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Oncology Appointment
We made it to oncology today, after finding out the cancer is back on Friday. Recent CA125 came back at 288 (3 months ago it was 15) - so it gave us a good indication of what was going on. The fluid came back with cancer cells in it; however, nothing could be drawn from the CT so likely it's seeding
We made it to oncology today, after finding out the cancer is back on Friday. Recent CA125 came back at 288 (3 months ago it was 15) - so it gave us a good indication of what was going on. The fluid came back with cancer cells in it; however, nothing could be drawn from the CT so likely it's seeding
kristinaapril
in
My Ovacome
6 years ago
Anyone on a trial or had experience of Prexasertib?
Hi I’m new to this community but have been through 3 different chemos ( carboplatin then taxol and just finished carbo / caelyx) I got a break of over a year after taxol but this last round has not worked. Am devastated but have been offered more chemo ( cisplatin/ etospitide) but am veering towards
Hi I’m new to this community but have been through 3 different chemos ( carboplatin then taxol and just finished carbo / caelyx) I got a break of over a year after taxol but this last round has not worked. Am devastated but have been offered more chemo ( cisplatin/ etospitide) but am veering towards
Hopefulgal1
in
My Ovacome
6 years ago
Third line treatment
I am about to go a weekly taxol for eighteen sessions and have been told I will loose my hair again after just getting it back, I just wondered is there anyone out there who didn’t loose there hair on the same dosage.
I am about to go a weekly taxol for eighteen sessions and have been told I will loose my hair again after just getting it back, I just wondered is there anyone out there who didn’t loose there hair on the same dosage.
Hudson88
in
My Ovacome
6 years ago
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Taxol
I got on this site before I realized it was for ovarian cancer. I e been getting emails off and on about things. No I did not have ovarian cancer. I had uterine. Total hysterectomy then chemo and internal radiation. On the Taxol issue I see people cringe when they hear it. I had ifosfimide and Taxol
I got on this site before I realized it was for ovarian cancer. I e been getting emails off and on about things. No I did not have ovarian cancer. I had uterine. Total hysterectomy then chemo and internal radiation. On the Taxol issue I see people cringe when they hear it. I had ifosfimide and Taxol
topeka
in
My Ovacome
6 years ago
Remission (YAY!) and post chemo immune boosters
Hi everyone, I haven't posted in a while since receiving the "remission" about 6 weeks ago, wanting to distance myself from cancer for a while. I was diagnosed with stage 4 OC back in May 2017 with a CA 125 of over 5000. I'm now at 27 after 10 months of carbo/taxol and surgery last August. Ultimately
Hi everyone, I haven't posted in a while since receiving the "remission" about 6 weeks ago, wanting to distance myself from cancer for a while. I was diagnosed with stage 4 OC back in May 2017 with a CA 125 of over 5000. I'm now at 27 after 10 months of carbo/taxol and surgery last August. Ultimately
kat98116
in
My Ovacome
6 years ago
PAC’s and Afib
What’s worse ? PAC daily or Afib every so many weeks ? Both stink. Don’t want ablation Got tinnitus so if I don’t feel discomfort i dam sure can hear it. It’s a no win situation. And yes lying on left or right side make a difference Sotalol ineffective. Magnesium no help. Dont drink. Smoke
What’s worse ? PAC daily or Afib every so many weeks ? Both stink. Don’t want ablation Got tinnitus so if I don’t feel discomfort i dam sure can hear it. It’s a no win situation. And yes lying on left or right side make a difference Sotalol ineffective. Magnesium no help. Dont drink. Smoke
Afibing
in
AF Association
6 years ago
Ablation
Hi, I had my cryoablation last week for atrial tachycardia and he touched up the area of atrial flutter from 1st ablation at the same time. Phrenic nerve pacing was uncomfortable and had a few periods of pain but got given immediate pain relief and more sedation. The team were great and my EP came
Hi, I had my cryoablation last week for atrial tachycardia and he touched up the area of atrial flutter from 1st ablation at the same time. Phrenic nerve pacing was uncomfortable and had a few periods of pain but got given immediate pain relief and more sedation. The team were great and my EP came
Jude07
in
AF Association
6 years ago
Hi all. I'm new to the community.
G'day, I'm Todd (aka Toot) and found this group while searching for some more information on AF and corrective treatment. I had my first bout of AF around 6 years ago which resulted in an almost week long stay in hospital, have had numerous episodes since along with two cardioversions and previously
G'day, I'm Todd (aka Toot) and found this group while searching for some more information on AF and corrective treatment. I had my first bout of AF around 6 years ago which resulted in an almost week long stay in hospital, have had numerous episodes since along with two cardioversions and previously
DasToot
in
AF Association
6 years ago
Appointment
So letter came today to see consultant on Friday post biopsies , I am praying I will get 2nd surgery if it is only in the vault and pelvic nodes. So pleased I had a wonderful time in Iceland with my granddaughter before starting treatment. Also I have been trying too read anything on treatment for reoccurrence
So letter came today to see consultant on Friday post biopsies , I am praying I will get 2nd surgery if it is only in the vault and pelvic nodes. So pleased I had a wonderful time in Iceland with my granddaughter before starting treatment. Also I have been trying too read anything on treatment for reoccurrence
ellseybellsey
in
My Ovacome
6 years ago
Chemo or immunotherapy?
Another roller coaster.. I was diagnosed with primary perintoneal cancer June 2015 was on carbo and taxol (9 rounds of tx) with surgery half way in sept. iwas in remission for 16 months and then ca125 went from a 2 to 135 in three months- had a ct scan cancer- a few small spots in my liver- back on carbo
Another roller coaster.. I was diagnosed with primary perintoneal cancer June 2015 was on carbo and taxol (9 rounds of tx) with surgery half way in sept. iwas in remission for 16 months and then ca125 went from a 2 to 135 in three months- had a ct scan cancer- a few small spots in my liver- back on carbo
Dbslp1985
in
My Ovacome
6 years ago
Guidance (Caelyx & Maintenance)
Hi (sorry if my sharing turns out to be long) Im new to this forum and i have read what you share here and i hope you are feeling much better now... I also hope you can give me some advise, if it is not too much to ask :) My mum was diagnosed with Ovarian cancer in 2012, she had her uterus and ovaries
Hi (sorry if my sharing turns out to be long) Im new to this forum and i have read what you share here and i hope you are feeling much better now... I also hope you can give me some advise, if it is not too much to ask :) My mum was diagnosed with Ovarian cancer in 2012, she had her uterus and ovaries
Amer87
in
My Ovacome
6 years ago
CD fasting mimicking diet whilst on Chemo
Dear Ladies. I thought about sharing with you Valter Longo's Fasting mimicking diet. In Jan 2018 I was diagnosed with stage 1a high grade mix ovarian cancer with majnly adenocarcinoma endometrioid component as well as serrous and clear cell carcinoma. At current i am on Carbo- Taxol regime and yesterday
Dear Ladies. I thought about sharing with you Valter Longo's Fasting mimicking diet. In Jan 2018 I was diagnosed with stage 1a high grade mix ovarian cancer with majnly adenocarcinoma endometrioid component as well as serrous and clear cell carcinoma. At current i am on Carbo- Taxol regime and yesterday
MartaCiom
in
My Ovacome
6 years ago
Which is best?
I wonder if anyone with GCT (granulosa cell tumour) would mind saying which treatment has worked best for them so far. For me, Exemestane has been the best of the hormone treatments I have tried, (have tried Arimidex, Tamoxifen & Zoladex too). In chemo, I've had Carboplatin, weekly Taxol, & Caelyx,
I wonder if anyone with GCT (granulosa cell tumour) would mind saying which treatment has worked best for them so far. For me, Exemestane has been the best of the hormone treatments I have tried, (have tried Arimidex, Tamoxifen & Zoladex too). In chemo, I've had Carboplatin, weekly Taxol, & Caelyx,
Di16
in
My Ovacome
6 years ago
Latest meds.
Sotalol side effects are killing me. I was on Bisoprolol but they put me on sotalol after a 16 hour AF attack. I have had many episodes of full blown Paroxsysmal AF for years now but lately it has morphed into a less aggressive mode. It is more of a continuous Arrythmia where I get one or two ‘good’
Sotalol side effects are killing me. I was on Bisoprolol but they put me on sotalol after a 16 hour AF attack. I have had many episodes of full blown Paroxsysmal AF for years now but lately it has morphed into a less aggressive mode. It is more of a continuous Arrythmia where I get one or two ‘good’
Pabba
in
AF Association
6 years ago
A happy note
My gyn/enc actually used the words "cancer free" to me on Friday! Being stage 3C I know it can be temporary but what wonderful words to hear. I started out being misdiagnosed with "allergies" by a sub-GP (and yes, take that two ways lol) . Soon after, my regular doctor returned and immediately
My gyn/enc actually used the words "cancer free" to me on Friday! Being stage 3C I know it can be temporary but what wonderful words to hear. I started out being misdiagnosed with "allergies" by a sub-GP (and yes, take that two ways lol) . Soon after, my regular doctor returned and immediately
ecappiello
in
My Ovacome
6 years ago
Neuropathy - how did you deal with it?
Many of us experience neuropathy especially during our first line treatment of carboplatin and taxol. I started this thread to collect ideas about how each of you dealt with it - what worked and what didn’t work for you. Like so many other things what worked for one person may or may not work for others
Many of us experience neuropathy especially during our first line treatment of carboplatin and taxol. I started this thread to collect ideas about how each of you dealt with it - what worked and what didn’t work for you. Like so many other things what worked for one person may or may not work for others
GwenHP
in
SHARE Ovarian Cancer Support
6 years ago
Happy Easter. Up yours cancer.
Hi all you amazing lovely ladies. I’ve not been here much lately. Been very busy which I like being. Was my Birthday Monday. Can’t believe I’m 39 😂😂😂😂😂😂 Broke up from work yesterday for two weeks. Need the break. My brain has become fuzzy. I was doing everything wrong and calling the students
Hi all you amazing lovely ladies. I’ve not been here much lately. Been very busy which I like being. Was my Birthday Monday. Can’t believe I’m 39 😂😂😂😂😂😂 Broke up from work yesterday for two weeks. Need the break. My brain has become fuzzy. I was doing everything wrong and calling the students
Suzanne333
in
My Ovacome
6 years ago
Liese
Hello, I'm liese, I had ovarian cancer 2004, stage 2A, CA125 6000 before hysterectomy, I then took 6 doses of carboplatin and taxol every 3 weeks. 6 months or so later CA125 elevated so I was given another 3 of the same, dose 2, I became allergic to the carboplatin, felt really weird...As we all know
Hello, I'm liese, I had ovarian cancer 2004, stage 2A, CA125 6000 before hysterectomy, I then took 6 doses of carboplatin and taxol every 3 weeks. 6 months or so later CA125 elevated so I was given another 3 of the same, dose 2, I became allergic to the carboplatin, felt really weird...As we all know
Liese
in
My Ovacome
6 years ago
Hair stopped falling out !
Funny question I suppose. My hair ....or at least about 80 % of it came out in handfuls between the 3rd and 4th cycles of weekly Taxol. Now it seems to have completely stopped ...and in my imagination has started growing again. I still have eyebrows and eyelashes. Has anyone else had this happen ? I'm
Funny question I suppose. My hair ....or at least about 80 % of it came out in handfuls between the 3rd and 4th cycles of weekly Taxol. Now it seems to have completely stopped ...and in my imagination has started growing again. I still have eyebrows and eyelashes. Has anyone else had this happen ? I'm
bones-bones
in
My Breast Cancer Community
6 years ago
Daily vs PIP dosing
I was diagnosed 2 yr ago with a fib, put on sotalol by local cardiologist. After 4 mo of complaining about sotalol, finally sought second opinion and saw EP. He took me off sotalol and gave me flecainide/ metoprolol as PIP. This worked great, only 4 short episodes (2-3 hr) in 2 yr untillast week. I had
I was diagnosed 2 yr ago with a fib, put on sotalol by local cardiologist. After 4 mo of complaining about sotalol, finally sought second opinion and saw EP. He took me off sotalol and gave me flecainide/ metoprolol as PIP. This worked great, only 4 short episodes (2-3 hr) in 2 yr untillast week. I had
Hidden
in
AF Association
6 years ago
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