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Experiences with
Total hysterectomy
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Communities
16 public communities
Healthy Happy Woman
2,025 members
Back in 1997 I started an organisation called the Hysterectomy Association. 22 years later it closed and all the information moved to a new website called Healthy Happy Woman. The new site is about health, happiness and writing in the 21st century and will share posts, flash fiction and health and well-being information mostly for women. I hope you’ll join me in the latest part of a long journey to wellness.
FABED
213 members
FABED was founded in 2005 by 2 families with a total of 5 Eosinophilic Children. We are a UK based non profit Charity who strive to raise funds to further the awareness, education and support for families and professionals who deal with Eosinophilic disorders on a daily basis. We feel it is essential for families living with these disorders to be able to access support and information to aid early diagnosis and the correct medical support.
Pelvic Radiation Disease Association
673 members
The PRDA community is a peer support group where people can ask questions and share their experiences as well as supporting each other in living with Pelvic Radiation Disease (PRD). The group is run by the Pelvic Radiation Disease Association which is a UK based, patient-led charity set up to provide information and support to people who experience PRD following cancer treatment. PRD is a long-term side-effect (‘late effect’) affecting an estimated 100,000 people in the UK. We understand that people living with PRD can often have a complex set of symptoms which may affect their bowel, bladder, sexual and/or other functions for many years after radiotherapy. These symptoms sometimes only appearing several years or even decades after their radiotherapy treatment. PRD is defined as one or more ongoing symptoms of variable complexity that may affect people who have previously had radiotherapy to the pelvic region to treat their cancer. This includes pelvic radiotherapy for cancers of the colon, rectum, anus, prostate, testes, bladder, cervix and womb, but also total body radiotherapy and radiotherapy in the pelvic area for other primary and secondary cancers. Other words that are sometimes used to describe symptoms of PRD include: Radiation enteritis, Radiation proctitis, Radiation colitis, Radiation enteropathy, Radiation cystitis, Radiation cystopathy, Radiation-induced lumbar plexopathy and Pelvic insufficiency fractures.
OvaCare
2,037 members
We are a charity that aims to improve the diagnosis and education of ovarian cancer within Ireland.
SHARE Ovarian Cancer Support
2,789 members
SHARE Ovarian Cancer Support is a space where you can feel safe, supported, and empowered to tell your story and discuss your issues. SHARE peer volunteers, as well as other women just like you, are here to answer your questions and provide encouragement. Please visit our website to learn more: www.sharecancersupport.org. Whether you're a long-term survivor looking to inspire others or are here to ask about CA-125 levels rising, you are very welcome here. Many of our community members have questions about experience with specific ovarian cancer treatments like rubraca, Lynparza, Zejula, etc, as well as broader questions including ovarian cancer signs symptoms, ovarian cysts, early signs of ovarian cancer, and more. You can type the name of the treatment you're looking for into the post search box to find all posts that reference these treatments. You can also search for various histopathologies of ovarian cancer, like clear cell carcinoma or mucinous ovarian cancer. As a community we have rules. Inappropriate, abusive, or irrelevant posts, advertisements, and sexual photographs will removed, as will disrespectful or offensive comments on threads. Please respect the diversity of political, spiritual and nonspiritual beliefs of our users, and please note, we DO NOT permit messaging with a bias against any group of people. Any content on this site NOT to be construed as medical advice! Members should always consult their doctors regarding a medical condition or treatment. Organizations must post events and services as individual users and avoid direct advertising. The views presented on this site do not represent the views of SHARE. This community is monitored Mon-Fri, 9:30 am - 5:30 pm ET. Any content reported outside of this timeframe may not be reviewed until the following business day.
Gynae Cancer Support
1,655 members
The Gynae Cancer Support Community is an online safe space for people impacted by gynecologic cancer (including cervical, ovarian, uterine, vaginal, and vulvar cancer) to connect and find peer support. If you, or someone you love, is living with gynae cancer, join this community to learn new information, share advice and get support from others who understand.
My Ovacome
18,106 members
Ovacome is the national UK ovarian cancer charity focused on providing support and information to anyone affected by ovarian cancer. This includes people who have either been diagnosed with the disease or think that they might be at risk, as well as their friends and family and healthcare professionals. You can call the Ovacome support line on 0800 008 7054. We are open Monday to Friday, 10am to 5pm. My Ovacome is Ovacome's on-line community providing a safe, supportive space for people with ovarian cancer and their friends and families to share their experiences and offer each other encouragement, knowledge, understanding, and friendship. Please read our forum terms of use here: https://www.ovacome.org.uk/forum Ovacome is a membership charity and is free to join. To become a member of Ovacome register here: https://www.ovacome.org.uk/membership-benefits
Pelvic Pain Support Network
19,645 members
This community is run by the Pelvic Pain Support Network, a registered charity. The community forum exists to support those who wish to share and learn from others who have abdominal and/or pelvic pain and to provide peer support in managing the pain. It is moderated by trustees and members of the charity who are volunteers with personal experience of pelvic pain. Pelvic pain can be caused by many conditions affecting the pelvis such as adenomyosis, adhesions, endometriosis, painful periods, bladder pain, pelvic nerve damage, pudendal neuralgia, irritable bowel syndrome. One or more of these may be present or the person may not have a diagnosis. Pain that exists for 6 months or more, either intermittently or constant, is a condition in its own right. This community forum exists to support those who have had pain in the abdomen/pelvis for 6 months or longer with or without a diagnosis.
Womb Cancer Support UK
257 members
Womb Cancer Support UK was set up in April 2011 by womb cancer survivor Kaz Molloy. We offer support and information to women who have been diagnosed and we also raise awareness of this little know cancer. We have a very active Facebook page and also a private FB support group so feel free to come and join us there. You can also contact us via email at wcsuk@hotmail.co.uk
Endometriosis New Zealand
1,293 members
Endometriosis New Zealand is New Zealand’s national endometriosis organisation and has affiliated Support Networks throughout the country. We represent the tens of thousands of girls and women with endometriosis in New Zealand and we work with those who treat the condition and researchers to find solutions. We provide unique and professional services and programs to reach individuals, communities, schools, workplaces and all stakeholders involved in improving health outcomes for those with endometriosis and persistent pelvic pain.
Not Defined By Endometriosis
447 members
We are a peer-support group providing support to fellow endometriosis warriors and advocating and fighting for better research, funding and an eventual cure for endometriosis.
The Endometriosis Foundation
1,173 members
The Endometriosis Foundation (also known as women with endometriosis) is a Charity dedicated to raising awareness, informing and supporting those affected by endometriosis, and right now, we're needed more than ever.
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