Oclavia : G'morning! Received script... - PBC Foundation

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Oclavia

gwillistexas profile image
•15 Replies

G'morning! Received script yesterday. Am little nervous about taking it but what choice. Dr said keep Benadryl on hand in case of itching. So, I opted to get Children's liquid(😂) so it can get in my system quicker. 63 yrs old, but hey, if it works, lol! Pharmacist calculated dosage. Hope I do as well as some of you on Oclavia. I read that for years, Urso was the only available drug in Europe. Mortality rate was high among women there who could not tolerate Urso. So Europe was the driving force to get Oclavia going. I believe it said Oclavia is now available in 27 or 28 States. Mine came from South Dakota. Seems to be a promising &iLife saving drug for many.

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EileenUSA profile image
EileenUSA

Stay positive! Believe that you WILL respond to it and you won't experience intolerable side effects. Good to be prepared with Benadryl ( smart to get liquid version 😀) I'm 65 btw. Here's hoping we still have a good run ahead of us!

gwillistexas profile image
gwillistexas• in reply toEileenUSA

Thank you! Yes ma'am I plan to still be fighting PBC a long time from now. Women are tough that way😊

gwillistexas profile image
gwillistexas• in reply toEileenUSA

Do you take Oclavia?

EileenUSA profile image
EileenUSA• in reply togwillistexas

No, I am on URSO and so far responding, I also intentionally lost 18-20 pounds over last 2 years.. belly fat.

Wish u all the best.

gwillistexas profile image
gwillistexas• in reply toEileenUSA

That's wonderful. Stay in touch🌷

Shulsey profile image
Shulsey

Good luck with it. Mine comes in by FedEx from Tennessee😊

gwillistexas profile image
gwillistexas• in reply toShulsey

Thanks! Hope you're feeling okay😊

dianne721 profile image
dianne721

Would be interested in hearing how it goes for you on Oclavia. Keep me posted. What is stage of your PBC.

Dianne Dennis

gwillistexas profile image
gwillistexas• in reply todianne721

Dianne, I don't know stage just yet. Fibroscan next Thursday, 14th

gwillistexas profile image
gwillistexas• in reply todianne721

What do you take?

dianne721 profile image
dianne721• in reply todianne721

Stay informed and keep me posted.

dianne721 profile image
dianne721

Urso, which I handle find. Much itching at first, but adjusted nicely. Numbers just aren't getting as low as the Mayo Clinic wants to see.

gwillistexas profile image
gwillistexas• in reply todianne721

I was on Urso 1 1/2 weeks. Started little itch & progressed to hives. First my rear cheeks, next day inside thigh & face felt itchy. That's when I called dr. He just said something unit I couldn't tolerate. He says Oclavia has different ingredients so we're hoping...😊

dianne721 profile image
dianne721

Good luck with it. 😊

gwillistexas profile image
gwillistexas• in reply todianne721

Thank. You 😀

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