Anyone from bolton

[123george]

Ovarian Cancer stage 3 and a low grade diagnosed 2021 had carbo pacactaxal Then on maintenance tablets didn't work for me

Recurrence 6 rounds caelix

Had scan areas of disease waiting list now 4 - 6 weeks for biopsies to see if high grade or low

Small area of fluid

If high back to chemotherapy

If low chemotherapy tablets

[Saintgermain]

Hello,

I’m 3B low grade facing my 1st recurrence also diagnosed in 2021 was the maintenance drug you originally used an Aromatase inhibitor? I’m also waiting for a biopsy hopefully this week I’m interested in the oral chemo pill if it’s low grade my Onc wants me to go back on Carbo/taxol since like yourself am platinum sensitive I like the idea of a pill wish you the best

[123george in reply to Saintgermain]

Hello I can't remember the name of the maintenance tablets NARAB something yes me to you to all the best

[parthenon in reply to 123george]

Very allergic with a anphalactic like reaction to Paxitaxol 3 times 3c stage and i will never agree to this drug again....also 30 minutes of Carboplatin...then perhaps Tamoxifen i am seriously considering never doing chemo again until i know the odds and percentages of time added

[panfield62]

Hi George I'm low grade - this is my 10th year with it. Had 3 surgeries, hormone inhibitors and chemo. Still here and living well. Under the Christie Hospital. Gwen x

[123george in reply to panfield62]

Hi Gwen great to hear your doing well I'm Debra and I'm under the Christie Hospital I sometimes go into the maggies centre x

[panfield62 in reply to 123george]

Presumably u under Prof.Jayson! Occasionally I also go to Maggies. I've been under clinical trials for last 2.5.years but now transferred back to Gynae. I was diagnosed 3b Jan 2014. Gwen x

[123george in reply to panfield62]

Hi im under Dr Hassan I had a high grade and a low grade just seeing what the biopsy tells me if low I will go on chemotherapy tablets he said x

[Saintgermain in reply to panfield62]

Hi Panfield,

Congrats on 10 years I'm always curious are you Low Grade Serous or Endometroid? Also did the hormone inhibitors stop working after a while? Thank you

[panfield62 in reply to Saintgermain]

Saintgetmain I'm low grade. I've had a no of hormone inhibitors. Letrozole worked best for me. Gwen x

[Lizz49]

Hi George

I’m not far from Bolton I’m in Liverpool and also at The Christie under Prof Jayson who has been a lifesaver for me. Also low grade but not currently on any meds as had surgery for a recurrence in March which got me back to NED again. I expect it will come back at some point but trying to live in the moment!

The Maggies centre there is lovely I’ve been a few times. I hope you don’t have to wait too much longer for your biopsies and you get a treatment plan soon. Even in the past 5 years since I was first diagnosed there are so many more treatment options for OC ladies now, I tell myself that when I start to worry about the future!

Keep us posted and sending hugs Xx

[123george in reply to Lizz49]

That's great news I'm Debra it would be lovely to meet you ladies at maggies x

[panfield62 in reply to 123george]

It would be great for us low graders to meet up at Maggies. Any suggestions? Gwen x

[123george]

Hi Gwen I will see if anyone else is interested and then just set a day to suit us x

[123george]

Anyone low grade wanting to meet up at maggies