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15 public communities
Acid Reflux Support
1,566 members
For more than three decades, the OPA has fought against oesophageal and gastric cancers, raising awareness, supporting patients, caregivers and their families. Whether you are in the early stages or further along in your journey, the OPA is dedicated to offering support and guidance. Did you know? There are over 65 Million people in the UK and it is estimated that over 1 in 10 people suffer from Reflux Disease. Reflux disease can have a terrible impact on a patients quality of life affecting many aspects of their everyday functioning. For many people, this can be managed effectively with lifestyle changes and/or medication prescribed by their GP such as omeprazole, lansoprazole and esomeprazole (as well as others). However there are over 2 million people in the UK who do not respond effectively to this treatment and for these people, there are other options they can consider to treat their disease. Head to our website for more information - https://opa.org.uk/
PBC Foundation
9,390 members
The PBC Foundation hosts this community to provide support and information to those affected by Primary Biliary Cholangitis - an autoimmune condition that affects the liver. The PBC Foundation is the UK's only, and world's largest, organisation that specifically deals with PBC with registered service users in over 84 countries. We lead the world in PBC in advocacy, support and in providing services such as self-management tools, of which this forum is just one. If you wish to become a registered service user with the PBC Foundation, please visit our website www.pbcfoundation.org.uk and follow the registration process or alternatively please call our office +44 131 556 6811 and we can send out our registration pack free of charge. The current benefits of membership include: ~ free interactive self-management App ~ exclusive content on website, including videos ~ quarterly magazine full of the latest PBC news, including news of upcoming trials, latest research, etc
Bone Health and Osteoporosis UK
5,590 members
This community is a welcoming and safe space for you to share your experiences, and we hope you’ll connect and find support with other people in a similar situation. Find our community guidelines here: https://healthunlocked.com/bonehealth/posts/150617024/b-community-guidelines-for-bone-health-and-osteoporosis-uk-b [b]Royal Osteoporosis Society[/b] We’re the Royal Osteoporosis Society – the UK’s largest national charity dedicated to improving bone health and beating osteoporosis. And we’re here for everyone living with osteoporosis or supporting someone. We equip people with practical information and support to take action on their bone health. • Visit our website https://theros.org.uk/, we have lots of fact sheets and booklets available to download and print, covering everything from general bone health, diagnosing osteoporosis and fragility fractures, osteoporosis drug treatments and living with spinal fractures. • What is Osteoporosis? Find our more through our information film https://youtu.be/DNExgVo8zsc?si=ArZ--vxYx6I_IclG • Join our membership - By becoming a Member of the ROS you can access exclusive benefits including your free book: All About Osteoporosis, Osteoporosis News magazines, a monthly member e-newsletter and so much more! The Royal Osteoporosis Society is a UK based organisation, and all of the content, information and support available here is based on UK treatments and care. If you’re from another country you may wish to look at these organisations: https://www.osteoporosis.foundation/our-network/the-committees#committee-of-national-societies [b]Connect with us! [/b] Join our mailing list - https://theros.org.uk/ros-news-sign-up/ You tube - https://www.youtube.com/c/osteoporosissociety Facebook -https://www.facebook.com/RoyalOsteoSoc Instagram - https://www.instagram.com/royalosteosoc/ X - https://twitter.com/royalosteosoc
Anxiety Support
53,154 members
Anxiety Support helps people with general anxiety and anxiety from health related reasons. Facilitated by Malecare, one of the world's leading patient support nonprofit organizations. Our group provides a sense of belonging with others in similar situations and to be able to chat and learn with a community of like minds. Members here have a wide range of different experiences and backgrounds. Anyone needing in-person or immediate help or support from a patient organization can choose from the list of resources in the pinned post in the right hand column on the posts/home page.
Anxiety and Depression Support
88,499 members
This community is a safe space for those affected by anxiety and depression to talk to others who truly understand. ADAA is a nonprofit dedicated to the prevention, treatment, & cure of anxiety, depression, OCD, PTSD and co-occurring disorders through education, practice, & research. www.adaa.org offers free educational resources for more than 11 million annual visitors; Find-a-Therapist database; webinars, blog posts, podcasts & videos; support groups, and more. ADAA does not provide psychiatric, psychological, or medical advice, diagnosis, or treatment. Please note: You may be contacted by one of our administrators to invite you to serve as a volunteer administrator or to share your story. If we do reach out to you, your anonymity is not compromised unless you agree to share personal contact information with us. If you do not wish to engage with us, simply do not respond.
Paget’s Support
299 members
This is a safe online community for anyone affected by Paget's disease to share advice, find support and meet others who truly understand. Whether you're newly diagnosed, been living with Paget's disease for years or caring for someone affected, this is the community for you. Why not introduce yourself today: https://healthunlocked.com/pagets-support
LIVErNORTH
416 members
We are a adult liver patient support group based at the Freeman Hospital in Newcastle upon Tyne, England. Whatever kind of liver disease you may have, we are here to support you. Whilst we will endeavour to assist you with any queries relating to liver disease it would be inappropraite for us to comment on liver function blood test as there are too many variables involved to generalise. Your hepatologist is the appropriate person to ask for advice in this instance.
Endometriosis New Zealand
1,284 members
Endometriosis New Zealand is New Zealand’s national endometriosis organisation and has affiliated Support Networks throughout the country. We represent the tens of thousands of girls and women with endometriosis in New Zealand and we work with those who treat the condition and researchers to find solutions. We provide unique and professional services and programs to reach individuals, communities, schools, workplaces and all stakeholders involved in improving health outcomes for those with endometriosis and persistent pelvic pain.
PBCers Organization
1,400 members
PBCers Organization is a community dedicated to providing reliable primary biliary cholangitis (PBC) information and offer support to its members. Topics discussed include symptoms, medication, diet, personal experiences, transplant and anything else PBC related.
Not Defined By Endometriosis
432 members
We are a peer-support group providing support to fellow endometriosis warriors and advocating and fighting for better research, funding and an eventual cure for endometriosis.
National Migraine Centre
9,135 members
Book a headache consultation now through the National Migraine Centre, the leading UK-wide migraine clinic. Appointments with specialist doctors & consultant neurologists: the migraine treatment charity. Visit our website to book now! www.NationalMigraineCentre.org.uk.
The Endometriosis Foundation
1,093 members
The Endometriosis Foundation (also known as women with endometriosis) is a Charity dedicated to raising awareness, informing and supporting those affected by endometriosis, and right now, we're needed more than ever.
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