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AF ONLY AT NIGHT
Hi, I only get AF when I’m in bed at nighttime. Almost like clockwork after about 10 mins I m off, sometimes lasting all night! During the day I’m absolutely fine and feel really well. Does anyone else suffer this way? Any help or tips would be most helpful. Getting anxious at bedtime, I know this doesn
Hi, I only get AF when I’m in bed at nighttime. Almost like clockwork after about 10 mins I m off, sometimes lasting all night! During the day I’m absolutely fine and feel really well. Does anyone else suffer this way? Any help or tips would be most helpful. Getting anxious at bedtime, I know this doesn
Canariesfan
in
AF Association
6 years ago
Confused good news!!!
Hi my lovelies, Well confused good news it is...... Taxol doesn’t usually work it usually takes forever to do anything and it usually has to be mixed with something like avastin to get any results so her CA125 went from 168 up to 190 so expecting it to be way over 300 we had a shock it’s 56 we have
Hi my lovelies, Well confused good news it is...... Taxol doesn’t usually work it usually takes forever to do anything and it usually has to be mixed with something like avastin to get any results so her CA125 went from 168 up to 190 so expecting it to be way over 300 we had a shock it’s 56 we have
CallmeMum
in
My Ovacome
6 years ago
Platinum resistance
Hi everyone, I'm looking for some optimism with my latest situation and hoping someone on this forum can help! I have recurred just 3 months after finishing my first line of treatment - Carbo/Taxol which means I am 'platinum resistant'. I have also been taken off the immunotherapy drug trial for Avelumab
Hi everyone, I'm looking for some optimism with my latest situation and hoping someone on this forum can help! I have recurred just 3 months after finishing my first line of treatment - Carbo/Taxol which means I am 'platinum resistant'. I have also been taken off the immunotherapy drug trial for Avelumab
Lou53
in
My Ovacome
6 years ago
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My ablation experience
After 4 years of AF I was put on the list for an ablation which I had over two weeks ago. It was a partial success with 2 of the pulmonary veins (the ones on the left) successfully ablated. The 2 on the right had issues, with one vein being too big for the probe meaning that it could not be ablated
After 4 years of AF I was put on the list for an ablation which I had over two weeks ago. It was a partial success with 2 of the pulmonary veins (the ones on the left) successfully ablated. The 2 on the right had issues, with one vein being too big for the probe meaning that it could not be ablated
outofsynch
in
AF Association
6 years ago
Back in A and E...
In A and E after waking up with a pulse of 131. Took an extra Sotalol as advised which restored the heart to rhythm. Exactly the same as happened 7 weeks ago. This has come as a bit of a blow as I didn’t have any problems and thought the Sotalol had dealt with the problem. I guess this is the shape of
In A and E after waking up with a pulse of 131. Took an extra Sotalol as advised which restored the heart to rhythm. Exactly the same as happened 7 weeks ago. This has come as a bit of a blow as I didn’t have any problems and thought the Sotalol had dealt with the problem. I guess this is the shape of
Hidden
in
AF Association
6 years ago
post treatment for recurrence
Hello- In May of 2016 my sister had extensive surgery for epithelial ovarian cancer, then treatment with carboplatinum and taxol. Recurred about a year after that treatment. She is just finishing another round with carboplatinum and doxil this time. She doesn't have the BRCA gene, but her doctor has
Hello- In May of 2016 my sister had extensive surgery for epithelial ovarian cancer, then treatment with carboplatinum and taxol. Recurred about a year after that treatment. She is just finishing another round with carboplatinum and doxil this time. She doesn't have the BRCA gene, but her doctor has
Mam958
in
OvaCare
6 years ago
To give those “resistant” ladies a bit of my good news..
Hello I don’t post much but read all with interest and try to share a little when a post crops up that I believe may help a little..! Well yesterday I finally - after a year or so - had some good news!! I went through a grueling 6 months on Caylex / Carbo ( didn’t work for me at all and more tumours
Hello I don’t post much but read all with interest and try to share a little when a post crops up that I believe may help a little..! Well yesterday I finally - after a year or so - had some good news!! I went through a grueling 6 months on Caylex / Carbo ( didn’t work for me at all and more tumours
Hopefulgal1
in
My Ovacome
6 years ago
Extended Diarrhea
I have been experiencing diarrhea for more than 6 weeks. It started about a month after beginning Sotalol for my heart issues. I am now also on Venetoclax for CLL. Both list diarrhea as a side effect. I don't want to stop taking either drug. I had stool samples examined at my GP's lab which came
I have been experiencing diarrhea for more than 6 weeks. It started about a month after beginning Sotalol for my heart issues. I am now also on Venetoclax for CLL. Both list diarrhea as a side effect. I don't want to stop taking either drug. I had stool samples examined at my GP's lab which came
umpireman
in
CLL Support
6 years ago
Desensitization protocol later today
Has anyone else gone thru desensitization protocol so they could continue with a chemo drug they had an allergic reaction to? I am on first recurrence as platinum resistant. So only 3 months after my first 6 chemos here I go again. First time around had severe anaphylaxis reaction to only two drops
Has anyone else gone thru desensitization protocol so they could continue with a chemo drug they had an allergic reaction to? I am on first recurrence as platinum resistant. So only 3 months after my first 6 chemos here I go again. First time around had severe anaphylaxis reaction to only two drops
ecappiello
in
My Ovacome
6 years ago
Vistusertib and taxol
There’s an article in the mail today saying that the above drug in combination with paclitaxel has shown promise in slowing down the growth of ovarian cancer. Prof Banerji said what they saw in trials was exciting. Has anyone been part of/or aware of this trial?
There’s an article in the mail today saying that the above drug in combination with paclitaxel has shown promise in slowing down the growth of ovarian cancer. Prof Banerji said what they saw in trials was exciting. Has anyone been part of/or aware of this trial?
Eriksendi
in
My Ovacome
6 years ago
Taxol weekly ended up with Shingle's
Hi ladies hope your ok sending big hugs .... Well i have shingles ... oncologist said today but my partner guessed i had.. he thinks he should bein a doctor lol... so on tablets 3 different one's main 1..ACICLOVIR and a nerve tablet.. GABAPENTIN she offered me Morphine said no thanx.. so hopefully will
Hi ladies hope your ok sending big hugs .... Well i have shingles ... oncologist said today but my partner guessed i had.. he thinks he should bein a doctor lol... so on tablets 3 different one's main 1..ACICLOVIR and a nerve tablet.. GABAPENTIN she offered me Morphine said no thanx.. so hopefully will
Tracex
in
My Ovacome
6 years ago
Chemo Again
Started back on chemo Sept 2017. Took 9 infusions of Taxol and cancer continued to grow and spread. It's progressed from 3c to stage 4 now. Have taken 2 infusions of Doxil. Had to cut down on dosage because of side effects. My CA125 is higher than at diagnosis 10/15. Having a scan this week. Hoping for
Started back on chemo Sept 2017. Took 9 infusions of Taxol and cancer continued to grow and spread. It's progressed from 3c to stage 4 now. Have taken 2 infusions of Doxil. Had to cut down on dosage because of side effects. My CA125 is higher than at diagnosis 10/15. Having a scan this week. Hoping for
Jenny1958
in
My Ovacome
6 years ago
Back spasms
Hi all - I am having my 9th weekly taxol this week (every 3rd week I also get carbo) - 1/2 way through 18 weeks! A month ago I had to start granix injections twice a week to boost blood counts. My query today is I’ve had back spasms much of past couple days. CNS said Tylenol was fine to take - and
Hi all - I am having my 9th weekly taxol this week (every 3rd week I also get carbo) - 1/2 way through 18 weeks! A month ago I had to start granix injections twice a week to boost blood counts. My query today is I’ve had back spasms much of past couple days. CNS said Tylenol was fine to take - and
ElayneZ
in
My Ovacome
6 years ago
Taxol rash
Hi everyone im back again for advice.. had my 3rd infusion of taxol last week and now got a rash on my back and thigh.. very red and has a burning sensation.. very uncomfortable.. any suggestions on what to use.. thank you ladies xxx sending big hugs xxx
Hi everyone im back again for advice.. had my 3rd infusion of taxol last week and now got a rash on my back and thigh.. very red and has a burning sensation.. very uncomfortable.. any suggestions on what to use.. thank you ladies xxx sending big hugs xxx
Tracex
in
My Ovacome
6 years ago
A Sotalol question...
I have been on 2x40mcg of Sotalol per day since I was diagnosed with paroxysmal atrial fibrillation around 6-7weeks ago. After taking this medication I found that my pulse dropped to around 58 when walking around, but sometimes as little as 48 at rest. Thinking this was perhaps too slow I rang my GP
I have been on 2x40mcg of Sotalol per day since I was diagnosed with paroxysmal atrial fibrillation around 6-7weeks ago. After taking this medication I found that my pulse dropped to around 58 when walking around, but sometimes as little as 48 at rest. Thinking this was perhaps too slow I rang my GP
Hidden
in
AF Association
6 years ago
Weekly taxol
Hi ladies hope your all doing ok... im on weekly taxol.. just had my 3rd cycle not bein to bad bit constipation then bit dodgy belly.. how long before you ladies lost your hair at what cycle.. when in 2015 i was on monthly so it more/less end of 1/BEGIN 2nd cycle... thanx for advice sending big hugs
Hi ladies hope your all doing ok... im on weekly taxol.. just had my 3rd cycle not bein to bad bit constipation then bit dodgy belly.. how long before you ladies lost your hair at what cycle.. when in 2015 i was on monthly so it more/less end of 1/BEGIN 2nd cycle... thanx for advice sending big hugs
Tracex
in
My Ovacome
6 years ago
Weekly taxol - side effect?
Had 8 th taxol this morning - just ten more weeks. (every 3rd week addition of carbo added.) fatigue is most common side effect so I rest. Bowels are often loose but better than constipation. This evening I am noticing very red cheeks and wonder if anyone else has this. I will see nurse tomorrow
Had 8 th taxol this morning - just ten more weeks. (every 3rd week addition of carbo added.) fatigue is most common side effect so I rest. Bowels are often loose but better than constipation. This evening I am noticing very red cheeks and wonder if anyone else has this. I will see nurse tomorrow
ElayneZ
in
My Ovacome
6 years ago
PPC ovarian cancer
Any on this forum who has ppc, after chemo the first time I’m March 2117, my ca125 went down to twelve, had three month rest and December 2017 went up again, had chemo again last January which was Carbo/ Gemcitabine, had to stop gemcitabine it was doing more damage to my bloods,carried on with Carbo
Any on this forum who has ppc, after chemo the first time I’m March 2117, my ca125 went down to twelve, had three month rest and December 2017 went up again, had chemo again last January which was Carbo/ Gemcitabine, had to stop gemcitabine it was doing more damage to my bloods,carried on with Carbo
Menaiw
in
My Ovacome
6 years ago
How many of us are taking Sotalol
We keeping seeing on this site that Sotalol is not prescribed/recommended in the UK for PAF/AF. I also keep finding more and more people in the UK taking it so, go on, let's see how many of us there are ..... Comment if you are in UK and taking Sotalol. https://bnf.nice.org.uk/drug/sotalol-hydrochloride.html
We keeping seeing on this site that Sotalol is not prescribed/recommended in the UK for PAF/AF. I also keep finding more and more people in the UK taking it so, go on, let's see how many of us there are ..... Comment if you are in UK and taking Sotalol. https://bnf.nice.org.uk/drug/sotalol-hydrochloride.html
Cat04
in
AF Association
6 years ago
Sotalol
Hi I’m due a 2nd cv next month but have had bisoprosol replaced with Sotalol is anyone else on this one I’ve read the side effects are pretty awful ???
Hi I’m due a 2nd cv next month but have had bisoprosol replaced with Sotalol is anyone else on this one I’ve read the side effects are pretty awful ???
Edm174
in
Atrial Fibrillation Support
6 years ago
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