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feeling cold
got af and am always cold is this a symptom of it . Also pain in left arm when I lay on that side in bed . It usually happens in middle of arm .advice welcome
got af and am always cold is this a symptom of it . Also pain in left arm when I lay on that side in bed . It usually happens in middle of arm .advice welcome
Jarvo977
in
Atrial Fibrillation Support
10 months ago
Afinitor +ESR1 mutation for the hive mind.
Hi I am starting Afinitor on Wednesday after a mixed scan a few weeks ago after 6 months on Orserdu. It suddenly dawned on me that Afinitor is combined with estrogen therapy, likely an AI. But doesn't the ESR1 mutation cause AI resistance? In which case does that make Afinitor less effective? I will
Hi I am starting Afinitor on Wednesday after a mixed scan a few weeks ago after 6 months on Orserdu. It suddenly dawned on me that Afinitor is combined with estrogen therapy, likely an AI. But doesn't the ESR1 mutation cause AI resistance? In which case does that make Afinitor less effective? I will
Pbsoup
in
SHARE Metastatic Breast Cancer
10 months ago
Post Rheumatology Appointment
Thank you to everyone who gave me advice for my Rheumatologist appointment yesterday......it was my first one and I thought I'd give an update on my experience at Benenden Hospital. I have posted this as a response in my original thread too but thought I'd start a new post to see if people found it useful
Thank you to everyone who gave me advice for my Rheumatologist appointment yesterday......it was my first one and I thought I'd give an update on my experience at Benenden Hospital. I have posted this as a response in my original thread too but thought I'd start a new post to see if people found it useful
Paulx222
in
PMRGCAuk
10 months ago
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secondary cancers
Hello I recently read an abstract on 6 year follow up of Ven + Obin. About 20% developed secondary cancers, half of these succumbed to these. The abstract did not address what types of cancers nor recommend specific screening. Does anyone have any DATA on 1. How this 20% compares to CLL patients
Hello I recently read an abstract on 6 year follow up of Ven + Obin. About 20% developed secondary cancers, half of these succumbed to these. The abstract did not address what types of cancers nor recommend specific screening. Does anyone have any DATA on 1. How this 20% compares to CLL patients
skipro
in
CLL Support
10 months ago
Rise in CA125
I’ve recently have had Pneumonia and Pleurisy. My CA125 was checked yesterday and my CNS has just called me to say that it has risen to 64. She also said that it can rise due to the pneumonia and they will discuss it at next weeks MDT meeting. There is a possibility they may repeat my bloods in 4 weeks
I’ve recently have had Pneumonia and Pleurisy. My CA125 was checked yesterday and my CNS has just called me to say that it has risen to 64. She also said that it can rise due to the pneumonia and they will discuss it at next weeks MDT meeting. There is a possibility they may repeat my bloods in 4 weeks
Hota
in
My Ovacome
10 months ago
new MBC drug for PIK3CA mutation in Hr+HER- breast cancer survivors
On Nov 16, 2023, the FDA approved another drug for those who have developed the PIK3CA. Mutation after first line treatment for the HR+HER- type. It’s another drug in the same vein as PIQRAY which also has to be used with Fulvestrant. This one is from AstraZeneca but it seems to have all the same side
On Nov 16, 2023, the FDA approved another drug for those who have developed the PIK3CA. Mutation after first line treatment for the HR+HER- type. It’s another drug in the same vein as PIQRAY which also has to be used with Fulvestrant. This one is from AstraZeneca but it seems to have all the same side
Dragonfly2
in
SHARE Metastatic Breast Cancer
10 months ago
Does anyone have CtDna blood test added In their monitoring routine?
Hi! Kim 43 MBC since 3/2021. I do alot of reading of clinical trials and medical journals. I found this CtDna blood test that SUPPOSEDLY detects cancer cells in the blood up to 10 months sooner than a Petscan. My Oncologist didn't know about this testing so after fielding out all the companies that do
Hi! Kim 43 MBC since 3/2021. I do alot of reading of clinical trials and medical journals. I found this CtDna blood test that SUPPOSEDLY detects cancer cells in the blood up to 10 months sooner than a Petscan. My Oncologist didn't know about this testing so after fielding out all the companies that do
KimberlyB40
in
SHARE Metastatic Breast Cancer
10 months ago
Tumour marker
I have been in Ibrance, Letrozole and six monthly Denusomab shots for 3 years and 9 months with NEADs from the first Pet scan. C15.3 and CEA have fluctuated within the normal range since. PET scan in Sep 23 also showed NEADs. Recent bloods in Thursday showed c15.3 rise to above the normal range
I have been in Ibrance, Letrozole and six monthly Denusomab shots for 3 years and 9 months with NEADs from the first Pet scan. C15.3 and CEA have fluctuated within the normal range since. PET scan in Sep 23 also showed NEADs. Recent bloods in Thursday showed c15.3 rise to above the normal range
Gramat
in
SHARE Metastatic Breast Cancer
10 months ago
Chose Cosmetic surgeon to check mole or wait 4 months for dermatologist?
How can I ascertain, whether the skin lesion at the ear lobe is indeed Basal Cell Cancer as suspected by dermatologist after visual and manual inspection of the area and referred me urgently because of somewhat unclear colour. So only 16 weeks wait instead of 2 years My private health insurance
How can I ascertain, whether the skin lesion at the ear lobe is indeed Basal Cell Cancer as suspected by dermatologist after visual and manual inspection of the area and referred me urgently because of somewhat unclear colour. So only 16 weeks wait instead of 2 years My private health insurance
HalfwayGum
in
Skin Cancer UK
1 year ago
Gazyva and Ventalox
I started G/V treatment 4 months ago. Everything went smoothly for 3.5 months. Now some lymph nodes are appearing on my neck. My Doc stopped the treatment and called for a Pet scan and a biopsy of lymphnode. Anybody been in my situation and what was the plan, diagnosis, options etc.?? Very Nervous, Rob
I started G/V treatment 4 months ago. Everything went smoothly for 3.5 months. Now some lymph nodes are appearing on my neck. My Doc stopped the treatment and called for a Pet scan and a biopsy of lymphnode. Anybody been in my situation and what was the plan, diagnosis, options etc.?? Very Nervous, Rob
CityL
in
CLL Support
10 months ago
solaraze for actinic keratosis
I’ve been suffering from what’s known as solar keratosis which is sun damaged skin on my scalp. The effects include scabs on the scalp as well as slightly inflamed spots. Anyway doctor has given me solaraze to clear it. I’ve been on it for around four weeks of a twelve week course and have found that
I’ve been suffering from what’s known as solar keratosis which is sun damaged skin on my scalp. The effects include scabs on the scalp as well as slightly inflamed spots. Anyway doctor has given me solaraze to clear it. I’ve been on it for around four weeks of a twelve week course and have found that
Profound15
in
Atrial Fibrillation Support
10 months ago
calprotectin levels
Hi just seeing if anyone is in same position or has been Basically I’ve been having bowel issues since I had my son jan 2022 I stayed having constipation lose bowels with blood mucus urgency to go stomach cramps ect So doctor said I needed to do calprotectin test and that came back at 157 repeated
Hi just seeing if anyone is in same position or has been Basically I’ve been having bowel issues since I had my son jan 2022 I stayed having constipation lose bowels with blood mucus urgency to go stomach cramps ect So doctor said I needed to do calprotectin test and that came back at 157 repeated
Lo181
in
Bowel Disease Support
10 months ago
Seeking advice about starting my Ovarian Cancer journey
Hello Everyone, Let me say thanks in advance for any and all advice or comments. It is very kind of you to share your stories and opinions. I may not be able to respond right away. Sorry for such a long post. I just want to get all of my info and questions out there. I will update with new information
Hello Everyone, Let me say thanks in advance for any and all advice or comments. It is very kind of you to share your stories and opinions. I may not be able to respond right away. Sorry for such a long post. I just want to get all of my info and questions out there. I will update with new information
Texas_Mom
in
My Ovacome
10 months ago
nhs complaint
My husband was diagnosed with T3 N3 M1b/c left lung adenocarcinoma in October 2 1 . He had chemo and immunotherapy as well as radiotherapy. In January 2 2 he started getting pain in his neck which he reported to the oncology team at the hospital and it was added to the ct scan in May 2 2. He was told
My husband was diagnosed with T3 N3 M1b/c left lung adenocarcinoma in October 2 1 . He had chemo and immunotherapy as well as radiotherapy. In January 2 2 he started getting pain in his neck which he reported to the oncology team at the hospital and it was added to the ct scan in May 2 2. He was told
Sharkypuss
in
The Roy Castle Lung Cancer Foundation
10 months ago
Subsequent to previous posts
Went back to GP again today after previous visit about clubbed fingers and breathing trouble. Booked an urgent blood test and need to provide samples then I will get a scan to check for cancer. I don't know how I feel about this tbh, wanted him to tell me it was all in my head and for that to be true
Went back to GP again today after previous visit about clubbed fingers and breathing trouble. Booked an urgent blood test and need to provide samples then I will get a scan to check for cancer. I don't know how I feel about this tbh, wanted him to tell me it was all in my head and for that to be true
JHutton1994
in
Lung Conditions Community Forum
10 months ago
Thymus Gland Cancer
My son is 29 years old and has been diagnosed with B2 stage4 of this cancer can anyone help as to if chemotherapy will help shrink his tumor so that he can have a resection?
My son is 29 years old and has been diagnosed with B2 stage4 of this cancer can anyone help as to if chemotherapy will help shrink his tumor so that he can have a resection?
enymeny
in
PMRGCAuk
10 months ago
Reynaud's Problems
Hi there, I'm wondering if anyone has any help or suggestions for me keeping my fingers warm at my work, I'm a postman and my Reynaud's is causing me big problems when the weather is cold my fingers go so cold and numb, I've tried different kind of gloves but nothing works.
Hi there, I'm wondering if anyone has any help or suggestions for me keeping my fingers warm at my work, I'm a postman and my Reynaud's is causing me big problems when the weather is cold my fingers go so cold and numb, I've tried different kind of gloves but nothing works.
Craig_
in
Scleroderma & Raynaud's UK (SRUK)
10 months ago
Black stools
Hi was wondering if anyone has had black stools when you go to the toilet feeling sick and in a lot of pain in your stomach l have cirrhosis of the liver through medication that I was on .
Hi was wondering if anyone has had black stools when you go to the toilet feeling sick and in a lot of pain in your stomach l have cirrhosis of the liver through medication that I was on .
Petrina_gmfc
in
British Liver Trust
10 months ago
Happy Gobble Day
Hello, Hello, been visiting for 7 months first post…I’m a foreigner in Japan with prostate cancer … quite a journey … not that great at Japanese … which makes everything a bit more difficult .. on top of that I broke my finger 4 weeks ago so a bit difficult to type so I’ll keep this short.. appreciate
Hello, Hello, been visiting for 7 months first post…I’m a foreigner in Japan with prostate cancer … quite a journey … not that great at Japanese … which makes everything a bit more difficult .. on top of that I broke my finger 4 weeks ago so a bit difficult to type so I’ll keep this short.. appreciate
Yokohama2023
in
Advanced Prostate Cancer
10 months ago
Xeloda after IV Chemo
Just wondering about Oral Xeloda after 6 rounds of IV Chemo didnt have the exact desired results we wanted. Wondering if there are times Xeloda achieved clear Margins on Liver Mets when IV Chemo didnt after 6rounds. Thanks for any input.
Just wondering about Oral Xeloda after 6 rounds of IV Chemo didnt have the exact desired results we wanted. Wondering if there are times Xeloda achieved clear Margins on Liver Mets when IV Chemo didnt after 6rounds. Thanks for any input.
AutumnLove
in
SHARE Metastatic Breast Cancer
10 months ago
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