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Hello everyone - introducing me!
I'm joining this forum to make new online friends who are also suffering from ovarian cancer. I had a shock diagnosis (when is it ever not a shock?!) of stage 4 in March, and am now trying to come to terms with everything - chemo, potential operation - hopefully soon - fear of recurrence etc etc. I'm
I'm joining this forum to make new online friends who are also suffering from ovarian cancer. I had a shock diagnosis (when is it ever not a shock?!) of stage 4 in March, and am now trying to come to terms with everything - chemo, potential operation - hopefully soon - fear of recurrence etc etc. I'm
TwitterQueen
in
My Ovacome
7 years ago
Second Cryo-ablation day 13 post op
Hey folks, Just a quick update. i'm on day 13 since my second ablation- My original post explains the details but I wanted to post an update. I'm feeling pretty good since about day 3. I did have afib again at day 6 (this past Monday) and it lasted from about 11:00 pm until the next morning and then
Hey folks, Just a quick update. i'm on day 13 since my second ablation- My original post explains the details but I wanted to post an update. I'm feeling pretty good since about day 3. I did have afib again at day 6 (this past Monday) and it lasted from about 11:00 pm until the next morning and then
mjmjve
in
AF Association
7 years ago
Final update
My 2nd line treatment of carboplatin/Caelyx did not work. After 3 treatments the cancer has grown and has caused multiple bowel obstructions. I was offered weekly taxol and told this would have a 50% chance of bringing some relief but would be unlikely to resolve the bowel obstructions. I declined. I
My 2nd line treatment of carboplatin/Caelyx did not work. After 3 treatments the cancer has grown and has caused multiple bowel obstructions. I was offered weekly taxol and told this would have a 50% chance of bringing some relief but would be unlikely to resolve the bowel obstructions. I declined. I
Janine57
in
My Ovacome
7 years ago
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Weekly Taxol plus Avastin
Hi Friends! I just found out today I have to start third line treatment next week. They have decided to use weekly taxol plus twice monthly avastin. On first line I had carbo/taxol. On the second day after treatment is when the severe fatigue set in and the ickys. Second line was avastin/doxil.
Hi Friends! I just found out today I have to start third line treatment next week. They have decided to use weekly taxol plus twice monthly avastin. On first line I had carbo/taxol. On the second day after treatment is when the severe fatigue set in and the ickys. Second line was avastin/doxil.
jdillon
in
My Ovacome
7 years ago
Thank you
Hi Lovely ladies I went for my weekly taxol a week ago and was told all my bloods were too low and some too high and had an emergency ECG as my potassium was high, ecg came back borderline for a heart attack so was treated accordingly, I was eventually admitted so they could carry out scans etc, I already
Hi Lovely ladies I went for my weekly taxol a week ago and was told all my bloods were too low and some too high and had an emergency ECG as my potassium was high, ecg came back borderline for a heart attack so was treated accordingly, I was eventually admitted so they could carry out scans etc, I already
Hidden
in
My Ovacome
7 years ago
Ovarian Cancer symptoms
Hello, my mother was recently diagnosed with stage IV high grade serous ovarian cancer and has just completed cycle 2 of a 6 part carboplatin/ taxol treatment. I am her daughter and care for her. The Oncology team originally said it was inoperable due to the spread but have now said this is dependent
Hello, my mother was recently diagnosed with stage IV high grade serous ovarian cancer and has just completed cycle 2 of a 6 part carboplatin/ taxol treatment. I am her daughter and care for her. The Oncology team originally said it was inoperable due to the spread but have now said this is dependent
CancerCarerChats
in
My Ovacome
7 years ago
Now odd caelyx
Had a meeting with my consultant who after two trials of caelyx, said "its not working" There is nothing much else we can offer except weekly Taxol and the response will be low." I had only two doses because i got a serious sepsis infection in my PICC line.I was in hospital for 10 days so I had two caelyx
Had a meeting with my consultant who after two trials of caelyx, said "its not working" There is nothing much else we can offer except weekly Taxol and the response will be low." I had only two doses because i got a serious sepsis infection in my PICC line.I was in hospital for 10 days so I had two caelyx
steffi123
in
My Ovacome
7 years ago
What options after chemo?
Hi all, we got the news today that unfortunately Mam's chemo (she is stage 4) isn't working and the consultant has made the difficult decision not to continue treatment (weekly taxol). She previously had carbo/taxol which stabilised her for 5.5 months. She had a reaction to Avastin so couldn't take that
Hi all, we got the news today that unfortunately Mam's chemo (she is stage 4) isn't working and the consultant has made the difficult decision not to continue treatment (weekly taxol). She previously had carbo/taxol which stabilised her for 5.5 months. She had a reaction to Avastin so couldn't take that
ymck
in
OvaCare
7 years ago
Cold caps
Hi everyone, has anyone out there had success wearing a cold cap while on weekly taxol infusions? I will shortly be having fifth line treatment and would really like to keep my hair this time around. I hope everyone is keeping up their spirits on the roulette wheel of life. Carole H 😊 x
Hi everyone, has anyone out there had success wearing a cold cap while on weekly taxol infusions? I will shortly be having fifth line treatment and would really like to keep my hair this time around. I hope everyone is keeping up their spirits on the roulette wheel of life. Carole H 😊 x
cah48
in
My Ovacome
7 years ago
Joint Pain
I finished my chemo of carboplatin and taxol on 30th January this year. About 6 weeks after I started to get joint pain. Mainly my knees ,wrists and nuckles. I frequently wake up in the night where my hands have gone numb. I also have pains in my feet. When I get up out of bed or out of a chair I find
I finished my chemo of carboplatin and taxol on 30th January this year. About 6 weeks after I started to get joint pain. Mainly my knees ,wrists and nuckles. I frequently wake up in the night where my hands have gone numb. I also have pains in my feet. When I get up out of bed or out of a chair I find
Corribrae
in
My Ovacome
7 years ago
High grade serous Fallopian tube cancer that travelled to inferior vena cava lyphm nods
Hi there I am new to this, but was diagnosed July 2016 with Fallopian tube cancer. Went through hysterectomy after 3 rounds of carbo-Taxol then 3 more rounds. Now my cancer has gone to my lyphmnods in my back near vena cava. Has anyone else had this occur?> They are giving me Paxil-Calyx now and then
Hi there I am new to this, but was diagnosed July 2016 with Fallopian tube cancer. Went through hysterectomy after 3 rounds of carbo-Taxol then 3 more rounds. Now my cancer has gone to my lyphmnods in my back near vena cava. Has anyone else had this occur?> They are giving me Paxil-Calyx now and then
onelifetolive
in
My Ovacome
7 years ago
Post Avastin
Started to write a post and lost it in the middle - it may appear but I just need a bit of support for fellow fighters as I have virtually given up. Avastin stopped working my CA125 has soared and the oncologist is muttering about palliative car. I was having to travel 90 minutes for treatment and was
Started to write a post and lost it in the middle - it may appear but I just need a bit of support for fellow fighters as I have virtually given up. Avastin stopped working my CA125 has soared and the oncologist is muttering about palliative car. I was having to travel 90 minutes for treatment and was
steffi123
in
My Ovacome
7 years ago
New to the group!
Hey all! I'm Amanda! I have now stage 3 cancer that metastasis to a lymph node in my lower back and chest. So far I had 4 taxol and carbo chemos out of 6. The first 2 chemos I had horrid reactions, first time I had a PE which had me stay a couple days in the hospital and the 2nd chemo I caught shingles
Hey all! I'm Amanda! I have now stage 3 cancer that metastasis to a lymph node in my lower back and chest. So far I had 4 taxol and carbo chemos out of 6. The first 2 chemos I had horrid reactions, first time I had a PE which had me stay a couple days in the hospital and the 2nd chemo I caught shingles
Amerhige7725
in
My Ovacome
7 years ago
Caylex, the slow burner?
Good evening ladies, Im currently on Caylex and Taxol. I have had my 4th cycle and midway scan was positive showing some reduction and my CA125 has come down to 55 from 2100. So its all positive and going in the right direction. During my initial appointment when we discussed the side effects of the
Good evening ladies, Im currently on Caylex and Taxol. I have had my 4th cycle and midway scan was positive showing some reduction and my CA125 has come down to 55 from 2100. So its all positive and going in the right direction. During my initial appointment when we discussed the side effects of the
786Asma_believer_
in
My Ovacome
7 years ago
3rd line treatment in less than 2 years!
Finished 2nd line carbo taxol on 28th March'17, CA125 still 150. Oncologist said wanted to keep me stable for 6 to 12 months. Wasn't too happy about this so my GP referred me for 2nd opinion at The Christie. Saw PJ, he examined me and said all was fine and expected CT scan to remain clear as it was
Finished 2nd line carbo taxol on 28th March'17, CA125 still 150. Oncologist said wanted to keep me stable for 6 to 12 months. Wasn't too happy about this so my GP referred me for 2nd opinion at The Christie. Saw PJ, he examined me and said all was fine and expected CT scan to remain clear as it was
agnesslouise
in
My Ovacome
7 years ago
results of 125 and scan not good
Hi ladies I hesitate sometime to write bad news as I don't want to upset any one but I've just returned from seeing my oncologist and the news was not good, I've been on single Taxol and it did not help at all my 125 went from 175 to 800 in 4 doses, so we stopped Taxol, 2 weeks later it is now 1300,
Hi ladies I hesitate sometime to write bad news as I don't want to upset any one but I've just returned from seeing my oncologist and the news was not good, I've been on single Taxol and it did not help at all my 125 went from 175 to 800 in 4 doses, so we stopped Taxol, 2 weeks later it is now 1300,
lorraine71-Australia
in
My Ovacome
7 years ago
Eyesight and hearing
Is it just me or has anyone else had a bit of deterioration in eyesight and hearing whilst on carbo taxol? I'm finding I now have to hold things at arm's length to focus and can't read in the mornings until my eyes have woken up! (I'm long sighted) reading glasses to top up my contact lenses help. My
Is it just me or has anyone else had a bit of deterioration in eyesight and hearing whilst on carbo taxol? I'm finding I now have to hold things at arm's length to focus and can't read in the mornings until my eyes have woken up! (I'm long sighted) reading glasses to top up my contact lenses help. My
Emsymits
in
My Ovacome
7 years ago
Unsure what to do next
Hi everyone, hope you all have a good long weekend and that you are feeling positive. I'm wondering what would be best for me for fifth line treatment. Being 3c high grade serous diagnosed early 2013, I see the oncologist 23 May by which time I should find out if I'm braca1/2. This would open up other
Hi everyone, hope you all have a good long weekend and that you are feeling positive. I'm wondering what would be best for me for fifth line treatment. Being 3c high grade serous diagnosed early 2013, I see the oncologist 23 May by which time I should find out if I'm braca1/2. This would open up other
cah48
in
My Ovacome
7 years ago
BC Recurrence after 5 years with Mets in Ribs and sternum
Hello all, My mom had been diagnose with breast cancer in 2011, lumpetocomy was done at that time and done with 6 cycles of chemotheraphy(Cyclophosphamide,5-FU and Adrim), Now again in 2017 recurrence happened in chest wall with mets to 1st and 4th rib.She undergone a surgery and now
Hello all, My mom had been diagnose with breast cancer in 2011, lumpetocomy was done at that time and done with 6 cycles of chemotheraphy(Cyclophosphamide,5-FU and Adrim), Now again in 2017 recurrence happened in chest wall with mets to 1st and 4th rib.She undergone a surgery and now
Prasath_sas
in
Breast Cancer India
7 years ago
LGSC 1c
Hi Everyone, I am a 35 years old Hungarian girl living in Budapest and was diagnosed as Low grade serous carcinoma stage 1C on December 2016. My CA125 level was normal at time of diagnosis 18,7 but HE4 level was higher than normal 65 (normal is 0-60 premenopause). Therefore me and my doctor were very
Hi Everyone, I am a 35 years old Hungarian girl living in Budapest and was diagnosed as Low grade serous carcinoma stage 1C on December 2016. My CA125 level was normal at time of diagnosis 18,7 but HE4 level was higher than normal 65 (normal is 0-60 premenopause). Therefore me and my doctor were very
Niki09
in
My Ovacome
7 years ago
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