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Eye feels weak/barely there
I'm about 7 weeks post tube shunt surgery and have been getting very low pressures around 2-4 causing blurry vision. I had gel injections in the eye yesterday to get the pressure up. This has resulted in a decrease in the blurryness (although still not 100%) but on the negative side my eye feels very
I'm about 7 weeks post tube shunt surgery and have been getting very low pressures around 2-4 causing blurry vision. I had gel injections in the eye yesterday to get the pressure up. This has resulted in a decrease in the blurryness (although still not 100%) but on the negative side my eye feels very
Hidden
in
Glaucoma UK
3 years ago
I feel i’ve caught MRSA at my Infusion Clinic. Anyone else had this?
I sometimes read the posts on here. But i’m not a ‘regular’. I’ve had RA since i was 21. (Turned 50 last month!) I have an Infliximab infusion every 6 weeks. I have iritis & glaucoma too. I’ve been getting serious ear infections since Nov 2019. Recurring all the bloody time. I’ve been feeling exhausted
I sometimes read the posts on here. But i’m not a ‘regular’. I’ve had RA since i was 21. (Turned 50 last month!) I have an Infliximab infusion every 6 weeks. I have iritis & glaucoma too. I’ve been getting serious ear infections since Nov 2019. Recurring all the bloody time. I’ve been feeling exhausted
Vixen2
in
NRAS
3 years ago
Miralax
Question I was asked this week Some people suffer from consolation from there medications . And of course all laxatives says no more than 7 days etc. I have a problem storing water in my bowel trued everything. Dr Glen advised I take Miralax which I bought in the USA . Ran out back in Australia
Question I was asked this week Some people suffer from consolation from there medications . And of course all laxatives says no more than 7 days etc. I have a problem storing water in my bowel trued everything. Dr Glen advised I take Miralax which I bought in the USA . Ran out back in Australia
Shumbah
in
Restless Legs Syndrome
3 years ago
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A long journey, getting too tired..
I've been managing my anxiety and depression on my own pretty much done I was 4 and had my first panic attack. I've gone through I grew treatment centers but the only thing I learned was how to fool the staff to get out so I could go back in solitude at my (abusive) home. Now I have kids of my own
I've been managing my anxiety and depression on my own pretty much done I was 4 and had my first panic attack. I've gone through I grew treatment centers but the only thing I learned was how to fool the staff to get out so I could go back in solitude at my (abusive) home. Now I have kids of my own
Anonymous202
in
Anxiety and Depression Support
3 years ago
Name as a Trigger
Does anyone else have a name or something similar as one of their triggers, and if so, how do you cope? I’ve worked through a lot of my trauma, especially with emdr, but there are certain things related to my trauma that just throw me into a panic attack even years later. Unfortunately, one of those
Does anyone else have a name or something similar as one of their triggers, and if so, how do you cope? I’ve worked through a lot of my trauma, especially with emdr, but there are certain things related to my trauma that just throw me into a panic attack even years later. Unfortunately, one of those
RenYellow
in
Heal My PTSD
3 years ago
Reducing Pegasys dose?
Hi gang! I’m currently on 90mcg Pegasys weekly and responding well with platelets down to 480 on last count. Because side effects are an issue for me (mostly just soooo tired of feeling tired!) I’m wondering about reducing the dose to see if fatigue improves 🤔 Obviously will talk to my haematologist
Hi gang! I’m currently on 90mcg Pegasys weekly and responding well with platelets down to 480 on last count. Because side effects are an issue for me (mostly just soooo tired of feeling tired!) I’m wondering about reducing the dose to see if fatigue improves 🤔 Obviously will talk to my haematologist
IrishSarah
in
MPN Voice
3 years ago
Interesting article from Beverley Hunt regarding DOACs in APS
Apologies, the link didn’t work … you will have to look it up ;) Ray x Direct oral anticoagulant use in patients with antiphospholipid syndrome and unprovoked venous thromboembolism: a single centre experience Andrew J. Doyle, Beverley J. Hunt, Anicee Danaee, Gavin Ling, Michael J. Desborough, Pulin
Apologies, the link didn’t work … you will have to look it up ;) Ray x Direct oral anticoagulant use in patients with antiphospholipid syndrome and unprovoked venous thromboembolism: a single centre experience Andrew J. Doyle, Beverley J. Hunt, Anicee Danaee, Gavin Ling, Michael J. Desborough, Pulin
RazD
in
Hughes Syndrome APS Forum
3 years ago
Are my side effects from adalimumab normal and will they fade?
I’ve recently been put on adalimumab for my RA. The first injection seemed like a wonder drug as I could feel the difference almost immediately and was moving in ways I haven’t for years. The second injection doesn’t seem to have done anything except show me some unfortunate side effects. Racing heart
I’ve recently been put on adalimumab for my RA. The first injection seemed like a wonder drug as I could feel the difference almost immediately and was moving in ways I haven’t for years. The second injection doesn’t seem to have done anything except show me some unfortunate side effects. Racing heart
Blkstaffy
in
NRAS
3 years ago
Vitamin B3 trial results
Results of a pilot study of 2 low doses (100 & 250mg) of Niacin (vitamin B3 derivative) in 47 people with #Parkinsons; 3-month double-blinded (vs placebo) run-in + 12 month open label study; 3.5 point average improvement in the UPDRS III, inflammation https://www.frontiersin.org/articles/10.3389/fnagi
Results of a pilot study of 2 low doses (100 & 250mg) of Niacin (vitamin B3 derivative) in 47 people with #Parkinsons; 3-month double-blinded (vs placebo) run-in + 12 month open label study; 3.5 point average improvement in the UPDRS III, inflammation https://www.frontiersin.org/articles/10.3389/fnagi
Farooqji
in
Cure Parkinson's
3 years ago
I’m new here
I’m new here. Had sepsis last year ICU admission. Still have issues, mobility, etc. Had terrible delirium, PTSD but EMDR has helped this. Recently returned to work but tire easily.
I’m new here. Had sepsis last year ICU admission. Still have issues, mobility, etc. Had terrible delirium, PTSD but EMDR has helped this. Recently returned to work but tire easily.
allotment22-2
in
ICUsteps
3 years ago
retinopathy risk from hydroxychloroquine
I’ve been on 400mg of hydroxychloroquine for 12 years continuously. I’ve only been told recently that I’m actually over the recommended dose based on weight. Is anyone concerned about potentially retinopathy and/or has had eye investigations where deposits have been found? I attempted to reduce to 200mg
I’ve been on 400mg of hydroxychloroquine for 12 years continuously. I’ve only been told recently that I’m actually over the recommended dose based on weight. Is anyone concerned about potentially retinopathy and/or has had eye investigations where deposits have been found? I attempted to reduce to 200mg
87654321H
in
LUPUS UK
3 years ago
Aqueous Shunts and dry eye ointment.
I have had two shunts and the last one was March 23 rd this year. Although Hyabak eye drops do help with the symptoms of dry eye in the first eye ( operated on last December) usually by 4 or 5 pm that eye is quite sore despite the drops. A few evenings ago I started using Hycosan night ointment, this
I have had two shunts and the last one was March 23 rd this year. Although Hyabak eye drops do help with the symptoms of dry eye in the first eye ( operated on last December) usually by 4 or 5 pm that eye is quite sore despite the drops. A few evenings ago I started using Hycosan night ointment, this
muddledme
in
Glaucoma UK
3 years ago
Cetrotide stings 😳
Hi guys, I'm currently going through my first ivf cycle, I'm on Bemfola and yesterday introduced cetrotide as instructed, I had my first scan to monitor follicles, as a low AMHer (2.5) I have 3 follicles at the minute 1 measuring 15mm!! The cetrotide injection I struggled with yesterday and today and
Hi guys, I'm currently going through my first ivf cycle, I'm on Bemfola and yesterday introduced cetrotide as instructed, I had my first scan to monitor follicles, as a low AMHer (2.5) I have 3 follicles at the minute 1 measuring 15mm!! The cetrotide injection I struggled with yesterday and today and
Flossybubble
in
Fertility Network UK
3 years ago
Starting Selenium and Myo-Inositol Today
First: I am not a doctor and did not even go to college. Take my opinions with a grain of salt. Second: This a a PK group, why am I talking about Selenium and Thyroids? I have Hashimoto's Thyroiditis. People with HT have twice the likelihood of developing PK. I have REMSBD, and I have to admit my sore
First: I am not a doctor and did not even go to college. Take my opinions with a grain of salt. Second: This a a PK group, why am I talking about Selenium and Thyroids? I have Hashimoto's Thyroiditis. People with HT have twice the likelihood of developing PK. I have REMSBD, and I have to admit my sore
Bolt_Upright
in
Cure Parkinson's
3 years ago
CLL, blocked infected tear ducts, and DCR
I’m stage A CLL, on watch and wait, and recently had two abscesses weeks apart, on my right tear duct sac, which required IV antibiotics in hospital (ducts have been blocked and I’ve had watery eyes for many years). Ophthalmologist recommended and performed DCR (tear duct bypass) two weeks ago. Recovering
I’m stage A CLL, on watch and wait, and recently had two abscesses weeks apart, on my right tear duct sac, which required IV antibiotics in hospital (ducts have been blocked and I’ve had watery eyes for many years). Ophthalmologist recommended and performed DCR (tear duct bypass) two weeks ago. Recovering
Lesleyriverside
in
CLL Support
3 years ago
More Pegasys Injection Issues
Hi everyone, I find the posts helpful and interesting. Thanks to all. So I have been injecting pegasys for 14 weeks for p-vera. I generally follow the instructions and am getting used to doing it. One question lingers for me that maybe people can give me feedback on: As I slowly fill the syringe
Hi everyone, I find the posts helpful and interesting. Thanks to all. So I have been injecting pegasys for 14 weeks for p-vera. I generally follow the instructions and am getting used to doing it. One question lingers for me that maybe people can give me feedback on: As I slowly fill the syringe
gvibes
in
MPN Voice
3 years ago
Methotrexate
Thanks for the responses to my previous post. I have now had two doses of Methotrexate. I take it early evening on a Sunday, and in terms of side effects have experienced fatigue and very sore skin for a couple of days. I have blood tests this Monday to check internal responses, hopeful that all wil
Thanks for the responses to my previous post. I have now had two doses of Methotrexate. I take it early evening on a Sunday, and in terms of side effects have experienced fatigue and very sore skin for a couple of days. I have blood tests this Monday to check internal responses, hopeful that all wil
RubyRobs
in
Scleroderma & Raynaud's UK (SRUK)
3 years ago
Hello
Hello everyone. Im new here. Why are my serum B12 levels normal, and yet I am getting worrying neurological symptoms. I have B12 injections and have had for some years and have been having increasingly worrying symptoms, which led me to request that I get my injection earlier (currently 3 monthly
Hello everyone. Im new here. Why are my serum B12 levels normal, and yet I am getting worrying neurological symptoms. I have B12 injections and have had for some years and have been having increasingly worrying symptoms, which led me to request that I get my injection earlier (currently 3 monthly
Dancers1
in
Pernicious Anaemia Society
3 years ago
Faint test at 6dp5dt
I tested on 3dp but it was startk white. I felt implanation cramps at 3dp. This morning i testef with fmu and i could see a squint. please let me know f you see it
I tested on 3dp but it was startk white. I felt implanation cramps at 3dp. This morning i testef with fmu and i could see a squint. please let me know f you see it
abby19888
in
Fertility Network UK
3 years ago
This is ME
Momma loves going through her old family photos — she studies them … forms words of family names, as she reviews every part of the image. Tears, smiles, giggles, expressions are endless … I wonder what she’s thinking? I wish I could hear her stories again… This photo she is holding is of herself from
Momma loves going through her old family photos — she studies them … forms words of family names, as she reviews every part of the image. Tears, smiles, giggles, expressions are endless … I wonder what she’s thinking? I wish I could hear her stories again… This photo she is holding is of herself from
bazooka111
in
PSP Association
3 years ago
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