Do these readings suggest hemochromatosis please

[Delgor]

Have just got results in for iron test done on Medichecks as follows:-

Iron 26.4 (6.6-26)

TIBC 66 (41-77)

Transferrin Saturation 40 (20.55)

Ferritin 50 (13-150)

Would be grateful for any comments as always - thank you!

[Jazzw]

Unless that “50” is a typo, I wouldn’t have said so. Ferritin would be way up through the 100s.

What made you think that it might be?

[Delgor in reply to Jazzw]

Thanks so much Jazz - I did a hair test to see if that would throw up any clues as to my stomachaches and was told I had iron overload and possibly hemochromatosis as well as high thyroid levels so thought I would check this out for myself. I've now read up on said subject and have a good idea what may have caused it and can take action to reduce it. Thanks so much again for your speedy reply - it's much appreciated!

[nellie237]

I've read that serum iron fluctuates, which is why most GP's only test ferritin. Was this a 'fasting test'?

[Delgor in reply to nellie237]

Hi Nellie - yes 12 hours with only water

[Jazzw]

It doesn’t look like that hair test was particularly accurate—although your serum iron is on the high side. Have you been taking iron tablets? But conversely, your ferritin is actually on the low side. With iron levels, sometimes you just can’t win…. But haemochromatosis looks highly unlikely.

You might find these threads an interesting read.

healthunlocked.com/thyroidu...

healthunlocked.com/thyroidu...

[Delgor in reply to Jazzw]

Thanks very much Jazz - yes I had been taking iron as a multivitamin whilst also supplementing with vitamin c tablets and also dietary changes - oh dear!

[mourneadventurer]

Perhaps consider a Full Moon parasite cleanse (Amrita nutrition) or ask GP to follow up why stomach aches. Cellcore biosciences or Microbe formulas have excellent background resources.Low HCl is common when underlying hypo symptoms are not addressed which leaves the patient susceptible to dybiosis and unwanted passengers.

[Delgor in reply to mourneadventurer]

Many thanks for that info - yes I have had gut problems for sure and perhaps they haven't all been addressed but I'm looking at everything and interested in anything that might help put me right. Thanks again!

[mourneadventurer in reply to Delgor]

You’re welcome. 😀

[radd in reply to mourneadventurer]

Oh, mourneadventure (the parasite person 😊).

I remember having this conversation with you about 5 years ago, and you were right then. Comparing notes on blastocystis hominis & latest protocols, and you had some special tool ? I always wondered where you put it! 😁

[mourneadventurer in reply to radd]

I can’t remember which tool as I’ve always thought outside the tool-box.Glad the heads up with Blastocystis served you well then!

😀

As you know doubt have learnt that if you have low zinc from whatever route cause it leads to low HCl and probably H.Pylori.

The cascade effect on not digesting food properly leads to the undigested food being mopped up by undesirables.

The Full Moon protocol works as melatonin levels drop and serotonin levels rise either side of a full moon. Therefore the best time to quietly remove unwanted, unsuspecting passengers (we might have picked up) when unknowingly clinically hypothyroid but by conventional medicine standards within range!

It works.👍 I think there might be a link between the body storing iron away from undesirables hence this suggestion. Also with MTHFR challenges heavy metals are not removed efficiently and parasites mop up.

[grumpyold]

I have got haemochromatosis. I would say, you haven't. If you did, your ferritin and transferrin saturation percentage would be much higher.

[Delgor in reply to grumpyold]

Many thanks - at least I feel I can eliminate hemochromatosis from the equation whilst looking at everything else - cheers!

[radd]

Delgor,

At present no, but this is something you should keep an eye on.

Your transferrin saturation (TS) level is creeping up. Anything over 45% is considered too high and yours is 57.14%. Elevated TS is an indicator of iron overload, ie too many transferrin protein carriers loaded up with iron.

When your iron stores run low, your liver produces more transferrin to attract more iron out of storage for usage. However, if you have too much iron your body will also produce transferrin in its efforts to bind more and eliminate free iron which is toxic. Your blood serum levels are high. Have you been supplementing?

Elevated TS can be thought of as an early indicator of haemochromotosis, and if levels continued to raise and ferritin/haemoglobin levels allowed, it would eventually need to be reduced by venesection.

Some haemochromotosis sufferers have ferritin levels in the thousands, the hundreds are more common. Mine were under 300 when diagnosed but my biggest indicator was TS at 100% proving all iron related tests must always be considered. It may be that your ferritin levels never catch up and it is a common myth that you have to have hugely elevated ferritin levels to have haemochromotisis. Ferritin is always used as the first line indicator of iron levels and is sometimes a poor one at that.

Also contrary to popular belief haemochromotosis is when we absorb too much and not have excretion issues as very little iron gets excreted anyway, just a minute amounts in poo, sweat, tears, etc. People without haemochromotosis have little need to excrete due to complex mechanisms that only allow them to absorb enough for usage & storage because iron is so toxic. However, to further complicate matters 🤣, having MTHFR issues can impede normal iron usage.

If I were you I would ask for another iron panel in 6-12 months time to assess what is happening.

[Delgor in reply to radd]

Thanks so much Radd - talk about a minefield - as fast as I research one thing another seems to crop up. I was supplementing with a multi vitamin tablet which contained iron but then when I read up on HU I stopped taking this and vitamin B12 tablets and changed to vitamin B complex as suggested but have had to keep stopping this because of various blood tests. Interestingly the Blue Horizon premium gold test I did at the end of March showed my Ferritin level to be 85 (13-150) so perhaps the diet has changed things. I've also now reduced thyroid medication to 1 1/2 grains of Armour (for past week) so this also may have a bearing on matters. I've just been referred for yet another scan so this may also throw some light on things. I've also now reduced thyroid medication to 1 1/2 grains of Armour so will do another vitamin test pronto to see what is happening there - so much going on but I feel that gradually I am getting some answers.

[Sylvia22]

When I had digestive problems I took Mastic Gum capsules until it resolved. I keep some in the cupboard as they can clear parasites if you have them especially H Pylori

[Delgor in reply to Sylvia22]

Many thanks Sylvia - learning so much from all the lovely people on this forum!

[Mcj68]

Hi I have haemochromatosis. When I was diagnosed my ferritin was at 890 and my transference saturation was 98% so looking at your results while of course there is a possibility and you don’t yet have iron overload yet. Get the genetic testing done just in case

[Delgor in reply to Mcj68]

Thanks for your suggestion - hope you are now getting somewhere with your own problems - it's all such a minefield!