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Changed betablocker but same weird symptoms
Hello! This is my first post. I'm 53, a type 1 diabetic (well controlled) with hiatus hernia (recently diagnosed). Mid December last year I had a planned angioplasty and a stent. Unfortunately during the op something went wrong and I had a heart attack, but apart from that all went well!! I was put
Hello! This is my first post. I'm 53, a type 1 diabetic (well controlled) with hiatus hernia (recently diagnosed). Mid December last year I had a planned angioplasty and a stent. Unfortunately during the op something went wrong and I had a heart attack, but apart from that all went well!! I was put
smoggy99
in
British Heart Foundation
1 year ago
Arm/Shoulder pain
Hi all. MF and Jak2 positive ET here. My shoulder got wrenched in January whilst playing ball games with my dog. It had started to get better but then my wife and I went to Barcelona for a week. I did lots of walking, plus had a camera and bag across my back/neck. This has aggravated even more! I've
Hi all. MF and Jak2 positive ET here. My shoulder got wrenched in January whilst playing ball games with my dog. It had started to get better but then my wife and I went to Barcelona for a week. I did lots of walking, plus had a camera and bag across my back/neck. This has aggravated even more! I've
mystic_shrimp
in
MPN Voice
1 year ago
Hematocrit question
Currently Hematocrit is 43.1, Hbg 12.4. Am going on a trip so won’t have access to phlebotomy for over 3 weeks & don’t want to go over 45 especially while being on a long flight. Asked my Dr & she approved it Wondering if there would be any concern if the phlebotomy would lower my hematocrit to 41 or
Currently Hematocrit is 43.1, Hbg 12.4. Am going on a trip so won’t have access to phlebotomy for over 3 weeks & don’t want to go over 45 especially while being on a long flight. Asked my Dr & she approved it Wondering if there would be any concern if the phlebotomy would lower my hematocrit to 41 or
wateron
in
MPN Voice
1 year ago
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A bleed post positive test 🤯
Third transfer following ERA. Thrown everything at this round - glue, scratch, probiotics, blood thinning injections, aspirin…… 10dp5dt we got a really faint positive - it wasn’t convincing. Three days later we had to do a blood test (which was new) - again, the line was soo faint. 15dp5dt my partner
Third transfer following ERA. Thrown everything at this round - glue, scratch, probiotics, blood thinning injections, aspirin…… 10dp5dt we got a really faint positive - it wasn’t convincing. Three days later we had to do a blood test (which was new) - again, the line was soo faint. 15dp5dt my partner
Cook7786
in
Fertility Network UK
1 year ago
Besremi Side Effects
Hello, I would like to hear from anyone who has experience with Besremi. After 9 years on Hydroxyurea, it stopped working for me. I now have some scarring in the bone marrow, as per biopsy. I am a 60 year old female, and now on Besremi since February 1, 2023 , about 10 weeks. However, two weeks ago
Hello, I would like to hear from anyone who has experience with Besremi. After 9 years on Hydroxyurea, it stopped working for me. I now have some scarring in the bone marrow, as per biopsy. I am a 60 year old female, and now on Besremi since February 1, 2023 , about 10 weeks. However, two weeks ago
Artelu
in
MPN Voice
1 year ago
Heart meds
Hello I'm slightly worried I'm taking Ticagrelor 90mg twice daily according to my alert card this medication should drop to 60mg after a year which I've just passed. I've just put my next repeat prescription in and it hasn't been changed to the lower dose I thought the doctor was supposed to change
Hello I'm slightly worried I'm taking Ticagrelor 90mg twice daily according to my alert card this medication should drop to 60mg after a year which I've just passed. I've just put my next repeat prescription in and it hasn't been changed to the lower dose I thought the doctor was supposed to change
Coopergirl52
in
British Heart Foundation
1 year ago
Anyone had trouble taking their medication to Greece?
Hi. I am soon to be taking a 2 week holiday to Corfu Greece, post transplant. Can't wait, desperate! Have checked with consultants, they are happy with me taking a break, and I have good travel insurance (I think!) Have just been reading on the Gov.uk Travel Advice website, and it says Greece doesn't
Hi. I am soon to be taking a 2 week holiday to Corfu Greece, post transplant. Can't wait, desperate! Have checked with consultants, they are happy with me taking a break, and I have good travel insurance (I think!) Have just been reading on the Gov.uk Travel Advice website, and it says Greece doesn't
taar
in
British Liver Trust
1 year ago
Glucosamine and chondroitin
So following my HA on 27th February I have been upping my exercise in line with rehab advice .I am walking 40 minutes most days and occasionally cycling . I have noticed a few more aches and pains (non cardiac) . I was diagnosed over 20 years ago with mild arthritis in my neck and almost certain these
So following my HA on 27th February I have been upping my exercise in line with rehab advice .I am walking 40 minutes most days and occasionally cycling . I have noticed a few more aches and pains (non cardiac) . I was diagnosed over 20 years ago with mild arthritis in my neck and almost certain these
Instructor57
in
British Heart Foundation
1 year ago
Confused by what’s happened (54)
Hello community. This is my first post. I’m 54 and last Tuesday was admitted to A&E with a mild heart attack. (Does mild make it any less of a thing?..) 3 blood tests showed troponin of 16, then 23 & 23, and I understand that means something did happen, even though all 4 ECGs looked ok. I was
Hello community. This is my first post. I’m 54 and last Tuesday was admitted to A&E with a mild heart attack. (Does mild make it any less of a thing?..) 3 blood tests showed troponin of 16, then 23 & 23, and I understand that means something did happen, even though all 4 ECGs looked ok. I was
MLC2016
in
British Heart Foundation
1 year ago
Steroids/treatments for Antiphospholipid syndrome (APS)?
hi there, I’ve unfortunately had 5 miscarriages (mix of IVF and natural), mostly chemical pregnancies. In between the miscarriages I was diagnosed with Antiphospholipid syndrome (APS) which is a leading cause of recurrent miscarriages. The haematologists put me on daily Clexane injections and low dose
hi there, I’ve unfortunately had 5 miscarriages (mix of IVF and natural), mostly chemical pregnancies. In between the miscarriages I was diagnosed with Antiphospholipid syndrome (APS) which is a leading cause of recurrent miscarriages. The haematologists put me on daily Clexane injections and low dose
Nenad
in
Fertility Network UK
1 year ago
Timothy Winters
Timothy Winters(Charles Causley – 1917 to 2003) Timothy Winters comes to schoolWith eyes as wide as a football pool,Ears like bombs and teeth like splinters:A blitz of a boy is Timothy Winters. His belly is white, his neck is dark,And his hair is an exclamation mark.His clothes are enough to scare a
Timothy Winters(Charles Causley – 1917 to 2003) Timothy Winters comes to schoolWith eyes as wide as a football pool,Ears like bombs and teeth like splinters:A blitz of a boy is Timothy Winters. His belly is white, his neck is dark,And his hair is an exclamation mark.His clothes are enough to scare a
Lyd12
in
Lung Conditions Community Forum
1 year ago
Latest appointment update…..ET investigation
Further to my previous post from yesterday I just thought I’d update you all of the outcome from my Consultants telephone appointment today incase my info may be of use to others…. Due to ongoing high platelets (usually in 500’s) I am currently under investigation for ET. I have had numerous tests
Further to my previous post from yesterday I just thought I’d update you all of the outcome from my Consultants telephone appointment today incase my info may be of use to others…. Due to ongoing high platelets (usually in 500’s) I am currently under investigation for ET. I have had numerous tests
Purdy13
in
MPN Voice
1 year ago
I’ve had enough
So prior to my last post, I thought I’d share my decision to get a private MRI done. The chest heaviness has turned into severe chest pain and I can’t even make it to the doctors even if I wanted to. I’ve showered twice this week and brushed my teeth 5 times. I need to find out what’s happening
So prior to my last post, I thought I’d share my decision to get a private MRI done. The chest heaviness has turned into severe chest pain and I can’t even make it to the doctors even if I wanted to. I’ve showered twice this week and brushed my teeth 5 times. I need to find out what’s happening
Sleepybear987
in
British Heart Foundation
1 year ago
Introduction and question
Hello everyone. My name is Tiffany. I've been reading through some of the posts relevant to my interests but haven't had a need to post myself until now. My mother was diagnosed with polycythemia (follow-up tests show she does have JAK2 mutation) this past August, right around her 74th birthday
Hello everyone. My name is Tiffany. I've been reading through some of the posts relevant to my interests but haven't had a need to post myself until now. My mother was diagnosed with polycythemia (follow-up tests show she does have JAK2 mutation) this past August, right around her 74th birthday
onlineallthetime
in
MPN Voice
1 year ago
ET/Jak2 postive
Hello! I was recently diagnosed with ET. I had not had bloodwork done in 15 years but just decided maybe I should and my platelets came back 600. They rechecked again 2 weeks later and they were 617. So, I was referred to a hematologist. After more bloodwork there, they found I was also Jak2 positive
Hello! I was recently diagnosed with ET. I had not had bloodwork done in 15 years but just decided maybe I should and my platelets came back 600. They rechecked again 2 weeks later and they were 617. So, I was referred to a hematologist. After more bloodwork there, they found I was also Jak2 positive
Highplatelets
in
MPN Voice
1 year ago
Undiagnosed ET….advice please!
Hi everyone, I have my Haematologist telephone appointment tomorrow so just looking for a few opinions beforehand from you lovely lot… A quick recap…. I am yet to be diagnosed as having ET. I have platelet counts mainly in the 500’s (lowest 364, highest 622 but that was with an infection). I have no
Hi everyone, I have my Haematologist telephone appointment tomorrow so just looking for a few opinions beforehand from you lovely lot… A quick recap…. I am yet to be diagnosed as having ET. I have platelet counts mainly in the 500’s (lowest 364, highest 622 but that was with an infection). I have no
Purdy13
in
MPN Voice
1 year ago
Adeyabeba with ET
Hello friends . I was diagnosed ET before 3 years and was on Asprin 75mg with no additional medication. My platelet number was increased from 750 to 1250 .I have checked my platelets every three months . by this time my platelets become 1056. It makes me surprised .Alongside the MPV level become low
Hello friends . I was diagnosed ET before 3 years and was on Asprin 75mg with no additional medication. My platelet number was increased from 750 to 1250 .I have checked my platelets every three months . by this time my platelets become 1056. It makes me surprised .Alongside the MPV level become low
Adeyabeba
in
MPN Voice
1 year ago
REPOST: chest heaviness won't leave
Hi, I had a long trip this Feb. After coming back, I had a bit of chest heaviness. It's not left but instead slowly getting worse. I've been calling cardiology, my GP, the BHF nurses, went to A&E and have had very little help. Honestly, right now, I don't care about figuring out what it is, I just
Hi, I had a long trip this Feb. After coming back, I had a bit of chest heaviness. It's not left but instead slowly getting worse. I've been calling cardiology, my GP, the BHF nurses, went to A&E and have had very little help. Honestly, right now, I don't care about figuring out what it is, I just
Sleepybear987
in
British Heart Foundation
1 year ago
Chest Heaviness for a month
Hi, I had a long trip this Feb. After coming back, I had a bit of chest heaviness. It's not left but instead slowly getting worse. I've been calling cardiology, my GP, the BHF nurses, went to A&E and have had very little help. Honestly, right now, I don't care about figuring out what it is, I just
Hi, I had a long trip this Feb. After coming back, I had a bit of chest heaviness. It's not left but instead slowly getting worse. I've been calling cardiology, my GP, the BHF nurses, went to A&E and have had very little help. Honestly, right now, I don't care about figuring out what it is, I just
Sleepybear987
in
British Heart Foundation
1 year ago
peg interferon and sun
hi everyone Looking for advice from you all. I’ve lived with diagnosis of PV now for 7 years managing on venesections and aspirin. Since October I’ve been prescribed peg interferon injections, currently on 90mcg weekly My question is does anyone have advice re sunshine ? My heam nurses says no sun
hi everyone Looking for advice from you all. I’ve lived with diagnosis of PV now for 7 years managing on venesections and aspirin. Since October I’ve been prescribed peg interferon injections, currently on 90mcg weekly My question is does anyone have advice re sunshine ? My heam nurses says no sun
Sanga
in
MPN Voice
1 year ago
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