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Hi Got diagnosed with FND need advice.
Hi Got diagnosed with FND in May when i colapled i spent 60 days in hospital were they released i had compression of the spine, i was taken to my renal hospital as i am on dialysis after a failed kidney transplant in 2018. I have now lost the ability to walk and struggle to remember even such things
Hi Got diagnosed with FND in May when i colapled i spent 60 days in hospital were they released i had compression of the spine, i was taken to my renal hospital as i am on dialysis after a failed kidney transplant in 2018. I have now lost the ability to walk and struggle to remember even such things
Plasticpaddy
in
FND Action
4 years ago
Laxido
I'm on Laxido and senokot . I try to balance out the right amount to take. I got chronic constipation and had Impaction in the transition colon. I been on this medecin since March after spinal surgery on the central nerve system. I take 1 sena at night 1 laxido an hour before bed. I supposed take
I'm on Laxido and senokot . I try to balance out the right amount to take. I got chronic constipation and had Impaction in the transition colon. I been on this medecin since March after spinal surgery on the central nerve system. I take 1 sena at night 1 laxido an hour before bed. I supposed take
Snilesworth
in
IBS Network
4 years ago
Surgery on Thursday what to expect?
So quite unexpectedly the hospital contacted me today offering me ACDF surgery on my neck on Thursday. I had a pre op a few months back so I understand the operation etc It's what happens after that I'm trying to find out. If you have had neck or any similar spinal surgery what was your experience?
So quite unexpectedly the hospital contacted me today offering me ACDF surgery on my neck on Thursday. I had a pre op a few months back so I understand the operation etc It's what happens after that I'm trying to find out. If you have had neck or any similar spinal surgery what was your experience?
RonSton7
in
Pain Concern
4 years ago
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Nerve stimulators for pain reduction
Hi, has anyone here had a stimulator installed for neuropathy? I know of 3 kinds: SCS - spinal cord stimulator drg - dorsal root ganglion stimulator pns - peripheral nerve stimulator I have heard of a few people who have had them, some with better luck than others, but not enough people to get a wide
Hi, has anyone here had a stimulator installed for neuropathy? I know of 3 kinds: SCS - spinal cord stimulator drg - dorsal root ganglion stimulator pns - peripheral nerve stimulator I have heard of a few people who have had them, some with better luck than others, but not enough people to get a wide
dylandude
in
Neuropathy Support
4 years ago
Morphine user
Hi all, I'm new to this page so hope I am able to get some advice. I've been on morphine for about 5 years, now taking 120mg twice daily along with gabapentin and naproxen and others 🙄, I have had failed spinal surgery. I am not getting a break from pain even with everything I'm on and I'm wondering
Hi all, I'm new to this page so hope I am able to get some advice. I've been on morphine for about 5 years, now taking 120mg twice daily along with gabapentin and naproxen and others 🙄, I have had failed spinal surgery. I am not getting a break from pain even with everything I'm on and I'm wondering
Saz2603
in
Action on Pain
4 years ago
Challenges
Just a thought I want to share. I know most can relate to most of what I’ve written... John 14:27 27 Peace I leave with you; my peace I give you. I do not give to you as the world gives. Do not let your hearts be troubled and do not be afraid. Three years ago, I was diagnosed with MS. Was it a shock
Just a thought I want to share. I know most can relate to most of what I’ve written... John 14:27 27 Peace I leave with you; my peace I give you. I do not give to you as the world gives. Do not let your hearts be troubled and do not be afraid. Three years ago, I was diagnosed with MS. Was it a shock
robster1
in
My MSAA Community
4 years ago
Thoracic syrinx on my spine
Can I ask anyone, how serious is a thoracic syrinx on your spine, I'm really worried that the syrinx will stop me from having spinal cord stimulator operation to help with my neuropathy in my feet
Can I ask anyone, how serious is a thoracic syrinx on your spine, I'm really worried that the syrinx will stop me from having spinal cord stimulator operation to help with my neuropathy in my feet
midashomes64
in
Pain Concern
4 years ago
Gp stopped my b12 injection and Iv had pernicious anemia 11 years , is this allowed apparently due to new research says my gp
I was refused my b12 injection for PA 18 month ago by my gp apparently new research came to light ,antibodies was negative so I do not require lifelong injections no more :- is this even possible ? I was told when diagnosed 11 year ago it’s lifelong as my body dont absorb it do t matter what oral
I was refused my b12 injection for PA 18 month ago by my gp apparently new research came to light ,antibodies was negative so I do not require lifelong injections no more :- is this even possible ? I was told when diagnosed 11 year ago it’s lifelong as my body dont absorb it do t matter what oral
Ashp24
in
Pernicious Anaemia Society
4 years ago
HAS ANYONE WITH PD HAD SPINAL CORD STIMULATOR IMPLANTED FOR POSTURE CORRECTION,PAIN MODULATION AND MOTOR FUNCTION?
Hi,friends,this procedure might be relatively new. I have read that it is similarly to DBS,but it targets the spinal cord instead of the brain.I was wondering,if anyone had this procedure done,please share your experience. How effective is it?Is it safer ,compared to DBS? Thanks in advance.
Hi,friends,this procedure might be relatively new. I have read that it is similarly to DBS,but it targets the spinal cord instead of the brain.I was wondering,if anyone had this procedure done,please share your experience. How effective is it?Is it safer ,compared to DBS? Thanks in advance.
OREOLU
in
Cure Parkinson's
4 years ago
First PSA rise in three years, watch for doubling time? Or look into scans?
My husband (age 71) was diagnosed in Feb 2017, PSA 275, gleason 8, There were several enlarged lymph nodes in the iliac chain, obturator, and largest in the para-aortic measuring 3.3 cm. Bone scan was clear. Pelvic radiation in 2017. After 3 months of ADT (eligard) his psa dropped to .008. After 18 months
My husband (age 71) was diagnosed in Feb 2017, PSA 275, gleason 8, There were several enlarged lymph nodes in the iliac chain, obturator, and largest in the para-aortic measuring 3.3 cm. Bone scan was clear. Pelvic radiation in 2017. After 3 months of ADT (eligard) his psa dropped to .008. After 18 months
cajeffrey
in
Advanced Prostate Cancer
4 years ago
Journey home
Yesterday I was in London with my daughter who was having a spinal fusion. I had started my day very early as you do to get her checked in-she went to Theatre lunchtime so it was a long morning. Waited 5 hrs for her to return-they had probs controlling her pain 😢 Left her at 8pm to try to miss rush
Yesterday I was in London with my daughter who was having a spinal fusion. I had started my day very early as you do to get her checked in-she went to Theatre lunchtime so it was a long morning. Waited 5 hrs for her to return-they had probs controlling her pain 😢 Left her at 8pm to try to miss rush
Janzo54
in
Lung Conditions Community Forum
4 years ago
Changing to Xeloda
Hi ladies. Had terrible tumor on spine in November so had to have a spinal fusion and rads before I could begin any chemo drugs. Been on Letrozole . Had 2 weeks on Ibrance but blood counts went so low stopped in 2 weeks. New PET showed progression and new bone mets! Onc switching me to Xeloda. Thinks
Hi ladies. Had terrible tumor on spine in November so had to have a spinal fusion and rads before I could begin any chemo drugs. Been on Letrozole . Had 2 weeks on Ibrance but blood counts went so low stopped in 2 weeks. New PET showed progression and new bone mets! Onc switching me to Xeloda. Thinks
Duffles
in
SHARE Metastatic Breast Cancer
4 years ago
Living with Osteo
Hi, I have lived 30-odd years since my diagnosis and think I’ve been lucky in being able to avoid spinal fusion back then. Suddenly have developed crumbling jaw which means my teeth have started falling out!! My dentist has not mentioned anything about a connection but until I see her later this week
Hi, I have lived 30-odd years since my diagnosis and think I’ve been lucky in being able to avoid spinal fusion back then. Suddenly have developed crumbling jaw which means my teeth have started falling out!! My dentist has not mentioned anything about a connection but until I see her later this week
Me20244
in
Bone Health and Osteoporosis UK
4 years ago
Early Retirement from Work.
Morning Everyone. I have recently been diagnosed with fibromyalgia/chronic pain syndrome. It has taken 4 years to get to this point as I also have spinal degeneration in my neck and lower back which was clouding the symptoms of the fibromyalgia. I had a spinal fusion on C4 C5 & C6 C7 last August but
Morning Everyone. I have recently been diagnosed with fibromyalgia/chronic pain syndrome. It has taken 4 years to get to this point as I also have spinal degeneration in my neck and lower back which was clouding the symptoms of the fibromyalgia. I had a spinal fusion on C4 C5 & C6 C7 last August but
Ijo1
in
Fibromyalgia Action UK
4 years ago
Neuropathy pain and hoping for a spinal cord simulator
Hi there good evening to everyone, can anyone advise me on how and where I can find a hospital in the UK which would hopefully give me a trial for a spinal cord stimulator on the nhs, in so much pain for over a year now, has totally affected my life in every way possible, I was so independent, now I
Hi there good evening to everyone, can anyone advise me on how and where I can find a hospital in the UK which would hopefully give me a trial for a spinal cord stimulator on the nhs, in so much pain for over a year now, has totally affected my life in every way possible, I was so independent, now I
midashomes64
in
Pain Concern
4 years ago
Nerve pain post surgery
I had spinal surgery for a herniated disc about 5 months ago. I recovered well and my leg pain and back pain disappeared. My back still ocassionally ached etc due to damaged discs but nothing unbearable. I have nerve damage from the herniation which affected the sensation in my lower leg, it is numb
I had spinal surgery for a herniated disc about 5 months ago. I recovered well and my leg pain and back pain disappeared. My back still ocassionally ached etc due to damaged discs but nothing unbearable. I have nerve damage from the herniation which affected the sensation in my lower leg, it is numb
Devils_Advocate
in
Pain Concern
4 years ago
Complex regional pain syndrome
Hi all! I’ve had CRPS for 12 years in my leg and managed to get it under control. However last April I had an operation for endometriosis and have now been told that I have CRPS inside. None of the medication the Drs have prescribed (I’ve tried all the normal ones) work for me, so I’ve asked for spinal
Hi all! I’ve had CRPS for 12 years in my leg and managed to get it under control. However last April I had an operation for endometriosis and have now been told that I have CRPS inside. None of the medication the Drs have prescribed (I’ve tried all the normal ones) work for me, so I’ve asked for spinal
MiniRowls
in
Pain Concern
4 years ago
Facet joint injection or not in North East Wales.
Good morning everyone, I hope you are all having a good day. I have a question, are there any people living in North East Wales who have fibromyalgia and have had facet joint radio ablation or spinal cord stimulator fitted for arthritis. I have been told by the pain team that I can't have either because
Good morning everyone, I hope you are all having a good day. I have a question, are there any people living in North East Wales who have fibromyalgia and have had facet joint radio ablation or spinal cord stimulator fitted for arthritis. I have been told by the pain team that I can't have either because
mimimouse
in
Fibromyalgia Action UK
5 years ago
Surgery
Another question. Any one have surgery while on the high dose prednisone I was supposed to have spinal fusion and catarac surgery
Another question. Any one have surgery while on the high dose prednisone I was supposed to have spinal fusion and catarac surgery
Libertylane
in
PMRGCAuk
5 years ago
What is Cellulitis?
I just got the second series of my pneumonia shot and second series of the new shingles shot, both in the same arm. By that same evening, my arm was swollen, I got the chills so bad I couldn’t get warm. I frantically searched for our heating pad to get warm. I couldn’t stand up straight because my lower
I just got the second series of my pneumonia shot and second series of the new shingles shot, both in the same arm. By that same evening, my arm was swollen, I got the chills so bad I couldn’t get warm. I frantically searched for our heating pad to get warm. I couldn’t stand up straight because my lower
awoodiette
in
CLL Support
5 years ago
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