hi guys it has been long time to take tasigna - Ataxia UK

Ataxia UK

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hi guys it has been long time to take tasigna

Emily_kim profile image
6 Replies

I have been taking tasigna since January 17 this year. I take one tablet(150mg) every morning for two weeks from the 17th and eat after two weeks. I take(150mg) low dose twice daily in the morning and evening.

Results of taking 23 days of tasigna

1, reduction of physical exhaustion

2, less muscle stiffness

3, sleep well (after taking 2 tablets)

4, decreased muscle production tendon fatigue

This is a personal opinion Please refer to the papers for exact findings!

And my genetic type is sca3

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Emily_kim profile image
Emily_kim
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6 Replies
Jujubeelu profile image
Jujubeelu

Is this a prescription?

Rhyothemis profile image
Rhyothemis in reply to Jujubeelu

tasinga = nilotinib

Rx, in US it is an approved chemotherapy drug sometimes used off-label for Parkinson's; currently in clinical trials for PD

Some concerns over long QT syndrome

healthunlocked.com/parkinso...

Emily_kim profile image
Emily_kim in reply to Jujubeelu

It is a one-year project that I am clinically studying in Korea at my own expense.

Susie1972 profile image
Susie1972

Hi Emily l have googled "ticuna" and nothing tablet wise comes up!! Just says it is an Indian tribe lol!!! Help! X

Emily_kim profile image
Emily_kim in reply to Susie1972

Tasigna is right 😅😅

Wheelboy010 profile image
Wheelboy010

I read that a few years ago someone conducted a medical study regarding Tasigna nilotinib and hereditary ataxia. I have heard many positive experiences from people with hereditary ataxia who have used the medication. I myself have Friedreich ataxia.

I would like to know whether this medication will also have positive effects for friedreich ataxia? What do you think?

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