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9 years and counting with PMR!
Feeling frustrated having been 'diagnosed' with PMR in 2014, initially controlled with prednisolone and then Methotrexate introduced in 2018 after I queried my diagnosis and treatment plan. Initially I was able to reduce preds down to 5 mg daily with 25mgs methotrexate weekly but I am ow struggling again
Feeling frustrated having been 'diagnosed' with PMR in 2014, initially controlled with prednisolone and then Methotrexate introduced in 2018 after I queried my diagnosis and treatment plan. Initially I was able to reduce preds down to 5 mg daily with 25mgs methotrexate weekly but I am ow struggling again
MC60
in
PMRGCAuk
1 year ago
Will Alendronic Acid affect my RLS?
I have Osteopenia and have been advised to start taking Alendronic Acid to prevent me developing Osteoporosis but am worried it might make my RLS worse. I take Requip and seem to have it under control.
I have Osteopenia and have been advised to start taking Alendronic Acid to prevent me developing Osteoporosis but am worried it might make my RLS worse. I take Requip and seem to have it under control.
Brenda48
in
Restless Legs Syndrome
1 year ago
ursodeoxycholic acid
hi everyone, Hope your all well. I’ve had pbc for about a year now. I take 500mg of ursodeoxycholic acid twice per day. I suffer from waves of nausea at different times throughout the day. Today I spoke to Gastroenterologist on the phone and he told me to take the medication 1000mg at bedtime. Does
hi everyone, Hope your all well. I’ve had pbc for about a year now. I take 500mg of ursodeoxycholic acid twice per day. I suffer from waves of nausea at different times throughout the day. Today I spoke to Gastroenterologist on the phone and he told me to take the medication 1000mg at bedtime. Does
Sunliver
in
PBC Foundation
1 year ago
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Closer to checkmate to Parkinson's (1): what Dr. Phillipson says.
This year 2023 marks the 10th anniversary of the publication of a writing by Dr. Phillipson and an interview about its content. Oliver T. Phillipson is a Harvard scientist. A sage who accumulates decades of experience in the study of aging, mitochondria and Parkinson's disease. And he has a dream that
This year 2023 marks the 10th anniversary of the publication of a writing by Dr. Phillipson and an interview about its content. Oliver T. Phillipson is a Harvard scientist. A sage who accumulates decades of experience in the study of aging, mitochondria and Parkinson's disease. And he has a dream that
parkinsonshereandnow
in
Cure Parkinson's
1 year ago
Dexa scan
I thought I would share my experience. I have just been for the above, having questioned the need for me to be taking Alendronic acid. I was told by my GP that I “might as well” take it when started on Steroids. I hated the ritual of having to get up earlier on the day I had to take it and then when
I thought I would share my experience. I have just been for the above, having questioned the need for me to be taking Alendronic acid. I was told by my GP that I “might as well” take it when started on Steroids. I hated the ritual of having to get up earlier on the day I had to take it and then when
MrsPractical
in
PMRGCAuk
1 year ago
Am I alone? I don't feel like doctors understand how serious I am.
For a year now. Literally a year, I jave been struggling with extreme anxiety and depression. I am just curious if others have these things non stop. And for so long. It starts when I wake up, and doesn't end until I have taken seroquel at night for sleep. So I get about 45 minutes to an hour before
For a year now. Literally a year, I jave been struggling with extreme anxiety and depression. I am just curious if others have these things non stop. And for so long. It starts when I wake up, and doesn't end until I have taken seroquel at night for sleep. So I get about 45 minutes to an hour before
Twistedopher
in
Anxiety and Depression Support
1 year ago
Blood test results Vitamins / Digestive problems
Blood results done by GP : “ Serum folate 4 ug/L Serum ferritin 21 ug/L low iron stores Serum vitamin B12 513 ng/L. ” Vit D not done. I see Tesco are offering cheap tests for various vits. Thoughts ? I am housebound so I take vit D. 25 ug daily. Also omega 3 fish oil and a multivitamin. I was
Blood results done by GP : “ Serum folate 4 ug/L Serum ferritin 21 ug/L low iron stores Serum vitamin B12 513 ng/L. ” Vit D not done. I see Tesco are offering cheap tests for various vits. Thoughts ? I am housebound so I take vit D. 25 ug daily. Also omega 3 fish oil and a multivitamin. I was
Applethorpe
in
Thyroid UK
1 year ago
Alternative and adjunct medications for RLS
Here's an interesting article on some of the less common medications for RLS. It may be of interest to members who have exhausted all other medication options. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9983500/ Keywords: clonidine, dipyridamole, perampanel, amantadine, ketamine, carbamazepine,
Here's an interesting article on some of the less common medications for RLS. It may be of interest to members who have exhausted all other medication options. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9983500/ Keywords: clonidine, dipyridamole, perampanel, amantadine, ketamine, carbamazepine,
Hidden
in
Restless Legs Syndrome
1 year ago
Severe Osteoporosis - Understanding the scan report and treatment
As a WF, age 60 - the last several years have seen some big health scares / diagnoses: FYI: After a torn shoulder rotator cuff injury in Oct 2022 and PT making the pain worse, my orthopedic Dr finally suggested an MRI. Results did not have good news. He then suggested a surgical repair with "bone
As a WF, age 60 - the last several years have seen some big health scares / diagnoses: FYI: After a torn shoulder rotator cuff injury in Oct 2022 and PT making the pain worse, my orthopedic Dr finally suggested an MRI. Results did not have good news. He then suggested a surgical repair with "bone
RAD23
in
Bone Health and Osteoporosis UK
1 year ago
Questions about taking Alendronate (Fosomax) and hydroxyeurea
I have Et with Jak 2. I was diagnosed last year when my platelets were around 600. After having a physical and a bone scan my gp just recommended taking alendronate for osteopenia. I walk 3 miles a day and work out. I have concerns about doing this especially with taking hydroxy. I have a friend whose
I have Et with Jak 2. I was diagnosed last year when my platelets were around 600. After having a physical and a bone scan my gp just recommended taking alendronate for osteopenia. I walk 3 miles a day and work out. I have concerns about doing this especially with taking hydroxy. I have a friend whose
Skater69
in
MPN Voice
1 year ago
Hyaluronic acid excess
Hello Given the serious and worrying range of symptoms that are discussed here, I hope it's not annoying to ask about a minor one. I'm wondering if anyone else has a problem with excess hyaluronic acid and if so what facial moisturising creams are appropriate? A post I saw here some months ago helped
Hello Given the serious and worrying range of symptoms that are discussed here, I hope it's not annoying to ask about a minor one. I'm wondering if anyone else has a problem with excess hyaluronic acid and if so what facial moisturising creams are appropriate? A post I saw here some months ago helped
StPetes
in
Thyroid UK
1 year ago
Low Dose Ketamine
Has anyone tried treating your depression and anxiety with low dose Ketamine through a telehealth company? I have tried just about every antidepresant there is with only moderate success. I have been wanting to give Ketamine a try but I was uncomfortable with the psychedelic experiences and high cost
Has anyone tried treating your depression and anxiety with low dose Ketamine through a telehealth company? I have tried just about every antidepresant there is with only moderate success. I have been wanting to give Ketamine a try but I was uncomfortable with the psychedelic experiences and high cost
Scott1951
in
Anxiety and Depression Support
1 year ago
Graduated, celebrated, but now back to reality
So yesterday was the exam. Took it with A, prof even said my paper was best, saw friends, was ecstatic, went to the club because apparently we don't have a prom or anything. But the morning i got back, took a shower, tried to sleep, my hair still wet, worried if i got myself sick, a lot of anxiety. Couldn't
So yesterday was the exam. Took it with A, prof even said my paper was best, saw friends, was ecstatic, went to the club because apparently we don't have a prom or anything. But the morning i got back, took a shower, tried to sleep, my hair still wet, worried if i got myself sick, a lot of anxiety. Couldn't
Against_the_current
in
Anxiety and Depression Support
1 year ago
Has anyone else had a problem with loose teeth?
I went to the dentist yesterday who said 4of my teeth are becoming loose, probably due to Alendronic acid and Carbamazepine ( for trigeminal neuralgia ) He said my dental hygiene was excellent. The only available treatment on the NHS is a denture! I am being referred to a periodontal specialist but
I went to the dentist yesterday who said 4of my teeth are becoming loose, probably due to Alendronic acid and Carbamazepine ( for trigeminal neuralgia ) He said my dental hygiene was excellent. The only available treatment on the NHS is a denture! I am being referred to a periodontal specialist but
Gardening2811
in
PMRGCAuk
1 year ago
amino acids not recognised as essential in humans such as taurine play a role in fibromyalgia,
In this study, researchers measured the level of 20 amino acids (critical components of proteins). They found that overall levels of amino acids were lower in fibromyalgia and that seven amino acids were especially low, including taurine, alanine, tyrosine, valine, methionine, phenylalanine, and threonine.The
In this study, researchers measured the level of 20 amino acids (critical components of proteins). They found that overall levels of amino acids were lower in fibromyalgia and that seven amino acids were especially low, including taurine, alanine, tyrosine, valine, methionine, phenylalanine, and threonine.The
LawrenceT
in
Fibromyalgia Action UK
1 year ago
ART Vit D and Prostate Cancer (PCa) by Dr Campbell UK Podcast
Dr Campbell, UK, has made a summary of recent investigations and studies on VIT D and its effect on PCa specifically and cancer generally. Of import is his discussiono on the finding on PCa and African Americans; they have a genomic risk factor that leads to more aggressive PCa, BUT respond quickly
Dr Campbell, UK, has made a summary of recent investigations and studies on VIT D and its effect on PCa specifically and cancer generally. Of import is his discussiono on the finding on PCa and African Americans; they have a genomic risk factor that leads to more aggressive PCa, BUT respond quickly
RMontana
in
Active Surveillance - Prostate Cancer
1 year ago
Creaky Joints!
Hello Everyone. Having had trouble going down to 4mg Pred previously, I'm nearing the end of a 6 month taper from 5mg to 4mg. Over the last couple of months I have had a really stiff neck and shoulder pain on one side. I can't decide if this is symptoms coming back, or osteoarthritis, because I definitely
Hello Everyone. Having had trouble going down to 4mg Pred previously, I'm nearing the end of a 6 month taper from 5mg to 4mg. Over the last couple of months I have had a really stiff neck and shoulder pain on one side. I can't decide if this is symptoms coming back, or osteoarthritis, because I definitely
AshPen9
in
PMRGCAuk
1 year ago
new here..anxiety...endless
really struggling. I have been in a constant state of panic/anxiety since last Friday. I feel absolutely exhausted. It feels like it will never end and it feels so scary when I'm in the middle of it. Even though I have felt this many times before, it somehow feels different and more terrifying every
really struggling. I have been in a constant state of panic/anxiety since last Friday. I feel absolutely exhausted. It feels like it will never end and it feels so scary when I'm in the middle of it. Even though I have felt this many times before, it somehow feels different and more terrifying every
namaste1234
in
Anxiety and Depression Support
1 year ago
zoledronic acid infusion next month
I have received the date for my zoledronic and infusion 23rd April together with a blood form to do a few days prior, I thought I might have had another dexa scan, because the one I had was the 24th October does it matter, any other help please.
I have received the date for my zoledronic and infusion 23rd April together with a blood form to do a few days prior, I thought I might have had another dexa scan, because the one I had was the 24th October does it matter, any other help please.
Radars
in
Advanced Prostate Cancer
1 year ago
Persistant anxiety symptoms
Yet again, here I sit, in front of my lap-top doing the best I can to try to ward off these ever re-occuring symptoms of anxiety that still come around from time to time. Right now, the culprit is anxious breathing, with current sinus issues not helping at all. Rainy weather lately with humidity making
Yet again, here I sit, in front of my lap-top doing the best I can to try to ward off these ever re-occuring symptoms of anxiety that still come around from time to time. Right now, the culprit is anxious breathing, with current sinus issues not helping at all. Rainy weather lately with humidity making
gbn_
in
Anxiety and Depression Support
1 year ago
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