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Uva Ursi
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Encouraging fibroscan and elastography results
Hi my friends, I wanted to share some good results I’ve had - and not just encouraging for me I hope, because I think this shows once more that it’s possible to remain stable for decades. I’ve just had my fibroscan and shear wave elastography results, and they’re still in normal range 17 years after
Hi my friends, I wanted to share some good results I’ve had - and not just encouraging for me I hope, because I think this shows once more that it’s possible to remain stable for decades. I’ve just had my fibroscan and shear wave elastography results, and they’re still in normal range 17 years after
Skypony
in
PBC Foundation
5 years ago
Nausea with Urso
Hi everyone, I was diagnosed 6 months ago and am taking Urso 500 mg twice per day. It seems to be working, at least my liver labs haven't gotten worse. My question is whether anyone else has severe nausea with Urso. I do take it with food, and have tried taking it right after eating instead of before
Hi everyone, I was diagnosed 6 months ago and am taking Urso 500 mg twice per day. It seems to be working, at least my liver labs haven't gotten worse. My question is whether anyone else has severe nausea with Urso. I do take it with food, and have tried taking it right after eating instead of before
lilygrower
in
PBC Foundation
5 years ago
Knee pain
Hi everyone, I was diagnosed PBC negative, early stage, and have been taking Urso for 5 weeks now. For the past 2 weeks I have had a lot of pain in my knees and difficulty climbing up stairs. Is it OK to take pain killers? And does anyone take milk thistle, vitamins or turmeric? Not sure if any of these
Hi everyone, I was diagnosed PBC negative, early stage, and have been taking Urso for 5 weeks now. For the past 2 weeks I have had a lot of pain in my knees and difficulty climbing up stairs. Is it OK to take pain killers? And does anyone take milk thistle, vitamins or turmeric? Not sure if any of these
Spanishnan
in
PBC Foundation
5 years ago
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Plaquonil
Hi All, Anyone with PBC and Sjogrens? the hospital has just put me on Plaquonil and I read the contra indications and now Im too scared to take them! Im 76 and my hands are hurting all the time. Im on Urso and Blood Pressure meds. Im inclined to just not bother taking it. Has anyone any good
Hi All, Anyone with PBC and Sjogrens? the hospital has just put me on Plaquonil and I read the contra indications and now Im too scared to take them! Im 76 and my hands are hurting all the time. Im on Urso and Blood Pressure meds. Im inclined to just not bother taking it. Has anyone any good
kandiepat
in
PBC Foundation
5 years ago
Elevating alp/alk
Am I rejecting Urso or is it quitting on me? My alk elevated 20 points two months ago, now it’s 91 which is 10 points higher than last month. Still in range but elevating. How did you all/alk elevate when you learned that you are not responding anymore
Am I rejecting Urso or is it quitting on me? My alk elevated 20 points two months ago, now it’s 91 which is 10 points higher than last month. Still in range but elevating. How did you all/alk elevate when you learned that you are not responding anymore
Jennyhadenough
in
PBC Foundation
5 years ago
Little White Bumps on Chest, Shoulders, Back, Arms, Jaw etc with PBC?
Hi Everyone, I was diagnosed not quite a year and a half ago. I have been taking Urso since then and I'm currently waiting for my follow up appointment to see how I am reacting to them. I keep finding little white bumps on my skin, with what seems like tiny, hard white cores. They are not like spots
Hi Everyone, I was diagnosed not quite a year and a half ago. I have been taking Urso since then and I'm currently waiting for my follow up appointment to see how I am reacting to them. I keep finding little white bumps on my skin, with what seems like tiny, hard white cores. They are not like spots
FairyFae
in
PBC Foundation
5 years ago
Urso causing hairloss! Any treatment?
I have been diagnosed by Pbc about three years ago lots hairloss which worries me so much. Are there sny treatments that can stop the hairloss?
I have been diagnosed by Pbc about three years ago lots hairloss which worries me so much. Are there sny treatments that can stop the hairloss?
oranos
in
PBC Foundation
5 years ago
Urso effects
Hi everyone. I have been in urso almost a month now and I noticed my stools, sorry to be so personal, seem to now have white mucus in them . Is this normal with urso . Why would this happen now and not before I took meds?
Hi everyone. I have been in urso almost a month now and I noticed my stools, sorry to be so personal, seem to now have white mucus in them . Is this normal with urso . Why would this happen now and not before I took meds?
tnchikadee
in
British Liver Trust
5 years ago
Itching & Urso?
Can anyone please offer me some advice I am going crazy with itching. I’ve had it for 3 weeks now, every day & night. I’ve not been on urso long & wonder if that’s causing me to itch. I’ve never itched like this before & I can’t cope. Or do I now have “the itch”? I woke up this morning with really sore
Can anyone please offer me some advice I am going crazy with itching. I’ve had it for 3 weeks now, every day & night. I’ve not been on urso long & wonder if that’s causing me to itch. I’ve never itched like this before & I can’t cope. Or do I now have “the itch”? I woke up this morning with really sore
Karaxxx
in
PBC Foundation
5 years ago
Started Tricor
I am a 64 year old woman and I was diagnosed with PBC in 2012. I had high LFT's and it was confirmed with a liver biopsy. I was put on URSO and my LFT'S came down. About 2 years ago my numbers went way up. I have been very fortunate as I don't experience the itching or extreme fatigue. My gastroenterologist
I am a 64 year old woman and I was diagnosed with PBC in 2012. I had high LFT's and it was confirmed with a liver biopsy. I was put on URSO and my LFT'S came down. About 2 years ago my numbers went way up. I have been very fortunate as I don't experience the itching or extreme fatigue. My gastroenterologist
brjl
in
PBC Foundation
5 years ago
Urso brands
Just a query, just collected my repeat prescription for Urso, have been given white tablets instead of the orange Ones I’ve had recently. Also they are manufactured by 2 different companies. This will mean I have 3 different types of manufactured tabs until the orange ones are finished. Is this normal
Just a query, just collected my repeat prescription for Urso, have been given white tablets instead of the orange Ones I’ve had recently. Also they are manufactured by 2 different companies. This will mean I have 3 different types of manufactured tabs until the orange ones are finished. Is this normal
P13jne
in
PBC Foundation
5 years ago
Very stressed
Hi. Lots of changes in my life right now. I am 72 - diagnosed June 2017. However, I’ve had high ALP & GGT for years . Just not PBC . Two liver resections.. I only have right lobe left I moved to a supportive environment because of the increasing fatigue and pain in right side under ribs. It was
Hi. Lots of changes in my life right now. I am 72 - diagnosed June 2017. However, I’ve had high ALP & GGT for years . Just not PBC . Two liver resections.. I only have right lobe left I moved to a supportive environment because of the increasing fatigue and pain in right side under ribs. It was
Jeanb47
in
PBC Foundation
5 years ago
Fenofibrate
Hello I was diagnosed 3 years ago and my levels have remained somewhat steady but with minimal elevation. I have a few glasses of wine a week maybe 3 with meals . My alkaline phosphate lévels is what I’m referring to . My gastrointerologist is now wanting to add fenofibrate to try to bring the levels
Hello I was diagnosed 3 years ago and my levels have remained somewhat steady but with minimal elevation. I have a few glasses of wine a week maybe 3 with meals . My alkaline phosphate lévels is what I’m referring to . My gastrointerologist is now wanting to add fenofibrate to try to bring the levels
Seybeaute
in
PBC Foundation
5 years ago
Lab Values and Fibrosis
Hello everyone, I had a recheck on my labs and everything is finally in normal range! ALP-89, ALT/AST-both 19. Woot! Woot! So very thankful that I responded to Urso fairly quickly as my ALP was around 200 when diagnosed. However, I still have concerns about the fibrosis continuing even with good labs
Hello everyone, I had a recheck on my labs and everything is finally in normal range! ALP-89, ALT/AST-both 19. Woot! Woot! So very thankful that I responded to Urso fairly quickly as my ALP was around 200 when diagnosed. However, I still have concerns about the fibrosis continuing even with good labs
HealthyChik
in
PBC Foundation
5 years ago
Abdominal Cramp Pain
Hi just wondering if anyone taking Urso has had any effects such as severe cramp/nausea and sweating half hour after eating. I’ve been on Urso since start of Feb 19. Possibly a coincidence but worrying. Thanks
Hi just wondering if anyone taking Urso has had any effects such as severe cramp/nausea and sweating half hour after eating. I’ve been on Urso since start of Feb 19. Possibly a coincidence but worrying. Thanks
P13jne
in
PBC Foundation
5 years ago
New brand of Urso
Hi all, I currently take 300 mg capsules of ursodiol and I usually receive an all white capsule labeled "WATSON 3159" which I tolerate with no problems. I picked up my prescription today and got a new brand. It is a light pink and white capsule labeled "LANNETT 1326". Anyone taking this and what's your
Hi all, I currently take 300 mg capsules of ursodiol and I usually receive an all white capsule labeled "WATSON 3159" which I tolerate with no problems. I picked up my prescription today and got a new brand. It is a light pink and white capsule labeled "LANNETT 1326". Anyone taking this and what's your
HealthyChik
in
PBC Foundation
5 years ago
Question about elastograph ultrasound result
Good morning everyone. I was diagnosed last October after elevated Alk Phos for almost a year and positive AMA. I had my first elastograph ultrasound in November 2018 after I refused a liver biopsy (sample from 1 spot, not as wide a look at the liver, etc). The kPA value from the elastograph was 1.92
Good morning everyone. I was diagnosed last October after elevated Alk Phos for almost a year and positive AMA. I had my first elastograph ultrasound in November 2018 after I refused a liver biopsy (sample from 1 spot, not as wide a look at the liver, etc). The kPA value from the elastograph was 1.92
lilygrower
in
PBC Foundation
5 years ago
Hi
After 2 weeks on prednisone and azathioprine my liver enzyme were down to normal range alp=80, alt=44, ast=30 and today I had another every 2 weeks labs done where everything is decreasing alp=55, ast=20 but alt which got stall in 44. So, I’m thinking I might be more aih then pbc..wonder what happens
After 2 weeks on prednisone and azathioprine my liver enzyme were down to normal range alp=80, alt=44, ast=30 and today I had another every 2 weeks labs done where everything is decreasing alp=55, ast=20 but alt which got stall in 44. So, I’m thinking I might be more aih then pbc..wonder what happens
Sachin1234
in
PBC Foundation
5 years ago
Urso, how to take it
My consultant has just prescribed urso 3 to be taken at night, but on the enclosed leaflet it says to take 1 3xday for the first 3 months. How do other newly diagnosed take theirs?
My consultant has just prescribed urso 3 to be taken at night, but on the enclosed leaflet it says to take 1 3xday for the first 3 months. How do other newly diagnosed take theirs?
Spanishnan
in
PBC Foundation
5 years ago
New to the group but not PBC
Hello everyone. Just a brief something about myself. Diagnosed with PBC stage 4 in 2007. Wasn't able to take urso but did well for nearly a decade. Had liver transplant in 2016 and now have (probably) recurrence. Basically I've run the gambit and going for round 2. Everyone have a great day!
Hello everyone. Just a brief something about myself. Diagnosed with PBC stage 4 in 2007. Wasn't able to take urso but did well for nearly a decade. Had liver transplant in 2016 and now have (probably) recurrence. Basically I've run the gambit and going for round 2. Everyone have a great day!
OdinsMom
in
PBCers Organization
5 years ago
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