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What's Normal.
Sero negative inflammatory arthritis Two issues as such. 1 Was told last week that after six years of pred it's likely my body doesn't produce it's own
steroids
and I'll probably have to take 5mg pred forever. Anyone else in this boat? 2 What level of pain / discomfort is normal.
Sero negative inflammatory arthritis Two issues as such. 1 Was told last week that after six years of pred it's likely my body doesn't produce it's own
steroids
and I'll probably have to take 5mg pred forever. Anyone else in this boat? 2 What level of pain / discomfort is normal.
wilbertjellyfish
in
NRAS
1 year ago
Antihistamines
Hi all again thanks to everyone who replied to my recent post about
steroids
. Now my question is about the use of antihistamines,at present my dermatologist has said take two 180 mg fexofenadine a day which I have been when flares appear . Again is the a danger of overuse ?
Hi all again thanks to everyone who replied to my recent post about
steroids
. Now my question is about the use of antihistamines,at present my dermatologist has said take two 180 mg fexofenadine a day which I have been when flares appear . Again is the a danger of overuse ?
cartwheels
in
Vasculitis UK
1 year ago
Steroid injection worn off?
Hope everyone is having the best day they can.I am newly diagnosed with inflammatory arthritis, already having osteoarthritis and recently diagnosed with fibromyalgia, so have a lot going on right now. After an initial consultation with the rheumatologist, I was given a steroid injection to tied me
Hope everyone is having the best day they can.I am newly diagnosed with inflammatory arthritis, already having osteoarthritis and recently diagnosed with fibromyalgia, so have a lot going on right now. After an initial consultation with the rheumatologist, I was given a steroid injection to tied me
hazelcats
in
NRAS
2 months ago
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Hello All Just had my latest check up at the Hospital. After a terrible flare about a year and a half ago, which took ages to get under control, Sulfa was finally added to my Mthx and has really been a game changer. I have also been lucky enough to have an absolutely amazing Rheumatologist and I have
Hello All Just had my latest check up at the Hospital. After a terrible flare about a year and a half ago, which took ages to get under control, Sulfa was finally added to my Mthx and has really been a game changer. I have also been lucky enough to have an absolutely amazing Rheumatologist and I have
Chockyuk
in
NRAS
2 months ago
Can you 'demand' Tocilizumab for GCA?
Steroids
were increased to 40mg by the hospital but reduced to 15mg 2 days later by my appointed rheumatologist. Double vision ensued. Bit of a nightmare but finally got a GCA diagnosis in early April after a temporal biopsy (
steroids
raised to 60mg before biopsy).
Steroids
were increased to 40mg by the hospital but reduced to 15mg 2 days later by my appointed rheumatologist. Double vision ensued. Bit of a nightmare but finally got a GCA diagnosis in early April after a temporal biopsy (
steroids
raised to 60mg before biopsy).
tweety_pie
in
PMRGCAuk
1 year ago
Follow up to initial appt
Hi all, I had my initial appt with rheumatologist 19th April, who diagnosed seronegative inflammatory arthritis. He gave me a steroid injection, which does seem to have lessened the swelling a bit, but still stiff and in pain. But I have yet to receive a follow up letter summarising the appt and findings
Hi all, I had my initial appt with rheumatologist 19th April, who diagnosed seronegative inflammatory arthritis. He gave me a steroid injection, which does seem to have lessened the swelling a bit, but still stiff and in pain. But I have yet to receive a follow up letter summarising the appt and findings
hazelcats
in
NRAS
2 months ago
Pain Relief
I have posted before regarding Scleroderma and Raynauds and the problems which relate to this. I have osteoarthritis in my knees and they are so very painful. I was coping with the help of steroid injections, paracetamol and Ibuprofen however steroid injections are now limited with less relief and
I have posted before regarding Scleroderma and Raynauds and the problems which relate to this. I have osteoarthritis in my knees and they are so very painful. I was coping with the help of steroid injections, paracetamol and Ibuprofen however steroid injections are now limited with less relief and
creditcrunchie
in
Scleroderma & Raynaud's UK (SRUK)
2 months ago
Intermittent fasting
My question is, as I’m taking the Lanzoprazole , do I need food before taking the
steroids
? Thanks in advance.
My question is, as I’m taking the Lanzoprazole , do I need food before taking the
steroids
? Thanks in advance.
Lyndaki
in
PMRGCAuk
1 year ago
Is it back? 🙈
Hi Everyone, Tapered off Pred in Jan24 after being diagnosed with PMR May 18. . I had my routine Rheumie appointment 2 weeks ago which was with a Registrar for the first time. I told him I had increasing neck, shoulders and wrist, hand pain for the past few weeks especially bad upon waking. He told
Hi Everyone, Tapered off Pred in Jan24 after being diagnosed with PMR May 18. . I had my routine Rheumie appointment 2 weeks ago which was with a Registrar for the first time. I told him I had increasing neck, shoulders and wrist, hand pain for the past few weeks especially bad upon waking. He told
Croft9232
in
PMRGCAuk
2 months ago
Aplautamide, enzalutamide: low dose opinions
Doc ants me to choose abi but I want to dodge the worries on
steroids
etc. Can't help feeling that the newer aplautamide is perhaos a better bet. Any and all opinions gratefully accepted. Good luck
Doc ants me to choose abi but I want to dodge the worries on
steroids
etc. Can't help feeling that the newer aplautamide is perhaos a better bet. Any and all opinions gratefully accepted. Good luck
Rickytarr
in
Fight Prostate Cancer
1 year ago
Angina and arthritis pain.
I have had for many years ischeamic heart disease (7 stents) damaged area of heart muscle due to two heart attacks back in 2014 plus AF. I also suffer with osteoarthritis in various joints the latest most recent in my right hip. This is constantly giving me severe pain that pain killers won't touch.
I have had for many years ischeamic heart disease (7 stents) damaged area of heart muscle due to two heart attacks back in 2014 plus AF. I also suffer with osteoarthritis in various joints the latest most recent in my right hip. This is constantly giving me severe pain that pain killers won't touch.
graemeparsons
in
British Heart Foundation
3 months ago
Severe pain in Hips
Hello all, I haven’t been on this section for a long time, due to my many other conditions like Rheumatoid Arthritis & newish one, Smouldering Myeloma affecting me. But I would be glad of any advice/contact on the Osteoarthritis. I started with Fibromyalgia in my mid-late 40’s, now aged 62 & as
Hello all, I haven’t been on this section for a long time, due to my many other conditions like Rheumatoid Arthritis & newish one, Smouldering Myeloma affecting me. But I would be glad of any advice/contact on the Osteoarthritis. I started with Fibromyalgia in my mid-late 40’s, now aged 62 & as
Shamrockgirl
in
NRAS
3 months ago
Concerned that my GPs are still not taking my condition seriously, what should I do?
So basically I have reacted reasonably well to
steroids
(especially sick day
steroids
as I am currently fighting a viral infection and needing to updose) and therefore my Endocrinologist is diagnosing me with adrenal insufficiency.
So basically I have reacted reasonably well to
steroids
(especially sick day
steroids
as I am currently fighting a viral infection and needing to updose) and therefore my Endocrinologist is diagnosing me with adrenal insufficiency.
Lucy___
in
Thyroid UK
3 months ago
vita health group physio? & Simponi question
Hi I have ankylosing spondylitis and inject 100ml of Simponi every 4 weeks, I just had MOHs surgery for skin cancer on my nose. I got an infection so this messed up my injections, did my injection then injected again 3 weeks later as pain was horrific. I have knee problems and went to rheumatology
Hi I have ankylosing spondylitis and inject 100ml of Simponi every 4 weeks, I just had MOHs surgery for skin cancer on my nose. I got an infection so this messed up my injections, did my injection then injected again 3 weeks later as pain was horrific. I have knee problems and went to rheumatology
Km27
in
NRAS
3 months ago
Learning about GCA
I have been on
steroids
since February for PRM, properly unwell for quite a while before that. Over the weekend I had a period of very disturbed vision with headache and jaw pain. Now increased from 10mg to 60mg prednisone.
I have been on
steroids
since February for PRM, properly unwell for quite a while before that. Over the weekend I had a period of very disturbed vision with headache and jaw pain. Now increased from 10mg to 60mg prednisone.
Smellydog9
in
PMRGCAuk
1 year ago
chesty cough
started February sinc then three lots of antibiotics including
steroids
, an X-ray and blood 🩸 test am told all is ok it’s now may and trying to get to sleep, walk with the dogs or anything reasonable that I WAS capable is now very tiring I just have no energy to want to do anything don’t know what the
started February sinc then three lots of antibiotics including
steroids
, an X-ray and blood 🩸 test am told all is ok it’s now may and trying to get to sleep, walk with the dogs or anything reasonable that I WAS capable is now very tiring I just have no energy to want to do anything don’t know what the
5040oliver
in
NRAS
1 year ago
Advice Needed, Abiraterone Failing?
I have had 40 sessions of radiotherapy and HT since then, I am currently taking Abiraterone with
Steroids
and I have a three-monthly De-Capetyl injection. My Gleason score is 7, (4+3).
I have had 40 sessions of radiotherapy and HT since then, I am currently taking Abiraterone with
Steroids
and I have a three-monthly De-Capetyl injection. My Gleason score is 7, (4+3).
scranbag
in
Advanced Prostate Cancer
1 year ago
It felt like Levothyroxine was poisoning me :(
It felt like Levothyroxine was poisoning me :( Hi all, Im new here and this is my first post. On the 20th Dec 23 I came off of my dose of 150 Levothyroxine completely (cold turkey). It genuinely felt as if I was being slowly poisoned. I was constantly shattered, I couldn't think straight, i was so,
It felt like Levothyroxine was poisoning me :( Hi all, Im new here and this is my first post. On the 20th Dec 23 I came off of my dose of 150 Levothyroxine completely (cold turkey). It genuinely felt as if I was being slowly poisoned. I was constantly shattered, I couldn't think straight, i was so,
gotusthelottus
in
Thyroid UK
6 months ago
Steroid injection and surgery
Hi all , I'm just wondering if anyone knows how long you have to wait after steroid injection in the bottom before having gallbladder removal I've been told operation will be in 2 to 3 mths unless a cancellation comes in. But a friend said I'll have to wait 3mths now
Hi all , I'm just wondering if anyone knows how long you have to wait after steroid injection in the bottom before having gallbladder removal I've been told operation will be in 2 to 3 mths unless a cancellation comes in. But a friend said I'll have to wait 3mths now
Trishfrog1
in
NRAS
3 months ago
Bronchocentric Glanulomatosis?
She was eventually put on these
steroids
, which has cleared up the cough but she has lost the will to live. I'm at a loss as to how to help her. Has anyone else on this site heard of bronchocentric glanulomatosis or been misdiagnosed.
She was eventually put on these
steroids
, which has cleared up the cough but she has lost the will to live. I'm at a loss as to how to help her. Has anyone else on this site heard of bronchocentric glanulomatosis or been misdiagnosed.
Muddywater100
in
Vasculitis UK
1 year ago
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