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Important caveat regarding estrogen therapy
Prof. Richard Wassersug tells me that estrogen therapy may be contraindicated if you have a BRCA 1 or 2 gene mutation. You can get a free, saliva germline genetic test of 30 genes from Color, Inc. as part of the PROMISE registry.
Prof. Richard Wassersug tells me that estrogen therapy may be contraindicated if you have a BRCA 1 or 2 gene mutation. You can get a free, saliva germline genetic test of 30 genes from Color, Inc. as part of the PROMISE registry.
janebob99
in
Prostate Cancer Network
9 months ago
second recurrence
Hi ladies here I am again on my 2nd recurrence. A little bit unusual presentation as I complained of ongoing back pain had,had MRI and CT which had all been clear. Until the most recent scan showed a lymph node under my breast. They have not been able to biopsy it as I have just had a DVT and so I am
Hi ladies here I am again on my 2nd recurrence. A little bit unusual presentation as I complained of ongoing back pain had,had MRI and CT which had all been clear. Until the most recent scan showed a lymph node under my breast. They have not been able to biopsy it as I have just had a DVT and so I am
Hota
in
My Ovacome
9 months ago
Scared my AFib will come back due to very nasty cough.
i had an Ablation in September and have developed this horrendous cough, that’s causing me to nearly throw up. My AFib started in 2014, when I had a nasty coughing virus, so I’m scared this coughing virus will bring it back. This one seems much worse. Has anyone else had this horrible cough. ? Any tips
i had an Ablation in September and have developed this horrendous cough, that’s causing me to nearly throw up. My AFib started in 2014, when I had a nasty coughing virus, so I’m scared this coughing virus will bring it back. This one seems much worse. Has anyone else had this horrible cough. ? Any tips
Sixtychick
in
Atrial Fibrillation Support
8 months ago
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New Malecare AI Assisted PCa Search
For users of the $20 per month ChatGPT account Malecare is the world's first patient advocacy organization to develop and publish GPT's in Open AI's Chat GPT (app) Marketplace! Indeed, we have five apps published! Here they are: Clinical Trial Navigator -- https://chat.openai.com/g/g-rl6cvjdon-clinical-trial-navigator
For users of the $20 per month ChatGPT account Malecare is the world's first patient advocacy organization to develop and publish GPT's in Open AI's Chat GPT (app) Marketplace! Indeed, we have five apps published! Here they are: Clinical Trial Navigator -- https://chat.openai.com/g/g-rl6cvjdon-clinical-trial-navigator
dmt1121
in
Advanced Prostate Cancer
9 months ago
nephrectomy
hi I’m just after a bit of advice I had my right kidney removed 4 weeks ago it was removed robotically and took over 7 hours due to the size of a non cancerous tumour. I had 4 small incisions and one large one lower down which is quite big! My tummy is still very swollen and sore. Is this normal? I
hi I’m just after a bit of advice I had my right kidney removed 4 weeks ago it was removed robotically and took over 7 hours due to the size of a non cancerous tumour. I had 4 small incisions and one large one lower down which is quite big! My tummy is still very swollen and sore. Is this normal? I
higham23
in
MPN Voice
9 months ago
Short-term vs Long-Term ADT for High Risk Men
Here's a review of a recent presentation at ASCO 2023 by Artera.ai regarding the use of Artificial Intelligence analysis of biopsy slides to predict which high-risk men do or don't benefit from short-term ADT vs long-term ADT. Their findings are summarized here: [i]"Based on these results, it appears
Here's a review of a recent presentation at ASCO 2023 by Artera.ai regarding the use of Artificial Intelligence analysis of biopsy slides to predict which high-risk men do or don't benefit from short-term ADT vs long-term ADT. Their findings are summarized here: [i]"Based on these results, it appears
janebob99
in
Prostate Cancer Network
9 months ago
Hanging on
Remarkably mum is still hanging on through sheer grit we think.She's very weak and frail, had another couple of falls. Been in hospital with pneumonia before xmas and had pneumonia again 2 weeks ago. The care home are great but the frustration is the loss of speech for over 2 years now, no way to communicate
Remarkably mum is still hanging on through sheer grit we think.She's very weak and frail, had another couple of falls. Been in hospital with pneumonia before xmas and had pneumonia again 2 weeks ago. The care home are great but the frustration is the loss of speech for over 2 years now, no way to communicate
MRSYafffle
in
PSP Association
8 months ago
First blood test after starting Peg 17/12/2023
Hi, Blood test from 28/12/2023 Platelets down to 427 (previous 580, 560, 504). Elevated Potassium 5.4 and ALT 96. I guess Peg has elevated ALT?? My next FU is March 14th. I’m really hoping I don’t have to increase Peg which is currently 45 weekly.
Hi, Blood test from 28/12/2023 Platelets down to 427 (previous 580, 560, 504). Elevated Potassium 5.4 and ALT 96. I guess Peg has elevated ALT?? My next FU is March 14th. I’m really hoping I don’t have to increase Peg which is currently 45 weekly.
Carol0925
in
MPN Voice
9 months ago
Thoughts on Lignosus
Hello, I have just been in hospital for a week with a bad case of pneumonia, which came out of nowhere. I am only 44 and have no history of respiratory problems. The CT scan also showed mild bronchiectasis, which I am now finding out lots more about thanks to forums like this.I am now being bombarded
Hello, I have just been in hospital for a week with a bad case of pneumonia, which came out of nowhere. I am only 44 and have no history of respiratory problems. The CT scan also showed mild bronchiectasis, which I am now finding out lots more about thanks to forums like this.I am now being bombarded
PuzzlePuff
in
Lung Conditions Community Forum
8 months ago
Mutations
I am on Orserdu (elacestrant) for a ESR1 mutation and feeling great but my CA27-29 tumor marker numbers continue to rise. Prior to this medication I was on Capecitabine for a PIC3 mutation and prior to that Piqray. Does any one know what meds work to target both mutations simultaneously?
I am on Orserdu (elacestrant) for a ESR1 mutation and feeling great but my CA27-29 tumor marker numbers continue to rise. Prior to this medication I was on Capecitabine for a PIC3 mutation and prior to that Piqray. Does any one know what meds work to target both mutations simultaneously?
Healthplus1
in
SHARE Metastatic Breast Cancer
9 months ago
Home now
Hi I would like to share what I've encountered the last 6 months and would love some feedback from anyone I fell ill back in late June 23 It seemed like a cold or flu coming on which turned into pneumonia in both lungs followed by a anti resistant bacterial infection baumanni that led to ards sepsis
Hi I would like to share what I've encountered the last 6 months and would love some feedback from anyone I fell ill back in late June 23 It seemed like a cold or flu coming on which turned into pneumonia in both lungs followed by a anti resistant bacterial infection baumanni that led to ards sepsis
Gl76
in
ICUsteps
8 months ago
Ovarian cancer advice
Diagnosed 2 years ago chemo every 3 weeks for 5 months rest good for 18 months iincureablle stage 4 serious had op blockage removed part bowel husband had heart attack passed that very hard still greaving come back on ovary and spleen part bowel had another 4 sessins chemo lost hair again they
Diagnosed 2 years ago chemo every 3 weeks for 5 months rest good for 18 months iincureablle stage 4 serious had op blockage removed part bowel husband had heart attack passed that very hard still greaving come back on ovary and spleen part bowel had another 4 sessins chemo lost hair again they
PaumicB123
in
My Ovacome
9 months ago
new model for bone marrow behavior is a hope for finding bone metastasis remedies!
”What results were found from your investigation? It did mimic the effects that we see in the clinical scenario. It has been exciting. The other nice thing about this model is it doesn't have to only be utilized for bone sarcomas and creates the microenvironment from which a bone sarcoma might arise
”What results were found from your investigation? It did mimic the effects that we see in the clinical scenario. It has been exciting. The other nice thing about this model is it doesn't have to only be utilized for bone sarcomas and creates the microenvironment from which a bone sarcoma might arise
Maxone73
in
Advanced Prostate Cancer
9 months ago
mixing meds
if my husband and i have a cold--virus temperature we take lemsips xxx
if my husband and i have a cold--virus temperature we take lemsips xxx
Tut7iFru7i
in
AF Association
8 months ago
Newly diagnosed Stage 4
hello I’m new here I’m very happy to be there. I read a lot of stories about people with Metastase breast cancer. Thank you so much you give me a lot of hope. Thanks again I’m 33, Diagnosed in 2022 stage 3 DIC, 5/19 axillary lymph node involved, ER+, HER -. I did 5months chemo, double mastectomy,
hello I’m new here I’m very happy to be there. I read a lot of stories about people with Metastase breast cancer. Thank you so much you give me a lot of hope. Thanks again I’m 33, Diagnosed in 2022 stage 3 DIC, 5/19 axillary lymph node involved, ER+, HER -. I did 5months chemo, double mastectomy,
life2990
in
SHARE Metastatic Breast Cancer
9 months ago
Exciting Announcement
Malecare is the world's first patient advocacy organization to develop and publish GPT's in Open AI's Chat GPT (app) Marketplace! Indeed, we have five apps published! Here they are: Clinical Trial Navigator -- https://chat.openai.com/g/g-rl6cvjdon-clinical-trial-navigator Cancer Copilot -- https
Malecare is the world's first patient advocacy organization to develop and publish GPT's in Open AI's Chat GPT (app) Marketplace! Indeed, we have five apps published! Here they are: Clinical Trial Navigator -- https://chat.openai.com/g/g-rl6cvjdon-clinical-trial-navigator Cancer Copilot -- https
Darryl
Partner
in
Prostate Cancer Network
9 months ago
Exciting Announcement
Malecare is the world's first patient advocacy organization to develop and publish GPT's in Open AI's Chat GPT (app) Marketplace! Indeed, we have five apps published! Here they are: Clinical Trial Navigator -- https://chat.openai.com/g/g-rl6cvjdon-clinical-trial-navigator Cancer Copilot -- https
Malecare is the world's first patient advocacy organization to develop and publish GPT's in Open AI's Chat GPT (app) Marketplace! Indeed, we have five apps published! Here they are: Clinical Trial Navigator -- https://chat.openai.com/g/g-rl6cvjdon-clinical-trial-navigator Cancer Copilot -- https
Darryl
Partner
in
Advanced Prostate Cancer
9 months ago
which steroids and what dosage.
Don’t know if the steroid Dexamethosone would be appropriate for brain cancer but your doctor should know. It is given to me every 21 days at Docetaxel chemo infusion for PCa and absolutely eliminates pains. Can last for 12-18 hours. Ask your doc about it. Mike Seattle
Don’t know if the steroid Dexamethosone would be appropriate for brain cancer but your doctor should know. It is given to me every 21 days at Docetaxel chemo infusion for PCa and absolutely eliminates pains. Can last for 12-18 hours. Ask your doc about it. Mike Seattle
Leader4077
in
Advanced Prostate Cancer
9 months ago
Sharing my experience of having the flu with Parkinson's...
Hi everyone. I just wanted to share my experience of combining a severe flu with my Parkinson's symptoms. I've had Parkinson's for six years and I'm generally doing relatively well. But recently, I caught a severe flu while traveling in Italy with my wife and it made my symptoms much worse, with massive
Hi everyone. I just wanted to share my experience of combining a severe flu with my Parkinson's symptoms. I've had Parkinson's for six years and I'm generally doing relatively well. But recently, I caught a severe flu while traveling in Italy with my wife and it made my symptoms much worse, with massive
Michel0220
in
Cure Parkinson's
8 months ago
Confusing CT scan results
My PSA has been rising slowly after prostate removal two years ago. Was at zero months after and slowly rising at .02,.03. .05, .06. .09 and then .13. My doctor ordered CT and bone scans. Bone scan came back clear and then CT scan showed a few things in bones and a nonspecific mass outside the liver
My PSA has been rising slowly after prostate removal two years ago. Was at zero months after and slowly rising at .02,.03. .05, .06. .09 and then .13. My doctor ordered CT and bone scans. Bone scan came back clear and then CT scan showed a few things in bones and a nonspecific mass outside the liver
Jens99
in
Advanced Prostate Cancer
9 months ago
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