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Restless Legs Syndrome

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Blood results.

Lambretta175 profile image
8 Replies

After blood tests last week and receiving a "No action required "phone call from Gp surgery, I returned to surgery to see practice nurse for a foot ailment and asked for my actual results. She wrote them downSerum ferritin 759

Transferritin (not sure if she wrote 1.7 or17)couple of extra full stops in what she wrote.

Transferritin Saturation 62%

Iron 26.2

I'm going in on 22nd Feb for Enlarged Prostate surgery,have printed out medical alert card.

Anything I should be wary of?

Thank you

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Lambretta175
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SueJohnson profile image
SueJohnson

The Medical Alert card may tell you all of this but in case it doesn't:Tell your doctors and anesthesiologists about your RLS and its symptoms and that you need your medicine and ask if there will be any drug interactions from what they will give you. Naloxone can affect anesthesia so tell them if taking. Also talk with the patient representative ahead of time. Tell them not to give you any sedating antihistamines or sedating anti-nausea medications. Instead insist they use Zofran (ondansetron) for anti-nausea.

Your high ferritin may be because of inflammation from your enlarged prostate but that should make your TSAT go down. After the surgery and aftereffects go down you might want to see a hematologist as normal high for TSAT is 50.

Lambretta175 profile image
Lambretta175 in reply to SueJohnson

Thanks very much Sue. Forgot to say I had a scan and have Fatty liver disease which they said was the cause.It was 972 at the time so changed diet slightly and has dropped. Thanks for the reply much appreciated.

SueJohnson profile image
SueJohnson

By the way I notice gabapentin on your profile. Are you still taking it?

Lambretta175 profile image
Lambretta175 in reply to SueJohnson

Yes.I'm on 1200 at the moment.

SueJohnson profile image
SueJohnson in reply to Lambretta175

Does it control your symptoms completely?

Lambretta175 profile image
Lambretta175 in reply to SueJohnson

Not completely but bearable. My instructions on prescription says one in the morning,one in afternoon and 2 at night.Because I don't get rls in the morning and rarely in the afternoon I take 600 about 6pm and 600 about 9pm.As I'm retired I'm still active during the day so don't know if being on the move keeps it at bay.At my next check up I'm going to ask to increase to either 1500 or 1800.

SueJohnson profile image
SueJohnson in reply to Lambretta175

That is the directions for pain not RLS where it is only needed at night. I gather you have 300 mg. The normal instructions are take it 1 to 2 hours before bedtime as the peak plasma level is 2 hours. Since you need more than 600 mg take the extra 4 hours before bedtime as it is not as well absorbed above 600 mg. If you find you need more than 1200 mg which you apparently do, take the extra 6 hours before bedtime. Instead of jumping to 1500 mg ask for 100 mg capsules and increase by 100 mg every couple of days until you find the dose that works. According to the Mayo Clinic Updated Algorithm on RLS: "Most RLS patients require 1200 to 1800 mg of gabapentin ." If you take magnesium even in a multivitamin, don't take it within 3 hours of taking gabapentin as it will interfere with the absorption of gabapentin and don't take calcium within 2 hours for the same reason . Check out the Mayo Clinic Updated Algorithm on RLS which will tell you everything you want to know including about its treatment and refer your doctor to it if needed as many doctors do not know much about RLS or are not uptodate on it at Https://mayoclinicproceedings.org/a...

Lambretta175 profile image
Lambretta175 in reply to SueJohnson

Thanks again Sue. I'll try and get some 100mg tablets. I do only have 300mgs.I don't take any other medication/vitamins mainly because in my yearly reviews/check ups,All my results come out excellent ie bp,sugar,cholesterol ,liver function and lung function. I have always been reticent about taking too many pills.Will the magnesium/calcium help with RLS or are they to help with age related problems?Thanks.

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