Search
Search
About
Log in
Join
Experiences with
Un-Aspirin
Posts
Communities
5,852 public posts
Filter results
MF from ET
I have early stage MF from ET, and I‘ve had a headache for 12 days, with pressure over the left eye, and lightning flashes in the left eye. I just wondered if anyone else has had this? My doctor wants me to start taking aspirin twice a day now, & if that doesn’t work he will start me on hydroxyurea.
I have early stage MF from ET, and I‘ve had a headache for 12 days, with pressure over the left eye, and lightning flashes in the left eye. I just wondered if anyone else has had this? My doctor wants me to start taking aspirin twice a day now, & if that doesn’t work he will start me on hydroxyurea.
Arthandiwe
in
Fight MPN
2 years ago
Bruising
Hello.I'm on dual antiplatelet meds asprin and ticagrelor. I seem to be bruising very easily and bruises coming up and don't know how I've done it. Is there anything I can do to stop it happening or is it something I just have to live with now. Thanks for your help.
Hello.I'm on dual antiplatelet meds asprin and ticagrelor. I seem to be bruising very easily and bruises coming up and don't know how I've done it. Is there anything I can do to stop it happening or is it something I just have to live with now. Thanks for your help.
Coopergirl52
in
British Heart Foundation
2 years ago
side effects
As u know I had 2 stents fitted in March on a cocktail of drugs aspirin ticalegor ramipril artovastin sorry about spelling can,t even pronounce some of them. Still feel dreadful cannot do much and stomach feels terrible after eating aches in hip knee and right groin area. Now so stressed unable to get
As u know I had 2 stents fitted in March on a cocktail of drugs aspirin ticalegor ramipril artovastin sorry about spelling can,t even pronounce some of them. Still feel dreadful cannot do much and stomach feels terrible after eating aches in hip knee and right groin area. Now so stressed unable to get
boredom
in
British Heart Foundation
2 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Itchiness is fading away...
I have had PV for ten years and am a 66 year old male. Phlebotomies & aspirin worked well for that time. Aquagenic priurits (itchiness on contact with water) had become unbearable by June 2022. I went onto 500mg per day HU (Hydroxyurea).The itchiness started to decrease and now after 6 months has almost
I have had PV for ten years and am a 66 year old male. Phlebotomies & aspirin worked well for that time. Aquagenic priurits (itchiness on contact with water) had become unbearable by June 2022. I went onto 500mg per day HU (Hydroxyurea).The itchiness started to decrease and now after 6 months has almost
Innessant
in
MPN Voice
2 years ago
advice for coming off meds, before endoscopy procedure.
Firstly HNY everyone! I had HA & 5 stents fitted 7 months ago. I now have an appointment to have a endoscopy procedure this week& have been told to come off the two blood thinners I’m on. Plavex & asprin, for one week, which I’m afraid to do. I’ve tried getting in touch with the gastroenterologist
Firstly HNY everyone! I had HA & 5 stents fitted 7 months ago. I now have an appointment to have a endoscopy procedure this week& have been told to come off the two blood thinners I’m on. Plavex & asprin, for one week, which I’m afraid to do. I’ve tried getting in touch with the gastroenterologist
Maidenhead1
in
British Heart Foundation
2 years ago
Dissolvable Asprin
If you are taking dissolvable Asprin can you dissolve it in diluted squash or must you only take it in plain water as don't like the taste.
If you are taking dissolvable Asprin can you dissolve it in diluted squash or must you only take it in plain water as don't like the taste.
Coopergirl52
in
British Heart Foundation
2 years ago
Can't get a quote for Holiday Insurance until I specify what the medication I'm taking following Bypass surgery is for.
Hi 🤗 Everyone, I've just tried to nail down a Holiday insurance quote but I've hit a brickwall and was hoping that I can tap into the wealth of knowledge of my fellow Hearties. On the 26th September I had double Bypass Surgery. What with lockdown and my diagnosis of a severe Stenosis on the LAD
Hi 🤗 Everyone, I've just tried to nail down a Holiday insurance quote but I've hit a brickwall and was hoping that I can tap into the wealth of knowledge of my fellow Hearties. On the 26th September I had double Bypass Surgery. What with lockdown and my diagnosis of a severe Stenosis on the LAD
Hidden
in
British Heart Foundation
2 years ago
Unusual odour
Good evening , i need to ask if anyone since going on medication seems to have a sense of an odour as my wife disclosed to me she has smelt it too on me. I had a heart attack in October and despite being fairy fit and having a healthy diet also no heart issues in my family i had this mild heart attack
Good evening , i need to ask if anyone since going on medication seems to have a sense of an odour as my wife disclosed to me she has smelt it too on me. I had a heart attack in October and despite being fairy fit and having a healthy diet also no heart issues in my family i had this mild heart attack
Garypotter
in
British Heart Foundation
2 years ago
Granocyte protocol- any experience?
Hi all. I'm about to start my 7th round of IVF, my 3rd with donor eggs. I have one frozen embryo left. 2 cycles I had nothing to transfer, I've had 4 failed to implant and also a mc from a natural conception. My clinic has tried prednisolone, tacrolimus, IVIG as well as clexane and aspirin. They now
Hi all. I'm about to start my 7th round of IVF, my 3rd with donor eggs. I have one frozen embryo left. 2 cycles I had nothing to transfer, I've had 4 failed to implant and also a mc from a natural conception. My clinic has tried prednisolone, tacrolimus, IVIG as well as clexane and aspirin. They now
river242
in
Fertility Network UK
2 years ago
Next round with Clexane
Hello my lovely people, I have taken a break here for a few months when waiting for my hysteroscopy result of RIF. I am still reading your posts but have not been active at all. I’m resetting my mind and my body to be back in January for our 3rd round with the NHS. I really wanted to do another egg
Hello my lovely people, I have taken a break here for a few months when waiting for my hysteroscopy result of RIF. I am still reading your posts but have not been active at all. I’m resetting my mind and my body to be back in January for our 3rd round with the NHS. I really wanted to do another egg
Midsummer_daydream
in
Fertility Network UK
2 years ago
new to this
hello my mum who’s is 78 has recently been diagnosed with heart failure. Unfortunately she went to the appointment on her own so I haven’t spoke to anyone directly yet. She has been prescribed aspirin bisoprolol and ramipril with immediate effect. Should be getting cardiology app imminently but just
hello my mum who’s is 78 has recently been diagnosed with heart failure. Unfortunately she went to the appointment on her own so I haven’t spoke to anyone directly yet. She has been prescribed aspirin bisoprolol and ramipril with immediate effect. Should be getting cardiology app imminently but just
Mabel1944
in
British Heart Foundation
2 years ago
ET or PV
I was diagnosed with ET about a year and a half ago I just take an aspirin a day, so I had my 6 monthly telephone call from haematology just before Christmas and they are telling me my haemacrotic levels are high and I have to get a venesection, she mentioned PV to me, just saying she knows I hav been
I was diagnosed with ET about a year and a half ago I just take an aspirin a day, so I had my 6 monthly telephone call from haematology just before Christmas and they are telling me my haemacrotic levels are high and I have to get a venesection, she mentioned PV to me, just saying she knows I hav been
doglover49
in
MPN Voice
2 years ago
A sprinkle of Christmas magic & a dash of hope 💫
I read a post like this about 10 months ago and it gave me the kick up the bum I needed to change clinics and has lead to our first IVF BFP after 6 full rounds. So this is me attempting to maybe pay it forward. When you are faced by failure, round after round it can literally be soul destroying. After
I read a post like this about 10 months ago and it gave me the kick up the bum I needed to change clinics and has lead to our first IVF BFP after 6 full rounds. So this is me attempting to maybe pay it forward. When you are faced by failure, round after round it can literally be soul destroying. After
Candlewax3
in
Fertility Network UK
2 years ago
Mild Heart decease
Hi All By chance I have found out I have mild Heart decease , 65 calcium score , but my cardiologist says the blockage in my LAD is too small to give a percentage, therefore is a calcium score not necessarily related to the blockage amount, I have not had a heart attack , passed all the running test
Hi All By chance I have found out I have mild Heart decease , 65 calcium score , but my cardiologist says the blockage in my LAD is too small to give a percentage, therefore is a calcium score not necessarily related to the blockage amount, I have not had a heart attack , passed all the running test
magnilink
in
British Heart Foundation
2 years ago
Starting Besremi Next Week
Hi all, Thank you for all the posts of your journey with PV as they are really helpful for me. I was diagnosed with PV June 2022. My HCT and platelets have been high for at least 6 years, and confirmation of PV was done with the JAK2 gene testing positive (thankful for the doctor at an ER testing
Hi all, Thank you for all the posts of your journey with PV as they are really helpful for me. I was diagnosed with PV June 2022. My HCT and platelets have been high for at least 6 years, and confirmation of PV was done with the JAK2 gene testing positive (thankful for the doctor at an ER testing
MrsBerri
in
MPN Voice
2 years ago
Can a stent reblock?
Hi everyone in September 2020 I had one stent fitted in my main LAD artery which was 75% blocked. Ive been on Ticagrelor, Aspirin and Atorvastatin ever since. I feel great, exercising, eating as healthily as I can (albeit not as strict as I was in the beginning). My question is Ive started to worry
Hi everyone in September 2020 I had one stent fitted in my main LAD artery which was 75% blocked. Ive been on Ticagrelor, Aspirin and Atorvastatin ever since. I feel great, exercising, eating as healthily as I can (albeit not as strict as I was in the beginning). My question is Ive started to worry
Lizbeth61
in
British Heart Foundation
2 years ago
Platelet's creeping up
Latest CBC Hematocrit 44.7 Platelet 703 Hgb 12.8 WBC 12.4 RBC 5.90 First time I have been in the 700 range for Platelet's. Entered 600 range February of this year. Should I be concerned about the platelet's? Am 76 just on phlebotomy and aspirin. No physical symptoms.
Latest CBC Hematocrit 44.7 Platelet 703 Hgb 12.8 WBC 12.4 RBC 5.90 First time I have been in the 700 range for Platelet's. Entered 600 range February of this year. Should I be concerned about the platelet's? Am 76 just on phlebotomy and aspirin. No physical symptoms.
wateron
in
MPN Voice
2 years ago
enoxaparin and aspirin
hi all I’m on both plus progesterone Currently 15.5w pregnant Got up to pee 8 times last night Incredibly thirsty Incredibly dry mouth as blocked nose so mouth breathing Is this much peeing normal? Can the meds contribute to it? I’ve had bloods checked not diabetic But 8x to pee in one
hi all I’m on both plus progesterone Currently 15.5w pregnant Got up to pee 8 times last night Incredibly thirsty Incredibly dry mouth as blocked nose so mouth breathing Is this much peeing normal? Can the meds contribute to it? I’ve had bloods checked not diabetic But 8x to pee in one
London_panda123
in
Fertility Network UK - Pregnancy Support
2 years ago
dizzy, ET , aspirin and Peg interferon
Every so often I get bouts of dizziness. Often associated with nasal congestion so. I think it could be ear related. I am on Aspirin and pegasys. I have MPL ET. Could it be ET related ?? Any ideas.
Every so often I get bouts of dizziness. Often associated with nasal congestion so. I think it could be ear related. I am on Aspirin and pegasys. I have MPL ET. Could it be ET related ?? Any ideas.
Sprat19
in
MPN Voice
2 years ago
Relief for Liver?
Have ET / JAK which treatment has been interrupted due to very high (4x) liver enzyme values. I have been on 2 mg anagrelide per day for several months with cautious results lowering platelets to 800,000. That caution allowed liver and kidneys to calm down from high values after 2 months on hydroxyurea
Have ET / JAK which treatment has been interrupted due to very high (4x) liver enzyme values. I have been on 2 mg anagrelide per day for several months with cautious results lowering platelets to 800,000. That caution allowed liver and kidneys to calm down from high values after 2 months on hydroxyurea
Mishie14
in
MPN Voice
2 years ago
1
...
45
46
47
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
MPN Voice
1434 results
British Heart Foundation
1248 results
Hughes Syndrome APS Forum
711 results
View top 10 communities
Sort by
Most Relevant
Newest