My Ovacome
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Appointment

So letter came today to see consultant on Friday post biopsies , I am praying I will get 2nd surgery if it is only in the vault and pelvic nodes. So pleased I had a wonderful time in Iceland with my granddaughter before starting treatment.

Also I have been trying too read anything on treatment for reoccurrence all I keep seeing is being chemo sensitive I will most probably go on Carbo/ Taxol again.

Has any ladies who are chemo sensitive had any other options other than Carbo/ Taxol when reoccurring.

Ellsey xx

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Hi Ellsey,

I had carbo/gem for my recurrence. It seemed to work pretty well, and I found it far easier than carbo/taxol (no hair loss too).

Fingers crossed you get the surgery you would like.

Vicki x

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Hi. Glad you had a great time in Iceland. It looks a fascinating country. I had carbo/taxol for my recurrence. Didn’t know at the time that some ladies have a reaction against carbo so ended up half way through on cisplatin rather than carbo with the taxol. Hope it all goes well. x Jo 🌼🌺🌻🌹🌸

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Thanks Jo, I just want my treatment plan and get on with it, although I’ve been told I will have chemo I didn’t ask what type. I suppose all will be revealed on Friday.

Hugs Ellsey xx

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All the best for Friday. Keep us posted xx

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Wishing you all the best! So glad you had a lovely time in Iceland with your dear Granddaughter. xxx

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Just thinking of you and wishing you all the very best for Friday, keep those memories of Iceland and enjoy them, I am glad you both had a good time

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Hi

I had carbo taxol first line and then again for recurrence although during second line I had an anaphylactic shock caused by the carbo so had the last three cycles taxol only. I had a complete response though so taxol works for me.

Good luck. You’ll do well. Thinking of you. Xxxxx

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Hi Ellsey

As a few of the ladies on here were talking about yesterday, I am having Carbo/Caelyx for recurrence. The first one was tough but second one fine. Also you get to keep your hair. I think they are keeping taxol as a possibility for the future for me. Good luck with whatever you/they decide. My recurrence is too insubstantial to operate on being spread around a few places. Xxx

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Hi Ellsey.

It sounded like you are having some useful tests done. What hospital ate you at?

I was only offered carbo/caelyx for my recurrence, so I looked for a second opinion and ended up with a radical surgeon in London. Then had more chemo.

I believe it is the surgery along with all the supplements and complimentary medicine that I that is doing me good 12 months later.

I hope you get the answers they you need. Do email me if I can help.

Love Nicky x

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Nicky hi

I am under Mr Taylor at Royal Surrey County hospital it’s where I had my first debulking surgery. If he says no surgery tomorrow I will consider a 2nd opinion.

I think I watched you on television last year?. Sending you virtual hugs.

Ellsey xx

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Hi Ellsey,

Yes, the BBC did a documentary about the surgeon as she is becoming well known for her incredible radical work and also on not being able to access parp inhibitors on the NHS.

If you need a second opinion, I recommend this man and this colleague Prof HG at the clinic: theloc.com/consultants/dr-j...

They are amazing.

Good luck, Nicky xx

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Hi Nicky, did you see that Ovacome's policy with regards to use of consultant's names has changed following the review & consultation? It's now ok to do so (Obviously only if wished and of course must done with positive intentions). SX

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No I had not seen that?

That is great news!

Jonathan Krell and Hani Gabra are the consultants I would see in London. They both work at Imperial too xx

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The updated guidelines are a pinned post, but with regards use of names:

"Previously we asked that you did not name clinicians. We know many of you were unhappy with this and that discussing services is helpful, so we have now changed this so clinicians and services can be named. Please read the guidelines below regarding this and the need to avoid defamation as My Ovacome is a public space. If you want to share private information, please use the private message facility."

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I've had Carboplatin on itsown, then weekly Taxol, also Caelyx. All for recurrence.

Di

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Still think how amazing this is!!

I’ve been told categorically no 2nd surgery!!

Contemplation a whole load of supps if there is no trial drug for me xx

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Thank you for all your support these past months, I know I’ve posted a lot lately.

Strangely I feel more comfortable talking with all the sisters on here, rather than discussing it with my family.

Ellsey xx

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