Views on Injectable Treatment Formats: Being diagnosed... - NRAS

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Views on Injectable Treatment Formats

Aribah-NRAS profile image
Aribah-NRASPartnerNRAS
18 Replies

Being diagnosed with a long-term condition such as rheumatoid arthritis (RA) means that many decisions need to be made during your treatment pathway, particularly about the range of options that are available to you.

We’re in the process of developing a survey looking into perceptions around the use of injectables as a treatment format for RA. We are particularly interested in understanding any misconceptions you may have had around this treatment format beforehand, and any support/resources you feel might be beneficial to support patients using this particular format.

To take part in this survey you need to be diagnosed with RA, be 16 years old or older and live within the UK. We very much appreciate your time in helping us with this survey. The following questions should only take about 10-15 minutes to complete.

survey.sogolytics.com/r/7nurMZ

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Aribah-NRAS profile image
Aribah-NRAS
Partner
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18 Replies
medway-lady profile image
medway-lady

I looked at this and it implies at the start instead of pills not together with so can’t answer and backed out.

Boxerlady profile image
Boxerlady in reply tomedway-lady

I didn't read it like that and completed it 🤔

medway-lady profile image
medway-lady in reply toBoxerlady

I’ll reread but I couldn’t find anything saying together with pills. I could seem to be able to say Aza and Etanercept.

NRAS_SallyM profile image
NRAS_SallyMModerator in reply tomedway-lady

I have added a note to the opening question about the use of an injectable, to clarify that it is relating to whether you take oral pills in conjunction with an injectable or not.

medway-lady profile image
medway-lady in reply toNRAS_SallyM

That makes more sense, thank you.

medway-lady profile image
medway-lady in reply tomedway-lady

It still goes on to say changing to injectables not in addition too. So I can’t answer , I take oral and use an injectable. Not MTX so perhaps it needs an adjustment. For me and perhaps others the injectable is in conjunction with, not instead of. Sorry.

NRAS_SallyM profile image
NRAS_SallyMModerator in reply tomedway-lady

If you are referring to the question 'Have you ever switched from an oral treatment to an injectable?' Y/N - You can say No in your scenario as you are currently on both and not switched. If you don't mind, I'd like to DM you to understand this further to come up with a solution

medway-lady profile image
medway-lady in reply toNRAS_SallyM

I’ve replied to your PM . Hope it helps.

AgedCrone profile image
AgedCrone

Are infusions included?

NRAS_SallyM profile image
NRAS_SallyMModerator in reply toAgedCrone

We are only looking for people who have taken treatment via subcutaneous injection to participate in this survey (like an auto-injector).

NRAS_SallyM profile image
NRAS_SallyMModerator

The survey is about perceptions of injectables. Therefore, if you have only taken oral pills, you will be asked a few questions and then they survey will end. Whereas, if you have used any injectable (in conjunction with pills or not), the survey continues.

whitedog profile image
whitedog

Have filled it in but, as usual with these kind of surveys (quantitative rather than qualitative) it feels like a basic box ticking exercise. My experiences with injectables aren't really covered by the questions, I don't think.

MagsLough profile image
MagsLough

You have asked for RA sufferers only, but they are not the only group who use injectables along with orals. I have psoriatic arthritis and use benepali & mtx.

Haz58 profile image
Haz58

Completed

stbernhard profile image
stbernhard

Survey completed 👍

Plumcrumble profile image
Plumcrumble

👍 completed

medway-lady profile image
medway-lady

I can’t it still doesnt make sense. Is it not the case that with oral DMARDs only MTX is injectable. The others are biological or bio similar DMARDs and stronger and are only prescribed in the UK after the orals and usually in conjunction with them. We can’t choose to go onto injectables as an alternative to oral apart from MTX. I’ve given up on it now.

AKA13 profile image
AKA13

Completed today.

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