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Would appreciate any support❤
Hi all im going through a really tough time now, and I would appreciate any support.The last few months have been really difficult for me. I developed severe ptsd as a result of a traumatic situation at work. I have always had social anxiety but my social anxiety has reached an all time high. When I
Hi all im going through a really tough time now, and I would appreciate any support.The last few months have been really difficult for me. I developed severe ptsd as a result of a traumatic situation at work. I have always had social anxiety but my social anxiety has reached an all time high. When I
Rose23456
in
Anxiety and Depression Support
1 year ago
Hip replacement
On 22nd January,I had a partial hip replacement following a fall.I have made a good recovery and my hip has healed well. But I am still very tired and I have sharp pains in my left shoulder and right wrist. I imagine it's a flare up... But it's odd that these two joints are causing far more pain than
On 22nd January,I had a partial hip replacement following a fall.I have made a good recovery and my hip has healed well. But I am still very tired and I have sharp pains in my left shoulder and right wrist. I imagine it's a flare up... But it's odd that these two joints are causing far more pain than
KathleenMary
in
Scleroderma & Raynaud's UK (SRUK)
1 year ago
Pains
Hi, I was diagnosed with PA a year ago. I've got a vibrating in my feet like a mobile phone on vibrate, is this normal. Also just received my b12 injection and I've been in agony with my legs especially and my other joints. When I wake in the morning my hands are numb. Has anyone else suffered this.
Hi, I was diagnosed with PA a year ago. I've got a vibrating in my feet like a mobile phone on vibrate, is this normal. Also just received my b12 injection and I've been in agony with my legs especially and my other joints. When I wake in the morning my hands are numb. Has anyone else suffered this.
roxicat
in
Pernicious Anaemia Society
1 year ago
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Cholesterol-lowering drug aids mitochondria in Parkinson’s models
https://parkinsonsnewstoday.com/news/cholesterol-drug-aids-mitochondria-parkinsons-models/ Probucol, no longer in wide use, may open new way of treating disease by Marisa Wexler, MS | March 7, 2023 Probucol, a cholesterol-lowering medication previously used in Western countries, improved motor function
https://parkinsonsnewstoday.com/news/cholesterol-drug-aids-mitochondria-parkinsons-models/ Probucol, no longer in wide use, may open new way of treating disease by Marisa Wexler, MS | March 7, 2023 Probucol, a cholesterol-lowering medication previously used in Western countries, improved motor function
Sun_and_flowers
in
Cure Parkinson's
1 year ago
Chest xray
Since November I have been suffering outbreaks of body rash the hospital has put it down as vasculitis caused from my 6th covid vaccine and I'm on steroids 6 a day and antihistamines currently as I had a bad outbreak again last week . Saw my consultant again this week for bloods etc and good news
Since November I have been suffering outbreaks of body rash the hospital has put it down as vasculitis caused from my 6th covid vaccine and I'm on steroids 6 a day and antihistamines currently as I had a bad outbreak again last week . Saw my consultant again this week for bloods etc and good news
cartwheels
in
CLL Support
1 year ago
Treating leukocytosis in PV
I was diagnosed with PV in 2015 and I am JAK2 positive. I've been on Jakafi for about six months, and my current dosage of 10 mg/day seems to be doing a good job of controlling my HCT, HGB, and PLT numbers. However, my WBC numbers are consistently high, running at 19-20 K/uL. I understand that the literature
I was diagnosed with PV in 2015 and I am JAK2 positive. I've been on Jakafi for about six months, and my current dosage of 10 mg/day seems to be doing a good job of controlling my HCT, HGB, and PLT numbers. However, my WBC numbers are consistently high, running at 19-20 K/uL. I understand that the literature
sbs_patient
in
MPN Voice
1 year ago
Trebon N
I recently had covid, my legs were quiet for qite a while. They did start up again, not too badly. Anyway I had a cough and blocked up nose after covid so the pharmacist told me to take trebon N. I havent had any leg problems and I only take one sachet a day. I dont know of course if its the trebon thats
I recently had covid, my legs were quiet for qite a while. They did start up again, not too badly. Anyway I had a cough and blocked up nose after covid so the pharmacist told me to take trebon N. I havent had any leg problems and I only take one sachet a day. I dont know of course if its the trebon thats
Coeso
in
Restless Legs Syndrome
1 year ago
Severe Raynaud's
Hi I have severe primary Raynaud's and have iloprost infusions every month at the minute the problem I have is like cold running water from my knees down to the ends of my toes, can anyone shed any light on this? I also get aches and pains in the same place. Any advise is appreciated.
Hi I have severe primary Raynaud's and have iloprost infusions every month at the minute the problem I have is like cold running water from my knees down to the ends of my toes, can anyone shed any light on this? I also get aches and pains in the same place. Any advise is appreciated.
Verily
in
Scleroderma & Raynaud's UK (SRUK)
1 year ago
Continuing Healthcare Farce
We have just been declined for CHC funding for my dad who has advanced stage CBD. Apparently he does not meet the health criteria!! He is on lots of medication which my mum administers. He is at home with carers coming in 4 times a day to do all the personal care and has a visit from the District Nurses
We have just been declined for CHC funding for my dad who has advanced stage CBD. Apparently he does not meet the health criteria!! He is on lots of medication which my mum administers. He is at home with carers coming in 4 times a day to do all the personal care and has a visit from the District Nurses
Stormtrooper4
in
PSP Association
1 year ago
Amitriptyline
Hello, I’m 83 and have AF and a monitor in my chest linked to the hospital Cardiac department and take Apixaban to control this. I’ve been prescribed Amitriptyline for neurological pain after Varicose vein surgery at a 10mg dose. The doctor didn’t discuss my AF and I’m worried this new drug might be
Hello, I’m 83 and have AF and a monitor in my chest linked to the hospital Cardiac department and take Apixaban to control this. I’ve been prescribed Amitriptyline for neurological pain after Varicose vein surgery at a 10mg dose. The doctor didn’t discuss my AF and I’m worried this new drug might be
Brynsiriol
in
AF Association
1 year ago
very high cholesterol
I had a visit with my cardiologist (my hero as she was the one to suspect GCA two years ago while dealing with uncontrollable blood pressure and head pain and eye issues) so she knows my whole GCA story. Anyways my cholesterol has gotten very out of control even with taking Crestor, my cholesterol levels
I had a visit with my cardiologist (my hero as she was the one to suspect GCA two years ago while dealing with uncontrollable blood pressure and head pain and eye issues) so she knows my whole GCA story. Anyways my cholesterol has gotten very out of control even with taking Crestor, my cholesterol levels
pmac22
in
PMRGCAuk
1 year ago
Does anyone have severe (Grade 3 or 4) internal prolapsed and thrombosed hemorrhoids and told you need a hemmoroidectomy?
Sorry for the sensitivity of the subject..but can anyone relate? They say that one in three people develop hemorrhoids especially as one ages and they grow more severe. I want mine done with a laser as it is not such a painful long recovery. I'm also afraid of incontinence and long term recovery. Since
Sorry for the sensitivity of the subject..but can anyone relate? They say that one in three people develop hemorrhoids especially as one ages and they grow more severe. I want mine done with a laser as it is not such a painful long recovery. I'm also afraid of incontinence and long term recovery. Since
Eliana5
in
IBS Network
1 year ago
Treatment of PMR - Rituximab as a glucocorticoid sparing agent.
1-year results of treatment with rituximab in polymyalgia rheumatica: an extension study of a randomised double-blind placebo-controlled https://www.thelancet.com/journals/lanrhe/article/PIIS2665-9913(23)00032-2/fulltext?dgcid=raven_jbs_aip_email After a single dose of rituximab (1000 mg), the proportion
1-year results of treatment with rituximab in polymyalgia rheumatica: an extension study of a randomised double-blind placebo-controlled https://www.thelancet.com/journals/lanrhe/article/PIIS2665-9913(23)00032-2/fulltext?dgcid=raven_jbs_aip_email After a single dose of rituximab (1000 mg), the proportion
Exflex
in
PMRGCAuk
1 year ago
My daughter and GAN and PTSD
My daughter was diagnosed with GAN and PTSD when she was in Hospital. Now she has been a year, next Tuesday, in supported living and wants a copy of her diagnoses but is being denied that incase it triggers her PTSD just by reading it! Do I have the right to ask for a copy? I am very curious about what
My daughter was diagnosed with GAN and PTSD when she was in Hospital. Now she has been a year, next Tuesday, in supported living and wants a copy of her diagnoses but is being denied that incase it triggers her PTSD just by reading it! Do I have the right to ask for a copy? I am very curious about what
Amanba
in
Anxiety and Depression Support
1 year ago
Lidocaine Plasters/Patches.
Hello Everyone I've just been told by my GP that he can no longer prescribe Lidocaine Patches and instead there is a cream!. I've been having them for a long time for neuropathic pain and just wonder if this is correct.?. Also, is anyone trying the cream called LMX and how are you finding it?. Hope
Hello Everyone I've just been told by my GP that he can no longer prescribe Lidocaine Patches and instead there is a cream!. I've been having them for a long time for neuropathic pain and just wonder if this is correct.?. Also, is anyone trying the cream called LMX and how are you finding it?. Hope
misty14
in
Pain Concern
1 year ago
Hydroxycarbamide twice a day - am & pm?
This sounds a very trivial question, but I know that you are a patient and helpful community. I was diagnosed with ET JAK2 last September. I began taking hydroxycarbamide in October 2022, one tablet per day. In December my dosage went up to 9 per week and the consultant said that I didn't have to
This sounds a very trivial question, but I know that you are a patient and helpful community. I was diagnosed with ET JAK2 last September. I began taking hydroxycarbamide in October 2022, one tablet per day. In December my dosage went up to 9 per week and the consultant said that I didn't have to
HoundSept2022
in
MPN Voice
1 year ago
pulmonary embolism
good morning everyone. I’ve been poorly with a blood clot in my lung which after 4 doctors 1 paramedic 2 hospital visits they found on a chest X-ray. I had a bad chest infection too which was mimicking the clot. I’ve been on a course of blood thinners and feel completely wiped out. I had my 4 weekly
good morning everyone. I’ve been poorly with a blood clot in my lung which after 4 doctors 1 paramedic 2 hospital visits they found on a chest X-ray. I had a bad chest infection too which was mimicking the clot. I’ve been on a course of blood thinners and feel completely wiped out. I had my 4 weekly
Hedgehogs15
in
Pernicious Anaemia Society
1 year ago
Hyaluronic acid excess
Hello Given the serious and worrying range of symptoms that are discussed here, I hope it's not annoying to ask about a minor one. I'm wondering if anyone else has a problem with excess hyaluronic acid and if so what facial moisturising creams are appropriate? A post I saw here some months ago helped
Hello Given the serious and worrying range of symptoms that are discussed here, I hope it's not annoying to ask about a minor one. I'm wondering if anyone else has a problem with excess hyaluronic acid and if so what facial moisturising creams are appropriate? A post I saw here some months ago helped
StPetes
in
Thyroid UK
1 year ago
Long haul flight uk to Vancouver
I fly out to Vancouver at 2.00 pm so I can take my usual two doses of Gabapentin on the flight, I will land at about 4.00 pm Canadian time. Any suggestions to how I can manage the time change would be very welcome. The thought of jet lag combined with out of control RLS is frightening. I tried to discuss
I fly out to Vancouver at 2.00 pm so I can take my usual two doses of Gabapentin on the flight, I will land at about 4.00 pm Canadian time. Any suggestions to how I can manage the time change would be very welcome. The thought of jet lag combined with out of control RLS is frightening. I tried to discuss
Elsie77
in
Restless Legs Syndrome
1 year ago
Getting support for C-PTSD
The NHS are on their knees in regards to support for people's mental health. It is extremely difficult to access support, diagnosis and an up to date programme for people with anxiety, ADHD and C_PTSD. I think I may need to set up a support group myself.
The NHS are on their knees in regards to support for people's mental health. It is extremely difficult to access support, diagnosis and an up to date programme for people with anxiety, ADHD and C_PTSD. I think I may need to set up a support group myself.
FireDusk
in
Anxiety and Depression Support
1 year ago
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