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Uva Ursi
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Ultrasound Vs Fibroscan
Hello Everyone, Well, it's been almost 1 year since I was diagnosed with PBC. I couldn't tolerate URSO at first, so I actually didn't get started on it until February of this year. I've had labs done pretty regularly (approx every 3 weeks) at first because they were watching my LFT's, but then my
Hello Everyone, Well, it's been almost 1 year since I was diagnosed with PBC. I couldn't tolerate URSO at first, so I actually didn't get started on it until February of this year. I've had labs done pretty regularly (approx every 3 weeks) at first because they were watching my LFT's, but then my
Ktltel
in
PBC Foundation
7 years ago
Biopsy results
Hello all, I got a call from my GI's office with the results of my liver biopsy. She said it confirmed the diagnosis of PBC, but that she believes I have an AIH overlap. She said it was not noted on the biopsy results, so the doctor was currently on the phone with the pathologist who read my biopsy
Hello all, I got a call from my GI's office with the results of my liver biopsy. She said it confirmed the diagnosis of PBC, but that she believes I have an AIH overlap. She said it was not noted on the biopsy results, so the doctor was currently on the phone with the pathologist who read my biopsy
IAmTheGlue
in
PBC Foundation
7 years ago
At 6 month mark on urso and somewhat disappointing lab work
Hi! Just an update on me - I've been on urso since 3/30 so almost the 6 month mark. I've been showing steady improvement ( getting labs checked every 2 months) but my ALK jumped up this past week. My AST is down to 48 (was 115 at diagnosis - normal is 34) and my ALT is down to 85 ( was 219) so that's
Hi! Just an update on me - I've been on urso since 3/30 so almost the 6 month mark. I've been showing steady improvement ( getting labs checked every 2 months) but my ALK jumped up this past week. My AST is down to 48 (was 115 at diagnosis - normal is 34) and my ALT is down to 85 ( was 219) so that's
Ottley3
in
PBC Foundation
7 years ago
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Feeling confused, frustrated and worried.
An update, I seem to have been writing no positive posts of late. My latest 6 weeks check up at Addenbrookes, again I did not see George Mell, he is only seeing new patients and each time I attend I seem to be more worried and find that I am not getting answers or politician type answers. I even asked
An update, I seem to have been writing no positive posts of late. My latest 6 weeks check up at Addenbrookes, again I did not see George Mell, he is only seeing new patients and each time I attend I seem to be more worried and find that I am not getting answers or politician type answers. I even asked
Jo_Br
in
PBC Foundation
7 years ago
Advice regarding medication
Hi after some help, I was diagnosed May time by letter saying I am early stages and that I would require regular check ups but I would not require medication at present, I haven't seen a dr since February, have no idea when my next appointment would be, but a little concerned cause I have read that people
Hi after some help, I was diagnosed May time by letter saying I am early stages and that I would require regular check ups but I would not require medication at present, I haven't seen a dr since February, have no idea when my next appointment would be, but a little concerned cause I have read that people
Mnoye
in
PBC Foundation
7 years ago
Advice on taking Urso for a newbie :)
Hi - just wondering for all you experienced PBCers taking Urso - I'm new to this and have been started on Urso 750gmg once day - I've found it giving me lots of GI upset - do any of you take it in divided doses? Or usually just the once a day- thanks in advance?
Hi - just wondering for all you experienced PBCers taking Urso - I'm new to this and have been started on Urso 750gmg once day - I've found it giving me lots of GI upset - do any of you take it in divided doses? Or usually just the once a day- thanks in advance?
KiwiPBC
in
PBC Foundation
7 years ago
Worried about Different Manufacturers for Urso
Since January I've been taking Urso made by the same manufacturer. Recently I've changed pharmacies because their price is 20.00 cheaper. When I went to pick up my prescription there, I saw it was made by a different manufacturer than the one I've always had. I was immediately concerned that it might
Since January I've been taking Urso made by the same manufacturer. Recently I've changed pharmacies because their price is 20.00 cheaper. When I went to pick up my prescription there, I saw it was made by a different manufacturer than the one I've always had. I was immediately concerned that it might
happytrails2u
in
PBC Foundation
7 years ago
What can biopsy show the MRCP did not?
I am facing my liver biopsy tomorrow and I am wondering what the biopsy may show the MRCP did not. The MRCP came back normal so I was not sure if that means likely the biopsy will be good results as well, or what different things it would show. I'm sure the Urso is working though. I'm getting less
I am facing my liver biopsy tomorrow and I am wondering what the biopsy may show the MRCP did not. The MRCP came back normal so I was not sure if that means likely the biopsy will be good results as well, or what different things it would show. I'm sure the Urso is working though. I'm getting less
IAmTheGlue
in
PBC Foundation
7 years ago
Oclavia
G'morning! Received script yesterday. Am little nervous about taking it but what choice. Dr said keep Benadryl on hand in case of itching. So, I opted to get Children's liquid(😂) so it can get in my system quicker. 63 yrs old, but hey, if it works, lol! Pharmacist calculated dosage. Hope I do as well
G'morning! Received script yesterday. Am little nervous about taking it but what choice. Dr said keep Benadryl on hand in case of itching. So, I opted to get Children's liquid(😂) so it can get in my system quicker. 63 yrs old, but hey, if it works, lol! Pharmacist calculated dosage. Hope I do as well
gwillistexas
in
PBC Foundation
7 years ago
Newbie
I'm new to this site. I was diagnosed in June this year with autoimmune hepatitis and pbc overlap. I have been taking 9mg of budesonide steroids and u 10 ml twice a day of urso acid for these conditions and my blood levels have all come down to within normal range, but I still feel rough. Anyone else
I'm new to this site. I was diagnosed in June this year with autoimmune hepatitis and pbc overlap. I have been taking 9mg of budesonide steroids and u 10 ml twice a day of urso acid for these conditions and my blood levels have all come down to within normal range, but I still feel rough. Anyone else
Briggo
in
PBC Foundation
7 years ago
MRCP results
I had my MRCP on Wednesday. I had my babies at the dr today for check ups and my PC said he wanted to talk to me about my results first. It showed nothing at all out of the ordinary which he was very excited about, that we must have caught this somewhat early anyway because cirrhosis or any blockages
I had my MRCP on Wednesday. I had my babies at the dr today for check ups and my PC said he wanted to talk to me about my results first. It showed nothing at all out of the ordinary which he was very excited about, that we must have caught this somewhat early anyway because cirrhosis or any blockages
IAmTheGlue
in
PBC Foundation
7 years ago
Ocaliva and side effects
Hi all, URSO isn't working for me as it should. I was diagnosed 2 years ago and my Alk phos results was over 1000. They are now at 299 but still not reducing as they should. I've been offered to change to Ocaliva or to take part in a clinical trial. I'm concerned about the side effects of Ocaliva but
Hi all, URSO isn't working for me as it should. I was diagnosed 2 years ago and my Alk phos results was over 1000. They are now at 299 but still not reducing as they should. I've been offered to change to Ocaliva or to take part in a clinical trial. I'm concerned about the side effects of Ocaliva but
Fifibee11
in
PBC Foundation
7 years ago
Liver biopsy
Hi . I was diagnosed with pbc just over 3 years ago. I see my consultant once a year, but have my bloods checked Every 6 months. The last few blood tests haven't been so good. So when I saw my consultant in July. She took a full set of bloods & checked for hepatitis, which came back negative. I was
Hi . I was diagnosed with pbc just over 3 years ago. I see my consultant once a year, but have my bloods checked Every 6 months. The last few blood tests haven't been so good. So when I saw my consultant in July. She took a full set of bloods & checked for hepatitis, which came back negative. I was
Carolebroadbent
in
PBC Foundation
7 years ago
Urso side effects
Do side effects like cramps, nausea, diarrhea and lightheaded Ness go away with time? Just dx'd and started on Urso
Do side effects like cramps, nausea, diarrhea and lightheaded Ness go away with time? Just dx'd and started on Urso
Birdsong33
in
PBC Foundation
7 years ago
fibro v pbc
hi all i have had pbc 8 yrs urso 1000mgfor last 3 was diagnosed fibro 2 yr back how am isupposed to know whats what in term of sympton last liver con was very rude and disagreed with me fatigue was coming. from fibro i gave up my job at christmas as i could nt manage anymore he sent letter to my gp
hi all i have had pbc 8 yrs urso 1000mgfor last 3 was diagnosed fibro 2 yr back how am isupposed to know whats what in term of sympton last liver con was very rude and disagreed with me fatigue was coming. from fibro i gave up my job at christmas as i could nt manage anymore he sent letter to my gp
Hidden
in
PBC Foundation
7 years ago
URSO intake Time table
This disease is really surprising, yesterday I was doing great and I had my Urso 2,5 hrs later than I used to and went to bed. At 4:00 am woke up with sickness and a pain from my diaphragm to my lower tummy, cramps like gases and I could not sleep any longer. I made pooh 3 times but normal consistency
This disease is really surprising, yesterday I was doing great and I had my Urso 2,5 hrs later than I used to and went to bed. At 4:00 am woke up with sickness and a pain from my diaphragm to my lower tummy, cramps like gases and I could not sleep any longer. I made pooh 3 times but normal consistency
ritarobainapbc
in
PBC Foundation
7 years ago
Short Lived responder to Urso
I fell I have not been here for ages. I was away on my hols for a fortnight, Granny care has been pretty full on since. My last visit to Addenbrookes confirmed the Anti-GP 210 marked a more progressive journey but support and treatment would be the same. While there had usual blood tests on the day,
I fell I have not been here for ages. I was away on my hols for a fortnight, Granny care has been pretty full on since. My last visit to Addenbrookes confirmed the Anti-GP 210 marked a more progressive journey but support and treatment would be the same. While there had usual blood tests on the day,
Jo_Br
in
PBC Foundation
7 years ago
Is Azathioprine indicated for pbc
Hi Again. just went to the GI, and yes it's confirmed I have PBC. So far I drink 1000 mg of Urso but I was proscribed today Azathioprine 50 mg. But reading about it scares me. Has any body taken this. Is it safe?? It says it cause hepátic insuficiente. I don't know of I should take it. I am asymptomatic
Hi Again. just went to the GI, and yes it's confirmed I have PBC. So far I drink 1000 mg of Urso but I was proscribed today Azathioprine 50 mg. But reading about it scares me. Has any body taken this. Is it safe?? It says it cause hepátic insuficiente. I don't know of I should take it. I am asymptomatic
YADILURO
in
PBC Foundation
7 years ago
Just recently diagnosed with PBC
Hi! I have been recently diagnosed with PBC. Definately not what I was expecting since Dr thought it was Lupus or Rheumatoid Arthritis. I am 45 and started having these different symptoms 7 years ago like fatigue, shortness of breath, itchy rash sometimes, irritated eyes, dry mouth/throat,severe
Hi! I have been recently diagnosed with PBC. Definately not what I was expecting since Dr thought it was Lupus or Rheumatoid Arthritis. I am 45 and started having these different symptoms 7 years ago like fatigue, shortness of breath, itchy rash sometimes, irritated eyes, dry mouth/throat,severe
Krichards1971
in
PBC Foundation
7 years ago
Really ticked off
So, I haven't been on here in a while and you may or may not remember, I could not tolerate urso at all. I lost my hair, I was nauseous all the time, I itched like crazy and my stomach aches woke me up at night. I have been off of it over 2 years, feeling fine I might add. I have been trying to get
So, I haven't been on here in a while and you may or may not remember, I could not tolerate urso at all. I lost my hair, I was nauseous all the time, I itched like crazy and my stomach aches woke me up at night. I have been off of it over 2 years, feeling fine I might add. I have been trying to get
donna01
in
PBC Foundation
7 years ago
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