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Diagnosed with Sickle Cell trait (or SC carrier), experiencing some SC-Disease symptoms, what is the cause?
I'm 20 years old. I have been diagnosed to be a carrier of sickle cell or sickle cell trait when I was a child, I don't know if there is a difference but they said it like that (carrier). But I believe I have been experiencing some of the symptoms of sickle cell disease. I have Muscle pain, Bone pain
I'm 20 years old. I have been diagnosed to be a carrier of sickle cell or sickle cell trait when I was a child, I don't know if there is a difference but they said it like that (carrier). But I believe I have been experiencing some of the symptoms of sickle cell disease. I have Muscle pain, Bone pain
Almoullim
in
Sickle Cell Society
8 years ago
MDS UK Patient and Family Forum Birmingham, UK Saturday, 4th February 2017 10.00 am – 16.30 pm
This FREE event will be held at The National Motorcycle Museum Coventry Road, Hampton in Arden Solihull, B92 0EJ This meeting is free of charge and open to MDS patients and their guests. Patients and their families will have the opportunity to participate in an informal discussion regarding their quality-of-life
This FREE event will be held at The National Motorcycle Museum Coventry Road, Hampton in Arden Solihull, B92 0EJ This meeting is free of charge and open to MDS patients and their guests. Patients and their families will have the opportunity to participate in an informal discussion regarding their quality-of-life
LCNurse
in
Leukaemia Support
8 years ago
SS carrier
Morning all glad I found this forum. My daughter is 8 and has hbss. He crisisis are frequent and intense. Often at least 14 days in hospital. She is on all the usual daily medicine such as folic acid, penicillin, hydroxrea and we have morphine and such at home for pain relief. She was on weekly transfusions
Morning all glad I found this forum. My daughter is 8 and has hbss. He crisisis are frequent and intense. Often at least 14 days in hospital. She is on all the usual daily medicine such as folic acid, penicillin, hydroxrea and we have morphine and such at home for pain relief. She was on weekly transfusions
Nadineb1
in
Sickle Cell Society
8 years ago
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Good results
Hi Peeps, just to let you that my visit to see my Haematolagist today was all good. WCC 4.3 Neut 2.1 Hb 148 Haematocrit 44.4 Plt 355 he was really pleased with me and said that all my counts were behaving themselves WHoop !!! He also checked my spleen as I have been experiencing some sharp pain on my
Hi Peeps, just to let you that my visit to see my Haematolagist today was all good. WCC 4.3 Neut 2.1 Hb 148 Haematocrit 44.4 Plt 355 he was really pleased with me and said that all my counts were behaving themselves WHoop !!! He also checked my spleen as I have been experiencing some sharp pain on my
Superwoman
in
MPN Voice
8 years ago
Cause of GCA chicken pox and shingles virus??
Picked up the following today from a Facebook group for GCA based largely in USA thought this may be of interest to share:- A new study developed at the University of Colorado School of Medicine at the Anschutz Medical Campus links the virus that causes chicken pox and shingles to a condition that inflames
Picked up the following today from a Facebook group for GCA based largely in USA thought this may be of interest to share:- A new study developed at the University of Colorado School of Medicine at the Anschutz Medical Campus links the virus that causes chicken pox and shingles to a condition that inflames
DevonMichael
in
PMRGCAuk
8 years ago
Advice needed
I have been on Laxidu powders 1 or 2 nightly following.a bowel cancer scare some years ago which luckily turned out to be diverticular disease (not diverticulitis itself). I now hear that they can cause problems such as hoarseness etc. Does anyone have any info regarding this.
I have been on Laxidu powders 1 or 2 nightly following.a bowel cancer scare some years ago which luckily turned out to be diverticular disease (not diverticulitis itself). I now hear that they can cause problems such as hoarseness etc. Does anyone have any info regarding this.
Gillymar
in
PMRGCAuk
8 years ago
Hi everyone
Diagnosed 2 years ago, stem cell transplant 1 year ago, currently on lenalidomide maintenance as part of the Myeloma XI trial. I'm doing OK at the moment, long may it continue!
Diagnosed 2 years ago, stem cell transplant 1 year ago, currently on lenalidomide maintenance as part of the Myeloma XI trial. I'm doing OK at the moment, long may it continue!
Louis-Henry
in
Myeloma UK
8 years ago
Hello
Hello, I am new here and from Japan, wish my country had site like this. I started to have lung problem as part of complication called GVHD which is from my stem cell transplant from blood cancer, i have other several complications but this is the hardest one. I was in the hospital for three weeks in
Hello, I am new here and from Japan, wish my country had site like this. I started to have lung problem as part of complication called GVHD which is from my stem cell transplant from blood cancer, i have other several complications but this is the hardest one. I was in the hospital for three weeks in
nonchan
in
Lung Conditions Community Forum
8 years ago
Frightening news - White CBC of 22,000 and liver panels elevated - RA, PMR and GCA with an ALL leukemia history
The title pretty much sums it up and I'd be lying if I said I wasn't scared. I'm a pretty cool customer and when I hear hoofbeats I look for horses not zebras. I went for my Actemra infusion yesterday and had the normal blood draw which is full metabolic, CBC and ESR with liver panels. My liver numbers
The title pretty much sums it up and I'd be lying if I said I wasn't scared. I'm a pretty cool customer and when I hear hoofbeats I look for horses not zebras. I went for my Actemra infusion yesterday and had the normal blood draw which is full metabolic, CBC and ESR with liver panels. My liver numbers
Nitrobunny
in
NRAS
8 years ago
A thankful run
It's not been a great week. My lovely hairdresser's husband has died after a long struggle with liver cancer, and I have just heard that my cousin has to have another stem cell transplant after Christmas and that a friend has just been diagnosed with breast cancer. I was talking myself out of a run today
It's not been a great week. My lovely hairdresser's husband has died after a long struggle with liver cancer, and I have just heard that my cousin has to have another stem cell transplant after Christmas and that a friend has just been diagnosed with breast cancer. I was talking myself out of a run today
Ullyrunner
Graduate
in
Couch to 5K
8 years ago
Sickle Cell Trait is a disease.
This site needs to remove the statements about Sickle Cell Trait because it is wrong. If you have the Trait you will have pain in your body. I have the Trait and also have 4 children with the Trait . I am also published in this area of Sickle Cell disease. If you have the Trait you can go blind. Three
This site needs to remove the statements about Sickle Cell Trait because it is wrong. If you have the Trait you will have pain in your body. I have the Trait and also have 4 children with the Trait . I am also published in this area of Sickle Cell disease. If you have the Trait you can go blind. Three
Omie11
in
Sickle Cell Society
8 years ago
I didn't have pernicious anemia I have cancer
This is just a heads up for anyone who has read some of my earlier posts. Several months ago I had been trying to find answers to my recently diagnosed pernicious anemia, but unfortunately after more blood tests I was found to have AML leukemia. I spent nearly four hours in the Mayo Clinic last week
This is just a heads up for anyone who has read some of my earlier posts. Several months ago I had been trying to find answers to my recently diagnosed pernicious anemia, but unfortunately after more blood tests I was found to have AML leukemia. I spent nearly four hours in the Mayo Clinic last week
oldtimeradioguy
in
Pernicious Anaemia Society
8 years ago
New Member
I'm new to the forum and have myleo fibrosis. I am waiting on a stem cell transplant at City of Hope
I'm new to the forum and have myleo fibrosis. I am waiting on a stem cell transplant at City of Hope
linbatten
in
Fight MPN
8 years ago
Intro
Hi I'm Christiana. I was diagnosed with T cell lymphoblastic lymphoma, stage 4b in 2013. My treatment protocol has been ukall12. After 6 months inpatient treatment then and a donor stem cell transplant I'm doing well, being monitored frequently but all's good. I've been writing a blog this year diarying
Hi I'm Christiana. I was diagnosed with T cell lymphoblastic lymphoma, stage 4b in 2013. My treatment protocol has been ukall12. After 6 months inpatient treatment then and a donor stem cell transplant I'm doing well, being monitored frequently but all's good. I've been writing a blog this year diarying
Christiana_
in
Leukaemia Support
8 years ago
homocysteine, intrinsic factor and Parietal cell antibody tests results?
Hi, I have been reading other posts and now have received my fathers results for the B12 followup tests. I convinced his GP to give him B12 injections of hydroxy 1000mg over a 2 week period back in September. His neurological symptoms improved dramatically, depression and suicidal thoughts disappeared
Hi, I have been reading other posts and now have received my fathers results for the B12 followup tests. I convinced his GP to give him B12 injections of hydroxy 1000mg over a 2 week period back in September. His neurological symptoms improved dramatically, depression and suicidal thoughts disappeared
jbthyro
in
Pernicious Anaemia Society
8 years ago
NCT02478125 - for prostate cancer metatstses
This was at Johns Hopkins just last week. I went down for a screening interview, which was wonderful, and the whole experience was fantastic. Unfortunately, I was too healthy for the trial, so I have to at least wait. I characterize it as an "off label" use of a pretty standard procedure: essentially
This was at Johns Hopkins just last week. I went down for a screening interview, which was wonderful, and the whole experience was fantastic. Unfortunately, I was too healthy for the trial, so I have to at least wait. I characterize it as an "off label" use of a pretty standard procedure: essentially
Hidden
in
Understanding Clinical Trials
8 years ago
Tocilizumab and Giant Cell Arteritis
John Mills on behalf of VUK is Interested in hearing about the experiences of anyone who has been treated with Tocilizumab for treating GCA. (Good or Bad) NICE are doing an appraisal of this drug and VUK have been invited to take part in the consultation. Please contact John.mills@vasculitis.org.uk
John Mills on behalf of VUK is Interested in hearing about the experiences of anyone who has been treated with Tocilizumab for treating GCA. (Good or Bad) NICE are doing an appraisal of this drug and VUK have been invited to take part in the consultation. Please contact John.mills@vasculitis.org.uk
Suzym2u
in
PMRGCAuk
8 years ago
Tocilizumab for Giant Cell Arteritis (Temporal Arteritis)
John Mills on behalf of VUK are interested in hearing about the experiences of anyone who has been treated with Tocilizumab for treating GCA. (Good or Bad) NICE are doing an appraisal of this drug and VUK have been invited to take part in the consultation. Please contact John.mills@vasculitis.org.uk
John Mills on behalf of VUK are interested in hearing about the experiences of anyone who has been treated with Tocilizumab for treating GCA. (Good or Bad) NICE are doing an appraisal of this drug and VUK have been invited to take part in the consultation. Please contact John.mills@vasculitis.org.uk
Suzym2u
Vasculitis UK
in
Vasculitis UK
8 years ago
Hospital Boomerang
Well back in the nation health all inclusive holiday camp. This weeks good news is my husbands stem cell transplant seems to be doing well. He's out of kings and enjoying home life, so I seem to have taken up residency in his place. Last few weeks was a tad rough admitted to hospital with shingles, but
Well back in the nation health all inclusive holiday camp. This weeks good news is my husbands stem cell transplant seems to be doing well. He's out of kings and enjoying home life, so I seem to have taken up residency in his place. Last few weeks was a tad rough admitted to hospital with shingles, but
knoxie
in
My Ovacome
8 years ago
My labs are MCH is 26.2. My RDW is 15.1.
My concern is that I might have something wrong. In my family sickle cell anemia runs on my mother's side of the family. My second cousin has that she died from it. I also want to know is it possible I might have it.
My concern is that I might have something wrong. In my family sickle cell anemia runs on my mother's side of the family. My second cousin has that she died from it. I also want to know is it possible I might have it.
AjahY
in
Pernicious Anaemia Society
8 years ago
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