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update on daughter
Well daughter has been in hospital for a week, they found a nasty virus that they didnt want it to mature. It would do a lot of damage. The good news is there could be action on the bone marrow transplant in the middle of Dec. We all have our fingers crossed. I said to her there is a small light at the
Well daughter has been in hospital for a week, they found a nasty virus that they didnt want it to mature. It would do a lot of damage. The good news is there could be action on the bone marrow transplant in the middle of Dec. We all have our fingers crossed. I said to her there is a small light at the
fastball
in
NRAS
9 years ago
MDS World Awareness Day today 25th October 2015
Thought you may be interested. MDS is a rare bone marrow disease which is only curable by a cell stem or bone marrow transplant. I can't find any information or indeed references on this web site but anyone affected, see more here www.mdspatientsupport.org.uk. Best regards Glyn
Thought you may be interested. MDS is a rare bone marrow disease which is only curable by a cell stem or bone marrow transplant. I can't find any information or indeed references on this web site but anyone affected, see more here www.mdspatientsupport.org.uk. Best regards Glyn
Gforce1
in
CLL Support
9 years ago
Dr. Shpall on Therapeutic Agents for the Treatment of CLL
Elizabeth J. Shpall, MD, professor, deputy department chair, Department of Stem Cell Transplantation, Division of Cancer Medicine, medical director, Cell Therapy Laboratory, director, Cord Blood Bank, the University of Texas MD Anderson Cancer Center, discusses idelalisib and ibrutinib for the treatment
Elizabeth J. Shpall, MD, professor, deputy department chair, Department of Stem Cell Transplantation, Division of Cancer Medicine, medical director, Cell Therapy Laboratory, director, Cord Blood Bank, the University of Texas MD Anderson Cancer Center, discusses idelalisib and ibrutinib for the treatment
Justasheet1
in
CLL Support
9 years ago
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First adult cured of SCD . America.
Adults with sickle cell disease can be cured without chemotherapy – the main barrier that has stood in the way for them for so long,” Rondelli said. “Our data provide more support that this therapy is safe and effective and prevents patients from living shortened lives, condemned to pain and progressive
Adults with sickle cell disease can be cured without chemotherapy – the main barrier that has stood in the way for them for so long,” Rondelli said. “Our data provide more support that this therapy is safe and effective and prevents patients from living shortened lives, condemned to pain and progressive
Hidden
in
Sickle Cell Society
9 years ago
Sickle Cell Society please advise me of what you mean when you say the following!!
Could you please explain to me why on you website it adamtly states, and I quote "People who ONLY (are you for real?) Have Sickle Cell Trait do not suffer any of the symptoms of Sickle Cell Anemia. Sickle Cell Trait is NOT an illness and people with trait are completely healthy" I feel that this is
Could you please explain to me why on you website it adamtly states, and I quote "People who ONLY (are you for real?) Have Sickle Cell Trait do not suffer any of the symptoms of Sickle Cell Anemia. Sickle Cell Trait is NOT an illness and people with trait are completely healthy" I feel that this is
benhudson444
in
Sickle Cell Society
9 years ago
Imaging provides clearer picture of Hematopoietic Stem Cells (HSCs) and the B Cell surface
The billions of blood cells we produce every day come from just a few active Hematopoietic Stem Cells in our bone marrow. Understanding more about how these hard working cells function is critical, not only to improving the treatment of blood conditions and blood cancers, such as CLL, but many medical
The billions of blood cells we produce every day come from just a few active Hematopoietic Stem Cells in our bone marrow. Understanding more about how these hard working cells function is critical, not only to improving the treatment of blood conditions and blood cancers, such as CLL, but many medical
AussieNeil
Partner
in
CLL Support
9 years ago
New PMRGCAuk Café Meet-ups in Orpington, Maidstone, Sevenoaks and Hastings
PMRGCA café meet-ups are a great new way to meet others with polymyalgia rheumatica and giant cell arteritis who live in your area. Four new café meet-ups - Orpington, Maidstone, Sevenoaks and Hastings - are now open for you. All the details are on the PMRGCAuk website - links below: Orpington - http
PMRGCA café meet-ups are a great new way to meet others with polymyalgia rheumatica and giant cell arteritis who live in your area. Four new café meet-ups - Orpington, Maidstone, Sevenoaks and Hastings - are now open for you. All the details are on the PMRGCAuk website - links below: Orpington - http
pennyw
Administrator
in
PMRGCAuk
9 years ago
V-Kit Hardy-Zuckerman 4 Feline Sarcoma Viral Oncogene Homolog
My Son had his Kit Gene test back which may answer the family health and leukaemia coincidence. It shows that he has the kit gene which make a bone marrow transplant more likely now so they are now looking to see if his brother is a match ( 25% chance ) What we do not know is who of us has the gene
My Son had his Kit Gene test back which may answer the family health and leukaemia coincidence. It shows that he has the kit gene which make a bone marrow transplant more likely now so they are now looking to see if his brother is a match ( 25% chance ) What we do not know is who of us has the gene
Offcut
in
Lung Conditions Community Forum
9 years ago
Update to PMRGCA meeting on 21st October at the Copthorne Hotel Plymouth PL1 1AR
Update to PMRGCA meeting on 21st October at the Copthorne Hotel Plymouth PL1 1AR 2pm with Dr Bhaskar Dasgupta a Leading Rheumatologist and Head of Rheumatology at Southend University, Polymyalgia Rheumatica & Giant Cell Arteritis unfortunately he is unable to attend and we have managed to arrange at
Update to PMRGCA meeting on 21st October at the Copthorne Hotel Plymouth PL1 1AR 2pm with Dr Bhaskar Dasgupta a Leading Rheumatologist and Head of Rheumatology at Southend University, Polymyalgia Rheumatica & Giant Cell Arteritis unfortunately he is unable to attend and we have managed to arrange at
Hidden
in
PMRGCAuk
9 years ago
REVISED SPEAKER PLYMOUTH 21ST OCTOBER
Update to PMRGCA meeting on 21st October at the Copthorne Hotel Plymouth PL1 1AR with Dr Bhaskar Dasgupta a Leading Rheumatologist and Head of Rheumatology at Southend University, Polymyalgia Rheumatica & Giant Cell Arteritis unfortunately he is unable to attend and we have managed to arrange at short
Update to PMRGCA meeting on 21st October at the Copthorne Hotel Plymouth PL1 1AR with Dr Bhaskar Dasgupta a Leading Rheumatologist and Head of Rheumatology at Southend University, Polymyalgia Rheumatica & Giant Cell Arteritis unfortunately he is unable to attend and we have managed to arrange at short
Hidden
in
PMRGCAuk
9 years ago
Bone marrow transplant
Hi I have son who's 10 years old He has had thalasemia major where his body don't make blood and he has to have regular blood transfusions . We have blood every 4 weeks and has a check 2 days before having blood of how much hemo globian level it is to give blood. Over the 10 years he has had other
Hi I have son who's 10 years old He has had thalasemia major where his body don't make blood and he has to have regular blood transfusions . We have blood every 4 weeks and has a check 2 days before having blood of how much hemo globian level it is to give blood. Over the 10 years he has had other
Umar7860
in
My Ovacome
9 years ago
is this the correct viles ?
could anyone set my mind at rest before i complete my order, are these the right viles of b12 i need to self inject? sorry to keep asking but i want to get it right, Vitamin B12 METHYLCOBALAMIN 20mg: Sterile Diluent 5ml: Ideal for Self-Administration via Injection/Sublingual Dropper/Nasal Spray: Each
could anyone set my mind at rest before i complete my order, are these the right viles of b12 i need to self inject? sorry to keep asking but i want to get it right, Vitamin B12 METHYLCOBALAMIN 20mg: Sterile Diluent 5ml: Ideal for Self-Administration via Injection/Sublingual Dropper/Nasal Spray: Each
catherinejordan
in
Pernicious Anaemia Society
9 years ago
Why we need to register and report the results of all clinical trials
schwit1 writes in Slashdot: [i]"The requirement that medical researchers register in detail the methods they intend to use in their clinical trials, both to record their data as well as document their outcomes, caused a significant drop in trials producing positive results. From Nature: http://www.nature.com
schwit1 writes in Slashdot: [i]"The requirement that medical researchers register in detail the methods they intend to use in their clinical trials, both to record their data as well as document their outcomes, caused a significant drop in trials producing positive results. From Nature: http://www.nature.com
AussieNeil
Partner
in
CLL Support
9 years ago
Newbie looking for help 😊
Hi everyone I have had type 1 diabetes for 38 yrs now but unfortunately the combination of time and mismanagement in my youth have given me a variety of complications The most severe is renal failure and because of this I am facing transplant surgery I am pre dialysis and have been given options of kidney
Hi everyone I have had type 1 diabetes for 38 yrs now but unfortunately the combination of time and mismanagement in my youth have given me a variety of complications The most severe is renal failure and because of this I am facing transplant surgery I am pre dialysis and have been given options of kidney
Mark3365
in
Kidney Transplant Patient Support
9 years ago
Kidney or pancreas kidney - ??????????
Hi Ive just been made aware of this site (thankyou) I am a type 1 diabetic diagnosed 38 yrs ago. The combination of time and mismanagement in my youth has left me with a variety of problems. The most serious being renal impairment - I am not yet on dialysis but Im guessing its not to far away My mind
Hi Ive just been made aware of this site (thankyou) I am a type 1 diabetic diagnosed 38 yrs ago. The combination of time and mismanagement in my youth has left me with a variety of problems. The most serious being renal impairment - I am not yet on dialysis but Im guessing its not to far away My mind
Mark3365
in
Kidney Transplant Patient Support
9 years ago
The Anti-Inflammatory Diet
Check out this new article from Alexandra Rothwell, a registered dietitian. Inflammation is a popular “buzz word” in the world of nutrition and cancer. Foods and nutrients are touted for their “anti-inflammatory” properties, and we happily associate this with good health - as we should. However,
Check out this new article from Alexandra Rothwell, a registered dietitian. Inflammation is a popular “buzz word” in the world of nutrition and cancer. Foods and nutrients are touted for their “anti-inflammatory” properties, and we happily associate this with good health - as we should. However,
tydonald
in
Cook For Your Life
9 years ago
update on daughter
As you all know my daughter has had an on going illness that turned out to be Aplastic Anemia. She had some treatment back in April which was a cocktail of anti_biotic straight into her blood ( i believe) through an Henrick Feed, This they used for everything, Steroids etc. They were hoping this would
As you all know my daughter has had an on going illness that turned out to be Aplastic Anemia. She had some treatment back in April which was a cocktail of anti_biotic straight into her blood ( i believe) through an Henrick Feed, This they used for everything, Steroids etc. They were hoping this would
fastball
in
NRAS
9 years ago
LIKE A PHOENIX. . . . .
Hello Peops I have an update on my MF. . . . I'm sorry to say that after a year or so my Ruxo Golden Ticket Has left me on a very sticky wicket, My oversize spleen remains the same It simply hasn't played the game, The fibrosis is present within my bones And to be honest I fear these 'undertones'.
Hello Peops I have an update on my MF. . . . I'm sorry to say that after a year or so my Ruxo Golden Ticket Has left me on a very sticky wicket, My oversize spleen remains the same It simply hasn't played the game, The fibrosis is present within my bones And to be honest I fear these 'undertones'.
JediReject
in
MPN Voice
9 years ago
Joining the anxiety of parents
It's good to read about people sharing useful info.I've been dealing with this problem for 7 years when.n my son who is 8 now was diagnosed with IT and has had 3 bone marrow tests so far.I ve been told the only cure is bone marrow transplant but I'm not sure how far that can be successful. I have to
It's good to read about people sharing useful info.I've been dealing with this problem for 7 years when.n my son who is 8 now was diagnosed with IT and has had 3 bone marrow tests so far.I ve been told the only cure is bone marrow transplant but I'm not sure how far that can be successful. I have to
S38abcd
in
ITP Support Association
9 years ago
In the beginning...
...There was smoking, and obesity and .... well you know the rest. A trip down AML lane led to a bone marrow transplant and all seemed well until COPD came along. So, if the one doesn't get you the other one will - only slower! I am late in years now. Started out as a journalist (sorry people) and then
...There was smoking, and obesity and .... well you know the rest. A trip down AML lane led to a bone marrow transplant and all seemed well until COPD came along. So, if the one doesn't get you the other one will - only slower! I am late in years now. Started out as a journalist (sorry people) and then
Timberman
in
Lung Conditions Community Forum
9 years ago
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