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First Post
Hi there. Just an introductory post. My name's Connor, I have FA, and I'm 24. I was diagnosed when I was 9, had spinal fusion surgery at 12/13, I started using a walking frame at 17, and went into a wheelchair at 20. I have a degree in accountancy, I don't work but I've done a bit volunteering. Now a
Hi there. Just an introductory post. My name's Connor, I have FA, and I'm 24. I was diagnosed when I was 9, had spinal fusion surgery at 12/13, I started using a walking frame at 17, and went into a wheelchair at 20. I have a degree in accountancy, I don't work but I've done a bit volunteering. Now a
Lisbon67
in
Ataxia UK
5 years ago
Chiropractic Adjustment
Well, I've had an adjustment and discovered 2 things. 1. My back, shoulder, ribs and neck were so out of alignment after a 12 hour car trip that it all was triggering part of my pain. 2. My stomach is so full of gas that it is pushing on my ribs and causing more pain. I'm doing my best to get rid
Well, I've had an adjustment and discovered 2 things. 1. My back, shoulder, ribs and neck were so out of alignment after a 12 hour car trip that it all was triggering part of my pain. 2. My stomach is so full of gas that it is pushing on my ribs and causing more pain. I'm doing my best to get rid
Survivornow
in
SHARE Metastatic Breast Cancer
5 years ago
Neurosurgery
Pain the feet and legs 1 year after spinal surgery, it also affects my blabber.Help.
Pain the feet and legs 1 year after spinal surgery, it also affects my blabber.Help.
nanapat112
in
Pain Concern
5 years ago
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Lupus and Fibromalgyia
Hi all I'm super new to this site. I was diagnosed 3 years ago and it's been downhill ever since. I'm now seeing a psychiatrist for my mental health and he suggested I go back to my rheumatologist and ask to be rechecked. He thinks I may have something else either Lupus or something else. I do contract
Hi all I'm super new to this site. I was diagnosed 3 years ago and it's been downhill ever since. I'm now seeing a psychiatrist for my mental health and he suggested I go back to my rheumatologist and ask to be rechecked. He thinks I may have something else either Lupus or something else. I do contract
Soniaarora
in
Fibromyalgia Action UK
5 years ago
Pain 10 years after a spinal fusion L5/S1
Hi All, Has anyone suffered an overwhelming increase in back pain following a spinal fusion? I had mine 10 years ago now and although not 100%....had been doing alright in my retirement. I had been a nurse for 40 years and although I tried couldn’t return to work comfortably, so decided to take early
Hi All, Has anyone suffered an overwhelming increase in back pain following a spinal fusion? I had mine 10 years ago now and although not 100%....had been doing alright in my retirement. I had been a nurse for 40 years and although I tried couldn’t return to work comfortably, so decided to take early
RedfoxMorse
in
Pain Concern
5 years ago
Ecmo and icu
Hello, my partner was admitted to A&E a week ago and put on a ventilator with severe pneumonia. Nothing helped until medical staff flew down from London to put him on ecmo and transferred him to London. He hasn't woken up after they stopped sedative 4 days ago, but he has eye movement, breathes alongside
Hello, my partner was admitted to A&E a week ago and put on a ventilator with severe pneumonia. Nothing helped until medical staff flew down from London to put him on ecmo and transferred him to London. He hasn't woken up after they stopped sedative 4 days ago, but he has eye movement, breathes alongside
Hidden
in
ICUsteps
5 years ago
Pain clinic fail.....😖 (long rant sorry)
I had an appointment with the pain clinic consultant last week after being seen by his registrar to get my pain medication sorted out. I’ve had chronic pain since a spontaneous Sacral fracture five years ago. I take Naproxen, Nortriptyline, Co-Codamol and Butrans patches. These had all been prescribed
I had an appointment with the pain clinic consultant last week after being seen by his registrar to get my pain medication sorted out. I’ve had chronic pain since a spontaneous Sacral fracture five years ago. I take Naproxen, Nortriptyline, Co-Codamol and Butrans patches. These had all been prescribed
Toplady
in
Pain Concern
5 years ago
Bowel endo
Hi, I had a resection in 2016 due to endo that had infiltrated my bowel wall. I had had previous surgery to remove endo. I have been fine since then until the last 6 months. My periods have gone incredibly heavy and pelvic pain is starting to creep in. The issue is I have had bowel problems for 6 months
Hi, I had a resection in 2016 due to endo that had infiltrated my bowel wall. I had had previous surgery to remove endo. I have been fine since then until the last 6 months. My periods have gone incredibly heavy and pelvic pain is starting to creep in. The issue is I have had bowel problems for 6 months
Devils_Advocate
in
Endometriosis UK
5 years ago
Privately funded ivf with a donated egg in the UK
We have had a little delay in getting going with our second ivf cycle, due to me having spinal surgery in February. I’m fighting fit and now and had a consultation with our clinic, where they advised we need to use donor eggs to become pregnant. We are on the waiting list for an egg donor. It’s likely
We have had a little delay in getting going with our second ivf cycle, due to me having spinal surgery in February. I’m fighting fit and now and had a consultation with our clinic, where they advised we need to use donor eggs to become pregnant. We are on the waiting list for an egg donor. It’s likely
Eltel81
in
Fertility Network UK
5 years ago
I'm back
I have not been on the site for a while, I have had health issues only 8 weeks ago I had major spinal surgery but today I have managed to walk 5k took me 60 mins but i'm feeling pleased with myself, I have yet to see my spinal physio so I have not returned to the gym to do any weights. I would be interested
I have not been on the site for a while, I have had health issues only 8 weeks ago I had major spinal surgery but today I have managed to walk 5k took me 60 mins but i'm feeling pleased with myself, I have yet to see my spinal physio so I have not returned to the gym to do any weights. I would be interested
kbed
in
Couch to 5K
5 years ago
Unexplained Chest Pains/Palpitations
I started having tachycardia 4 years ago. My heart rate would go up into the 170s. I've had several ECGs, blood work, CT Scan of the heart, stress test, holter monitor, Ziopatch and echo. Everything came back normal. I have been put on propranolol, metoprolol, and now Bisoprolol 2.5 mg once daily since
I started having tachycardia 4 years ago. My heart rate would go up into the 170s. I've had several ECGs, blood work, CT Scan of the heart, stress test, holter monitor, Ziopatch and echo. Everything came back normal. I have been put on propranolol, metoprolol, and now Bisoprolol 2.5 mg once daily since
PeachyPie99
in
Anxiety Support
5 years ago
Lumbar spinal stenosis with PSP?
My husband also was diagnosed with severe lumbar spinal stenosis and it was recommended he have spinal fusion. We are not going to do that at this point. Can't imagine adding that on top of everything else. The rehab would be nearly impossible. Someone else on this site (I can't find the post now) said
My husband also was diagnosed with severe lumbar spinal stenosis and it was recommended he have spinal fusion. We are not going to do that at this point. Can't imagine adding that on top of everything else. The rehab would be nearly impossible. Someone else on this site (I can't find the post now) said
journeyofjoy
in
PSP Association
5 years ago
Ignored CKD diet and then had best test results so far
I am not making recommendations that what I did should be done by you. Each must follow their own doctors advice. I am just relating my experience. In mid 2017 I had kidney removed. I immediately became classified stage 3b, with creatinine levels of 1.8 or 1.9. I followed all the advice. Diet.
I am not making recommendations that what I did should be done by you. Each must follow their own doctors advice. I am just relating my experience. In mid 2017 I had kidney removed. I immediately became classified stage 3b, with creatinine levels of 1.8 or 1.9. I followed all the advice. Diet.
RickHow
in
Early CKD Support
5 years ago
Donor eggs
Hello everyone, I have had a bit of a break from ttc after my first ivf cycle that resulted in a chemical pregnancy and subsequent miscarriage, to have spinal surgery. I feel much more physically prepared for pregnancy now. How I thought I could carry a child when my back hurt so much is silly in hindsight
Hello everyone, I have had a bit of a break from ttc after my first ivf cycle that resulted in a chemical pregnancy and subsequent miscarriage, to have spinal surgery. I feel much more physically prepared for pregnancy now. How I thought I could carry a child when my back hurt so much is silly in hindsight
Eltel81
in
Fertility Network UK
5 years ago
A big decision , don't know what to do!
I've had back problems for 5 years and tried everything . I had a discectomy in 2017 on L5 but had complications and 2 more surgeries for a csf leak and spinal sepsis. I'm still in a lot pain and at first they said I need a 2 level fusion but the surgeon changed his mind saying it wouldn't help my pain
I've had back problems for 5 years and tried everything . I had a discectomy in 2017 on L5 but had complications and 2 more surgeries for a csf leak and spinal sepsis. I'm still in a lot pain and at first they said I need a 2 level fusion but the surgeon changed his mind saying it wouldn't help my pain
Megnstan
in
Neuro Support
5 years ago
Rapid Progression of CBD?
This is my first post, so I hope this isn't a tired worn-out subject. My husband, like so many, had a long delay in his CBD diagnosis, including two spinal fusions and a lot of other shenanigans starting back in 2014. He has been moderately healthy until this spring (his last surgery was in February
This is my first post, so I hope this isn't a tired worn-out subject. My husband, like so many, had a long delay in his CBD diagnosis, including two spinal fusions and a lot of other shenanigans starting back in 2014. He has been moderately healthy until this spring (his last surgery was in February
AllieBBird
in
PSP Association
5 years ago
Moving On To Another Trial
After a year on weekly Humira injections; I’m switching to Cimzia. Additionally, I inject MTX once a week and take 5 mgs of prednisone. I have 3 types of arthritis: RA, PsA and OA. It is a delayed diagnosis due to a misdiagnosis by a rheumatologist 3 years ago. I also have neurological factors to consider
After a year on weekly Humira injections; I’m switching to Cimzia. Additionally, I inject MTX once a week and take 5 mgs of prednisone. I have 3 types of arthritis: RA, PsA and OA. It is a delayed diagnosis due to a misdiagnosis by a rheumatologist 3 years ago. I also have neurological factors to consider
IslandLife53
in
NRAS
5 years ago
Angiogram results
2 weeks ago my cardiologist thought the angiogram would show either no problem or a very minor problem. Yesterday it actually showed a blockage and several instances of narrowing. Oh dear! Subsequent heart scan showed no damage. This was good to hear. I was offered alternative approaches. The first,
2 weeks ago my cardiologist thought the angiogram would show either no problem or a very minor problem. Yesterday it actually showed a blockage and several instances of narrowing. Oh dear! Subsequent heart scan showed no damage. This was good to hear. I was offered alternative approaches. The first,
willsie01
in
British Heart Foundation
5 years ago
Any experience of Remifentanil during labour?
I am 30 weeks pregnant and had an appointment with an anaesthetist today to discuss pain relief during labour. I had spinal surgery at age 12 and I have been advised that they may not be able to administer an epidural. They have suggested that it would be safer for me to have Remifentinal during a natural
I am 30 weeks pregnant and had an appointment with an anaesthetist today to discuss pain relief during labour. I had spinal surgery at age 12 and I have been advised that they may not be able to administer an epidural. They have suggested that it would be safer for me to have Remifentinal during a natural
JF198
in
Pregnancy and Parenting Support
5 years ago
Is there anything that can be done to stop this tiredness, no energy, pain and weight gain.
I was diagnosed 17 and a half years ago after 5 years being unwell with no energy, dry skin, dry throat and bad headache's, also every joint in my body was in agony. It was my Rheumatologist who diagnosed me. Then 7 years ago I was diagnosed with hypothyroidism and now on 200mcg levothyoxine. But I've
I was diagnosed 17 and a half years ago after 5 years being unwell with no energy, dry skin, dry throat and bad headache's, also every joint in my body was in agony. It was my Rheumatologist who diagnosed me. Then 7 years ago I was diagnosed with hypothyroidism and now on 200mcg levothyoxine. But I've
AFCUK67
in
Thyroid UK
5 years ago
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