I am a 35 years old Hungarian girl living in Budapest and was diagnosed as Low grade serous carcinoma stage 1C on December 2016. My CA125 level was normal at time of diagnosis 18,7 but HE4 level was higher than normal 65 (normal is 0-60 premenopause). Therefore me and my doctor were very optimistic that its "just" a borderline tumor and one of my ovary can be saved.
Bad news after surgery, both ovaries were diagnosed as LGSC. I would have been staged as 1B but because of capsular rupture (my doctor was trying to save left ovary), I turned to 1C.
I just had a fresh relationship who we were already talking about having children within the next 1-2 years at time of diagnosis. Relationship is over due he really wanted his own children so instead of planning a family, here I am alone, on 6 cycles of taxol + carboplatin. I lost my mom last year, my only grandma a month ago and my dad is very ill as well. Thank God for friends, I don't know what would I do without them, they are my only support. Very lucky to have a lot of them
I get my last chemo soon. I handled first 5 chemo relatively well, I was working full time all the way through. My CA125 level was 10 before starting chemo, then 8, then 7 after the first 3 chemo, but now it stagnates at 7. Does it have to go even more down after each chemo? HE4 level also dropped to 30 after surgery, now its 23.
Any hopeful words for stage 1C LGSC patients? I know I have low CA125 level now, but it tricked me and my doctor too before. I also read somewhere that 80% of LGSC's are recur, but as I understood this statistic is for all stages...?
I find very hard sometimes to keep super positive, sometimes I panic at home alone. I know I shouldn't read "Google doctor" as I call it, but it is so hard to resist.
Thanks very much. Wish you all the best and health!