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Hydroxy or just aspirin for ET?
I am 78 with diabetes diagnosed two years ago. Two months ago I was diagnosed with ET, CALR positive and prescribed low dose aspirin and hydroxy. Platelets were gradually increasing to around 600 and haem wants them down to less than 400. It seems from this forum that many patients, probably younger
I am 78 with diabetes diagnosed two years ago. Two months ago I was diagnosed with ET, CALR positive and prescribed low dose aspirin and hydroxy. Platelets were gradually increasing to around 600 and haem wants them down to less than 400. It seems from this forum that many patients, probably younger
Hombre
in
MPN Voice
2 years ago
Informed, thanks to you
While I don’t want to waste your precious time, I do so want to reach out and say, although new here, I have read practically everything that gets written here. Some of you feel like friends. But on hearing the passing of Frank (Big Ted) I feel the urgency of expressing my deep gratitude towards this
While I don’t want to waste your precious time, I do so want to reach out and say, although new here, I have read practically everything that gets written here. Some of you feel like friends. But on hearing the passing of Frank (Big Ted) I feel the urgency of expressing my deep gratitude towards this
Buddhability
in
MPN Voice
2 years ago
My Cataract Surgery (Laser) is in 2 weeks
Just wondering from those who have had cataract surgery and taking aspirin and blood thinners, were you told to stop these prior to surgery. Your input would be appreciated. Thanks so much!!
Just wondering from those who have had cataract surgery and taking aspirin and blood thinners, were you told to stop these prior to surgery. Your input would be appreciated. Thanks so much!!
Buggerbear
in
MPN Voice
2 years ago
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BMB- 16 year old daughter JAK2+ ET
Hello, My 16 year old daughter was diagnosed with JAK2 + ET in 2020 and subsequently had a BMB in November 2020, confirming this. I have posed this question to you all before and received great feedback. Thank you so much!! However, the new pediatric hematologist and the pediatric MPN specialist are
Hello, My 16 year old daughter was diagnosed with JAK2 + ET in 2020 and subsequently had a BMB in November 2020, confirming this. I have posed this question to you all before and received great feedback. Thank you so much!! However, the new pediatric hematologist and the pediatric MPN specialist are
Piperpeeps
in
MPN Voice
2 years ago
Worried about catching covid waiting for a stent
I've a severe narrowing in my LAD (all others clear) and waiting for an angiogram / stent....apparently with in 5-7 weeks now on NHS...meanwhile a growing number of my sons class are off with covid (started with the teacher...). So I'm a wee bit terrified..we're -ve LFT..so far. So do I keep him off
I've a severe narrowing in my LAD (all others clear) and waiting for an angiogram / stent....apparently with in 5-7 weeks now on NHS...meanwhile a growing number of my sons class are off with covid (started with the teacher...). So I'm a wee bit terrified..we're -ve LFT..so far. So do I keep him off
Mangojamontoast
in
British Heart Foundation
2 years ago
Second opinion
Although my bloods were consistently up, and going up, my first haemotologist said he was very surprised at my BMB result of ET. He also told me he is an optimist, while putting me on daily asprin, a plan to watch & wait. At the outset of Covid in February 2020, he sent me of on my merry way while saying
Although my bloods were consistently up, and going up, my first haemotologist said he was very surprised at my BMB result of ET. He also told me he is an optimist, while putting me on daily asprin, a plan to watch & wait. At the outset of Covid in February 2020, he sent me of on my merry way while saying
Woodlandgarden
in
MPN Voice
2 years ago
Besremi was approved for me by the insurance provider
I am quite excited that CVS/Caremark had approved of Besremi prescription after the appeals process which the hematologist had submitted - as the original response was a denial where it was mentioned that Besremi was not included in the formulary. I am 64 and still working in the Illinois area, and my
I am quite excited that CVS/Caremark had approved of Besremi prescription after the appeals process which the hematologist had submitted - as the original response was a denial where it was mentioned that Besremi was not included in the formulary. I am 64 and still working in the Illinois area, and my
Pat032018
in
MPN Voice
2 years ago
Collagen supplements
Does anyone take collagen products ie supplements with hydroxy and aspirin is it safe to do so?
Does anyone take collagen products ie supplements with hydroxy and aspirin is it safe to do so?
tina6
in
MPN Voice
2 years ago
Causes of Stroke and Heart Attack
I just had a severe Anxiety attack where I was triggered by some thing that severely scared me. It was like my heart jumping out of my chest. Now I am feeling sharp chest pains and a headache. I am now pretty scared for the worst. This is the worst Anxiety attack I ever had. I have been taking my meds
I just had a severe Anxiety attack where I was triggered by some thing that severely scared me. It was like my heart jumping out of my chest. Now I am feeling sharp chest pains and a headache. I am now pretty scared for the worst. This is the worst Anxiety attack I ever had. I have been taking my meds
jwhitleyjr
in
Anxiety and Depression Support
2 years ago
Start Besremi Tomorrow
Tomorrow is the day I start Besremi. I was dx with PV 4/15 (tax day in US) in 2016. Since then I've only had phlebotomies and taken aspirin. I've had no major issues or challenges other than low ferritin which I believe contributed to some fatigue. Immediately upon dx, I began educating myself on treatment
Tomorrow is the day I start Besremi. I was dx with PV 4/15 (tax day in US) in 2016. Since then I've only had phlebotomies and taken aspirin. I've had no major issues or challenges other than low ferritin which I believe contributed to some fatigue. Immediately upon dx, I began educating myself on treatment
Elizka
in
MPN Voice
2 years ago
My daughter was seriously unwell with PIMS
After what I can honestly say had been the worst week of my life I am so relieved to say that after just over a week in hospital on HDU we are finally home and back together as a family after our baby girl was very suddenly taken seriously unwell with PIMS . Last Sunday morning I took Maddie to urgent
After what I can honestly say had been the worst week of my life I am so relieved to say that after just over a week in hospital on HDU we are finally home and back together as a family after our baby girl was very suddenly taken seriously unwell with PIMS . Last Sunday morning I took Maddie to urgent
Westie2012
in
British Heart Foundation
2 years ago
Unstable angina …Judith
Hi I’m new to this .I had chest pains on 4 occasions and ended up in A& E each time the tests show no heart problem .then I went for angiogram and shown only slight blockage in all 3 tubes so no stent needed .i was put on angina tabs and statin and aspirin .I’ve had 3 angina attacks since while resting
Hi I’m new to this .I had chest pains on 4 occasions and ended up in A& E each time the tests show no heart problem .then I went for angiogram and shown only slight blockage in all 3 tubes so no stent needed .i was put on angina tabs and statin and aspirin .I’ve had 3 angina attacks since while resting
TEDDYs2
in
British Heart Foundation
2 years ago
Stenting or CABG
Hi, I just had an angioram and was told that there is moderrate to severe Stenosis LAD disease. The cardiologist told me that they may offer me a CABG or probably a stent and will let me know once they have decided. My initial symptoms were chest discomoft sometimes during the day and heart racing for
Hi, I just had an angioram and was told that there is moderrate to severe Stenosis LAD disease. The cardiologist told me that they may offer me a CABG or probably a stent and will let me know once they have decided. My initial symptoms were chest discomoft sometimes during the day and heart racing for
Gavs
in
British Heart Foundation
2 years ago
Aspirin intolerance
Hello everyone, does anyone have experience of aspirin intolerance and stopping taking it for an alternative. After 4 months post CABG x 4 I am still struggling with nausea and vomiting. I have to have a ct scan and endoscopy to check everything is okay with my stomach etc. I take Clopidogrel every morning
Hello everyone, does anyone have experience of aspirin intolerance and stopping taking it for an alternative. After 4 months post CABG x 4 I am still struggling with nausea and vomiting. I have to have a ct scan and endoscopy to check everything is okay with my stomach etc. I take Clopidogrel every morning
Heyjude31
in
British Heart Foundation
2 years ago
Mild/moderate leaking mitral valve
I’m waiting for an echo scan and 24hr monitor as I’ve been having bouts of light headedness and my GP heard a heart murmur. The last scan was 4 years ago. I also have mild FMD in both Carotid arteries for which I was advised to take 75mg of aspirin a day. I had bad GI side effects and haven’t been taking
I’m waiting for an echo scan and 24hr monitor as I’ve been having bouts of light headedness and my GP heard a heart murmur. The last scan was 4 years ago. I also have mild FMD in both Carotid arteries for which I was advised to take 75mg of aspirin a day. I had bad GI side effects and haven’t been taking
Rushleigh
in
British Heart Foundation
2 years ago
Higher platelets and RDW 1 mth on 500 mg hydroxyurea and aspirin daily
On Hydroxyurea for 1 month platelets went from 818 to 823 RDW went from 14.8 to 15.6 Jak2 V617F positive quantitative value 10.8 I seem to be going in the wrong direction. HELP
On Hydroxyurea for 1 month platelets went from 818 to 823 RDW went from 14.8 to 15.6 Jak2 V617F positive quantitative value 10.8 I seem to be going in the wrong direction. HELP
patriciapugliese
in
MPN Voice
2 years ago
Medications how long do we take them for?
Hi everyone, I am taking the following meds Clopidogrel, Pantoprazole, Aspirin, Rosuvastatin, Benadrol I understand that i take Clopidogrel for 12 months, and the aspirin for life. Do the other meds depend on how my progress goes or will I need to take those for life too? I will be asking my GP but was
Hi everyone, I am taking the following meds Clopidogrel, Pantoprazole, Aspirin, Rosuvastatin, Benadrol I understand that i take Clopidogrel for 12 months, and the aspirin for life. Do the other meds depend on how my progress goes or will I need to take those for life too? I will be asking my GP but was
Heyjude31
in
British Heart Foundation
2 years ago
Constipation
I’ve HF and spinal Stenosis so I’m on Aspirin, Tramadol, Lansoprazole, Nebivolol, Entresto, Atorvastatin, Tramadol. I’ve only in the last few months been put on the Aspirin and Atorvastatin fir a treatment after they discovered I needed a stent but they are trying it with meds first. So since then
I’ve HF and spinal Stenosis so I’m on Aspirin, Tramadol, Lansoprazole, Nebivolol, Entresto, Atorvastatin, Tramadol. I’ve only in the last few months been put on the Aspirin and Atorvastatin fir a treatment after they discovered I needed a stent but they are trying it with meds first. So since then
Bigmark61
in
British Heart Foundation
2 years ago
Headache
I have had most painful headache since this week and leaves head brain aching after taking aspirin. But managed to sleep 4.30 am for four hours. My bother had cold but I got headaches.
I have had most painful headache since this week and leaves head brain aching after taking aspirin. But managed to sleep 4.30 am for four hours. My bother had cold but I got headaches.
Hidden
in
Mental Health Support
2 years ago
Lupus & kidney infection
Hello, Sorry for a "question" first post. I don't know anyone else who has lupus in "real life" (or, if I do, I don't know it!) and I was only diagnosed in August, so I'm very new to this. I was referred to Rheumatology and diagnosed with SLE and APS in August, after having repeated infections and low
Hello, Sorry for a "question" first post. I don't know anyone else who has lupus in "real life" (or, if I do, I don't know it!) and I was only diagnosed in August, so I'm very new to this. I was referred to Rheumatology and diagnosed with SLE and APS in August, after having repeated infections and low
Alrac94
in
LUPUS UK
2 years ago
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