Rising PSA

[JolleySprings]

Year 7…

No prostate. Clear everything in 2017 … but 6 months after surgery rising PSA.

Casodex/Lupron/39 Rounds Radiation.

Presently on Lupron/Nubeqa

PSA rising

PSMA Scan Clear

CT scan with Contrast today plus Fractionated Blood Biopsy.

PSA 10.8

Waiting on CT results but Dr. Aggarwal wants to Stay the course with Lupron/Nubeqa if CT doesn’t show anything yet!

He also has CDK12 mutation.

We are wanting to be prepared for next steps and are surprised Dr. Aggarwal wants to keep the same treatment (If) Big “If” CT scan is still clear.

It seems … it’s like just waiting around until it metastasizes. 😩

Any thoughts?

[tango65]

You treat the tumor and not the PSA. The metastases are in there but the therapies are not changed until there is evidence of radiologic progression of the cancer.

I was in that situation and when 3 mets were seen they were irradiated. That gave more than one year without having to change therapies.

[rickyfish56]

Can you please put some info in your Bio? Age when diagnosed, Gleason score, initial PSA etc.. Helps us out here trying to learn info that may help us on our journey. Thank you and God Bless.

[JolleySprings in reply to rickyfish56]

Thank you! I just added Bio info

I am the wife. 🙏🏻

[j-o-h-n in reply to rickyfish56]

Hey ricky you're stealing my thunder Re: I'm the one who usually asks for more bio info.... 🤡

Good Luck, Good Health and Good Humor.

j-o-h-n

[rodmur]

After Casodex I had Brachytherapy (Radiation) about 2 years later

[NanoMRI]

Thoughts - seems to me you have an excellent multidisciplinary team. And yes, in my experiences it seems we wait. I am post RP, salvage RT, salvage extended pelvic lymph node surgery, holding 0.03X range last three years, no ADT. While WAITING, strategy is frequent testing, occasional imaging, fighting cancer stem cells (theoretical), striving to avoid/delay ADT/chemo/castration resistance as long as possible. All the best!