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Endo untreatable, hysterectomy advised
Hi. I’m new to this forum (although probably should have joined years ago). I was diagnosed with endo in 2006. It was treated and for years I was ok. But in 2013/2014 I started getting significant pain again. I saw a new specialist (thankfully through private health insurance through my work or would
Hi. I’m new to this forum (although probably should have joined years ago). I was diagnosed with endo in 2006. It was treated and for years I was ok. But in 2013/2014 I started getting significant pain again. I saw a new specialist (thankfully through private health insurance through my work or would
Tewks1978
in
Endometriosis UK
3 years ago
Violin string adhesions
Hi, I had a hysterectomy 20 years ago after 2 years of a lot of pain. The gynecologist said its fibroids. When they operated they found my abdomen was all stuck together with what he described as violin string adhesions. I made a quick and good recovery then 2 months later I became really unwell,
Hi, I had a hysterectomy 20 years ago after 2 years of a lot of pain. The gynecologist said its fibroids. When they operated they found my abdomen was all stuck together with what he described as violin string adhesions. I made a quick and good recovery then 2 months later I became really unwell,
Mrsmr
in
Endometriosis UK
3 years ago
Nausea, back pain and more pain. Thanks endo!
Hello everyone. So long story short, 2017 diagnosed, 2019 1st lap excision, zoladex until September last year. Currently taking Amytriptyline, mefanamicacid, transexamic acid, buscopan to help me. Oh and coil put back in again last month. Waiting for hysterectomy, yay 😢. Well nothing is helping and
Hello everyone. So long story short, 2017 diagnosed, 2019 1st lap excision, zoladex until September last year. Currently taking Amytriptyline, mefanamicacid, transexamic acid, buscopan to help me. Oh and coil put back in again last month. Waiting for hysterectomy, yay 😢. Well nothing is helping and
BellyEllieBob
in
Endometriosis UK
3 years ago
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Improvement in ferritin levels but feel even worse.
I have struggled with low iron for some time. After being contacted on here about the possible effects of taking turmeric on iron levels I decided to stop the supplement and see if my iron levels improved. I have messed this up by eating more liver than previously because I wanted to add T3 to my liquid
I have struggled with low iron for some time. After being contacted on here about the possible effects of taking turmeric on iron levels I decided to stop the supplement and see if my iron levels improved. I have messed this up by eating more liver than previously because I wanted to add T3 to my liquid
Mugs19
in
Thyroid UK
3 years ago
Adeno/ endo chronic pain
Hey all new to this site got referred from a friend from the adenomyosis site bc well I have both got diagnosed in November and preparing to have hysterectomy soon. Just wanted to say hi to everyone and share my personal experiences
Hey all new to this site got referred from a friend from the adenomyosis site bc well I have both got diagnosed in November and preparing to have hysterectomy soon. Just wanted to say hi to everyone and share my personal experiences
Castillo36
in
Not Defined By Endometriosis
3 years ago
Good news stories
That is great news everyone wants to hear positive outcomes.When I was first diagnosed I just wanted to hear positive stories. I really depended on information from Ovacome and hearing about other peoples experiences and advice. I was diagnosed in 2014 with grade 3c bowel cancer. After partial bowel
That is great news everyone wants to hear positive outcomes.When I was first diagnosed I just wanted to hear positive stories. I really depended on information from Ovacome and hearing about other peoples experiences and advice. I was diagnosed in 2014 with grade 3c bowel cancer. After partial bowel
Heatherslade
in
My Ovacome
3 years ago
Prostap before hysterectomy
A question on prostap..... I’ve seen my specialist again today, after lap and MRI it has been decided a full hysterectomy is my best way forward. I have to start prostap injections for 6 months before she will operate. Just looking for some advice on how you’ve felt during prostap? What to expect
A question on prostap..... I’ve seen my specialist again today, after lap and MRI it has been decided a full hysterectomy is my best way forward. I have to start prostap injections for 6 months before she will operate. Just looking for some advice on how you’ve felt during prostap? What to expect
JH21
in
Endometriosis UK
3 years ago
Decapeptyl & HRT
Hi All So I started HRT just over a week ago as addback therapy while I am on Decapeptyl injections. I was experiencing hot flushes and low mood which have improved but over the last 24/48 hours my endo pains are back with a vengeance and have started a period like bleed. I had been pain free since
Hi All So I started HRT just over a week ago as addback therapy while I am on Decapeptyl injections. I was experiencing hot flushes and low mood which have improved but over the last 24/48 hours my endo pains are back with a vengeance and have started a period like bleed. I had been pain free since
MamaofFurBabies
in
Endometriosis UK
3 years ago
When you get fed up and email Mr Bojo Johnson 🤣
Mr Johnson, I’m writing this email in sheer disgust with our NHS and it’s massive failings, that will no doubt, impact the rest of my life! You see, I have a severe chronic disease called Endometriosis, which left me on 3 monthly follow-ups for the last 4-5 years, with absolutely no point whatsoever
Mr Johnson, I’m writing this email in sheer disgust with our NHS and it’s massive failings, that will no doubt, impact the rest of my life! You see, I have a severe chronic disease called Endometriosis, which left me on 3 monthly follow-ups for the last 4-5 years, with absolutely no point whatsoever
Heloo85
in
Endometriosis UK
3 years ago
Daughters recent blood result
Thrive blood results 20 May 2021: TSH 7.18 ( Range 2.5 - 4.2) FT4 13.6 (Range ? 12 - 17) (TIBC) 78 High, (Range 0 - 100) Transferrin saturation 22% ? Normal (? Range 0 - 100) Ferritin 80 Optimal (Range 15 - 150) Iron 17.3 Normal (Range 5.8 - 60) URBC 61.1 Normal (Range 0-125) VitaminB9&
Thrive blood results 20 May 2021: TSH 7.18 ( Range 2.5 - 4.2) FT4 13.6 (Range ? 12 - 17) (TIBC) 78 High, (Range 0 - 100) Transferrin saturation 22% ? Normal (? Range 0 - 100) Ferritin 80 Optimal (Range 15 - 150) Iron 17.3 Normal (Range 5.8 - 60) URBC 61.1 Normal (Range 0-125) VitaminB9&
JAE69
in
Thyroid UK
3 years ago
3 weeks after my hysterectomy
Hi All ☺️ Just wanted to post as a few have asked how I’m doing after my
total
hysterectomy
, I know everyone’s experience will be different but for me it’s the best thing I’ve done. I’m still recovering but I have no pain 🥳 moving about going on short walks and just feeling better in myself.
Hi All ☺️ Just wanted to post as a few have asked how I’m doing after my
total
hysterectomy
, I know everyone’s experience will be different but for me it’s the best thing I’ve done. I’m still recovering but I have no pain 🥳 moving about going on short walks and just feeling better in myself.
Lou93
in
Endometriosis UK
3 years ago
Ferritin Levels - Recommendations?
I recently had an Iron Profile done and my ferritin result came back as 17ug/l . The doctor said this was normal, but I read on here that Ferritin is one of the big issues for RLS. I'm frustrated as they know about my issues with RLS and I've had to fight for years to get them to take it seriously.
I recently had an Iron Profile done and my ferritin result came back as 17ug/l . The doctor said this was normal, but I read on here that Ferritin is one of the big issues for RLS. I'm frustrated as they know about my issues with RLS and I've had to fight for years to get them to take it seriously.
jenki2
in
Restless Legs Syndrome
3 years ago
Still here
Well Ladies I have reached my 5year milestone. I’m fine still after stage 2C diagnosis in April 2016.I had a full Hysterectomy and 5months of chemo.I hope this gives some of you hope for the future.I have lived to see my grandchildren grow,I have had holidays,looked after my mum,etc all the things I
Well Ladies I have reached my 5year milestone. I’m fine still after stage 2C diagnosis in April 2016.I had a full Hysterectomy and 5months of chemo.I hope this gives some of you hope for the future.I have lived to see my grandchildren grow,I have had holidays,looked after my mum,etc all the things I
Joanne59
in
My Ovacome
3 years ago
Prolapse bladder
Hi all, wanted to know if anybody has had a pessary ring fitted for a prolapse bladder? Ime 57 and had a hysterectomy when i was 42 and have had 2 children. I have grade 3 prolapse and want to try the pessary, has anyone had any experience with one? Many thanks.
Hi all, wanted to know if anybody has had a pessary ring fitted for a prolapse bladder? Ime 57 and had a hysterectomy when i was 42 and have had 2 children. I have grade 3 prolapse and want to try the pessary, has anyone had any experience with one? Many thanks.
giggy63
in
Women's Health
3 years ago
Iron Panel Test Results - Any feedback welcome
So submitted my bloods to Medichecks and these are the results as of 28/06/21, have to say Medichecks seem very professional 👍 --------------------------------------------------------------- [u]
Inflammation
[/u] CRP HSX 9.5 mg/l (Range: 0 - 5) [u]
Iron Status
[/u] Iron 26.3 umol/L (
So submitted my bloods to Medichecks and these are the results as of 28/06/21, have to say Medichecks seem very professional 👍 --------------------------------------------------------------- [u]
Inflammation
[/u] CRP HSX 9.5 mg/l (Range: 0 - 5) [u]
Iron Status
[/u] Iron 26.3 umol/L (
colin_q
in
Thyroid UK
3 years ago
Uterine Biopsy
Has anyone on here ever had a uterine (endometrial) biopsy? I have one this coming Wednesday and I have no idea what to expect. Trying not to be scared of the procedure, let alone the results! I am being treated for a chest wall recurrence of my breast cancer (Ibrance and Arimidex) They have been keeping
Has anyone on here ever had a uterine (endometrial) biopsy? I have one this coming Wednesday and I have no idea what to expect. Trying not to be scared of the procedure, let alone the results! I am being treated for a chest wall recurrence of my breast cancer (Ibrance and Arimidex) They have been keeping
Maddyandherkittens
in
SHARE Metastatic Breast Cancer
3 years ago
Ovarian cancer metastasis to liver.
Hello Everyone! My mother was diagnosed with ovarian cancer stage 3c last year. Initially she had 6 cycles of chemo and the they did hysterectomy and omentectomy . Doctor said it’s not spread to the intestines which is a great news. And we were happy that mom would be fine. But after 6 months she had
Hello Everyone! My mother was diagnosed with ovarian cancer stage 3c last year. Initially she had 6 cycles of chemo and the they did hysterectomy and omentectomy . Doctor said it’s not spread to the intestines which is a great news. And we were happy that mom would be fine. But after 6 months she had
Angel86
in
SHARE Ovarian Cancer Support
3 years ago
Advice on Lab results please.
I am 47 and have joint and muscle pain, weakness, brain fog, fatigue, insomnia and weight gain. Trying to find root cause and not accept fibromyalgia diagnosis. Only medication is celebrex at this time. I have stopped all supplements as I have no idea what is helping and what is unnecessary. My diet
I am 47 and have joint and muscle pain, weakness, brain fog, fatigue, insomnia and weight gain. Trying to find root cause and not accept fibromyalgia diagnosis. Only medication is celebrex at this time. I have stopped all supplements as I have no idea what is helping and what is unnecessary. My diet
Beth4455
in
Thyroid UK
3 years ago
Fibroid pain
Looking for advice please ... 2 1/2 years ago I had an ablation done as I suffered from horrendous heavy and painful periods, the operation was a success and at the time I was told I had a 2cm fibroid which was just left. My periods re started a year ago and I have been suffering from lots of pain in
Looking for advice please ... 2 1/2 years ago I had an ablation done as I suffered from horrendous heavy and painful periods, the operation was a success and at the time I was told I had a 2cm fibroid which was just left. My periods re started a year ago and I have been suffering from lots of pain in
MRich
in
Women's Health
3 years ago
There Is Hope! Endometriosis 💗
Hi All! Just wanted to pop a post on here as I know many women have been through/yet to go through the difficult conversation with the gyni who sits you down and tells you that you will never consieve. I was told this 3 years ago, was told to have a hysterectomy. I refused... I'm now 22 weeks pregnant
Hi All! Just wanted to pop a post on here as I know many women have been through/yet to go through the difficult conversation with the gyni who sits you down and tells you that you will never consieve. I was told this 3 years ago, was told to have a hysterectomy. I refused... I'm now 22 weeks pregnant
Paigelouisex
in
Endometriosis UK
3 years ago
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