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Uva Ursi
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Well....... Now what?
Pre\OCA. ON OCA FEB. 8. MAR 11 Ast...18. Ast.... 14 Alt.... 28. Alt..... 21 Bili.... 0.35. Bili.... 0.39 AlkP... 159. AlkP... 169 Albu... 3.5. Albu... 3.5 After 30 days on 5mg Ocaliva & URSO My numbers aren't bad but
Pre\OCA. ON OCA FEB. 8. MAR 11 Ast...18. Ast.... 14 Alt.... 28. Alt..... 21 Bili.... 0.35. Bili.... 0.39 AlkP... 159. AlkP... 169 Albu... 3.5. Albu... 3.5 After 30 days on 5mg Ocaliva & URSO My numbers aren't bad but
Ktltel
in
PBC Foundation
5 years ago
Mri results and official diagnosis
So I got my mri results and official diagnosis of PBC. Alp ast alt elevated/ positive for ama like really positive . MRI showed tiny benign tumor on liver. And that I was born with an odd pancreas. Basically how doc put it most ppl pancreas connects to liver with one driveway .. I have 2 driveways to
So I got my mri results and official diagnosis of PBC. Alp ast alt elevated/ positive for ama like really positive . MRI showed tiny benign tumor on liver. And that I was born with an odd pancreas. Basically how doc put it most ppl pancreas connects to liver with one driveway .. I have 2 driveways to
tnchikadee
in
PBC Foundation
5 years ago
New
I was worked up for PBC a year ago. Had inconclusive results with Gastroenterologist but my Primary care md is concerned for high alkaline phosphotase (6 times normal high) etc. AMA negative and biopsy showed portal inflammation. Urso didn’t lower alp much so was discontinued. Now have very watery diarrhea
I was worked up for PBC a year ago. Had inconclusive results with Gastroenterologist but my Primary care md is concerned for high alkaline phosphotase (6 times normal high) etc. AMA negative and biopsy showed portal inflammation. Urso didn’t lower alp much so was discontinued. Now have very watery diarrhea
Candicelynnc
in
PBC Foundation
5 years ago
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Antibiotics and blood test
Hello friends, I am with urso since my diagnosis 2 years ago ,have my blood test each 3 months and all was slowly being OK but in my last test my liver enzymes are rising up dramatically, also the Alcaline P and bilirrubin are slighty elevated. I had 1 month ago dental surgery and needed Amoxicillin-clavulanic
Hello friends, I am with urso since my diagnosis 2 years ago ,have my blood test each 3 months and all was slowly being OK but in my last test my liver enzymes are rising up dramatically, also the Alcaline P and bilirrubin are slighty elevated. I had 1 month ago dental surgery and needed Amoxicillin-clavulanic
Germania
in
PBC Foundation
5 years ago
Appointment with Gastro today
Hi lovely people, I have an appointment with my Gastro Consultant today. I got a liver biopsy done a couple of months ago so I am expecting the results of that and I also got more bloods took last week as my consultant required ready for the results today. I am a little worried, I've been having a lot
Hi lovely people, I have an appointment with my Gastro Consultant today. I got a liver biopsy done a couple of months ago so I am expecting the results of that and I also got more bloods took last week as my consultant required ready for the results today. I am a little worried, I've been having a lot
Shashwoo
in
PBC Foundation
5 years ago
Burning eyes
Hi everyone I have a question....I have always had dry eyes but since I have been on Urso my eyes start burning anytime they get “wet”. Crying, yawning, or using my eye drops. Has anyone experienced this? Not sure if it’s something I should go see the doc about or just wait for my apt in April.
Hi everyone I have a question....I have always had dry eyes but since I have been on Urso my eyes start burning anytime they get “wet”. Crying, yawning, or using my eye drops. Has anyone experienced this? Not sure if it’s something I should go see the doc about or just wait for my apt in April.
Rottiemommy
in
PBC Foundation
5 years ago
Anyone else have their PBC itch stop?
After beginning treatment for another condition (ET) my PBC itch has almost completely disappeared--so happy! Has anyone else had the itch stop? If your itch stopped did it return? I have stopped taking the meds. for itching. Still take URSO.
After beginning treatment for another condition (ET) my PBC itch has almost completely disappeared--so happy! Has anyone else had the itch stop? If your itch stopped did it return? I have stopped taking the meds. for itching. Still take URSO.
kp1234
in
PBC Foundation
5 years ago
Natural treatment for PBC?
PBC. A lot of questions: Okay, reading here is making me overcome my aversion to taking URSO, especially since I was diagnosed 6 years ago and for the past three weeks my liver has been aching a lot, right under that lowest front right rib. I also read the posts about Mayo Clinic - I’ll try to get myself
PBC. A lot of questions: Okay, reading here is making me overcome my aversion to taking URSO, especially since I was diagnosed 6 years ago and for the past three weeks my liver has been aching a lot, right under that lowest front right rib. I also read the posts about Mayo Clinic - I’ll try to get myself
scthompson
in
PBC Foundation
5 years ago
Am I rejecting Urso
i Have been taking Urso for 2 years. I was doing well for the two years. Two weeks ago I started with diarrhea and bad cramps. I went to the emergency room Sunday and after CT Scan I was admitted for colitis. It’s mild but all stool and blood work came back negative for everything. I’m being given
i Have been taking Urso for 2 years. I was doing well for the two years. Two weeks ago I started with diarrhea and bad cramps. I went to the emergency room Sunday and after CT Scan I was admitted for colitis. It’s mild but all stool and blood work came back negative for everything. I’m being given
Jennyhadenough
in
PBC Foundation
6 years ago
Allergy to the sun
I have been diagnosed with solar urticaria and have tried all sunscreena, all combinations of antihistamines and Xolair injections, (which worked for a short time then quit working.) Has anyone tried PUVA (photosensitivity treatments) or low dose naltrexone? All I can do is wear many layers of clothes
I have been diagnosed with solar urticaria and have tried all sunscreena, all combinations of antihistamines and Xolair injections, (which worked for a short time then quit working.) Has anyone tried PUVA (photosensitivity treatments) or low dose naltrexone? All I can do is wear many layers of clothes
skinnylynne
in
MY SKIN
5 years ago
Muscle Aches
Does anybody get muscle pains. I’m getting them mainly in my legs it doesn’t stop me doing anything and l only notice it when in bed at night. I was diagnosed a year ago and been on URSO ever since, my lfts are now within range thankfully. My lfts had been raised slightly since 2015 but PBC wasn’t picked
Does anybody get muscle pains. I’m getting them mainly in my legs it doesn’t stop me doing anything and l only notice it when in bed at night. I was diagnosed a year ago and been on URSO ever since, my lfts are now within range thankfully. My lfts had been raised slightly since 2015 but PBC wasn’t picked
kingsnorth
in
PBC Foundation
6 years ago
Cost of urso. Where can I order it?
I live in the US. My insurance covers the Ursodiol and my cost had been $10 a month. It is still covered, but my cost jumped to $191!. I used a Good Rx coupon and got it down to $146, but that's just not sustainable. I take 300mg 2x's a day. Does anyone know of a reliable Canadian pharmacy from which
I live in the US. My insurance covers the Ursodiol and my cost had been $10 a month. It is still covered, but my cost jumped to $191!. I used a Good Rx coupon and got it down to $146, but that's just not sustainable. I take 300mg 2x's a day. Does anyone know of a reliable Canadian pharmacy from which
Triciawc
in
PBC Foundation
6 years ago
My Endocrinologist won’t refer me for my PBC
Got diagnosed 9 months ago through auto antibody tests, my doc is leaving the referral to my Endo and he doesn’t think I need Urso in until I have symptoms And he doesn’t feel it does anything anyway, I had early signed picked up through endoscopy to look at gall bladder and ducts in 2015 all liver
Got diagnosed 9 months ago through auto antibody tests, my doc is leaving the referral to my Endo and he doesn’t think I need Urso in until I have symptoms And he doesn’t feel it does anything anyway, I had early signed picked up through endoscopy to look at gall bladder and ducts in 2015 all liver
Joanneconnor
in
PBC Foundation
6 years ago
The Itch
Haven't been on here for such a long time with having pain apps etc then they have been changed etc etc. Anyway I have started the itch my back is covered red with spots it is so irritating I thought I would go mad. I saw my G.P who proscribed which is an steroid cream for a week then progress to Balneum
Haven't been on here for such a long time with having pain apps etc then they have been changed etc etc. Anyway I have started the itch my back is covered red with spots it is so irritating I thought I would go mad. I saw my G.P who proscribed which is an steroid cream for a week then progress to Balneum
Jude1
in
PBC Foundation
6 years ago
Meds put up
Hiya guys my urso has been increased today from 750 to 1000 a day. Is that a lot?
Hiya guys my urso has been increased today from 750 to 1000 a day. Is that a lot?
BabyK
in
PBC Foundation
6 years ago
Alp levels
I have been on urso for almost a year. My alp is still high. 225. Is this normal?
I have been on urso for almost a year. My alp is still high. 225. Is this normal?
Tootoot
in
PBC Foundation
6 years ago
Happy with first follow up labs
Hi everyone Just wanted to share my first follow up labs, enzymes are going down after 2 months on urso. AST was 80, now is 50 ALT was 100, now 60 ALP was 265, now is 148 ( normal range up to 105) GGT was 195, now is 60 (normal range up to 35) Couldn’t be happier and will give myself a cheat meal 😍
Hi everyone Just wanted to share my first follow up labs, enzymes are going down after 2 months on urso. AST was 80, now is 50 ALT was 100, now 60 ALP was 265, now is 148 ( normal range up to 105) GGT was 195, now is 60 (normal range up to 35) Couldn’t be happier and will give myself a cheat meal 😍
Sona_akb
in
PBC Foundation
6 years ago
Ursodiol
Hi. Has anyone experienced problems with chemists getting your urso prescription? I have about 4 times now , it makes you anxious worrying if they will get the tablets in , I’ve been given eventually destolit ursodol. ( haven’t seen it before ) 150 mg. is this ok.? I normally have wockhardt 300 mg
Hi. Has anyone experienced problems with chemists getting your urso prescription? I have about 4 times now , it makes you anxious worrying if they will get the tablets in , I’ve been given eventually destolit ursodol. ( haven’t seen it before ) 150 mg. is this ok.? I normally have wockhardt 300 mg
Mrsfancypants
in
PBC Foundation
6 years ago
Does it matter what time of the day I take my medication?
Hi. I’m on urso and ocaliva. I started a year ago for not responding to urso. In the beginning I gradually increased ocaliva dose and had no symptoms. A few months ago I developed the itch people talk about. Nightmare! I now have been taking my ocaliva at night instead of the morning and my itch has
Hi. I’m on urso and ocaliva. I started a year ago for not responding to urso. In the beginning I gradually increased ocaliva dose and had no symptoms. A few months ago I developed the itch people talk about. Nightmare! I now have been taking my ocaliva at night instead of the morning and my itch has
Gilz1702
in
PBC Foundation
6 years ago
PBC Stage 0, no medication
Hello again! :) Another question for you since you're ever so helpful :-) Is there anyone who has been diagnosed with PBC and it's really early stages, as in it's dormant and the doctor has decided not to give you URSO because it wouldn't help yet. I've been diagnosed in April 2018, I went nuts, as in
Hello again! :) Another question for you since you're ever so helpful :-) Is there anyone who has been diagnosed with PBC and it's really early stages, as in it's dormant and the doctor has decided not to give you URSO because it wouldn't help yet. I've been diagnosed in April 2018, I went nuts, as in
Beatris03
in
PBC Foundation
6 years ago
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