G'morning! Received script yesterday. Am little nervous about taking it but what choice. Dr said keep Benadryl on hand in case of itching. So, I opted to get Children's liquid(😂) so it can get in my system quicker. 63 yrs old, but hey, if it works, lol! Pharmacist calculated dosage. Hope I do as well as some of you on Oclavia. I read that for years, Urso was the only available drug in Europe. Mortality rate was high among women there who could not tolerate Urso. So Europe was the driving force to get Oclavia going. I believe it said Oclavia is now available in 27 or 28 States. Mine came from South Dakota. Seems to be a promising &iLife saving drug for many.
Oclavia : G'morning! Received script... - PBC Foundation
Oclavia

Written by

gwillistexas
To view profiles and participate in discussions please or .
Read more about...
15 Replies
•
Stay positive! Believe that you WILL respond to it and you won't experience intolerable side effects. Good to be prepared with Benadryl ( smart to get liquid version 😀) I'm 65 btw. Here's hoping we still have a good run ahead of us!
Thank you! Yes ma'am I plan to still be fighting PBC a long time from now. Women are tough that way😊
Would be interested in hearing how it goes for you on Oclavia. Keep me posted. What is stage of your PBC.
Dianne Dennis
Urso, which I handle find. Much itching at first, but adjusted nicely. Numbers just aren't getting as low as the Mayo Clinic wants to see.
Not what you're looking for?
You may also like...
Lab Results - 1 month on Oclavia
I got my lab results this morning. July 5th my ALKP was 240. It is now 179. AST was 48 & is now 41....
Non -responder to ursodeoxycholic acid
Hi everyone
So I saw my consultant on 18th June and he told me I’m not responding to urso !!!
He...
New GI states Urso will not help my PBC
I was diagnosed last August with PBC and prescribed Urso. Although I never started taking the drug,...
MRE with evidence of fibrosis ptogression
I was diagnosed in 2016 and have been on URSO since then. Thought to have been in very early...
For people who did not respond to Urso, has Ocaliva had a more positive effect?
My partner has been taking Urso for several years and it has not appeared to be helping at all. We...