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Total hysterectomy
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Extreme endometriosis
Hi lovely ladies, I have recently been diagnosed with extreme endometriosis and am awaiting confirmation on having to have a full hysterectomy. I’m in quite a bit of pain, most of the time, and was wondering if anyone had any solutions to help? I’m currently on Menfenamic acid for the pain which doesn
Hi lovely ladies, I have recently been diagnosed with extreme endometriosis and am awaiting confirmation on having to have a full hysterectomy. I’m in quite a bit of pain, most of the time, and was wondering if anyone had any solutions to help? I’m currently on Menfenamic acid for the pain which doesn
Dustydoggo
in
Endometriosis UK
3 years ago
Whoa
So I’m 52… have always been told that I was disgustingly healthy. Active mother of two. Then in 2016, I almost bled to death was hospitalized, blood transfusions and had an emergency hysterectomy. 2018 on annual blood test noticed platelets were in 800,000’s. Doctor looked at 2017 test and platelets
So I’m 52… have always been told that I was disgustingly healthy. Active mother of two. Then in 2016, I almost bled to death was hospitalized, blood transfusions and had an emergency hysterectomy. 2018 on annual blood test noticed platelets were in 800,000’s. Doctor looked at 2017 test and platelets
Bug68
in
MPN Voice
3 years ago
Adhesion advice
Hi everyone I had a partial hysterectomy laparoscopy in October last year ovaries were left in and removal of endometriosis adhesions around bowel area and around c section scar It felt like I never properly recovered from this surgery and for the last day 4 months I was still in constant pain and
Hi everyone I had a partial hysterectomy laparoscopy in October last year ovaries were left in and removal of endometriosis adhesions around bowel area and around c section scar It felt like I never properly recovered from this surgery and for the last day 4 months I was still in constant pain and
cathhomer
in
Endometriosis UK
3 years ago
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Starting the endo diagnosis journey but I'm still not sure...
Hello - earlier this year I started the endo diagnosis journey after nearly 20 years of traipsing in and out of the doctors with multiple symptoms. I've been told it's IBS, it's your hormones and you're a woman, it's just one of those things you have to live with. Last year I had enough, I started bleeding
Hello - earlier this year I started the endo diagnosis journey after nearly 20 years of traipsing in and out of the doctors with multiple symptoms. I've been told it's IBS, it's your hormones and you're a woman, it's just one of those things you have to live with. Last year I had enough, I started bleeding
Mar3485
in
Endometriosis UK
3 years ago
Could this be Lupus? A very long journey...
Hello all! I've been suffering for 30 or so years with many symptoms. Since puberty I have suffered with absent seizures, hand shakes, joint pain so bad I can't walk, stiff hands in the mornings (my little fingers get locked and need to be manipulated), stuttering (when I'm not feeling good), rashes
Hello all! I've been suffering for 30 or so years with many symptoms. Since puberty I have suffered with absent seizures, hand shakes, joint pain so bad I can't walk, stiff hands in the mornings (my little fingers get locked and need to be manipulated), stuttering (when I'm not feeling good), rashes
London1979
in
LUPUS UK
3 years ago
Hysterectomy recovery tips
Hello ladies. I'm one of the lucky ones to finally have surgery, unfortunately for me a hysterectomy was my only choice left. I know it might not be the end of endo but I've made my peace with it and anything to try and have less pain, I'll do it. Anyway, it's almost been a week and the pain is starting
Hello ladies. I'm one of the lucky ones to finally have surgery, unfortunately for me a hysterectomy was my only choice left. I know it might not be the end of endo but I've made my peace with it and anything to try and have less pain, I'll do it. Anyway, it's almost been a week and the pain is starting
BellyEllieBob
in
Endometriosis UK
3 years ago
Fred the iron molecule, and RLS : A story.
A story with no ending. If you don't like stories skip to "THE END" I have an ex-colleague who used to teach physiology using guided imagery. I attended one of her lectures once on the oxygenation of blood. All the students had to close their eyes and sit, (or lie down) comfortably. Then she began
A story with no ending. If you don't like stories skip to "THE END" I have an ex-colleague who used to teach physiology using guided imagery. I attended one of her lectures once on the oxygenation of blood. All the students had to close their eyes and sit, (or lie down) comfortably. Then she began
Hidden
in
Restless Legs Syndrome
3 years ago
Low Oxalate Diet, an explanation for why it works
More than six years ago I found that I could turn my RLS discomforts on and off by controlling the amount of oxalate in my diet. My original breakthrough in understanding came after about 5 years of closely monitoring my diet and my daily discomfort level. Many people who conscientiously follow a
More than six years ago I found that I could turn my RLS discomforts on and off by controlling the amount of oxalate in my diet. My original breakthrough in understanding came after about 5 years of closely monitoring my diet and my daily discomfort level. Many people who conscientiously follow a
notnowdad
in
Restless Legs Syndrome
3 years ago
If you had a hysterectomy and/or oophorectomy- what was the trigger?
Hi, I have an appointment next week and try to anticipate what might be coming and prepare questions. It will be my first gynae appointment but I already have the MRI scan results via my GP. I have recto vaginal endo, my pouch of Douglas is full, I have DIE along my uterosacral ligaments, tethering
Hi, I have an appointment next week and try to anticipate what might be coming and prepare questions. It will be my first gynae appointment but I already have the MRI scan results via my GP. I have recto vaginal endo, my pouch of Douglas is full, I have DIE along my uterosacral ligaments, tethering
CurlyandConfused
in
Endometriosis UK
3 years ago
Vitamin and mineral advice please - edited and added thyroid results
Hi everyone. I was hoping someone could comment on my latest vitamin and mineral results please? I am currently taking 125mcg levothyroxine and have a blood test this morning at 9am so will post those results later today/tomorrow as still symptomatic. I have added thyroid results below too now. But for
Hi everyone. I was hoping someone could comment on my latest vitamin and mineral results please? I am currently taking 125mcg levothyroxine and have a blood test this morning at 9am so will post those results later today/tomorrow as still symptomatic. I have added thyroid results below too now. But for
A2C3
in
Thyroid UK
3 years ago
Why am I getting burning abdo pain nearly 12 months post surgery for ovarian cancer ( hysterectomy, omentum,BSO and node removal
I am 12 months post surgery and completed chemo for bilateral ovarian cancer. It was stage 1 C. This pain was present immediately post op and improved but now has recurred. It’s an odd burning pain. Is this common and if so what causes it and what can I do to treat it?
I am 12 months post surgery and completed chemo for bilateral ovarian cancer. It was stage 1 C. This pain was present immediately post op and improved but now has recurred. It’s an odd burning pain. Is this common and if so what causes it and what can I do to treat it?
Bluechef3
in
My Ovacome
3 years ago
Advice needed post total knee replacement
Hi. I had total left knee replacement surgery on 5th May with lymphedema in the same leg (I have it bilaterally in legs, hands and arms) Since surgery I developed cellulitis that Dr's did not accept and treat until 2 weeks afterwards. I now have an itchy rash around my knee scar. Any advice greatfully
Hi. I had total left knee replacement surgery on 5th May with lymphedema in the same leg (I have it bilaterally in legs, hands and arms) Since surgery I developed cellulitis that Dr's did not accept and treat until 2 weeks afterwards. I now have an itchy rash around my knee scar. Any advice greatfully
PinkPixie72
in
LSN
3 years ago
Any advice or experiences
Hi all, so I've just had an ultrasound and I have 2 cysts on both ovaries the biggest is 4cm and on the left side, but my right side is where I get the most pain (I'm in a lot of pain at the mo) I'm still waiting for my blood results, hopefully I'll hear from my specialist soon 🤞 as I'm waiting for
Hi all, so I've just had an ultrasound and I have 2 cysts on both ovaries the biggest is 4cm and on the left side, but my right side is where I get the most pain (I'm in a lot of pain at the mo) I'm still waiting for my blood results, hopefully I'll hear from my specialist soon 🤞 as I'm waiting for
Pureunicorn
in
Endometriosis UK
3 years ago
Why constant low iron issues
I need some help understanding why Im constantly having low iron issues. I was taking Iron tabs late last year after testing for low iron but I stopped taking tabs in January and was suppose to retest but I didn’t and last Saturday I “almost” passed out but as quick as that happened it disappeared
I need some help understanding why Im constantly having low iron issues. I was taking Iron tabs late last year after testing for low iron but I stopped taking tabs in January and was suppose to retest but I didn’t and last Saturday I “almost” passed out but as quick as that happened it disappeared
Batty1
in
Thyroid UK
3 years ago
Pros and cons of voluntary hysterectomy?
I have been going through early menopause since 2017, over this time I have tried a variety of HRT without much success at dealing with the symptoms. I have just begun another variation and am going to give it a chance for a few months to assess properly but wanted to gain some info about alternatives
I have been going through early menopause since 2017, over this time I have tried a variety of HRT without much success at dealing with the symptoms. I have just begun another variation and am going to give it a chance for a few months to assess properly but wanted to gain some info about alternatives
MeningitisGirl
in
Women's Health
3 years ago
Do these readings suggest hemochromatosis please
Have just got results in for iron test done on Medichecks as follows:- Iron 26.4 (6.6-26) TIBC 66 (41-77) Transferrin Saturation 40 (20.55) Ferritin 50 (13-150) Would be grateful for any comments as always - thank you!
Have just got results in for iron test done on Medichecks as follows:- Iron 26.4 (6.6-26) TIBC 66 (41-77) Transferrin Saturation 40 (20.55) Ferritin 50 (13-150) Would be grateful for any comments as always - thank you!
Delgor
in
Thyroid UK
3 years ago
Surgery wind pain
Little heads up for anyone having surgery the wind pain can be excruciating! I don't remember having it with my last surgery but then that was 2 years ago and only to remove cysts and some endo, this time around I had stage 4 endo everywhere my bowel has took a good hammering in surgery and this time
Little heads up for anyone having surgery the wind pain can be excruciating! I don't remember having it with my last surgery but then that was 2 years ago and only to remove cysts and some endo, this time around I had stage 4 endo everywhere my bowel has took a good hammering in surgery and this time
lthompson81
in
Endometriosis UK
3 years ago
Endo untreatable, hysterectomy advised
Hi. I’m new to this forum (although probably should have joined years ago). I was diagnosed with endo in 2006. It was treated and for years I was ok. But in 2013/2014 I started getting significant pain again. I saw a new specialist (thankfully through private health insurance through my work or would
Hi. I’m new to this forum (although probably should have joined years ago). I was diagnosed with endo in 2006. It was treated and for years I was ok. But in 2013/2014 I started getting significant pain again. I saw a new specialist (thankfully through private health insurance through my work or would
Tewks1978
in
Endometriosis UK
3 years ago
Violin string adhesions
Hi, I had a hysterectomy 20 years ago after 2 years of a lot of pain. The gynecologist said its fibroids. When they operated they found my abdomen was all stuck together with what he described as violin string adhesions. I made a quick and good recovery then 2 months later I became really unwell,
Hi, I had a hysterectomy 20 years ago after 2 years of a lot of pain. The gynecologist said its fibroids. When they operated they found my abdomen was all stuck together with what he described as violin string adhesions. I made a quick and good recovery then 2 months later I became really unwell,
Mrsmr
in
Endometriosis UK
3 years ago
Nausea, back pain and more pain. Thanks endo!
Hello everyone. So long story short, 2017 diagnosed, 2019 1st lap excision, zoladex until September last year. Currently taking Amytriptyline, mefanamicacid, transexamic acid, buscopan to help me. Oh and coil put back in again last month. Waiting for hysterectomy, yay 😢. Well nothing is helping and
Hello everyone. So long story short, 2017 diagnosed, 2019 1st lap excision, zoladex until September last year. Currently taking Amytriptyline, mefanamicacid, transexamic acid, buscopan to help me. Oh and coil put back in again last month. Waiting for hysterectomy, yay 😢. Well nothing is helping and
BellyEllieBob
in
Endometriosis UK
3 years ago
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