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Very frustrated mum.
Still frustrated my daughter now age 6 years is still struggling with chronic constipation she now on movlicoil and sodium pic everyday sometimes we go up to 6 a day sometimes we stay on 2 a day but the soiling never stops .Her tummy is normal just she has trained her brain not to poo so 1 how do we
Still frustrated my daughter now age 6 years is still struggling with chronic constipation she now on movlicoil and sodium pic everyday sometimes we go up to 6 a day sometimes we stay on 2 a day but the soiling never stops .Her tummy is normal just she has trained her brain not to poo so 1 how do we
Misty10
in
ERIC
2 years ago
Sulphasazine
I saw both rheumatologist and ophthalmologist last week. Good news - I'm having cataract surgery under general anaesthetic. Apparently its high risk hence general. I'm also down on prednisolone from 15mg to 12.5mg. I'm hoping to be symptom free reducing by 2.5mg. Bad news - I'm now have to take sulpasazine
I saw both rheumatologist and ophthalmologist last week. Good news - I'm having cataract surgery under general anaesthetic. Apparently its high risk hence general. I'm also down on prednisolone from 15mg to 12.5mg. I'm hoping to be symptom free reducing by 2.5mg. Bad news - I'm now have to take sulpasazine
PSAWarrior28
in
NRAS
2 years ago
Sad Times š
We lost our beautiful Brodie Bear two weeks ago. I havenāt posted about it because we have been trying to keep busy but we are truly heartbroken. He was only off his food for a few days then violently sick over the Easter weekend and we took him to the emergency vets. To our horror he was in kidney failure
We lost our beautiful Brodie Bear two weeks ago. I havenāt posted about it because we have been trying to keep busy but we are truly heartbroken. He was only off his food for a few days then violently sick over the Easter weekend and we took him to the emergency vets. To our horror he was in kidney failure
CecilyParsley
in
LUPUS UK
2 years ago
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please let me hear your positive stories re going from decompensated to compensated
My partner was diagnosed with cirrhosis in Dec and underwent a medical detox from alcohol. He was very poorly and remained in hospital for 3 weeks. Since then he has been eating well and not drinking. His bilirubin has come down from 256 to 60 and his blood platelets look good at 160. The doctors
My partner was diagnosed with cirrhosis in Dec and underwent a medical detox from alcohol. He was very poorly and remained in hospital for 3 weeks. Since then he has been eating well and not drinking. His bilirubin has come down from 256 to 60 and his blood platelets look good at 160. The doctors
Rshc
in
British Liver Trust
2 years ago
Bloodshot eye from a scratch now seems to be more bloodshot.
Hello all, A week ago I scratched the lower part of the white of my eye. The blood seemed to be diminishing, but several days ago when waking up the eye was painful, like very bad dry eye. Cool eye drops helped, but it is still sore and veins around the eye are more red. My vision doesnāt
Hello all, A week ago I scratched the lower part of the white of my eye. The blood seemed to be diminishing, but several days ago when waking up the eye was painful, like very bad dry eye. Cool eye drops helped, but it is still sore and veins around the eye are more red. My vision doesnāt
Mstiles
in
PMRGCAuk
2 years ago
NHS and 2nd potential anti vegf
Hello all even though I work for the NHS I still despair at the appointment system sometimes! I paid to go privately for my first anti vegf injection and the consultant said he would slot me into his nhs clinic for the second but due to probably the jubilee BH my second one will be 5 weeks 2 days after
Hello all even though I work for the NHS I still despair at the appointment system sometimes! I paid to go privately for my first anti vegf injection and the consultant said he would slot me into his nhs clinic for the second but due to probably the jubilee BH my second one will be 5 weeks 2 days after
Deepbluesea2022
in
Macular Society
2 years ago
6 top tips for controlling seasonal allergies
As temperatures start to rise on the build-up to summer, so does the pollen count. However, the warmer weather also typically lessens joint pain for those with RA which puts many in a predicament! Here's our top 6 tips to take advantage of the Great British summer, without the bloodshot eyes. Read our
As temperatures start to rise on the build-up to summer, so does the pollen count. However, the warmer weather also typically lessens joint pain for those with RA which puts many in a predicament! Here's our top 6 tips to take advantage of the Great British summer, without the bloodshot eyes. Read our
Aribah-NRAS
NRAS
in
NRAS
2 years ago
Away for Easter
Well, my daughter persuaded me to drive me and my husband up to Yorkshire in our motorhome ( the very same one that dropped on my husbands head) to have a relaxing few days with them. I was excited that I'd managed it and looked forward to the lovely weekend, only it couldn't be like that for us. Husband
Well, my daughter persuaded me to drive me and my husband up to Yorkshire in our motorhome ( the very same one that dropped on my husbands head) to have a relaxing few days with them. I was excited that I'd managed it and looked forward to the lovely weekend, only it couldn't be like that for us. Husband
TinT22
in
Headway
2 years ago
Thiamine Tetrahydrofurfuryl Disulfide (TTFD) requires methylation
*** I ended up with High Blood Pressure taking TTFD. I no longer take TTFD. Based on my experience, I would not recommend TTFD. *** Excellent write up on Thiamine Tetrahydrofurfuryl Disulfide (TTFD) but I am unsure if it is a Methyl Donor or requires a Methyl Donor. https://www.eonutrition.co.uk/post
*** I ended up with High Blood Pressure taking TTFD. I no longer take TTFD. Based on my experience, I would not recommend TTFD. *** Excellent write up on Thiamine Tetrahydrofurfuryl Disulfide (TTFD) but I am unsure if it is a Methyl Donor or requires a Methyl Donor. https://www.eonutrition.co.uk/post
Gcf51
in
Cure Parkinson's
2 years ago
Lab results - no diagnosis yet...
Hi everyone. I wrote a post a couple of weeks ago about my husband going to the Nephrologist for the first time. At the consultation, his Nephrologist was pretty optimistic but also concerned with the microhematuria. We both know something is going on but it's becoming clear that getting a proper diagnosis
Hi everyone. I wrote a post a couple of weeks ago about my husband going to the Nephrologist for the first time. At the consultation, his Nephrologist was pretty optimistic but also concerned with the microhematuria. We both know something is going on but it's becoming clear that getting a proper diagnosis
Bananas2007
in
Kidney Disease
2 years ago
Have I got IBS?
Hi 2 years ago I was as told I had LPR but having changed my diet the symptoms have eased however I have now developed IBS symptoms with stomach pain frequent diarrhoea and passing yellow water with no warning!!!. I am taking Imodium 2/3 times a week to enable me to leave the house. Is this a symptom
Hi 2 years ago I was as told I had LPR but having changed my diet the symptoms have eased however I have now developed IBS symptoms with stomach pain frequent diarrhoea and passing yellow water with no warning!!!. I am taking Imodium 2/3 times a week to enable me to leave the house. Is this a symptom
Allot
in
IBS Network
2 years ago
Traveling with Pegasys on airplane.
Any suggestions on traveling with Pegasys prefilled syringe? I know it needs to be stored at 36-46 degrees Fahrenheit.
Any suggestions on traveling with Pegasys prefilled syringe? I know it needs to be stored at 36-46 degrees Fahrenheit.
JeanieRN
in
MPN Voice
2 years ago
Any eye problems?
Hi My husband who has PV has had sore, itchy eyes for a couple of weeks, with painful spots appearing on the edges of his eye lids. He went to the GP 2 weeks ago and was given a couple of different eye ointments (an antibiotic and a lubricant). However, the problems havenāt gone away so Iāve persuaded
Hi My husband who has PV has had sore, itchy eyes for a couple of weeks, with painful spots appearing on the edges of his eye lids. He went to the GP 2 weeks ago and was given a couple of different eye ointments (an antibiotic and a lubricant). However, the problems havenāt gone away so Iāve persuaded
MarybellM
in
MPN Voice
2 years ago
Cancelled surgery
I've just found out they have cancelled my planned surgery for the second time. This time not even bothering to give me an alternative date I have angle closure glaucoma. Because of COVID, it was already advanced in my right eye when diagnosed. I was on max drop (x3) and oral diamox, it having been
I've just found out they have cancelled my planned surgery for the second time. This time not even bothering to give me an alternative date I have angle closure glaucoma. Because of COVID, it was already advanced in my right eye when diagnosed. I was on max drop (x3) and oral diamox, it having been
Efabear
in
Glaucoma UK
2 years ago
16 and been diagnosed with lupus
My son was diagnosed with lupus last year December. I feel so sorry for him heās suffering with a lot of pain in fingers. I never knew that at the age of 16 you could get lupus. I was 38 when I was diagnosed.
My son was diagnosed with lupus last year December. I feel so sorry for him heās suffering with a lot of pain in fingers. I never knew that at the age of 16 you could get lupus. I was 38 when I was diagnosed.
djsema
in
LUPUS UK
2 years ago
Another updat, this time from the hospital bed.
Greetings fellow warriors Surprise surprise! When last updated I completed two rounds of the Cabazitaxel/carboplatin and PSA at 108. Was scheduled for round 3 of 4 today but after being told ā hammer to big for your caseā a met suddenly pops up around T3-6 Pain popped up Saturday in sciatic
Greetings fellow warriors Surprise surprise! When last updated I completed two rounds of the Cabazitaxel/carboplatin and PSA at 108. Was scheduled for round 3 of 4 today but after being told ā hammer to big for your caseā a met suddenly pops up around T3-6 Pain popped up Saturday in sciatic
subliminaldood
in
Advanced Prostate Cancer
2 years ago
Tips on reducing regular bouts of diarrhea.
Still waiting for a diagnosis. 8 days diarrhea, stopped 5 days later 4 days diarrhea. GP told me to wait until I see a consultant, which could be months away. Any tips to reduce this happening on such a regular basis. Living on dry toast and Imodium at the moment.
Still waiting for a diagnosis. 8 days diarrhea, stopped 5 days later 4 days diarrhea. GP told me to wait until I see a consultant, which could be months away. Any tips to reduce this happening on such a regular basis. Living on dry toast and Imodium at the moment.
wb54
in
IBS Network
2 years ago
Dehydroascorbic acid: Could orange juice oxidised in the fridge overnight be an important weapon against Parkinson's?
Dehydroascorbic acid is the oxidised and reversible form of ascorbic acid or vitamin C. It can protect the brain and reduce stroke mortality, due to its ability to cross the blood-brain barrier, whereas vitamin C or ascorbic acid cannot easily do so. In one study it was proposed as a possible treatment
Dehydroascorbic acid is the oxidised and reversible form of ascorbic acid or vitamin C. It can protect the brain and reduce stroke mortality, due to its ability to cross the blood-brain barrier, whereas vitamin C or ascorbic acid cannot easily do so. In one study it was proposed as a possible treatment
parkinsonshereandnow
in
Cure Parkinson's
2 years ago
What else is available?
I have done Carbo/Taxol, Avastin, Carbo/Caelyx, Rubrac a and now Anastrazole. I have a scan coming up, but lately can feel the cancer spreading and am resorting to pain killers. Can anyone who has had this many lines of chemo tell me what else was available for them to try, and also how successful it
I have done Carbo/Taxol, Avastin, Carbo/Caelyx, Rubrac a and now Anastrazole. I have a scan coming up, but lately can feel the cancer spreading and am resorting to pain killers. Can anyone who has had this many lines of chemo tell me what else was available for them to try, and also how successful it
27-359
in
My Ovacome
2 years ago
Sjƶgrenās syndrome
I am suffering with bad Sjogrenās syndrome because of lupus which means I have dry eyes, dry nostrils, dry mouth, dry skin. Basically dry mucosa anywhere in my body. Does any one have this experience and what have you used to get rid of it. I have used preservative free eye drops as advised by the doctor
I am suffering with bad Sjogrenās syndrome because of lupus which means I have dry eyes, dry nostrils, dry mouth, dry skin. Basically dry mucosa anywhere in my body. Does any one have this experience and what have you used to get rid of it. I have used preservative free eye drops as advised by the doctor
favour6
in
LUPUS UK
2 years ago
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