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Sodium hyaluronate eye drops
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APs and Fatigue
Hi I have had APS since 2016, living in Norway and have “fatigue”. This is by far the most demanding problem with my APS. I read on the APS support UK page the following recommendation: “Take 200-400g hydroxychloroquine daily. This drug has long been used to treat fatigue and joint pain in autoimmune
Hi I have had APS since 2016, living in Norway and have “fatigue”. This is by far the most demanding problem with my APS. I read on the APS support UK page the following recommendation: “Take 200-400g hydroxychloroquine daily. This drug has long been used to treat fatigue and joint pain in autoimmune
Jonr
in
Hughes Syndrome APS Forum
1 year ago
Not diagnosed yet, suffering for many years
Hi everyone, My name is Kimberly, I live in Northwestern United States. I have been struggling with symptoms for years and had no idea this could be MS. I’ve had a hard time going up stairs as well as walking on flat ground for several months, maybe a year. My legs feel as though they weigh a hundred
Hi everyone, My name is Kimberly, I live in Northwestern United States. I have been struggling with symptoms for years and had no idea this could be MS. I’ve had a hard time going up stairs as well as walking on flat ground for several months, maybe a year. My legs feel as though they weigh a hundred
GrmaK
in
My MSAA Community
1 year ago
Itchy eyes
I know that glaucoma makes our eyes sensitive, and I do use lubricating eye drops SO many times during the day, but I still find that my eyes - especially inner eye, and around the base of the lids - gets really itchy. And of course we can't scratch our eyes. So does anybody else find this, and if so
I know that glaucoma makes our eyes sensitive, and I do use lubricating eye drops SO many times during the day, but I still find that my eyes - especially inner eye, and around the base of the lids - gets really itchy. And of course we can't scratch our eyes. So does anybody else find this, and if so
PBX142
in
Glaucoma UK
1 year ago
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Hi fellow sufferers.
I am new here but have suffered from wet AMD since January 2021 and have had several injections of Eylea in both eyes since. I am currently stable and on an 8 week re-check each time. I also suffer from diplopia (double vision) and this eye problem conflicts with the AMD disease making it difficult
I am new here but have suffered from wet AMD since January 2021 and have had several injections of Eylea in both eyes since. I am currently stable and on an 8 week re-check each time. I also suffer from diplopia (double vision) and this eye problem conflicts with the AMD disease making it difficult
Mando007
in
Macular Society
1 year ago
Radium 223 -Is this tumour flare?
I started Radium 223 therapy on Tuesday and since then I suffered from general stiffness and pain from the back of the pelvis down to the lower leg. I was wondering if anyone else had suffered these symptoms and if it was tumour flare? Thanks
I started Radium 223 therapy on Tuesday and since then I suffered from general stiffness and pain from the back of the pelvis down to the lower leg. I was wondering if anyone else had suffered these symptoms and if it was tumour flare? Thanks
Finlay66
in
Advanced Prostate Cancer
1 year ago
Ocular hypertension
I have ocular hypertension and narrow angles. I have had a successful iridotomy but my pressures remain between 20-30 . Never higher and never lower. My glaucoma consultant whom I saw this week is happy. My eyes are stable. Good visual fields. No optic nerve damage. I use Tiopex and Latanopost drops
I have ocular hypertension and narrow angles. I have had a successful iridotomy but my pressures remain between 20-30 . Never higher and never lower. My glaucoma consultant whom I saw this week is happy. My eyes are stable. Good visual fields. No optic nerve damage. I use Tiopex and Latanopost drops
EthelPledge94
in
Macular Society
1 year ago
mtx and adalimumab/ Idacio
Hi please could anyone let me know if they have changed from mtx tablets to Idacio ? I was told that you still have to take mtx tablets but at a lower dose with Idacio ? I was told biologics can work within a couple of weeks ?? I don't know if I want to go down the biologics route yet, I am a bit
Hi please could anyone let me know if they have changed from mtx tablets to Idacio ? I was told that you still have to take mtx tablets but at a lower dose with Idacio ? I was told biologics can work within a couple of weeks ?? I don't know if I want to go down the biologics route yet, I am a bit
lindyloo2018
in
NRAS
1 year ago
Yesterday Saw My Nephrologist
Hi Everyone, Yesterday I had an appointment with my nephrologist I was being seen every three months, but my labs in October of last were stable so they had me follow up in 5 months. To my surprise my regular nephrologist left her practice so now I'm under a new Dr's care. My blood pressure was a bit
Hi Everyone, Yesterday I had an appointment with my nephrologist I was being seen every three months, but my labs in October of last were stable so they had me follow up in 5 months. To my surprise my regular nephrologist left her practice so now I'm under a new Dr's care. My blood pressure was a bit
bbeba103
in
Kidney Disease
1 year ago
Amlopidine
Hi all...a few weeks ago there was a thread on here about a possible connection between high eye pressure/eye conditions and Amlopidine blood pressure tablets I have since attended two appointments at Kings College Hospital ....glaucoma clinic (I'm a glaucoma suspect) and medical retina clinic (
Hi all...a few weeks ago there was a thread on here about a possible connection between high eye pressure/eye conditions and Amlopidine blood pressure tablets I have since attended two appointments at Kings College Hospital ....glaucoma clinic (I'm a glaucoma suspect) and medical retina clinic (
EthelPledge94
in
Glaucoma UK
1 year ago
Just diagnosed
HiI've just been diagnosed with Primary Angle closure.Opthamologist says no glaucoma.Im on pilocarpine drops.Eye pressure both eyes 25.Apparantley my eyes are small.Have dry eyes too Bit scared to be honest having anxiety I'm having laser peripheral iridotomy I was shaking today getting the tests nearly
HiI've just been diagnosed with Primary Angle closure.Opthamologist says no glaucoma.Im on pilocarpine drops.Eye pressure both eyes 25.Apparantley my eyes are small.Have dry eyes too Bit scared to be honest having anxiety I'm having laser peripheral iridotomy I was shaking today getting the tests nearly
Paula1710
in
Glaucoma UK
1 year ago
How can I gain weight on Kidney friendly diet?
I have CKD Stage 3b and am working with a nutritionist and adhering to a kidney friendly diet, but keep losing weight. I have a high metabolism and have always had a problem keeping weight on, but this diet is not providing me with enough high calorie options. My nutritionist advised me to eat more nuts
I have CKD Stage 3b and am working with a nutritionist and adhering to a kidney friendly diet, but keep losing weight. I have a high metabolism and have always had a problem keeping weight on, but this diet is not providing me with enough high calorie options. My nutritionist advised me to eat more nuts
David100
in
Kidney Disease
2 years ago
Newbie !
Hi, I am new here. I was diagnosed with Stage 3C1 cervical cancer March 2021. I had 27 radiotherapy sessions, 5 chemotherapy sessions and 3 high dose brachytherapy sessions. My bowel issues started very early on and got worse and worse as treatment went on. I finished active treatment on 29th July. I
Hi, I am new here. I was diagnosed with Stage 3C1 cervical cancer March 2021. I had 27 radiotherapy sessions, 5 chemotherapy sessions and 3 high dose brachytherapy sessions. My bowel issues started very early on and got worse and worse as treatment went on. I finished active treatment on 29th July. I
Dasch123
in
Pelvic Radiation Disease Association
1 year ago
Seeing an MPN Specialist tomorrow!
I have an appointment at Stanford with an MPN Specialist tomorrow. Going on 5 years with ET+CALR and currently taking aspirin and 2 pills of Hydrea daily AND 90mcg of Pegasys once a week. We are in a transitional period right now and I will eventually just be taking Pegasys and aspirin. Took my 4th dose
I have an appointment at Stanford with an MPN Specialist tomorrow. Going on 5 years with ET+CALR and currently taking aspirin and 2 pills of Hydrea daily AND 90mcg of Pegasys once a week. We are in a transitional period right now and I will eventually just be taking Pegasys and aspirin. Took my 4th dose
Zeppelin11
in
MPN Voice
1 year ago
putting down the burden
I have been practising albeit a bit as hoc putting things weighing me down into an imaginary bag and putting the heavy burden of that bag down. Knowing it’s still mine and I can retreive it should I want to at any time. I know this sounds simplistic but I simply couldn’t live with carrying it all around
I have been practising albeit a bit as hoc putting things weighing me down into an imaginary bag and putting the heavy burden of that bag down. Knowing it’s still mine and I can retreive it should I want to at any time. I know this sounds simplistic but I simply couldn’t live with carrying it all around
Lindyloo53
Volunteer
in
Heal My PTSD
1 year ago
Bloods results help please
I went to see my private endo 3 weeks ago and he asked for loads of bloods. I'll post them below but I'm confused as my previous tests on 07/10 showed TSH 2.89 (range 0.35-5.5 um/L) and free T4 14.3 pmol/L (range 10.5-21) - those were done by GPThe last bloods were done on 9/11 at di only a month later
I went to see my private endo 3 weeks ago and he asked for loads of bloods. I'll post them below but I'm confused as my previous tests on 07/10 showed TSH 2.89 (range 0.35-5.5 um/L) and free T4 14.3 pmol/L (range 10.5-21) - those were done by GPThe last bloods were done on 9/11 at di only a month later
bajmon
in
Thyroid UK
2 years ago
Vaccine and Prolonged Diarrhea
I had the bivalent Covid vaccine on 27 December (my fifth vaccine). I had noticed in the last couple of years that about two weeks after each vaccine, my bowels acted up a bit but they subsided after taking Normix. But ever since 10 January, which was two weeks after this bivalent vaccine,
I had the bivalent Covid vaccine on 27 December (my fifth vaccine). I had noticed in the last couple of years that about two weeks after each vaccine, my bowels acted up a bit but they subsided after taking Normix. But ever since 10 January, which was two weeks after this bivalent vaccine,
711debbie
in
IBS Network
1 year ago
Levothyroxine for Underactive thyroid
I cannot tolerate Levothyroxine and wondered what other options are available to me. I have not taken any medications for nearly five years now. I also have Ehlers-Danlos Syndrome and Mast Cell Activation Syndrome. I am confused what symptoms are connected with Hypothyroidism and what can be attributed
I cannot tolerate Levothyroxine and wondered what other options are available to me. I have not taken any medications for nearly five years now. I also have Ehlers-Danlos Syndrome and Mast Cell Activation Syndrome. I am confused what symptoms are connected with Hypothyroidism and what can be attributed
Vallinkinpark
in
Thyroid UK
1 year ago
Microcystic Edema in glaucoma patient
Hi, my mother has had microcystic edema in both eyes discovered. Have been told there is a possibility that taking Xalatan drops could be connected. Wondered if anyone else has this condition and any talk of these drops being linked to it? Thanks.
Hi, my mother has had microcystic edema in both eyes discovered. Have been told there is a possibility that taking Xalatan drops could be connected. Wondered if anyone else has this condition and any talk of these drops being linked to it? Thanks.
Lionella
in
Glaucoma UK
1 year ago
Trabeculectomy and theme parks
I had a trab done in one eye following trauma induced high IOP last June. Pressures have been stable since November at around 14.I'm going to a theme park soon (Disney Paris - very excited!) - does anyone know if there are restrictions on roller-coasters with trabs? I'm going with kids, so won't be doing
I had a trab done in one eye following trauma induced high IOP last June. Pressures have been stable since November at around 14.I'm going to a theme park soon (Disney Paris - very excited!) - does anyone know if there are restrictions on roller-coasters with trabs? I'm going with kids, so won't be doing
MatthewC
in
Glaucoma UK
1 year ago
Antidepressants and other meds
Hi all, especially Sue who I'm hoping can help. I have at last had blood tests which showed my levels were around 50, which she said wasn't that low, but I'm now on Iron 200mg a day, havibg another blood test in January. Also my sodium levels were little low so was told to use more salt on my food.
Hi all, especially Sue who I'm hoping can help. I have at last had blood tests which showed my levels were around 50, which she said wasn't that low, but I'm now on Iron 200mg a day, havibg another blood test in January. Also my sodium levels were little low so was told to use more salt on my food.
Cobobay
in
Restless Legs Syndrome
2 years ago
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