Search
Search
About
Log in
Join
Experiences with
Steroid injections
Posts
Communities
43,203 public posts
Filter results
High dose Prednisolone and effects
Hi, I was diagnosed with PMR, 8 years ago and was down to 2mg of prednisolone, however 3 weeks ago I ended up in A&E being told I’d developed GCA, after CT head scans and blood tests. Also had a temporal artery biopsy. I was prescribed 60mg of prednisolone, tapering gently so still on 50. My problem
Hi, I was diagnosed with PMR, 8 years ago and was down to 2mg of prednisolone, however 3 weeks ago I ended up in A&E being told I’d developed GCA, after CT head scans and blood tests. Also had a temporal artery biopsy. I was prescribed 60mg of prednisolone, tapering gently so still on 50. My problem
Karil
in
PMRGCAuk
4 months ago
Help with results undetectable tsh
hi I posted the other week about having a tsh of 0.008 a few weeks ago but it was an at home test. I’ve had them repeated through the doctors and these were the results: Tsh 0.001 (0.49-5.2) Free t4 11.4 (11.5-22.7) Free t3 5.6 (3.5-6.5) It doesn’t make sense to be hyper while my t4 is low. I’ve
hi I posted the other week about having a tsh of 0.008 a few weeks ago but it was an at home test. I’ve had them repeated through the doctors and these were the results: Tsh 0.001 (0.49-5.2) Free t4 11.4 (11.5-22.7) Free t3 5.6 (3.5-6.5) It doesn’t make sense to be hyper while my t4 is low. I’ve
Victoria27
in
Thyroid UK
4 months ago
The pain of PMR before being prescribed prednisone
I want to ask you how you dealt with the pain of PMR before being prescribed prednisone as when I look back at those incredibly painful and debilitating symptoms I had I wonder how I manged to carry on. My story was I was off on my holidays to Turkey and my knees were beginning to feel so stiff and
I want to ask you how you dealt with the pain of PMR before being prescribed prednisone as when I look back at those incredibly painful and debilitating symptoms I had I wonder how I manged to carry on. My story was I was off on my holidays to Turkey and my knees were beginning to feel so stiff and
Markandevie
in
PMRGCAuk
4 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Taper Advice after too fast a taper
Sorry in advance that this is such a long post. Thank you for your consideration of my dilemma. I really value this wonderful forum and the expertise and experience of you all. The journey so far. Diagnosed GCA in July 2023. Had previously months of headaches, malaise, back to back frozen shoulders
Sorry in advance that this is such a long post. Thank you for your consideration of my dilemma. I really value this wonderful forum and the expertise and experience of you all. The journey so far. Diagnosed GCA in July 2023. Had previously months of headaches, malaise, back to back frozen shoulders
Leafsong66
in
PMRGCAuk
4 months ago
Prednisolone and Alcohol
Hi I am on a 5 day 4040mg steroids, I finish Sunday morning, my daughters wedding is on Monday, typical ! I don't drink as also on Methotrexate , but was looking forward to toasting a poss one other drink, what do you think ? will it be out of my system?
Hi I am on a 5 day 4040mg steroids, I finish Sunday morning, my daughters wedding is on Monday, typical ! I don't drink as also on Methotrexate , but was looking forward to toasting a poss one other drink, what do you think ? will it be out of my system?
trace58
in
NRAS
4 months ago
Synacthen Test
Hi, I received a letter from my Rheumatologist saying that my cortisol levels are normal following the Synacthen test 2 weeks ago. It says it is now safe to stop taking steroids. My question is, as i have been on steroids for over 5 years should i just stop or continue reducing. I am now taking 2.5mg
Hi, I received a letter from my Rheumatologist saying that my cortisol levels are normal following the Synacthen test 2 weeks ago. It says it is now safe to stop taking steroids. My question is, as i have been on steroids for over 5 years should i just stop or continue reducing. I am now taking 2.5mg
studiomaster
in
PMRGCAuk
4 months ago
Colaba
I take six Methotrexate tablets every Thursday morning. I was weaned off the magical steroids after about seven months into the disease. That was in Summer 2021. My condition appears to be stable. I have very few serious pains, and so far seem to have avoided the flares for which RA is ntorious RA though
I take six Methotrexate tablets every Thursday morning. I was weaned off the magical steroids after about seven months into the disease. That was in Summer 2021. My condition appears to be stable. I have very few serious pains, and so far seem to have avoided the flares for which RA is ntorious RA though
Colaba
in
NRAS
4 months ago
Recently Diagnosed - or not? (UK)
Hello everyone - at last i've found somewhere I can talk about things, because there seems to be precious little else in the UK i've found so far. I'm sure youve heard all of this before and you are going through your own rollercoaster ride of pain and struggle.....but here is me :- I started about
Hello everyone - at last i've found somewhere I can talk about things, because there seems to be precious little else in the UK i've found so far. I'm sure youve heard all of this before and you are going through your own rollercoaster ride of pain and struggle.....but here is me :- I started about
riderNoMore
in
PMRGCAuk
4 months ago
Sorry if this goes a second time,
The muscle loss getting me down any advise, ? Another question can you just stopp steroids, as my sister has said he's putting to much weight on and doesn't feel much better on them. Consultant says put them up, GP said reduce. Shocking
The muscle loss getting me down any advise, ? Another question can you just stopp steroids, as my sister has said he's putting to much weight on and doesn't feel much better on them. Consultant says put them up, GP said reduce. Shocking
Harrywogan
in
PMRGCAuk
4 months ago
Muscle tone
Hi all feeling low this morning and shouldn't as IAM off to Portugal for 3 weeks soon case packed, but IAM wondering if it just me that's lost a lot of muscle tone with the steroids IAM just glad I can cover this body with cloths but wonder if you lovely people have same problem. Thanking you all so
Hi all feeling low this morning and shouldn't as IAM off to Portugal for 3 weeks soon case packed, but IAM wondering if it just me that's lost a lot of muscle tone with the steroids IAM just glad I can cover this body with cloths but wonder if you lovely people have same problem. Thanking you all so
Harrywogan
in
PMRGCAuk
4 months ago
pain killers
I have lower back pain after a strenuous evening of indoor climbing. What pain killers can I take in addition to the steroids I’m on. Many thanks
I have lower back pain after a strenuous evening of indoor climbing. What pain killers can I take in addition to the steroids I’m on. Many thanks
Racer2024
in
PMRGCAuk
4 months ago
an update on dealing with my flare - lightbulb moment
all you lovely people Since adding 5mg of pred to deal with my self induced flare (that’ll teach me to overdo it!) I have realised that things hadn’t been right for a while before I embarked on my over walking in the sunshine. To use the bucket analogy, mine had been full ( and dripping over) and
all you lovely people Since adding 5mg of pred to deal with my self induced flare (that’ll teach me to overdo it!) I have realised that things hadn’t been right for a while before I embarked on my over walking in the sunshine. To use the bucket analogy, mine had been full ( and dripping over) and
Jayneywales
in
PMRGCAuk
4 months ago
‼️ Anaphylaxis ‼️
https://www.bbc.co.uk/news/health-66330268 Having suffered Anaphylaxis following a Depo-medrone Steroid injection whilst in the consulting room at my Rheumatology Hospital, this article on BBC news today caught my eye. I have SLE. It mentions Contrast Dye used in scans & having seen recent posts on
https://www.bbc.co.uk/news/health-66330268 Having suffered Anaphylaxis following a Depo-medrone Steroid injection whilst in the consulting room at my Rheumatology Hospital, this article on BBC news today caught my eye. I have SLE. It mentions Contrast Dye used in scans & having seen recent posts on
Turquoise-1
in
LUPUS UK
1 year ago
Potentially Heading Flarewards
Long post warning!!! After 4 years since diagnosis I thought I was starting to work towards the home straight. I have had 3 relatively PMR pain-free years with my issues being more anxiety or “other stuff” related. My tapering has been slowed down considerably by a couple of GCA concerns which thankfully
Long post warning!!! After 4 years since diagnosis I thought I was starting to work towards the home straight. I have had 3 relatively PMR pain-free years with my issues being more anxiety or “other stuff” related. My tapering has been slowed down considerably by a couple of GCA concerns which thankfully
Burroughs123
in
PMRGCAuk
4 months ago
Classification Criteria vs. Diagnosis Criteria
I learned something new while reading this article on PMR: https://www.cmaj.ca/content/193/46/E1770 It says "The European League Against Rheumatism (EULAR) and American College of Rheumatology (ACR) criteria can distinguish polymyalgia rheumatica from mimicking conditions." However, I then clicked
I learned something new while reading this article on PMR: https://www.cmaj.ca/content/193/46/E1770 It says "The European League Against Rheumatism (EULAR) and American College of Rheumatology (ACR) criteria can distinguish polymyalgia rheumatica from mimicking conditions." However, I then clicked
AtopicGuy
in
PMRGCAuk
4 months ago
GCA and PMR now RA
Hi all and hope you get to feel soon. I was diagnosed with PMR just over 4 years and although some set backs I eventually got to 5Mg Pred. I was doing quite well but developed TMJ on to GCA. I was back up to 60mg but slowly got to 5 Mg again. Started feeling let’s say not quite as well but very little
Hi all and hope you get to feel soon. I was diagnosed with PMR just over 4 years and although some set backs I eventually got to 5Mg Pred. I was doing quite well but developed TMJ on to GCA. I was back up to 60mg but slowly got to 5 Mg again. Started feeling let’s say not quite as well but very little
cmToddy
in
PMRGCAuk
4 months ago
Glaucoma after transplant
Like many transplant patients I was on a regiment of steroids after transplant. Unlike some I have had to continue a small dose after 4 years post transplant due to rejection. Within that time I have had gout and eye infections which included the use of steroids for inflammation. One of these responses
Like many transplant patients I was on a regiment of steroids after transplant. Unlike some I have had to continue a small dose after 4 years post transplant due to rejection. Within that time I have had gout and eye infections which included the use of steroids for inflammation. One of these responses
Eyak1971
in
Kidney Transplant
4 months ago
back on it …
I’m back doing C25K… I’ve been diagnosed with a benign lung tumour…& had steroids to shrink it … I’m now scared 6 monthly … I’m now on week 5…. Run 1 done … back enjoying it -even ran in the rain yesterday!!!! And back dieting- steroids were not kind weight wise either !!! I just need to keep going
I’m back doing C25K… I’ve been diagnosed with a benign lung tumour…& had steroids to shrink it … I’m now scared 6 monthly … I’m now on week 5…. Run 1 done … back enjoying it -even ran in the rain yesterday!!!! And back dieting- steroids were not kind weight wise either !!! I just need to keep going
Scw787
Graduate
in
Couch to 5K
4 months ago
Atorvastatin
I have been advised to go on the above Statin, having read the reviews I’m concerned about starting it, I have GCA & PMR and have managed to cut down to 3.5mg of Steroids and am on 20mg of Methotrexate and am virtually pain free now, has any one else taken Atorvastain along with Steroids and Methotrexate
I have been advised to go on the above Statin, having read the reviews I’m concerned about starting it, I have GCA & PMR and have managed to cut down to 3.5mg of Steroids and am on 20mg of Methotrexate and am virtually pain free now, has any one else taken Atorvastain along with Steroids and Methotrexate
Phed
in
PMRGCAuk
4 months ago
Very High blood pressure
I had a heartbeat issue last week ( felt a heavy thumping and slight difficulty getting my breath). Saw gp. She said heart sounded fine but has booked me in for bloods and ecg. However my blood pressure was high , so I’m now monitoring t home. I started yesterday evening. All my readings have been
I had a heartbeat issue last week ( felt a heavy thumping and slight difficulty getting my breath). Saw gp. She said heart sounded fine but has booked me in for bloods and ecg. However my blood pressure was high , so I’m now monitoring t home. I started yesterday evening. All my readings have been
Freshairfiend
in
PMRGCAuk
4 months ago
1
...
23
24
25
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
PMRGCAuk
4759 results
Lung Conditions Community Forum
4408 results
Asthma Community Forum
3807 results
View top 10 communities
Sort by
Most Relevant
Newest