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Rising haematocrit levels
Hi I haven't been in touch for a while. I am jack 2 positive ET diagnosed 7 years ago. I take 500 hydrea daily and plavix. My haematocrit level has been rising and is now at .49. Does anyone know if there are any diet changes I could make to reduce this a bit? I read something about spinach and broccoli
Hi I haven't been in touch for a while. I am jack 2 positive ET diagnosed 7 years ago. I take 500 hydrea daily and plavix. My haematocrit level has been rising and is now at .49. Does anyone know if there are any diet changes I could make to reduce this a bit? I read something about spinach and broccoli
Margo18
in
MPN Voice
8 years ago
Hemoglobin c trait...SCT..SCA...what do I have
I am 44 I was diagnosed with SCA 3 years ago after several visits to the hospital, several admissions...multiple blood transfusions and a hematologist ...I am now being told that I do not have SCT or SCD or SCA but Hemoglobin C trait and that this causes no problems at all. Funny thing is this I never
I am 44 I was diagnosed with SCA 3 years ago after several visits to the hospital, several admissions...multiple blood transfusions and a hematologist ...I am now being told that I do not have SCT or SCD or SCA but Hemoglobin C trait and that this causes no problems at all. Funny thing is this I never
Diamondlyfe16
in
Sickle Cell Society
8 years ago
What to buy OH for Christmas
As Christmas is looming again I thought I'd tell you how to bring back that childhood feeling of the excitement at being faced with a pile of presents not knowing what you were about to unwrap. I don't know about anyone else but now that gifts are often requests rather than surprises Christmas has kind
As Christmas is looming again I thought I'd tell you how to bring back that childhood feeling of the excitement at being faced with a pile of presents not knowing what you were about to unwrap. I don't know about anyone else but now that gifts are often requests rather than surprises Christmas has kind
ShellyC23
in
PMRGCAuk
8 years ago
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Venetoclax or bone marrow transplant?
My son has CLL with 11Q deletion. he could have a haplo transplant with his brother as a half full match donor but given his pneumonia has not subsided he is now looking more towards Venetoclax. The transplant has been postponed non stop because of fever from pneumonia. Feedback will be appreciated.
My son has CLL with 11Q deletion. he could have a haplo transplant with his brother as a half full match donor but given his pneumonia has not subsided he is now looking more towards Venetoclax. The transplant has been postponed non stop because of fever from pneumonia. Feedback will be appreciated.
karenmarie
in
CLL Support
8 years ago
Sickle Cell Trait - HELP
I found this site searching to see if there is any correlation between horrible menstrual cycles, fainting spells or migraines and sickle cell trait. I feel like I take my daughter to the Dr all the time with different problems and ask them if there is anything linking her medical issues to the trait
I found this site searching to see if there is any correlation between horrible menstrual cycles, fainting spells or migraines and sickle cell trait. I feel like I take my daughter to the Dr all the time with different problems and ask them if there is anything linking her medical issues to the trait
mssara
in
Sickle Cell Society
8 years ago
Symptoms and the trait
Hi everyone. We're seeing a lot of posts about symptoms and sickle cell trait at the moment, which is food for thought, and we might in future produce information resources about this, because there isn't a lot out there. A quick overview on what's known: -Sickle cell trait means you carry one copy of
Hi everyone. We're seeing a lot of posts about symptoms and sickle cell trait at the moment, which is food for thought, and we might in future produce information resources about this, because there isn't a lot out there. A quick overview on what's known: -Sickle cell trait means you carry one copy of
SCSZoe
Administrator
in
Sickle Cell Society
8 years ago
Advice on S.C.D and S.C.T
Hello my name is Cazzera, and I have not replied for a while, as I am doing so much much research to educate for Sickle Cell Disease which I suffer form myself. I would just like to advice the post about having sickle cell trait and suffered fro years. Although I am not medically trained I would advice
Hello my name is Cazzera, and I have not replied for a while, as I am doing so much much research to educate for Sickle Cell Disease which I suffer form myself. I would just like to advice the post about having sickle cell trait and suffered fro years. Although I am not medically trained I would advice
cazzera
in
Sickle Cell Society
8 years ago
The Sickle Cell Journey
I thank The Almighty God that. I don't have sickle cell disease because having the trait has been more than i can stand over the years. When i was a young girl i was hospitalized off & on do to Crisis. I had to take shots daily during my stay for weeks at a time. When in my 20's i had criss so bad i
I thank The Almighty God that. I don't have sickle cell disease because having the trait has been more than i can stand over the years. When i was a young girl i was hospitalized off & on do to Crisis. I had to take shots daily during my stay for weeks at a time. When in my 20's i had criss so bad i
Tone124
in
Sickle Cell Society
8 years ago
Dr doesn't believe positive parietal cell antibody bloodwork?
Hey guys it's me again! So we all know now I have very low ferritin and am on twice weekly b12 shots. Feeling alive finally! BUT, my stomach issues and not absorbing a lot of other vitamins well sent me to the gastroenterologist. He saw my blood work from my naturopath. I told him naturopath diagnosed
Hey guys it's me again! So we all know now I have very low ferritin and am on twice weekly b12 shots. Feeling alive finally! BUT, my stomach issues and not absorbing a lot of other vitamins well sent me to the gastroenterologist. He saw my blood work from my naturopath. I told him naturopath diagnosed
Ladyawkward
in
Pernicious Anaemia Society
8 years ago
Vitamin B complex
I am currently in the middle of writing a letter to my gp regarding the withdrawal of my treatment due to high serum b12 !!!!!!! This is in another post. In the meantime I am supplementing with 2x 5000 Swansons Methylcobalamine daily, I think others have said that to make the best of the b12 you should
I am currently in the middle of writing a letter to my gp regarding the withdrawal of my treatment due to high serum b12 !!!!!!! This is in another post. In the meantime I am supplementing with 2x 5000 Swansons Methylcobalamine daily, I think others have said that to make the best of the b12 you should
Kenbowns
in
Pernicious Anaemia Society
8 years ago
Autologous stem cell transplantation
Hi all i wish you are doing well with your treatment,I'm interested in information about relapsed &transformed follicular lymphoma treated with r.chop Now going to do autologous bone marrow. Stem cells transplant. Thanks
Hi all i wish you are doing well with your treatment,I'm interested in information about relapsed &transformed follicular lymphoma treated with r.chop Now going to do autologous bone marrow. Stem cells transplant. Thanks
Bhlool
in
Lymphoma Canada
8 years ago
New to group, but old to DLBCL NHL
Hi, my name is Felicia. I was diagnosed at 24 yrs ago when I was 28 with Stage 1b DLBCL NHL. I had a football size encapsulated tumor in my chest cavity. I had 6 months of PROMACE CYTOBOM, (they don't even use that regiment anymore) & 4 wks of radiation. I was fine for 23 yrs. In Feb 2015, I found
Hi, my name is Felicia. I was diagnosed at 24 yrs ago when I was 28 with Stage 1b DLBCL NHL. I had a football size encapsulated tumor in my chest cavity. I had 6 months of PROMACE CYTOBOM, (they don't even use that regiment anymore) & 4 wks of radiation. I was fine for 23 yrs. In Feb 2015, I found
fwhip14
in
Non Hodgkin's Lymphoma Friends
8 years ago
Stem cell transplant
I have been reading a lot about this and seems this is the cure for our dieses I am currently trying to get this done has anyone had it done or can tell me more about it thanks. If anybody wants more info then please do message me and will forward the forums and websites I have been looking into. They
I have been reading a lot about this and seems this is the cure for our dieses I am currently trying to get this done has anyone had it done or can tell me more about it thanks. If anybody wants more info then please do message me and will forward the forums and websites I have been looking into. They
Tmunney999
in
Scleroderma & Raynaud's UK (SRUK)
8 years ago
Woohoo husband home
Surprise of the week, my husband who has just undergone a stem cell transplant at Kings came home earlier than anticipated yesterday his transplant is doing very well and having him home is a real boost😃I have done 3 of 6 chemos now and was struggling with the travelling to see him. CT scan booked for
Surprise of the week, my husband who has just undergone a stem cell transplant at Kings came home earlier than anticipated yesterday his transplant is doing very well and having him home is a real boost😃I have done 3 of 6 chemos now and was struggling with the travelling to see him. CT scan booked for
knoxie
in
My Ovacome
8 years ago
Gastrin test
Hi everyone, I posted on here a few weeks ago talking about some of my lab results and what they could possibly entail. Some possibilities were atrophic gastritis and pernicious anemia. I definitely have been diagnosed with barrett's esophagus at the young age of 30. The reason why atrophic gastritis
Hi everyone, I posted on here a few weeks ago talking about some of my lab results and what they could possibly entail. Some possibilities were atrophic gastritis and pernicious anemia. I definitely have been diagnosed with barrett's esophagus at the young age of 30. The reason why atrophic gastritis
yogamom1
in
Pernicious Anaemia Society
8 years ago
Can Hashis flare up ?
I thought I was doing well (always dangerous) I have the usual long back story of misdiagnosis of CFS then was lucky to see Dr Skinner got on the right path and have used both private and NHs Endos to get the treatment I need for my Hashimotos. I take nature thyroid 3 and a quarter grains spread
I thought I was doing well (always dangerous) I have the usual long back story of misdiagnosis of CFS then was lucky to see Dr Skinner got on the right path and have used both private and NHs Endos to get the treatment I need for my Hashimotos. I take nature thyroid 3 and a quarter grains spread
spacestar
in
Thyroid UK
8 years ago
Parietal cell test
Hi everyone, I'm new here and had a couple questions. A little history.. I had the parietal cell antibody test done (3 times) and each time my test has come back abnormal with a reading of 113.5 or higher. My intrinsic factor was negative about a year ago and hasn't been tested since. My B12 levels have
Hi everyone, I'm new here and had a couple questions. A little history.. I had the parietal cell antibody test done (3 times) and each time my test has come back abnormal with a reading of 113.5 or higher. My intrinsic factor was negative about a year ago and hasn't been tested since. My B12 levels have
yogamom1
in
Pernicious Anaemia Society
8 years ago
Share your experience with stem cell transplant (bone marrow transplantation)
Please share to let others know what to expect or better inform their decision making with their doctor hey....
Please share to let others know what to expect or better inform their decision making with their doctor hey....
SimoneHU
HealthUnlocked
in
Myeloma Warriors
8 years ago
stem cell transplant
Good morning, has anyone tried stem cell transplant. I have applied and been accepted. I have stiffness, cant walk most of the time. I am so looking forward to being able to walk, less meds etc. Please respond if you have had this procedure. The neurologist I was going to told me several times' There
Good morning, has anyone tried stem cell transplant. I have applied and been accepted. I have stiffness, cant walk most of the time. I am so looking forward to being able to walk, less meds etc. Please respond if you have had this procedure. The neurologist I was going to told me several times' There
Kathleen
in
Cure Parkinson's
8 years ago
MPN Voice Patients’ Forum – Inverness
Friday 28th October 2016, 10 am - 2 pm, registration from 9.30 am
Eden Court Theatre, Bishops Road, Inverness, IV3 5SA
The forum will be held in The MacLean Room
Programme
The programme is yet to be finalized, but will include talks from haematologists, specialist nurses
Friday 28th October 2016, 10 am - 2 pm, registration from 9.30 am
Eden Court Theatre, Bishops Road, Inverness, IV3 5SA
The forum will be held in The MacLean Room
Programme
The programme is yet to be finalized, but will include talks from haematologists, specialist nurses
Mazcd
MPNVoice
in
MPN Voice
8 years ago
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