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Open Heart Surgery Groups
Hi there. I live in Brighton and I recently had open heart surgery (at The Royal Brompton in London) Does anyone know of any support groups for people who have been through similar surgery. I am in my 40s but would love to have people to chat to of any age who have been through the same thing. Thank
Hi there. I live in Brighton and I recently had open heart surgery (at The Royal Brompton in London) Does anyone know of any support groups for people who have been through similar surgery. I am in my 40s but would love to have people to chat to of any age who have been through the same thing. Thank
AbsterHo
in
British Heart Foundation
4 months ago
Rising PSA
Year 7… No prostate. Clear everything in 2017 … but 6 months after surgery rising PSA. Casodex/Lupron/39 Rounds Radiation. Presently on Lupron/Nubeqa PSA rising PSMA Scan Clear CT scan with Contrast today plus Fractionated Blood Biopsy. PSA 10.8 Waiting on CT results but Dr. Aggarwal wants
Year 7… No prostate. Clear everything in 2017 … but 6 months after surgery rising PSA. Casodex/Lupron/39 Rounds Radiation. Presently on Lupron/Nubeqa PSA rising PSMA Scan Clear CT scan with Contrast today plus Fractionated Blood Biopsy. PSA 10.8 Waiting on CT results but Dr. Aggarwal wants
JolleySprings
in
Advanced Prostate Cancer
6 months ago
Leflunomide and surgery..
my second post this week, having quite a week.. I’m having surgery next Wednesday on my right foot for Morton’s neuroma (had left foot excision 6 months ago). At the pre-op the nurse had never heard of Leflunomide and had to google it as to whether it needs to be ceased pre-surgery. She couldn’t
my second post this week, having quite a week.. I’m having surgery next Wednesday on my right foot for Morton’s neuroma (had left foot excision 6 months ago). At the pre-op the nurse had never heard of Leflunomide and had to google it as to whether it needs to be ceased pre-surgery. She couldn’t
Sapphire1701
in
NRAS
6 months ago
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INR BLOOD
Hi, i am trying to find out if there is such a thing as INR funding.My friend was borneith cardiomyopathy, she has her blood checked twice a week. Her gp surgery has stopped home visit inr visits. The cheapest machine is £300, obviously my friend is on benefits and cant afford that. Any help would be
Hi, i am trying to find out if there is such a thing as INR funding.My friend was borneith cardiomyopathy, she has her blood checked twice a week. Her gp surgery has stopped home visit inr visits. The cheapest machine is £300, obviously my friend is on benefits and cant afford that. Any help would be
Crock73
in
Anticoagulation Support
6 months ago
INR BLOOD
Hi, i am trying to find out if there is such a thing as INR funding.My friend was borneith cardiomyopathy, she has her blood checked twice a week. Her gp surgery has stopped home visit inr visits. The cheapest machine is £300, obviously my friend is on benefits and cant afford that. Any help would be
Hi, i am trying to find out if there is such a thing as INR funding.My friend was borneith cardiomyopathy, she has her blood checked twice a week. Her gp surgery has stopped home visit inr visits. The cheapest machine is £300, obviously my friend is on benefits and cant afford that. Any help would be
Crock73
in
Heart Valve Voice
6 months ago
surgery
Has anyone had non-liver related surgery, such as a knee or hip? I guess the primary risk would be infection and types of anesthesia and antibiotics..? Is anyone familiar with this? My primary care doc said one of the greatest risk is throwing a clot, and with my slightly low platelets (130’s
Has anyone had non-liver related surgery, such as a knee or hip? I guess the primary risk would be infection and types of anesthesia and antibiotics..? Is anyone familiar with this? My primary care doc said one of the greatest risk is throwing a clot, and with my slightly low platelets (130’s
Greengal314
in
British Liver Trust
6 months ago
where do I go from here…
Hi all, I was diagnosed with stage 4 endometriosis in 2016 and underwent excision surgery. After surgery I still struggled with pain however went on to try and start a family. We have been incredibly fortunate and have 3 children (this wasn’t without loss). My periods always returned very quickly
Hi all, I was diagnosed with stage 4 endometriosis in 2016 and underwent excision surgery. After surgery I still struggled with pain however went on to try and start a family. We have been incredibly fortunate and have 3 children (this wasn’t without loss). My periods always returned very quickly
NatAlex29
in
Endometriosis UK
6 months ago
No period dr says might be due to blockage at uterus entrance, any experience?
Hi friends After a heavy surgery for removing Adenomyosis endo and many fibroids last year dr put a barrier in my uterus to prevent adhesions and I was on decapeptal to prevent endo coming back. After stopping decapeptyl and when hrt stoppd I got my periods back regularly but then after 3 month I
Hi friends After a heavy surgery for removing Adenomyosis endo and many fibroids last year dr put a barrier in my uterus to prevent adhesions and I was on decapeptal to prevent endo coming back. After stopping decapeptyl and when hrt stoppd I got my periods back regularly but then after 3 month I
Bebe294
in
Fertility Network UK
6 months ago
Do all antisickness tablets cause constipation?
I got my shock O C. diagnosis on December 1st 2023,Grade 3 (c).I've had 2 chemo sessions ,& have been mostly ok,apart from the antisickness tablets really clogging me up!! After my 3rd chemo session on 26th February, I will have a c. t.scan to decide whether I will need surgery or not.I think being
I got my shock O C. diagnosis on December 1st 2023,Grade 3 (c).I've had 2 chemo sessions ,& have been mostly ok,apart from the antisickness tablets really clogging me up!! After my 3rd chemo session on 26th February, I will have a c. t.scan to decide whether I will need surgery or not.I think being
Peggypuppy
in
My Ovacome
6 months ago
PMR with shoulder and buttock pain
I was diagnosed with PMR in July 2022 a week after having Covid. My pain symptoms have been bi lateral buttock pain and shoulder pain . I never really experienced the great relief that many feel when starting pred. despite going upto 25mg. I have reduced gradually over the time but had a few flares
I was diagnosed with PMR in July 2022 a week after having Covid. My pain symptoms have been bi lateral buttock pain and shoulder pain . I never really experienced the great relief that many feel when starting pred. despite going upto 25mg. I have reduced gradually over the time but had a few flares
simps999
in
PMRGCAuk
6 months ago
surgery and ckd
Hello, I have Type 2 diabetes and ckd. I may have to have a toe amputated due to the diabetes. What does surgery do to kidney function? Does it make it go down. Last gfr was 24. Thank you.
Hello, I have Type 2 diabetes and ckd. I may have to have a toe amputated due to the diabetes. What does surgery do to kidney function? Does it make it go down. Last gfr was 24. Thank you.
Yankees28
in
Kidney Disease
6 months ago
ONLINE SUPPORT GROUPS
Our support groups are such a good way to connect with other's in a similar situation, they have really helped so many people make friendships and gain valuable knowledge around their treatment and care. If you have any queries about anything please get in touch, we would love to hear from you and help
Our support groups are such a good way to connect with other's in a similar situation, they have really helped so many people make friendships and gain valuable knowledge around their treatment and care. If you have any queries about anything please get in touch, we would love to hear from you and help
ConnectRoyCastle
Administrator
in
The Roy Castle Lung Cancer Foundation
6 months ago
CLL diagnosis
Hello all, I have just been diagnosed with CLL, because of a blood test in preparation for knee replacement surgery! I have a no symptoms other than mild fatigue. The encologist said this disease doesn’t mean that it’s the end. Some people go for years without symptoms. I am in good health and stay fit
Hello all, I have just been diagnosed with CLL, because of a blood test in preparation for knee replacement surgery! I have a no symptoms other than mild fatigue. The encologist said this disease doesn’t mean that it’s the end. Some people go for years without symptoms. I am in good health and stay fit
Tonightweride
in
CLL Support
6 months ago
endo surgery
Hi there- just found this platform and keen to reach out for some support. After years of being misdiagnosed with IBS and extremely painful periods, a scan and following MRI suggested 4 endometriomas on r ovary (6.5cm, 4cm, 3cm and 2cm) and left ovary stuck to back of uterus. Also adenomyosis. My
Hi there- just found this platform and keen to reach out for some support. After years of being misdiagnosed with IBS and extremely painful periods, a scan and following MRI suggested 4 endometriomas on r ovary (6.5cm, 4cm, 3cm and 2cm) and left ovary stuck to back of uterus. Also adenomyosis. My
Jenny_91-
in
Endometriosis UK
6 months ago
Hi. Im Ziggy.
I am 66 years young. I have had DSM1 Autism diagnosis since 2021. I now, since surgery for Graves Disease, am hypothyroid. I have osteoporosis, osteoarthritis, rheumatoid arthritis, spondylosis, fibromyalgia, lifelong anxiety and depression disorder. I am disabled... Apart from those things I love
I am 66 years young. I have had DSM1 Autism diagnosis since 2021. I now, since surgery for Graves Disease, am hypothyroid. I have osteoporosis, osteoarthritis, rheumatoid arthritis, spondylosis, fibromyalgia, lifelong anxiety and depression disorder. I am disabled... Apart from those things I love
Max__1957
in
Anxiety and Depression Support
6 months ago
Mom and ICU
In December 2023, my mom learned she has colon cancer. On December 28, 2023 she went into the hospital to have a colon resection to remove the cancerous area. This was done robotically. After the surgery she was groggy but responsive. On day 2 post op my mom started having delirium (hospital psychosis
In December 2023, my mom learned she has colon cancer. On December 28, 2023 she went into the hospital to have a colon resection to remove the cancerous area. This was done robotically. After the surgery she was groggy but responsive. On day 2 post op my mom started having delirium (hospital psychosis
wcase372
in
ICUsteps
6 months ago
Blood results.
After blood tests last week and receiving a "No action required "phone call from Gp surgery, I returned to surgery to see practice nurse for a foot ailment and asked for my actual results. She wrote them downSerum ferritin 759 Transferritin (not sure if she wrote 1.7 or17)couple of extra full stops
After blood tests last week and receiving a "No action required "phone call from Gp surgery, I returned to surgery to see practice nurse for a foot ailment and asked for my actual results. She wrote them downSerum ferritin 759 Transferritin (not sure if she wrote 1.7 or17)couple of extra full stops
Lambretta175
in
Restless Legs Syndrome
6 months ago
Pain relief?
Hi endo community I've been on pain relief for the last 2 years as since being diagnosed with endometriosis thats spread to bladder and rectum in 2018 noone will touch me for surgery and have been referred to the endometriosis clinic in the Coombe hospital Dublin with a couple years long waiting list
Hi endo community I've been on pain relief for the last 2 years as since being diagnosed with endometriosis thats spread to bladder and rectum in 2018 noone will touch me for surgery and have been referred to the endometriosis clinic in the Coombe hospital Dublin with a couple years long waiting list
Escapologygirl
in
Endometriosis UK
6 months ago
Participant Recruitment - Post Surgery Pain Management
Researchers from the
University of Manchester
are
recruiting participants for a study on post-surgery pain management
. Please get in touch with Neetu Bansal (lead researcher) directly if you are interested in taking part, or to get further information: 📧 neetu.bansal@manchester.ac.uk
Researchers from the
University of Manchester
are
recruiting participants for a study on post-surgery pain management
. Please get in touch with Neetu Bansal (lead researcher) directly if you are interested in taking part, or to get further information: 📧 neetu.bansal@manchester.ac.uk
PainConcernProjects
Pain Concern
in
Pain Concern
6 months ago
Burning sensation- anyone else?
Hi allI was diagnosed with endometriosis in 2020 (never told stage or anything like that) and scans I've had show probable adenomyosis as well. After my laparoscopy my pains came back fairly quickly and have escalated. About a year ago i started getting pain in the glutes and all down my leg (more on
Hi allI was diagnosed with endometriosis in 2020 (never told stage or anything like that) and scans I've had show probable adenomyosis as well. After my laparoscopy my pains came back fairly quickly and have escalated. About a year ago i started getting pain in the glutes and all down my leg (more on
Redfan
in
Endometriosis UK
6 months ago
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