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We understand....
In my initial bio, I related to you that I had PBC for some 20 years before receiving a life saving liver transplant almost 19 years ago. In about 25% of those with liver transplants the PBC returns. We have to remember that our body still has the tendency to 'attack' it's own bile ducts and bile duct
In my initial bio, I related to you that I had PBC for some 20 years before receiving a life saving liver transplant almost 19 years ago. In about 25% of those with liver transplants the PBC returns. We have to remember that our body still has the tendency to 'attack' it's own bile ducts and bile duct
DonnaBoll
Administrator
in
PBC Foundation
2 months ago
Urso Calculator
https://www.pbcfoundation.org.uk/what-is-pbc/urso-calculator/ Urso dosage is ONLY based on your body weight - [u][i]
never
[/i][/u] lab results or increase of symptoms. It is so important to take the right dose. This can often be a reason for no decrease in elevated liver enzymes. Look to see
https://www.pbcfoundation.org.uk/what-is-pbc/urso-calculator/ Urso dosage is ONLY based on your body weight - [u][i]
never
[/i][/u] lab results or increase of symptoms. It is so important to take the right dose. This can often be a reason for no decrease in elevated liver enzymes. Look to see
DonnaBoll
Administrator
in
PBC Foundation
2 months ago
Mrs d
Hi i was diagnosed with PBC 15 years ago by chance, I have responded well to Urso my Alkaline Phosphate is now 130 initially 400. I have very dry eyes get the itch off and on for a few days at a time i do get very fatigued and call myself a half a day person, I also have asthma that is well controlled
Hi i was diagnosed with PBC 15 years ago by chance, I have responded well to Urso my Alkaline Phosphate is now 130 initially 400. I have very dry eyes get the itch off and on for a few days at a time i do get very fatigued and call myself a half a day person, I also have asthma that is well controlled
coronavirus19
in
PBC Foundation
2 months ago
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overlap RA, medication?
I was Dx with overlap rheumatoid arthritis. I have had PBC for 15 years, controlled well by URSO. In terms of RA, rheumatologist says this really limits medications given so many of the standard RA medications can damage the liver. For now I am on steroids. Can anyone else in the PBC community speak
I was Dx with overlap rheumatoid arthritis. I have had PBC for 15 years, controlled well by URSO. In terms of RA, rheumatologist says this really limits medications given so many of the standard RA medications can damage the liver. For now I am on steroids. Can anyone else in the PBC community speak
CeeCee101
in
PBC Foundation
2 months ago
delay..
I need to apologize to so many of our newer members. Beginning in this role February 1st, I am still learning. I just found out, being new as the facilitator of this amazing group, how to find the names of the 'new' members..... let me introduce myself to all of you. Hi - and welcome! My name is
I need to apologize to so many of our newer members. Beginning in this role February 1st, I am still learning. I just found out, being new as the facilitator of this amazing group, how to find the names of the 'new' members..... let me introduce myself to all of you. Hi - and welcome! My name is
DonnaBoll
Administrator
in
PBC Foundation
2 months ago
Urso Dosage
just wondering about Urso and the proper dosage by weight. I am 135 pounds, and am on 750 mg of Urso. By my calculations, i should be on about 930. Since the tablets only break into 250 g segments, would that dosage be correct or should it be topped up to 930?
just wondering about Urso and the proper dosage by weight. I am 135 pounds, and am on 750 mg of Urso. By my calculations, i should be on about 930. Since the tablets only break into 250 g segments, would that dosage be correct or should it be topped up to 930?
Gaspereaux
in
British Liver Trust
2 months ago
Palmar Erythema
Do red splotchy palms every go away or am i blessed with them forever? I have been on Urso four months……
Do red splotchy palms every go away or am i blessed with them forever? I have been on Urso four months……
Gaspereaux
in
British Liver Trust
2 months ago
Wednesday Words
The words this week I want to define are
alkaline phosphatase.
Alkaline phosphatase (ALP)
is an enzyme that is released by the bile ducts cells ( among other organs). The release of ALP is a marker of stress or injury. So the more injury or stress to the bile duct cells, the higher
The words this week I want to define are
alkaline phosphatase.
Alkaline phosphatase (ALP)
is an enzyme that is released by the bile ducts cells ( among other organs). The release of ALP is a marker of stress or injury. So the more injury or stress to the bile duct cells, the higher
DonnaBoll
Administrator
in
PBC Foundation
2 months ago
curious capsules or tablets
Hello Friends, just curious what people in our group are taking urso capsules or tablets?
Hello Friends, just curious what people in our group are taking urso capsules or tablets?
Samanthaann
in
PBC Foundation
2 months ago
Please check!
Earlier today I posted the link to the PBC Foundaton's Urso calculator. There are so many posts and questions relating to Urso that I thought it was important for everyone to make sure they are on the right dose. This 'calculator' is also available on the PBC app. Knowing you are taking the right dose
Earlier today I posted the link to the PBC Foundaton's Urso calculator. There are so many posts and questions relating to Urso that I thought it was important for everyone to make sure they are on the right dose. This 'calculator' is also available on the PBC app. Knowing you are taking the right dose
DonnaBoll
Administrator
in
PBC Foundation
2 months ago
Grade 3 Fatty Liver - Liver Enzymes keeps on elevating
Last month I was diagnosed with grade 3 fatty liver through an ultrasound. I am 27 & extremely obese ( BMI - 33 ) . Just before that I had a drug reaction which led to short term Hemolytic Anemia and Jaundice . At that time everything on my LFT was elevated . It's been 40 days everything else on my LFT
Last month I was diagnosed with grade 3 fatty liver through an ultrasound. I am 27 & extremely obese ( BMI - 33 ) . Just before that I had a drug reaction which led to short term Hemolytic Anemia and Jaundice . At that time everything on my LFT was elevated . It's been 40 days everything else on my LFT
Imviiku
in
Living with Fatty Liver and NASH
2 months ago
URSO and Fatigue
Question about URSO….is it really better to take your dose at two different times? I read that the liver works the bile through your body more while you are sleeping. I am much better at remembering by medication in the morning, as sometimes I am not home at dinner time. Is it ok to take it all at
Question about URSO….is it really better to take your dose at two different times? I read that the liver works the bile through your body more while you are sleeping. I am much better at remembering by medication in the morning, as sometimes I am not home at dinner time. Is it ok to take it all at
Gaspereaux
in
British Liver Trust
2 months ago
Urso calculator
I've asked Robert to post the image of the Urso dosage calculator here. Please make sure you are on the right dose. This is so important! Dosage is ONLY based on body weight- never lab results or symptoms. The Urso calculator is in the PBC app as well. If someone needs the calculator in another language
I've asked Robert to post the image of the Urso dosage calculator here. Please make sure you are on the right dose. This is so important! Dosage is ONLY based on body weight- never lab results or symptoms. The Urso calculator is in the PBC app as well. If someone needs the calculator in another language
DonnaBoll
Administrator
in
PBC Foundation
2 months ago
PBC, now cirrhosis
HiHad PBC diagnosed for 5 yrs but Alp up since 2012. Been on Urso for 5 yrs and great. In 2021 my ALT was slightly out of range but ignored by the specialist. GP flagged it up January 2023 and I had an ultrasound just showed enlarged spleen. Fibroscan in April jumped from stage one to bottom of stage
HiHad PBC diagnosed for 5 yrs but Alp up since 2012. Been on Urso for 5 yrs and great. In 2021 my ALT was slightly out of range but ignored by the specialist. GP flagged it up January 2023 and I had an ultrasound just showed enlarged spleen. Fibroscan in April jumped from stage one to bottom of stage
Beatrice110924
in
Sjogren's Support
2 months ago
New Diagnosis of PBC and Prescribed URSO
Hello Everyone, I recently was diagnosed with PBC and went to see a GI doctor who recommended I start taking URSO. My bloodwork shows an elevated alk phos level (over time), positive AMA, GGT, DSDNA and I also was recently diagnosed last year with an MPN (myeloproliferative neoplasm) called essential
Hello Everyone, I recently was diagnosed with PBC and went to see a GI doctor who recommended I start taking URSO. My bloodwork shows an elevated alk phos level (over time), positive AMA, GGT, DSDNA and I also was recently diagnosed last year with an MPN (myeloproliferative neoplasm) called essential
Toddyboo
in
PBC Foundation
3 months ago
Has any of you with PBC taken Sulfasalazine ( for RA). If so what has been your experience.? Thank you!
I was diagnosed with PBC in 2000 and am doing relatively well with PBC (just little deterioration ). I have been on Urso since.
I was diagnosed with PBC in 2000 and am doing relatively well with PBC (just little deterioration ). I have been on Urso since.
jnblack
in
PBC Foundation
3 months ago
Ankle and leg swelling on Urso
Hi everyone, has anyone had ankle and leg swelling as a side effect of taking urso? Any suggestions on what to do to help with this? Thanks
Hi everyone, has anyone had ankle and leg swelling as a side effect of taking urso? Any suggestions on what to do to help with this? Thanks
MSJT
in
PBC Foundation
3 months ago
to all our newly diagnosed people
Hi - and welcome! My name is Donna - I facilitate this support group for The PBC Foundation. First of all, take a breath. It’s ok. We all, myself included, have been exactly where you are right now…. scared, unsure, mad, sad and so much more. Don’t google - get your info mainly from The PBC Foundation
Hi - and welcome! My name is Donna - I facilitate this support group for The PBC Foundation. First of all, take a breath. It’s ok. We all, myself included, have been exactly where you are right now…. scared, unsure, mad, sad and so much more. Don’t google - get your info mainly from The PBC Foundation
DonnaBoll
Administrator
in
PBC Foundation
3 months ago
taking Urso
I know some of you have already read the comments on the FB page. The subject of taking Urso, even though it causes so many side effects and ‘doesn’t keep me from dying’, has been brought up. I feel in my heart I need to offer my thoughts. I have been taking Urso for over 35 years. I had PBC for 20
I know some of you have already read the comments on the FB page. The subject of taking Urso, even though it causes so many side effects and ‘doesn’t keep me from dying’, has been brought up. I feel in my heart I need to offer my thoughts. I have been taking Urso for over 35 years. I had PBC for 20
DonnaBoll
Administrator
in
PBC Foundation
3 months ago
Take all Urso dose at once?
Prof Jones book arrived today - although my 1st impulse was to sit down and read from cover to cover real life restricted me to a quick flick through. He writes that it’s better to take all daily Urso dose at night. Advice on mine is twice a day with or after food. Any thoughts?
Prof Jones book arrived today - although my 1st impulse was to sit down and read from cover to cover real life restricted me to a quick flick through. He writes that it’s better to take all daily Urso dose at night. Advice on mine is twice a day with or after food. Any thoughts?
DebatDG9
in
PBC Foundation
3 months ago
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