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Worries about Travel Medical Insurance
Hi, I am recently diagnosed with ET and started yesterday on Hydroxycarbamide 500mg Monday to Friday . I understand that I will be monitored closely to achieve the best balance of drugs and optimum platelet count which will take a few months. However, I am used to travelling, My partner and I have
Hi, I am recently diagnosed with ET and started yesterday on Hydroxycarbamide 500mg Monday to Friday . I understand that I will be monitored closely to achieve the best balance of drugs and optimum platelet count which will take a few months. However, I am used to travelling, My partner and I have
SpendyWendy
in
MPN Voice
24 days ago
Hydroxicarbamide for PV - UK
Diagnosed late 2018 soon after started on Hydroxycarbamide + Rivaroxyban 10mg daily. In the last year, Hydroxycarbamide has been increased slowly every few months. I am now taking 2000mg 4 days a week and 1500mg on 3 days a week because my platelet score is 640. I am feeling really poorly on this
Diagnosed late 2018 soon after started on Hydroxycarbamide + Rivaroxyban 10mg daily. In the last year, Hydroxycarbamide has been increased slowly every few months. I am now taking 2000mg 4 days a week and 1500mg on 3 days a week because my platelet score is 640. I am feeling really poorly on this
RedEye21
in
MPN Voice
24 days ago
The Truth about Home Hemodialysis
It has been the hardest month I have ever had in my life. I promised I would write an honest and complete description of the process. I started on October 16th. The first week, I wrote about already. Not too many issues. But in my head, I was so overwhelmed. I was not ready for dialysis mentally in
It has been the hardest month I have ever had in my life. I promised I would write an honest and complete description of the process. I started on October 16th. The first week, I wrote about already. Not too many issues. But in my head, I was so overwhelmed. I was not ready for dialysis mentally in
Bassetmommer
NKF Ambassador
in
Kidney Disease
7 months ago
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Lupron - start with one month dose or 3 months ?
Dad , 83 , is to start with lupron soon. He has been on bicalutamide since two weeks. He is in good health generally and has not had heart issues apart from hypertension since many years , controlled by medicine. Doctor has advised 3 monthly lupron injections. But I was wondering if it would
Dad , 83 , is to start with lupron soon. He has been on bicalutamide since two weeks. He is in good health generally and has not had heart issues apart from hypertension since many years , controlled by medicine. Doctor has advised 3 monthly lupron injections. But I was wondering if it would
Tinkudi
in
Advanced Prostate Cancer
25 days ago
Is it harmful to take Vitamin D & not Vitamin K?
I read that taking vitamin D while not supplementing with vitamin K also can be dangerous as it can lead to calcification of the arteries. I am on warfarin and have been told that I really need to up my Vitamin D, but what do I do about vitamin K?
I read that taking vitamin D while not supplementing with vitamin K also can be dangerous as it can lead to calcification of the arteries. I am on warfarin and have been told that I really need to up my Vitamin D, but what do I do about vitamin K?
gazaeee
in
Anticoagulation Support
25 days ago
Blood thinning jab that won’t cause internal bleeding
In the Health section of the Mail last November I read about a new injection Abelacimab which in a head to head trial caused 81% fewer major bleeding incidents.Warfarin is known to be a risk for bleeding in 16% of patients. I no longer attend a clinic, it was always Rheumatology, but I guess I was deemed
In the Health section of the Mail last November I read about a new injection Abelacimab which in a head to head trial caused 81% fewer major bleeding incidents.Warfarin is known to be a risk for bleeding in 16% of patients. I no longer attend a clinic, it was always Rheumatology, but I guess I was deemed
Zamalek
in
Hughes Syndrome APS Forum
26 days ago
Pradaxa (dabigatran)
I have just started with my afib journey (trek?). My GP told me that my best blood-thinner choices were Coumadin, Xarelto, and Eliquis. I did my research, and, right or wrong, I chose Eliquis, even knowing its expense. (I have no insurance, thus I paid a lot of money to buy my first bottle of pills
I have just started with my afib journey (trek?). My GP told me that my best blood-thinner choices were Coumadin, Xarelto, and Eliquis. I did my research, and, right or wrong, I chose Eliquis, even knowing its expense. (I have no insurance, thus I paid a lot of money to buy my first bottle of pills
Corazon17
in
Atrial Fibrillation Support
26 days ago
STILL IN HOSPITAL
Hi Everyone Im still in hospital & have been for the last 2 weeks with my Interstitial Lung Disease & Pulmomary Disease god knows when I am discharged in the " normal way" When I say " normal" its going to be a Hospice or a .hospital ( a choice i have said No No -) back at home & i said im sure thats
Hi Everyone Im still in hospital & have been for the last 2 weeks with my Interstitial Lung Disease & Pulmomary Disease god knows when I am discharged in the " normal way" When I say " normal" its going to be a Hospice or a .hospital ( a choice i have said No No -) back at home & i said im sure thats
Sara_2611
in
Lung Conditions Community Forum
26 days ago
ET / Osteonecrosis / Surgery
Hello Has anyone else with ET experienced problems with insufficient blood circulation causing osteonecrosis? If surgery is inevitable, what extra cautionary measures should ET patients take? With ET JAK2 diagnosed 11 years ago, I've been on Litalir, changed to Anagrelide 2 years ago and for the last
Hello Has anyone else with ET experienced problems with insufficient blood circulation causing osteonecrosis? If surgery is inevitable, what extra cautionary measures should ET patients take? With ET JAK2 diagnosed 11 years ago, I've been on Litalir, changed to Anagrelide 2 years ago and for the last
Bodensee
in
MPN Voice
28 days ago
Anticoagulants stopped by new consultant
I'll try to be as brief as possible! January 2019 I was diagnosed with a pulmonary embolism in both lungs and also AF and flutter. After various unsuccessful attempts to correct heart I had a catheter ablation June 2019 . Responded well and put on Bisoprolol and anticoagulants which I was told would
I'll try to be as brief as possible! January 2019 I was diagnosed with a pulmonary embolism in both lungs and also AF and flutter. After various unsuccessful attempts to correct heart I had a catheter ablation June 2019 . Responded well and put on Bisoprolol and anticoagulants which I was told would
Nafi
in
Atrial Fibrillation Support
28 days ago
it is possible
to recover from PTSD/ complex PTSD. While I say it’s possible for me there will always be triggers. Recovery for me is knowing when I’m triggered and immediately kicking in with my coping strategies. It takes a lot of work and willingness to live as a survivor and not a victim. This has been my lived
to recover from PTSD/ complex PTSD. While I say it’s possible for me there will always be triggers. Recovery for me is knowing when I’m triggered and immediately kicking in with my coping strategies. It takes a lot of work and willingness to live as a survivor and not a victim. This has been my lived
Lindyloo53
Volunteer
in
Heal My PTSD
1 month ago
Treating constipation hasn't affected the wetting accidents
My son is 8 and has never been dry, day or night. I began toilet training him after his third birthday and I thought at first that I must have done it wrong as he could never keep dry. He would have the occasional poo accident too, but his real problem was wees. I took him to GPs and HVs and was either
My son is 8 and has never been dry, day or night. I began toilet training him after his third birthday and I thought at first that I must have done it wrong as he could never keep dry. He would have the occasional poo accident too, but his real problem was wees. I took him to GPs and HVs and was either
Chinchichip
in
ERIC
4 months ago
Cholesterol and CLL
Hoping for some information from the wise ones here - back in January my GP said she wanted to start me on a statin as my cholesterol was high. I said I preferred to try to bring it down myself rather than with medication (and my intent here is not to start a debate on statins - I just prefer a natural
Hoping for some information from the wise ones here - back in January my GP said she wanted to start me on a statin as my cholesterol was high. I said I preferred to try to bring it down myself rather than with medication (and my intent here is not to start a debate on statins - I just prefer a natural
Kbcjones
in
CLL Support
1 month ago
flecainide versus amiodorone
I had a successful cardioversion using flecainide before and after that lasted 2 years but now AF has returned- I will have another cardioversion but because of my age ( 80) the hospital want me to use amiodorone instead - I wasn’t happy with this suggestion due to the toxic side effects of amiodorone
I had a successful cardioversion using flecainide before and after that lasted 2 years but now AF has returned- I will have another cardioversion but because of my age ( 80) the hospital want me to use amiodorone instead - I wasn’t happy with this suggestion due to the toxic side effects of amiodorone
Spinbiker
in
Atrial Fibrillation Support
1 month ago
HDL and LDL fine :) Lp(a) very high :(
Hello all, good and bad news :) Good - After a few years of slightly high HDL and LDL readings (as shown), my latest HDL and LDL results are normal. I'm 54, very active, not overweight, non-smoker, non-drinker. No medication. I think my diet is fine, no take aways, almost no bread, processed food or
Hello all, good and bad news :) Good - After a few years of slightly high HDL and LDL readings (as shown), my latest HDL and LDL results are normal. I'm 54, very active, not overweight, non-smoker, non-drinker. No medication. I think my diet is fine, no take aways, almost no bread, processed food or
CocoChannel
in
Cholesterol Support
1 month ago
Lupron - are there heart risks?
My father , 83 , recently got diagnosed with Prostate cancer with mets to some bones , as per PSMA test. We have not done a biopsy as one doctor said there is no need to do it as treatment options won’t change but another doctor says it’s good to do it in case later down the line we need to add treatments
My father , 83 , recently got diagnosed with Prostate cancer with mets to some bones , as per PSMA test. We have not done a biopsy as one doctor said there is no need to do it as treatment options won’t change but another doctor says it’s good to do it in case later down the line we need to add treatments
Tinkudi
in
Advanced Prostate Cancer
1 month ago
Anxiety
I suffer from bad anxiety, and PTSD from childhood to now, and am 61 years old. I'd like to join this group to see what others do, or get new ideas on helping with these issues. I do mindfulness and breathing techniques, adult coloring. Can't do a lot of exercises because of DDD, and other back problems
I suffer from bad anxiety, and PTSD from childhood to now, and am 61 years old. I'd like to join this group to see what others do, or get new ideas on helping with these issues. I do mindfulness and breathing techniques, adult coloring. Can't do a lot of exercises because of DDD, and other back problems
Tacoblue
in
Anxiety and Depression Support
2 months ago
Droxia vs Hydrea
I've been treated with Hydroxyurea (hydrea) 500mg for PV since December 2021. Due to stomach issues in March 2023 the HU was decreased to every other day. I did fine on this dosage. My #s stayed pretty much normal & eventually my hemoglobin and hematocrit were actually on the low side of normal so
I've been treated with Hydroxyurea (hydrea) 500mg for PV since December 2021. Due to stomach issues in March 2023 the HU was decreased to every other day. I did fine on this dosage. My #s stayed pretty much normal & eventually my hemoglobin and hematocrit were actually on the low side of normal so
ERei
in
MPN Voice
1 month ago
DVT with intravenous AB
On Friday, I had a PICC line inserted into my right arm to administer Ceftazidime ABs every 24 hours by Hospital at Home nurses. My hand hurt from the moment the line was inserted and by Tuesday, I was experiencing numbness and pins and needles. Long story short, I had an ultrasound and a four inch
On Friday, I had a PICC line inserted into my right arm to administer Ceftazidime ABs every 24 hours by Hospital at Home nurses. My hand hurt from the moment the line was inserted and by Tuesday, I was experiencing numbness and pins and needles. Long story short, I had an ultrasound and a four inch
Poirette
in
Lung Conditions Community Forum
1 month ago
Anti-coag query please
Hi. I wondered if anyone could give me someone with more knowledge than me about anti-coagulation could give me some perspective please. Newly diagnosed with paroxysmal AF. Have been max 5 eps a year all resolving with max several hours. My Chads vascs (spelling?!) score is 2 so cardiologist has prescribed
Hi. I wondered if anyone could give me someone with more knowledge than me about anti-coagulation could give me some perspective please. Newly diagnosed with paroxysmal AF. Have been max 5 eps a year all resolving with max several hours. My Chads vascs (spelling?!) score is 2 so cardiologist has prescribed
Joeyy06
in
Atrial Fibrillation Support
1 month ago
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