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ET, platelets and stroke risk
Hello all from another new member. I was diagnosed with ET three months ago and as I am high-risk (over 60, JAK-2 positive, another mutation and a couple of TIA episodes) I have been prescribed daily aspirin and weekly Peg-interferon. I seem to have responded well to the interferon, as my platelets
Hello all from another new member. I was diagnosed with ET three months ago and as I am high-risk (over 60, JAK-2 positive, another mutation and a couple of TIA episodes) I have been prescribed daily aspirin and weekly Peg-interferon. I seem to have responded well to the interferon, as my platelets
Ginevra
in
MPN Voice
7 months ago
Tinnitus
I was diagnosed PV with positive Jak2 in November, 2022. Hydroxy and low dose aspirin has seemed to work for me. Good blood tests, only mild fatigue. But past few months, I developed a ringing in my ears and decided to have a hearing exam (at the urging of my PCP). It turns out that I have a condition
I was diagnosed PV with positive Jak2 in November, 2022. Hydroxy and low dose aspirin has seemed to work for me. Good blood tests, only mild fatigue. But past few months, I developed a ringing in my ears and decided to have a hearing exam (at the urging of my PCP). It turns out that I have a condition
Yanks7
in
MPN Voice
7 months ago
watchman after care meds
hi, everyone. I’ve been reading different conflicting things about lifetime aspirin vs stopping after the 6 months after the watchman procedure. I was wondering what those who had one’s protocol is. And how did you do? Thanks so much. Considering this.
hi, everyone. I’ve been reading different conflicting things about lifetime aspirin vs stopping after the 6 months after the watchman procedure. I was wondering what those who had one’s protocol is. And how did you do? Thanks so much. Considering this.
Fblue
in
Atrial Fibrillation Support
7 months ago
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Update: x-ray shock 😲
Just an update after my bood test shower hf.I am still waiting on the echo. I was to have a chest x-ray. I mentioned back pain so I got both done. Chest x-ray was fine. The back x-ray was late!! Mmm Turns out I have a blocked artery in my left hip. Along with the heart meds, I also now am given aspirin
Just an update after my bood test shower hf.I am still waiting on the echo. I was to have a chest x-ray. I mentioned back pain so I got both done. Chest x-ray was fine. The back x-ray was late!! Mmm Turns out I have a blocked artery in my left hip. Along with the heart meds, I also now am given aspirin
Kristi74
in
British Heart Foundation
7 months ago
Cholesterol targets are different if on medication?
I posted my recent cholesterol results a few weeks back and received some commee we ts about them being way better than “normal” My GP surgery sent them to me with a note to say they were “normal” without any context. my Serum cholesterol for example is 2.4 mmol/L , way below the normal target of
I posted my recent cholesterol results a few weeks back and received some commee we ts about them being way better than “normal” My GP surgery sent them to me with a note to say they were “normal” without any context. my Serum cholesterol for example is 2.4 mmol/L , way below the normal target of
DWizza
in
British Heart Foundation
7 months ago
Circulation
I have ET jak2-ve. I'm 53 and on aspirin with my platelets usually around 1300. The last 6/12 my circulation in my toes and fingers has been getting worse. My hands and feet get icy cold, blue, and sometimes even purple with a reduced capillary refill. My haematologist says this is nothing to do with
I have ET jak2-ve. I'm 53 and on aspirin with my platelets usually around 1300. The last 6/12 my circulation in my toes and fingers has been getting worse. My hands and feet get icy cold, blue, and sometimes even purple with a reduced capillary refill. My haematologist says this is nothing to do with
lynnieb
in
MPN Voice
7 months ago
increase of platelets
got my blood results back and my platelets are constantly increasing each time. I’m on aspirin daily. Anyone know what other action I can take to try reducing platelets.
got my blood results back and my platelets are constantly increasing each time. I’m on aspirin daily. Anyone know what other action I can take to try reducing platelets.
Chihuahua1505
in
MPN Voice
7 months ago
Bleeding gums
Does anyone else suffer bleeding ir swollen gums while taking heart meds ,I'm on bishopol,2.5 statin 80mg asprin 75mg lanzaprole 30mg allupromnol 300mg amloadpine 5mg 15 months after quad heart bypass Thanks for taking time to read this
Does anyone else suffer bleeding ir swollen gums while taking heart meds ,I'm on bishopol,2.5 statin 80mg asprin 75mg lanzaprole 30mg allupromnol 300mg amloadpine 5mg 15 months after quad heart bypass Thanks for taking time to read this
Charl70
in
British Heart Foundation
7 months ago
Coming off Beta Blockers and Eplerenone?
My HA was over a year ago and I am reasonably pleased with my recovery, as measured by physical activity levels with no discomfort during exertion. I have a GP meds review coming up, and I would like to know if suggesting a plan to eventually come off Bisoprolol (1.25mg/day) and Eplerenone (25mg/day
My HA was over a year ago and I am reasonably pleased with my recovery, as measured by physical activity levels with no discomfort during exertion. I have a GP meds review coming up, and I would like to know if suggesting a plan to eventually come off Bisoprolol (1.25mg/day) and Eplerenone (25mg/day
STEMI_Dave
in
British Heart Foundation
7 months ago
ET and fatigue
Hi, I am new to the site.My husband has recently been diagnosed with ET JAK2 positive. He has seen a haem but she doesn’t believe his extreme fatigue and brain fog is caused by ET. He is in his early 50’s and is deemed low risk due to his age and has been prescribed aspirin only. Do we seek a second
Hi, I am new to the site.My husband has recently been diagnosed with ET JAK2 positive. He has seen a haem but she doesn’t believe his extreme fatigue and brain fog is caused by ET. He is in his early 50’s and is deemed low risk due to his age and has been prescribed aspirin only. Do we seek a second
Ona54
in
MPN Voice
7 months ago
changing medication
hi Wondering what people’s thoughts or experiences are on being on rux? I have PV diagnosed 8 years ago and all good with venesection and aspirin only. Until my platelets and white cells started rising. I’ve been on interferon 95mcg for a year but with horrid side effects, however kept my blood
hi Wondering what people’s thoughts or experiences are on being on rux? I have PV diagnosed 8 years ago and all good with venesection and aspirin only. Until my platelets and white cells started rising. I’ve been on interferon 95mcg for a year but with horrid side effects, however kept my blood
Sanga
in
MPN Voice
7 months ago
Advice on statins and vascular atheroma please
Story so far.... Had a recent hospitalisation in Cyprus for a problem unconnected to the thyroid (acute diverticular episode after 30 years of no major issues) which resulted in me having to have a CT scan when I returned from holiday. The scan was OK on the original issue, nothing sinister revealed
Story so far.... Had a recent hospitalisation in Cyprus for a problem unconnected to the thyroid (acute diverticular episode after 30 years of no major issues) which resulted in me having to have a CT scan when I returned from holiday. The scan was OK on the original issue, nothing sinister revealed
ATVMWF
in
Thyroid UK
7 months ago
on baby aspirin
is anybody on baby aspirin ? If so for how long in pregnancy you have been prescribed for ? And why you have been prescribed ? I had thin lining issues and 11 weeks pregnant but I’m wondering if I should ask midwife to prescribe me aspirin as I’m not currently taking them but feeling nervous of not
is anybody on baby aspirin ? If so for how long in pregnancy you have been prescribed for ? And why you have been prescribed ? I had thin lining issues and 11 weeks pregnant but I’m wondering if I should ask midwife to prescribe me aspirin as I’m not currently taking them but feeling nervous of not
Genila
in
Fertility Network UK - Pregnancy Support
7 months ago
Jack2 symptoms but good blood results.
I hope someone here been trough same things and could bring some experience or advice. I have bad feelings of tingling and numbness in my left side of body , is been over 3 years already and get worst . because of those symptoms and platelet little bit high , 550 I discovered to be Jack 2 positive
I hope someone here been trough same things and could bring some experience or advice. I have bad feelings of tingling and numbness in my left side of body , is been over 3 years already and get worst . because of those symptoms and platelet little bit high , 550 I discovered to be Jack 2 positive
Inverter
in
MPN Voice
7 months ago
ET and dupixent
44 year old with ET jak2. I am on 81mg daily aspirin only. I have nasal polyps and mild asthma. I have not been able to smell for years. Is anyone with ET taking Dupixent? My ENT thinks it would be my best treatment option. If you are can you let me know what your experience with it is?
44 year old with ET jak2. I am on 81mg daily aspirin only. I have nasal polyps and mild asthma. I have not been able to smell for years. Is anyone with ET taking Dupixent? My ENT thinks it would be my best treatment option. If you are can you let me know what your experience with it is?
JT1622
in
MPN Voice
7 months ago
Improvement
Hello friends, I recently had myself a Stroke, the ambulance and emergency depth staff were exceptional at their jobs and I was only in the Edinburgh Royal Infirmary for 3 days. I'm home now with almost no signs that I had a stroke due to the Medical Staff doing such a great job. I immediately had my
Hello friends, I recently had myself a Stroke, the ambulance and emergency depth staff were exceptional at their jobs and I was only in the Edinburgh Royal Infirmary for 3 days. I'm home now with almost no signs that I had a stroke due to the Medical Staff doing such a great job. I immediately had my
ArchieCatPurr
in
MPN Voice
7 months ago
MF and Aspirin
Is anyone with MF taking only low dose aspirin, I am still watch and wait (50 year old) male. Have bad circulation and wondered if aspirin would help. No other health problems.
Is anyone with MF taking only low dose aspirin, I am still watch and wait (50 year old) male. Have bad circulation and wondered if aspirin would help. No other health problems.
flog
in
MPN Voice
7 months ago
medication
hi guys,on amlodipine,aspirin,ramipril,and bisop to treat, moderate leaky aorta valve with thoracic aneurysm, can anyone explain why they won’t repair it yet,ever time I meet with my cardiologist they don’t say much and i often get different doctors, and kinda being on the quiet side …. Still feeling
hi guys,on amlodipine,aspirin,ramipril,and bisop to treat, moderate leaky aorta valve with thoracic aneurysm, can anyone explain why they won’t repair it yet,ever time I meet with my cardiologist they don’t say much and i often get different doctors, and kinda being on the quiet side …. Still feeling
Hidden
in
British Heart Foundation
7 months ago
bp morn reading has been 150/ 76 some higher on afternoon readings it can be 138/68 even lower
I've been on different BP tabs but have had side effects. I was on6.25 bisoprodol now 7.50mg BP same.Asprin 75mg - take one a dayPSK9 inhibitor injection-one every 2wks Ranolazed 375mg x2- one twice daily Rosuvastatin 10mg - one nightlyGTN - PRN🦋Levothyroxin 125mg - daily My inhaler has been chsngedRelvar
I've been on different BP tabs but have had side effects. I was on6.25 bisoprodol now 7.50mg BP same.Asprin 75mg - take one a dayPSK9 inhibitor injection-one every 2wks Ranolazed 375mg x2- one twice daily Rosuvastatin 10mg - one nightlyGTN - PRN🦋Levothyroxin 125mg - daily My inhaler has been chsngedRelvar
Pnut
in
British Heart Foundation
7 months ago
Fed Up.
Hello again, very long time, no see. I will freely admit that a huge part of my absence has been pure denial. As 2024 begins, I realise I have been a prisoner of my health problems since late 2020, when it all really kicked off probably due in no small way to our good friend Covid, both mentally and
Hello again, very long time, no see. I will freely admit that a huge part of my absence has been pure denial. As 2024 begins, I realise I have been a prisoner of my health problems since late 2020, when it all really kicked off probably due in no small way to our good friend Covid, both mentally and
Hammerhead56
in
AF Association
7 months ago
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