My Ovacome
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Third line treatment

I am about to go a weekly taxol for eighteen sessions and have been told I will loose my hair again after just getting it back, I just wondered is there anyone out there who didn’t loose there hair on the same dosage.

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Definitely lost mine round about dose three / four.

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Thanks for the reply just fancied a little while with the wind blowing through my hair,

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Is the cold cap not a possibility for you? I used it through 18 weeks of taxol and although my hair thinned I didn’t lose it.

Becky

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I will look into it thank you, When I lost it on my second treatment I thought it was a bit pathetic to worry about hair loss but only just having got it back I feel a bit sad,

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Completely understand. I’m on third line now and and I still use the cold cap because I figure I went through all of that to keep it first time round do I’m not losing it now!

Good luck x

Becky

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Thanks Becky and my best wishes to you X

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My hair which is always short, thinned but also grew ( what determines which hairs will drop out and which will survive?) so it was a bit of a comb over until I couldn't bear the daily fall out on pillow, shower and clothes and got hubby to shave remaining off. However it took nearly all 18 sessions ....

It then grew to about 1 cm....but 4 months down the line I am about to lose my hair for the 3rd time ( now half way through the Rotterdam regime of cisplatin and etoposide tablets) . However no fall out as yet

For me the hair thing is the least of my worries

Janet 🌈

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Thank you for replying .

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I wore the cold cap. My hair thinned a lot but I didn't lose it all and it has grown back quite curly.

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When I had weekly taxol my hair thinned but didn't all fall out. I posted on this forum at the time, & had replies from 1or 2 others who'd been in the same position. It seems it's unusual but not unheard of. Di

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I too am due to start taxol weekly in a few weeks and was wondering about the cold cap. I too was just starting to enjoy having hair back.

Maxine x

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The cold cap with weekly Taxol should save your hair. It has mine twice.xxxxx

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I'm on weekly Taxol, now at the 12th cycle and have lost 90% of my hair.

If I'm not mistaken, you have to sit for longer if you chose the cold cap route. As I have to travel to London for my treatment, the day is long enough already so I chose not to have it. Good luck with the treatment, whatever you chose for your hair! Gxx

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Thank for all the comments it is a great help to know you are all out there.x

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My sister is almost finished with weekly taxol and she did lose her hair. 😔

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I used the cold cap and kept my hair , would recommend trying if your hospital offers them. X

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I hope you are doing well! I didn't know about cold cap, and went through 6 years of round-the-year chemo and no hair😙. I felt lucky to be alive, hair or no. When I was put in an Olaparib trial, I went into remission and my hair grew back. This has been since 5 years. I take my Olaparib every day, with little or no side effects. I thank God for this medicine, as originally I was given 6 mo-2 years prognosis!

God bless you, and all of us, on this tough journey! Please keep us posted; we're all in this together!

💖Margaret

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Thank you Margaret you had a long time with no hair but thank goodness you are having a better time now. I will ask about the cold cap when I go .Will keep you up to date what chemo did you have. X

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