopathy
I have literally just received a copy of of the letter sent to my GP from gastro. It states AMA at 1:640, ALT 57, ALP 143 with gamma GT 442. Chronic liver disease. Early cirrhosis with peri-portal lymphadenopathy. I am absolutely petrified I have liver cancer. Can anyone tell me anything about peri portal
I have literally just received a copy of of the letter sent to my GP from gastro. It states AMA at 1:640, ALT 57, ALP 143 with gamma GT 442. Chronic liver disease. Early cirrhosis with peri-portal lymphadenopathy. I am absolutely petrified I have liver cancer. Can anyone tell me anything about peri portal
bullett
in
PBC Foundation
7 years ago
YAY!!
Hi all, I just wanted to share my good news. I was recently diagnosed two months ago and started on URSO 6 weeks ago. I have been taking my URSO and started an anti-inflammatory diet including a lot of lots of veggies and supplements! I am so happy to say that my labs done yesterday are now normal!!
Hi all, I just wanted to share my good news. I was recently diagnosed two months ago and started on URSO 6 weeks ago. I have been taking my URSO and started an anti-inflammatory diet including a lot of lots of veggies and supplements! I am so happy to say that my labs done yesterday are now normal!!
youaremysunshine
in
PBC Foundation
7 years ago
Anyone else have PBC and RA?
Hi PBC family, So, I was diagnosed with PBC 10/10/16. Good news is they found it early. And after a second attempt I seem to be tolerating URSO. Been back on that for 3 weeks. About 5-6 weeks ago I noticed my joints were hurting. First my knees, then progressively over the days to weeks my ankles and
Hi PBC family, So, I was diagnosed with PBC 10/10/16. Good news is they found it early. And after a second attempt I seem to be tolerating URSO. Been back on that for 3 weeks. About 5-6 weeks ago I noticed my joints were hurting. First my knees, then progressively over the days to weeks my ankles and
Ktltel
in
PBC Foundation
7 years ago
dilated bile duct
Does anyone have dilated bile duct? Mine is 8 mm on the MRCP report. I wonder how bad this means. Does Urso keep it under control? --Jane
Does anyone have dilated bile duct? Mine is 8 mm on the MRCP report. I wonder how bad this means. Does Urso keep it under control? --Jane
JaneIng
in
PBC Foundation
7 years ago
Helping a study on ursodeoxycholic
Hi everybody. I received a letter today from a health team asking me if I would like to take part in a study to try and find out why some pbc sufferers respond to urso and some don't. They said my hospital records show I would be a good candidate for the study as I am a responder to urso. They said
Hi everybody. I received a letter today from a health team asking me if I would like to take part in a study to try and find out why some pbc sufferers respond to urso and some don't. They said my hospital records show I would be a good candidate for the study as I am a responder to urso. They said
Lcagar63
in
PBC Foundation
7 years ago
Urso side effects
Hi All, I started Urso about five/six weeks ago and have been feeling okay until the last few days. I feel very achy and with a headache. Has anyone experienced this? Maybe its just a virus I am fighting too. Thanks!
Hi All, I started Urso about five/six weeks ago and have been feeling okay until the last few days. I feel very achy and with a headache. Has anyone experienced this? Maybe its just a virus I am fighting too. Thanks!
youaremysunshine
in
PBC Foundation
7 years ago
Living while waiting for the other shoe to drop!
Diagnosed 6 months ago after 7 years of "unusual" liver tests. My primary ordered the AMA test on the advice of his partner but admitted that I'd have to see someone else if it came back positive since he had no idea what it was! So much blood work, ultrasounds, endoscope, and biopsy resulted in the
Diagnosed 6 months ago after 7 years of "unusual" liver tests. My primary ordered the AMA test on the advice of his partner but admitted that I'd have to see someone else if it came back positive since he had no idea what it was! So much blood work, ultrasounds, endoscope, and biopsy resulted in the
ILik3Pizza
in
PBC Foundation
7 years ago
I really need some advice
A year ago I was referred to gastroenterologist by my rhematologist as he suspected I could have PBC. Waited 4/5 months (Sept 2016) for appointment. Was told by 1st gastro that I would one day need liver transplant. Was sent for ultra sound scan and further blood test. In Nov 2016 I received a copy
A year ago I was referred to gastroenterologist by my rhematologist as he suspected I could have PBC. Waited 4/5 months (Sept 2016) for appointment. Was told by 1st gastro that I would one day need liver transplant. Was sent for ultra sound scan and further blood test. In Nov 2016 I received a copy
bullett
in
PBC Foundation
7 years ago
Urso results
Hello All, So I've been on Urso ~4 months now since being diagnosed with stage 1 PBC and got my bloods done myself at work and I'm soon scheduled for my 6 month review with my GI. I found with my bloods I did myself (just did out of interest to see if I was responding to medication) that my LFTs had
Hello All, So I've been on Urso ~4 months now since being diagnosed with stage 1 PBC and got my bloods done myself at work and I'm soon scheduled for my 6 month review with my GI. I found with my bloods I did myself (just did out of interest to see if I was responding to medication) that my LFTs had
Emer1986
in
PBC Foundation
7 years ago
Feeling bloated
Hello all, Just wondered if anyone suffers from feeling bloated after eating and whether certain foods trigger it? I tend to notice these symptoms if I've had a lot of coffee and tea - does anyone else experience this? I've been on URSO for 2 months now with no side effects, but could this be down to
Hello all, Just wondered if anyone suffers from feeling bloated after eating and whether certain foods trigger it? I tend to notice these symptoms if I've had a lot of coffee and tea - does anyone else experience this? I've been on URSO for 2 months now with no side effects, but could this be down to
happy-days71
in
PBC Foundation
7 years ago
Trouble with vision.
hey folks. I've found I'm having trouble with my vision in the last week or so. Everything is a bit blurry and one eye seems to be affected more than the other. I have only been on urso for 3 or 4 weeks so I wondered if it was a side effect. Has anyone else had trouble after starting to take it? I do
hey folks. I've found I'm having trouble with my vision in the last week or so. Everything is a bit blurry and one eye seems to be affected more than the other. I have only been on urso for 3 or 4 weeks so I wondered if it was a side effect. Has anyone else had trouble after starting to take it? I do
Angel_b
in
PBC Foundation
7 years ago
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