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Takayasu arteritis
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Scottish pip
has anyone been through the review process in Scotland ssc I think. I had my review in July last year sent in my papers.i also lodged what they call a change of circumstance as my condition has worsened. I also have RA and now osteoarthritis. I haven’t heard anything since! I phoned and was told there
has anyone been through the review process in Scotland ssc I think. I had my review in July last year sent in my papers.i also lodged what they call a change of circumstance as my condition has worsened. I also have RA and now osteoarthritis. I haven’t heard anything since! I phoned and was told there
Purplelife123
in
Fibromyalgia Action UK
5 months ago
hydroxychloroquine and stuffy itchy nose with occasional bleeding.
My rheumatologist added hydroxychloroquine to my methotrexate regiment for my rheumatoid arthritis. After a few weeks on the hydroxychloroquine, my nose has become itchy and stuffed up, especially when lying down and I am having trouble sleeping. Has anyone else had this problem?
My rheumatologist added hydroxychloroquine to my methotrexate regiment for my rheumatoid arthritis. After a few weeks on the hydroxychloroquine, my nose has become itchy and stuffed up, especially when lying down and I am having trouble sleeping. Has anyone else had this problem?
Apm2626
in
NRAS
5 months ago
Prednisalone
Hi can anyone help ,I am so worried about still taking steriods as I have been diagnosed with osteoporosis, going back to January last year ,I was diagnosed with osteoarthritis in hips,this seemed to kick start rheaumatiod arthritis, I was put on Hydroxychloroquine which did help,a couple of months later
Hi can anyone help ,I am so worried about still taking steriods as I have been diagnosed with osteoporosis, going back to January last year ,I was diagnosed with osteoarthritis in hips,this seemed to kick start rheaumatiod arthritis, I was put on Hydroxychloroquine which did help,a couple of months later
Alice70
in
NRAS
5 months ago
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nail problems
Does anyone have problems with the nails on their hands? The sides of three of my nails are rough and breaking away from finger. I do have Raynauds and Scleroderma as well as Rheumatoid Arthritis lucky me! Sheena C
Does anyone have problems with the nails on their hands? The sides of three of my nails are rough and breaking away from finger. I do have Raynauds and Scleroderma as well as Rheumatoid Arthritis lucky me! Sheena C
SheenaC
in
Scleroderma & Raynaud's UK (SRUK)
5 months ago
Remission now flare.
Hi all, Not been on here for a while. I have sero neg rheumatoid arthritis, diagnosed 2010. Have been luckily in remission for a long time probably 10 years anyway seem to be having a flare, pain in shoulder, both knees and one hip plus pain in jaw. But bloods show no inflammation, not sure what is going
Hi all, Not been on here for a while. I have sero neg rheumatoid arthritis, diagnosed 2010. Have been luckily in remission for a long time probably 10 years anyway seem to be having a flare, pain in shoulder, both knees and one hip plus pain in jaw. But bloods show no inflammation, not sure what is going
pool0009
in
NRAS
5 months ago
BIG TOE ARTHRITIS
Hi everyone, I have been in agony for over 4 years with big toe arthritis which was found on an MRI Scan which I had due to a broken ankle? the nurse at the hospital said that I had sprained it but when I had an Xray it turned out to be broken, big difference isn't it? I was told that the MRI scan showed
Hi everyone, I have been in agony for over 4 years with big toe arthritis which was found on an MRI Scan which I had due to a broken ankle? the nurse at the hospital said that I had sprained it but when I had an Xray it turned out to be broken, big difference isn't it? I was told that the MRI scan showed
Imagine1
in
Pain Concern
5 months ago
switching to a carnivore diet has put my PMR into total remission
I know the subject may be viewed as sensational or just plain wrong, but that is what I have concluded. At the time I was diagnosed with PMR, I already had diagnoses of psoriatic arthritis and fibromyalgia. My PMR started in 2019, about 8 months prior to covid. I was put on prednisone and experienced
I know the subject may be viewed as sensational or just plain wrong, but that is what I have concluded. At the time I was diagnosed with PMR, I already had diagnoses of psoriatic arthritis and fibromyalgia. My PMR started in 2019, about 8 months prior to covid. I was put on prednisone and experienced
benhemp
in
PMRGCAuk
5 months ago
waiting for allergy test
I have been waiting for a allergy test for 2 years so my specialist can prescribe medication for psoriasis arthritis. Has any one else had the same problem.
I have been waiting for a allergy test for 2 years so my specialist can prescribe medication for psoriasis arthritis. Has any one else had the same problem.
cherrytree16
in
Beyond Psoriasis
5 months ago
Accept nothing question everything...with the proviso that you are well informed
Everything that I have been complaining about for 8 years has now been seen on MRI. The private MRI that I paid for last week. Some of the best money I have ever spent. Not only do I have 'florid' synovitis in my hands, I have widespread enhanced bone erosions in both hands and feet. I also have
Everything that I have been complaining about for 8 years has now been seen on MRI. The private MRI that I paid for last week. Some of the best money I have ever spent. Not only do I have 'florid' synovitis in my hands, I have widespread enhanced bone erosions in both hands and feet. I also have
Mmrr
in
NRAS
11 days ago
Adam Thomas ex strictly
I see the actor has discussed his arthritis on Instagram and got a whole lot of theories detox advice bad advice and general horror stories. He is in his 30s told him to come over here for a bit of sense.
I see the actor has discussed his arthritis on Instagram and got a whole lot of theories detox advice bad advice and general horror stories. He is in his 30s told him to come over here for a bit of sense.
welsh12
in
NRAS
5 months ago
PSORIATIC ARTHRITIS
I supposedly have psoriatic arthritis/tendinopathy however there is no evidence in my blood. My tendons attaching to elbows and feet become extremely painful. I was put on MTX 15ml injections for 8 months but stopped as my blood cells were slightly enlarged and the jury is out if it was even working
I supposedly have psoriatic arthritis/tendinopathy however there is no evidence in my blood. My tendons attaching to elbows and feet become extremely painful. I was put on MTX 15ml injections for 8 months but stopped as my blood cells were slightly enlarged and the jury is out if it was even working
Cheylann
in
NRAS
19 days ago
Views on Injectable Treatment Formats
Being diagnosed with a long-term condition such as rheumatoid arthritis (RA) means that many decisions need to be made during your treatment pathway, particularly about the range of options that are available to you. We’re in the process of developing a survey looking into perceptions around the use
Being diagnosed with a long-term condition such as rheumatoid arthritis (RA) means that many decisions need to be made during your treatment pathway, particularly about the range of options that are available to you. We’re in the process of developing a survey looking into perceptions around the use
Aribah-NRAS
NRAS
in
NRAS
5 months ago
Suspected Psoriatic Arthritis
Hi, new to this group. I have an appointment next week with a rheumatologist as my GP suspects I may have psoriatic arthritis. I have flare ups of psoriasis and in recent years have had swelling in my knees and pain in many joints when i have a flare up, and sometimes when I don’t even have any psoriasis
Hi, new to this group. I have an appointment next week with a rheumatologist as my GP suspects I may have psoriatic arthritis. I have flare ups of psoriasis and in recent years have had swelling in my knees and pain in many joints when i have a flare up, and sometimes when I don’t even have any psoriasis
NeonQT
in
Beyond Psoriasis
1 month ago
Diet and arthritis
Hi I was diagnosed with PMR in December 2019. I have tried to taper the steroids down but have never got below 2/3 mg a day. Last year I had a particularly trying time with considerable fatigue and very painful mouth ulcers. Slightly at the end of my tether I was given a book called Diet and Arthritis
Hi I was diagnosed with PMR in December 2019. I have tried to taper the steroids down but have never got below 2/3 mg a day. Last year I had a particularly trying time with considerable fatigue and very painful mouth ulcers. Slightly at the end of my tether I was given a book called Diet and Arthritis
Evamollie
in
PMRGCAuk
5 months ago
Psoriatic Arthritis- I need better Rheumatology Team
Have psoriatic arthritis, diagnosed in 2022 after 10 years of symptoms. Sister also diagnosed. Currently on leflunomide after methotrexate caused severe nausea & GI probs. Current rheumatology team in North London very problematic. Want to transfer to UCLH. Anyone else have experience of team there?
Have psoriatic arthritis, diagnosed in 2022 after 10 years of symptoms. Sister also diagnosed. Currently on leflunomide after methotrexate caused severe nausea & GI probs. Current rheumatology team in North London very problematic. Want to transfer to UCLH. Anyone else have experience of team there?
Sweetvoice
in
NRAS
1 month ago
Secondary Hypothyroidism…anyone?
I’m trying to build information for an upcoming appointment with my rheumatologist and have discovered from recent blood tests that I may have secondary hypothyroidism (my symptoms certainly fit). I know there is a link between Methotrexate usage and secondary hypothyroidism. Does anyone have this diagnosis
I’m trying to build information for an upcoming appointment with my rheumatologist and have discovered from recent blood tests that I may have secondary hypothyroidism (my symptoms certainly fit). I know there is a link between Methotrexate usage and secondary hypothyroidism. Does anyone have this diagnosis
CallMeSunny
in
NRAS
5 months ago
RA overlap just diagnosed. Who else? Tips?
I have had PBC since 2009. I have just been diagnosed with overlap rheumatoid arthritis. UGH! I know some of you have too. Would appreciate any tips. Unfortunately for me because of both PBC and the fact I am allergic to sulpha the list of medications is small. Starting with hydroxicholriquine.
I have had PBC since 2009. I have just been diagnosed with overlap rheumatoid arthritis. UGH! I know some of you have too. Would appreciate any tips. Unfortunately for me because of both PBC and the fact I am allergic to sulpha the list of medications is small. Starting with hydroxicholriquine.
CeeCee101
in
PBC Foundation
5 months ago
Sulfasalazine questions :)
Hello! I'm new here and this is my first post so I hope I'm doing this right :). I'm 35 and am being treated for an inflammatory arthritis. I just started treatment a few months ago. I was started on Sulfasalazine and worked my way up to 4 pills a day. I didn't have any side effects really and after
Hello! I'm new here and this is my first post so I hope I'm doing this right :). I'm 35 and am being treated for an inflammatory arthritis. I just started treatment a few months ago. I was started on Sulfasalazine and worked my way up to 4 pills a day. I didn't have any side effects really and after
Sfmama051004
in
NRAS
5 months ago
Arthritic knee, back and anticoagulants
My husband has recently developed AF and has until now used Piroxicam gel for arthritic flareups in his knee and back. This supplements his morphine patch as and when necessary for bad pain. Morphine helps with nerve and tendon pain from his back injury but the arthritic pain pushes through. As he
My husband has recently developed AF and has until now used Piroxicam gel for arthritic flareups in his knee and back. This supplements his morphine patch as and when necessary for bad pain. Morphine helps with nerve and tendon pain from his back injury but the arthritic pain pushes through. As he
Finvola
in
AF Association
5 months ago
foot support
Can't blame this on pmr but getting lower on pred has made it more apparent. I have arthritis in big toe and the joint seems to have flattened. Gp has suggested support insole for under the toe joint, but have been flummoxed looking at t'interweb options. Can anyone recommend something suitable, please
Can't blame this on pmr but getting lower on pred has made it more apparent. I have arthritis in big toe and the joint seems to have flattened. Gp has suggested support insole for under the toe joint, but have been flummoxed looking at t'interweb options. Can anyone recommend something suitable, please
herdysheep
in
PMRGCAuk
5 months ago
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