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AML update
Hello MPN friends, I thought I would post an update on my AML. I am now having Azacitadine and Venetoclax as an in-patient and so far so good - I just have red marks around the injection sites and constipation. I am otherwise well. Shockingly, my husband has been diagnosed with a melanoma just last
Hello MPN friends, I thought I would post an update on my AML. I am now having Azacitadine and Venetoclax as an in-patient and so far so good - I just have red marks around the injection sites and constipation. I am otherwise well. Shockingly, my husband has been diagnosed with a melanoma just last
Otterfield
in
MPN Voice
9 months ago
Having no temperature
Hi, having lupus, we are prone to having lots of infections. I do not generally get a temperature with an infection as body does not fight it off. Is there anyone who does get a temperature when they are ill? I’ve currently got the flu and chest pains with a chesty cough. I have feverish symptoms with
Hi, having lupus, we are prone to having lots of infections. I do not generally get a temperature with an infection as body does not fight it off. Is there anyone who does get a temperature when they are ill? I’ve currently got the flu and chest pains with a chesty cough. I have feverish symptoms with
Zainy10
in
LUPUS UK
9 months ago
Shaking Body & Cold Clammy Hands
Hi all Fortunately my AF episodes are few & far between 🤞, therefore I just take Flecainide as PIP when it kicks off, which it did at 1am this morning. I got up to go to the loo & when I got back to bed I couldn’t stop shaking, I was so cold, then the AF started. My question is does anyone suffer
Hi all Fortunately my AF episodes are few & far between 🤞, therefore I just take Flecainide as PIP when it kicks off, which it did at 1am this morning. I got up to go to the loo & when I got back to bed I couldn’t stop shaking, I was so cold, then the AF started. My question is does anyone suffer
heartmatters1
in
Atrial Fibrillation Support
9 months ago
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Does biopsy spread cancer?
I've been diagnosed with Stage 2/3 PC. I wonder whether biopsies, by piercing the prostrate wall, allow cancer sells to migrate outside the prostate. Certainly e-coli can be pushed into it, since I got sepsis from my directed biopsy. What is the danger of METS being introduced to organs outside it with
I've been diagnosed with Stage 2/3 PC. I wonder whether biopsies, by piercing the prostrate wall, allow cancer sells to migrate outside the prostate. Certainly e-coli can be pushed into it, since I got sepsis from my directed biopsy. What is the danger of METS being introduced to organs outside it with
Eadgbe
in
Prostate Cancer Network
9 months ago
Pneumonia Vaccine
I was talking to a very friendly Doctors wife yesterday who works on his admin and we talked about the amount of people suffering and in some cases hospitalised with pneumonia. She said that the vaccine I was given about 10yrs ago is now not considered to be sufficient protection. It is thought that
I was talking to a very friendly Doctors wife yesterday who works on his admin and we talked about the amount of people suffering and in some cases hospitalised with pneumonia. She said that the vaccine I was given about 10yrs ago is now not considered to be sufficient protection. It is thought that
Ridge
in
PMRGCAuk
9 months ago
Adding Kisqali to Letrozale treatment
It was just suggested to me to add Kisqali to my treatment of Letrozole. I am "cancer free" since I had a masectomy and everything was taken out. Are there any others on this chat with the same experience?
It was just suggested to me to add Kisqali to my treatment of Letrozole. I am "cancer free" since I had a masectomy and everything was taken out. Are there any others on this chat with the same experience?
mimosa412
in
SHARE Metastatic Breast Cancer
9 months ago
Before Fireworks and BallDrops, Where ever you live, please read this now
Please make your year-end secure donation in any currency to Malecare now at https://malecare.org/donate Malecare is more than our massive and active online, Zoom, and in-person support groups. We're one of the world's most productive patient advocacy research groups, with several university and
Please make your year-end secure donation in any currency to Malecare now at https://malecare.org/donate Malecare is more than our massive and active online, Zoom, and in-person support groups. We're one of the world's most productive patient advocacy research groups, with several university and
Darryl
Partner
in
Prostate Cancer Network
9 months ago
Before Fireworks and BallDrops, Where ever you live, please read this now.
Please make your year-end secure donation in any currency to Malecare now at https://malecare.org/donate Malecare is more than our massive and active online, Zoom, and in-person support groups. We're one of the world's most productive patient advocacy research groups, with several university and
Please make your year-end secure donation in any currency to Malecare now at https://malecare.org/donate Malecare is more than our massive and active online, Zoom, and in-person support groups. We're one of the world's most productive patient advocacy research groups, with several university and
Darryl
Partner
in
Advanced Prostate Cancer
9 months ago
Cold symptoms with suppressants
Just trying to figure out how my system is different with the immune suppressants. I recently had a cold but it never got really bad but it is also lasting a long-time. I know someone who had a blood infection and her immune system didn't kick in until it was very severe. She was on immune suppressants
Just trying to figure out how my system is different with the immune suppressants. I recently had a cold but it never got really bad but it is also lasting a long-time. I know someone who had a blood infection and her immune system didn't kick in until it was very severe. She was on immune suppressants
smilelines
in
NRAS
9 months ago
Docetaxel not working so stopped
I promised I would update you after my scan to see how the chemo was progressing. Well, the main reason for the chemo was that spots had appeared in my liver. Last week's CT scan showed that the spots have grown "significantly" so the chemo is not working. Also, my liver function blood test results -
I promised I would update you after my scan to see how the chemo was progressing. Well, the main reason for the chemo was that spots had appeared in my liver. Last week's CT scan showed that the spots have grown "significantly" so the chemo is not working. Also, my liver function blood test results -
Benkaymel
in
Advanced Prostate Cancer
9 months ago
HIFU 2023 article does not seem positive
This article from early 2023 does not seem positive on HIFU. https://link.springer.com/article/10.1007/s00345-023-04352-9 I have a friend looking at HIFU in the setting of a clinical trial. He's Gleason 6 with just 1 of 12 portions of his prostate affected. Technically, he could do active surveillance
This article from early 2023 does not seem positive on HIFU. https://link.springer.com/article/10.1007/s00345-023-04352-9 I have a friend looking at HIFU in the setting of a clinical trial. He's Gleason 6 with just 1 of 12 portions of his prostate affected. Technically, he could do active surveillance
A0007720
in
Prostate Cancer Network
9 months ago
Covid and flu vaccines
I unexpectedly had Covid and flu vaccinations today whilst at the doctor's for something else. Was putting it off but glad it's done now. Today is the day I usually inject my MTX and one nurse said give it a miss this week whilst another said to do it as normal. I decided to give it a miss. Is there
I unexpectedly had Covid and flu vaccinations today whilst at the doctor's for something else. Was putting it off but glad it's done now. Today is the day I usually inject my MTX and one nurse said give it a miss this week whilst another said to do it as normal. I decided to give it a miss. Is there
Manzana1
in
NRAS
9 months ago
Promising, especially for people with LBD mutation: NEJM Evidence publishes results from Phase I/IIa CYPIDES trial with ODM-208
"In phase I, 20 out of the total 47 patients had AR LBD mutation. In phase IIa, all 45 patients had AR LBD mutation. A decrease in PSA (prostate-specific antigen) levels of 50% or more occurred in 14/19 (73.7%) patients with AR LBD mutation and 2/23 (8.7%) AR-wild-type patients in phase I, and in 24/
"In phase I, 20 out of the total 47 patients had AR LBD mutation. In phase IIa, all 45 patients had AR LBD mutation. A decrease in PSA (prostate-specific antigen) levels of 50% or more occurred in 14/19 (73.7%) patients with AR LBD mutation and 2/23 (8.7%) AR-wild-type patients in phase I, and in 24/
Maxone73
in
Advanced Prostate Cancer
9 months ago
Clinical trial NCT05898399: for BRCA (ATM as well I suppose) mutations
Study of ART6043 in Advanced/Metastatic Solid Tumors Patients This company is also developing an interesting ATR inhibitor for ATM mutations https://classic.clinicaltrials.gov/ct2/show/NCT05898399
Study of ART6043 in Advanced/Metastatic Solid Tumors Patients This company is also developing an interesting ATR inhibitor for ATM mutations https://classic.clinicaltrials.gov/ct2/show/NCT05898399
Maxone73
in
Advanced Prostate Cancer
9 months ago
meds fir a cold
I have cll and finally got a stuffy nose and a bit of cough. last time I had this I took sinutab but now I wonder if that is safe. I am not allowed ibuprofen.. By the way I had 5 covid vaccines and and the last one was october 26 and had the RSV vaccine last October 6, 2023. any suggestion?
I have cll and finally got a stuffy nose and a bit of cough. last time I had this I took sinutab but now I wonder if that is safe. I am not allowed ibuprofen.. By the way I had 5 covid vaccines and and the last one was october 26 and had the RSV vaccine last October 6, 2023. any suggestion?
Kmegood
in
CLL Support
9 months ago
Retuximab
Hi guys, Hope you all had a happy healthy New Year :) Unfortunately I had flu, then Covid and what seemed like a virus :( I just started Rituximab infusion 26th September therefore according to the information booklet I’m not meant to have live vaccines (flu, Covid) for 6months after, hence probably
Hi guys, Hope you all had a happy healthy New Year :) Unfortunately I had flu, then Covid and what seemed like a virus :( I just started Rituximab infusion 26th September therefore according to the information booklet I’m not meant to have live vaccines (flu, Covid) for 6months after, hence probably
jopo280886
in
LUPUS UK
9 months ago
Alk phos on Xeloda
Moms just started her 3 cycle today of xeloda. So she’s been on it 6 weeks. Her T bili is normal her ast and alt are normal . But her Alk phos is up. Her doctor said they would continue to monitor it. Anyone else have this elevate on Xeloda ? Thanks so much!
Moms just started her 3 cycle today of xeloda. So she’s been on it 6 weeks. Her T bili is normal her ast and alt are normal . But her Alk phos is up. Her doctor said they would continue to monitor it. Anyone else have this elevate on Xeloda ? Thanks so much!
Flower1513
in
SHARE Metastatic Breast Cancer
9 months ago
Confusing news from oncologist
Hi all, looking for some insight or direction based off of any experiences or similar ones. My dad started chemo in October with a PSA of 126. After 2 rounds of chemo, his PSA rose to 153, we saw some increase in his bone metastasis as according to the scans (posted about this previously). My dad
Hi all, looking for some insight or direction based off of any experiences or similar ones. My dad started chemo in October with a PSA of 126. After 2 rounds of chemo, his PSA rose to 153, we saw some increase in his bone metastasis as according to the scans (posted about this previously). My dad
StayingSTRNG
in
Advanced Prostate Cancer
9 months ago
SBRT #4
Update on yesterday's SBRT #4. The machine that is treating me (Varian Edge) takes two revolutions to administer the fraction. They line you up with lasers and images before, track the fiducials during the rotation (and the machine automatically holds the beam if you and/or your prostate move out of
Update on yesterday's SBRT #4. The machine that is treating me (Varian Edge) takes two revolutions to administer the fraction. They line you up with lasers and images before, track the fiducials during the rotation (and the machine automatically holds the beam if you and/or your prostate move out of
ToolBeltZia
in
Prostate Cancer Network
9 months ago
Cough
hi is anyone one else suffering from a bad cough I have had a course of steroids and it still will not clear it
hi is anyone one else suffering from a bad cough I have had a course of steroids and it still will not clear it
54chelle
in
Asthma Community Forum
9 months ago
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