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Fighting for better Options
Hello everyone, This is my update from my disappointing realisation that even though I am BRCA 1 positive, Niraparib was not the saviour I had hoped it would be. Yesterday, I met with my Oncologist, bringing along my daughter and husband for back up. As expected, my CA-125 continued to rise, from 33
Hello everyone, This is my update from my disappointing realisation that even though I am BRCA 1 positive, Niraparib was not the saviour I had hoped it would be. Yesterday, I met with my Oncologist, bringing along my daughter and husband for back up. As expected, my CA-125 continued to rise, from 33
Lindaura
in
My Ovacome
5 years ago
Weekly Taxol
Hi I am on weekly Taxol after Carboplatin did not work. I have done 5 infusions but I have lost my appetite and this weekend I had the shakes which was unpleasant. Has anyone encountered this. I feel as though I am going backwards although my CA125 level has come down from over 1000 to 275. I am trying
Hi I am on weekly Taxol after Carboplatin did not work. I have done 5 infusions but I have lost my appetite and this weekend I had the shakes which was unpleasant. Has anyone encountered this. I feel as though I am going backwards although my CA125 level has come down from over 1000 to 275. I am trying
Angie1412
in
My Ovacome
5 years ago
HER2/ER/PR positive treatment recommendation
My mom is diagnosed with Breast Cancer. She is around 62 yrs old with HER2/ER/PR positive. There is no spread of virus except for few LN near collar bone. Dr. recommended Total Mastectomy(done) then 4xAC every 3Wkly + 12xPaclitaxel every wkly along with Herceptin every three week with radiation in parallel
My mom is diagnosed with Breast Cancer. She is around 62 yrs old with HER2/ER/PR positive. There is no spread of virus except for few LN near collar bone. Dr. recommended Total Mastectomy(done) then 4xAC every 3Wkly + 12xPaclitaxel every wkly along with Herceptin every three week with radiation in parallel
kanhaiya2
in
Breast Cancer India
5 years ago
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MBC - HER2/ER/PR positive treatment recommendation
I am diagnosed with Metastatic Breast Cancer. I am around 62 yrs old with HER2/ER/PR positive. There is no spread of virus except for few LN near collar bone. Dr. recommended Total Mastectomy(done) then 4xAC every 3Wkly + 12xPaclitaxel every wkly along with Herceptin every three week with radiation in
I am diagnosed with Metastatic Breast Cancer. I am around 62 yrs old with HER2/ER/PR positive. There is no spread of virus except for few LN near collar bone. Dr. recommended Total Mastectomy(done) then 4xAC every 3Wkly + 12xPaclitaxel every wkly along with Herceptin every three week with radiation in
kanhaiya2
in
My Breast Cancer Community
5 years ago
HER2 positive treatment recommendation
I am writing on behalf of my mother who has been diagnosed with breast cancer. She has already undergone total mastectomy followed by chemo port insertion. Dr has recommended 4x AC 3 Wkly + (Wkly Taxol *12 + Herceptin(3 Wkly) ). The total cost of treatment is beyond 15L even after Blue tree program.
I am writing on behalf of my mother who has been diagnosed with breast cancer. She has already undergone total mastectomy followed by chemo port insertion. Dr has recommended 4x AC 3 Wkly + (Wkly Taxol *12 + Herceptin(3 Wkly) ). The total cost of treatment is beyond 15L even after Blue tree program.
kanhaiya2
in
SHARE Metastatic Breast Cancer
5 years ago
T3 conversion problem
Please can someone explain the things that can cause conversion problems. Would a deficiency of vitamin D cause a problem with the conversion? My mum has changed the time she takes her thyroxine now to an hour before food and we thought this would have made a difference to her levels. She used to
Please can someone explain the things that can cause conversion problems. Would a deficiency of vitamin D cause a problem with the conversion? My mum has changed the time she takes her thyroxine now to an hour before food and we thought this would have made a difference to her levels. She used to
Lynny66
in
Thyroid UK
5 years ago
Next steps
Hi All I've just got back from seeing my oncologist to get my latest scan results, and the good news is that the bone mets are stable but he thinks there may be a nodule on my liver. The scan has gone back to the radiologist for further intereptation but the oncologist wasn't hopeful. It looks like
Hi All I've just got back from seeing my oncologist to get my latest scan results, and the good news is that the bone mets are stable but he thinks there may be a nodule on my liver. The scan has gone back to the radiologist for further intereptation but the oncologist wasn't hopeful. It looks like
Julie2233
in
SHARE Metastatic Breast Cancer
5 years ago
NED
I was diagnosed June 2017 NSCLC 2017 removed right lung and it spread to brain and removed tumor as well as a few Mets very small, my latest scan after a reoccurrence in the lymph node in chest showed clear after 3 rounds taxol So now I did mri and ct of chest and I’m disease free!! Will this last I’
I was diagnosed June 2017 NSCLC 2017 removed right lung and it spread to brain and removed tumor as well as a few Mets very small, my latest scan after a reoccurrence in the lymph node in chest showed clear after 3 rounds taxol So now I did mri and ct of chest and I’m disease free!! Will this last I’
Lovey1000
in
Lung Cancer Support
5 years ago
Pandora's box
Well, the last post I wrote spoke of PVC's I was experiencing. I'm afraid it escalated into one horrific episode one night, when I suddenly went completely dizzy and very nearly lost consciousness. Just managed to hold on until I could get to a phone and call the ambulance. The attack subsided and
Well, the last post I wrote spoke of PVC's I was experiencing. I'm afraid it escalated into one horrific episode one night, when I suddenly went completely dizzy and very nearly lost consciousness. Just managed to hold on until I could get to a phone and call the ambulance. The attack subsided and
Melleray
in
AF Association
5 years ago
Treatment
Has anyone taken Taxol? How is/was it?
Has anyone taken Taxol? How is/was it?
Felish48
in
SHARE Metastatic Breast Cancer
5 years ago
Update...
So far my mums had 4 weekly taxol she was to have her 5th one yesterday but are going to give her a week break as she has neuropathy in fingers and toes. They don’t wanna cause her to have long term damage so a week off will hopefully help. Her tumour markers have dropped again another 125 since last
So far my mums had 4 weekly taxol she was to have her 5th one yesterday but are going to give her a week break as she has neuropathy in fingers and toes. They don’t wanna cause her to have long term damage so a week off will hopefully help. Her tumour markers have dropped again another 125 since last
Nat1990
in
SHARE Metastatic Breast Cancer
5 years ago
Update and ideas!
I thought I’d update you on my Weekly Taxol treatment and ask for some ideas to shift a problem I have! This may be long, please bear with! I’m about to have my 9th treatment, which means I’m halfway through. Overall, this regime has suited me well, apart from a couple of emotional wobbles as I got
I thought I’d update you on my Weekly Taxol treatment and ask for some ideas to shift a problem I have! This may be long, please bear with! I’m about to have my 9th treatment, which means I’m halfway through. Overall, this regime has suited me well, apart from a couple of emotional wobbles as I got
Alifit
in
My Ovacome
5 years ago
Taking a blood pressure tablet as well a beta blocker
Dear friends I am on eliquis and sotalol after being diagnosed in January. Over the past month my blood pressure has increased and so with it my afib episodes. My GP wants me to add a blood pressure tablet to my mix. Does anyone else take a blood pressure tablet together with a beta blocker. This is
Dear friends I am on eliquis and sotalol after being diagnosed in January. Over the past month my blood pressure has increased and so with it my afib episodes. My GP wants me to add a blood pressure tablet to my mix. Does anyone else take a blood pressure tablet together with a beta blocker. This is
scotthongkong
in
AF Association
5 years ago
Tumour markers dropped again!
So mams got her blood results back this morning before taxol this afternoon.. Her tumour markers have dropped again so in 3 weeks (3 treatments of taxol) it started off at 1820 and now it’s 869!!! 😄😄 it’s my birthday tomorrow and this is like the best birthday present ever 😎
So mams got her blood results back this morning before taxol this afternoon.. Her tumour markers have dropped again so in 3 weeks (3 treatments of taxol) it started off at 1820 and now it’s 869!!! 😄😄 it’s my birthday tomorrow and this is like the best birthday present ever 😎
Nat1990
in
SHARE Metastatic Breast Cancer
5 years ago
TAXOL COMPLETE
I did 3 rounds of Taxol chemo for a lymph node located in my lung area that was a reoccurrence of my cancer, I did a cut 3 weeks ago and no body from my cancer center has called me so I’m thrilled cause I called my dr office and I have no follow ups scheduled so it’s obvious I’m NED but I went to have
I did 3 rounds of Taxol chemo for a lymph node located in my lung area that was a reoccurrence of my cancer, I did a cut 3 weeks ago and no body from my cancer center has called me so I’m thrilled cause I called my dr office and I have no follow ups scheduled so it’s obvious I’m NED but I went to have
Lovey1000
in
The Roy Castle Lung Cancer Foundation
5 years ago
"Slave to the rhythm" - again!
I have been in persistent AF since 28th Feb, having had to come off Amiodarone (which worked well at controlling my AF but the side effects of the over active thyroid made me feel really ill). I referred myself back to an EP I had seen once previously as is hopeless trying to see someone on the NHS at
I have been in persistent AF since 28th Feb, having had to come off Amiodarone (which worked well at controlling my AF but the side effects of the over active thyroid made me feel really ill). I referred myself back to an EP I had seen once previously as is hopeless trying to see someone on the NHS at
amyrosie
in
AF Association
5 years ago
Not coping well with carbo/taxol & family life
Hi I’ve been diagnosed with low grade oc 5 months ago. Had surgery to remove all. Was just getting stronger & feeling better when they dropped the bombshell I had to have 6 rounds of carbo/taxol I have had 1 round of taxol only due to timing issues and suffered side effects - painful legs being the
Hi I’ve been diagnosed with low grade oc 5 months ago. Had surgery to remove all. Was just getting stronger & feeling better when they dropped the bombshell I had to have 6 rounds of carbo/taxol I have had 1 round of taxol only due to timing issues and suffered side effects - painful legs being the
CountryChick78
in
My Ovacome
5 years ago
Mechanical heart valves and PAF
Hi everyone, Just curious if anyone has mechanical heart valves and PAF too. I’m a 41yo male who was diagnosed with PAF a few years ago. Currently I am having 3 to 4 episodes of AF a week lasting between 30mins to 5hours. I am seeing an EP who is helping me adjust to my new increased dose of Sotalol
Hi everyone, Just curious if anyone has mechanical heart valves and PAF too. I’m a 41yo male who was diagnosed with PAF a few years ago. Currently I am having 3 to 4 episodes of AF a week lasting between 30mins to 5hours. I am seeing an EP who is helping me adjust to my new increased dose of Sotalol
Hidden
in
AF Association
5 years ago
Afinitor : very tough side effects. Any1 else on this oral drug?
Hello. I have been a contributor to Healthunlocked since 2017. Have had MBC (diagnosed) since late 2016 I have been through Ibrance which worked for 5 months. It got rid of a liver met which I will always be grateful for. However, bone Mets went crazy. So Onc put me back on infusion with Eribulin. You
Hello. I have been a contributor to Healthunlocked since 2017. Have had MBC (diagnosed) since late 2016 I have been through Ibrance which worked for 5 months. It got rid of a liver met which I will always be grateful for. However, bone Mets went crazy. So Onc put me back on infusion with Eribulin. You
JBirdnut
in
SHARE Metastatic Breast Cancer
5 years ago
Olaparib or not?
Good morning ladies, I am hoping someone will have some sage advice for me. I was diagnosed in October 2017 following what turned out to be a huge debulking operation for suspected bowel cancer. The primary site was probably the Fallopian tube- the following PET scan revealed that it was stage 4 as the
Good morning ladies, I am hoping someone will have some sage advice for me. I was diagnosed in October 2017 following what turned out to be a huge debulking operation for suspected bowel cancer. The primary site was probably the Fallopian tube- the following PET scan revealed that it was stage 4 as the
JayGeeCee
in
My Ovacome
5 years ago
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