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Raised LDH with PV
Hi friends, I’m still learning here as I was diagnosed 3 months ago. So in August 2018 I was diagnosed with PV at the age of 32 and my recent blood test showed that my LDH was 310. Is this normal with PV? Thank you
Hi friends, I’m still learning here as I was diagnosed 3 months ago. So in August 2018 I was diagnosed with PV at the age of 32 and my recent blood test showed that my LDH was 310. Is this normal with PV? Thank you
Yarw
in
MPN Voice
6 years ago
Sodium oxybate, thyroid hormone and sleep
Sodium oxybate (which is the sodium salt of gamma-hydroxybutyric acid) is used as a last resort medicine for sleep problems - under expert guidance only. I have just come across a personal report about the interaction between sodium oxybate and levothyroxine. If anyone is interested, I'll post more
Sodium oxybate (which is the sodium salt of gamma-hydroxybutyric acid) is used as a last resort medicine for sleep problems - under expert guidance only. I have just come across a personal report about the interaction between sodium oxybate and levothyroxine. If anyone is interested, I'll post more
helvella
Thyroid UK
in
Thyroid UK
6 years ago
Cure OSA
Hi All, I think i am suffering with OSA. Can i get some advice about the cure? I have heard about CPAP. Is it effective and reliable solution? Please tell me how to cure my OSA. I am snoring heavliy from past few years and also feel very very sleepy during daytime at work. Please help!!! Thanks, Deepak
Hi All, I think i am suffering with OSA. Can i get some advice about the cure? I have heard about CPAP. Is it effective and reliable solution? Please tell me how to cure my OSA. I am snoring heavliy from past few years and also feel very very sleepy during daytime at work. Please help!!! Thanks, Deepak
jdeepak_health
in
Lung Conditions Community Forum
6 years ago
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Reconstruction after implant infection.
Hello All I was diagnosed with grade 1 ER pos. and HER2 neg. BC in April 2018. I had surgery in July for a left breast reduction and right breast mastectomy with an implant. The surgeons performed lymph nodes and nipple biopsy to test to see if the cancer had spread and I was relieved to hear that
Hello All I was diagnosed with grade 1 ER pos. and HER2 neg. BC in April 2018. I had surgery in July for a left breast reduction and right breast mastectomy with an implant. The surgeons performed lymph nodes and nipple biopsy to test to see if the cancer had spread and I was relieved to hear that
Tennis66
in
My Breast Cancer Community
6 years ago
Ampyra question
I am seeing my neuro on Wednesday and want to ask about Ampyra. Whether due to MS, my mercury poisoning or something else, my walking has been getting steadily worse. Does Ampyra have side effects anyone has experienced? Is it addictive? I am on Ocrevus now, but it has had no effect on my walking
I am seeing my neuro on Wednesday and want to ask about Ampyra. Whether due to MS, my mercury poisoning or something else, my walking has been getting steadily worse. Does Ampyra have side effects anyone has experienced? Is it addictive? I am on Ocrevus now, but it has had no effect on my walking
IFwczs
in
My MSAA Community
6 years ago
Sudden TSH increase
Hi there , I've been taking 1.5 grains of nature thyroid for about 5 years ... feeling great with not problems , my TSH normally is about 1 , 3 months ago it increased to 6 so I upped my meds ...it's now at nearly 10 ....I feel fine but my hair is fully out ....any ideas why this would happen ?
Hi there , I've been taking 1.5 grains of nature thyroid for about 5 years ... feeling great with not problems , my TSH normally is about 1 , 3 months ago it increased to 6 so I upped my meds ...it's now at nearly 10 ....I feel fine but my hair is fully out ....any ideas why this would happen ?
Ldepluzer
in
Thyroid UK
6 years ago
Timing of drugs - update
So all of this worry and concern about timings of our drugs etc, getting mixed up initially (going an hour the other way for my alarm setting!), then fixing it all before I went to sleep.... I realised that I have been taking my middle of the day progynova exactly an hour late every single day since
So all of this worry and concern about timings of our drugs etc, getting mixed up initially (going an hour the other way for my alarm setting!), then fixing it all before I went to sleep.... I realised that I have been taking my middle of the day progynova exactly an hour late every single day since
Hidden
in
Fertility Network UK
6 years ago
Triple negative diagnosis
Hi all Diagnosed August 2016 and then again April 2018 with triple negative. 1st time I had a lumpectomy, chemo (which I felt really I'll with) and then rads. This time a mastectomy and then two out of four chemos so far... Complete with two lots of nutrpenic sepsis!! Haven't spoken to my onc yet
Hi all Diagnosed August 2016 and then again April 2018 with triple negative. 1st time I had a lumpectomy, chemo (which I felt really I'll with) and then rads. This time a mastectomy and then two out of four chemos so far... Complete with two lots of nutrpenic sepsis!! Haven't spoken to my onc yet
Ybarra
in
My Ovacome
6 years ago
Refusing Chemo
I am 63 and recently diagnosed with stage 2 invasive ducal carcinoma, hormone negative and HER2 positive. This is a more aggressive cancer but let’s face it, cancer is cancer. Going for a mastectomy in a couple weeks. They want me to have chemo along with herceptin and perjeta which kills off the her2
I am 63 and recently diagnosed with stage 2 invasive ducal carcinoma, hormone negative and HER2 positive. This is a more aggressive cancer but let’s face it, cancer is cancer. Going for a mastectomy in a couple weeks. They want me to have chemo along with herceptin and perjeta which kills off the her2
RobynS4
in
My Ovacome
6 years ago
It all kicks start again!
Hi All Hope you’re well wherever you are in this crazy journey. After our BFN in Sept, due to start our medicated FET on 1 Nov. Feeling apprehensive about down reg - buserelin was pretty hard going last time round, but hopeful for a little Christmas miracle! Q - I have a work trip to the US during down
Hi All Hope you’re well wherever you are in this crazy journey. After our BFN in Sept, due to start our medicated FET on 1 Nov. Feeling apprehensive about down reg - buserelin was pretty hard going last time round, but hopeful for a little Christmas miracle! Q - I have a work trip to the US during down
Barbara1012
in
Fertility Network UK
6 years ago
Sleeping disorder
I can't sleep more than 2 hours out of 24 hours in a day. It's new for me. I had a digest level but in last few days I have noticed that my digestion power getting low. Acidity level getting higher at night. Some unpleasant smell come out through mouth. Cough are like sticky,jelly etc when I awake up
I can't sleep more than 2 hours out of 24 hours in a day. It's new for me. I had a digest level but in last few days I have noticed that my digestion power getting low. Acidity level getting higher at night. Some unpleasant smell come out through mouth. Cough are like sticky,jelly etc when I awake up
Murshidul
in
Pernicious Anaemia Society
6 years ago
New to Health Unlocked
In April 2000 I was diagnosed with breast cancer. I had a mastectomy, chemo, and five years each of Tamoxifen and Femara. Everything was fine until February 2018, when a biopsy of my underarm lymph nodes confirmed the recurrence and spread on the same side as before. I am presently taking Ibrance and
In April 2000 I was diagnosed with breast cancer. I had a mastectomy, chemo, and five years each of Tamoxifen and Femara. Everything was fine until February 2018, when a biopsy of my underarm lymph nodes confirmed the recurrence and spread on the same side as before. I am presently taking Ibrance and
Formersnowbird
in
SHARE Metastatic Breast Cancer
6 years ago
In need of some rational encouragement, advice, please
Hey there... As I said in an earlier post, I was back at work today and am glad for it. Here's why I'm writing now... My psychiatrist gave me a prescription for Seroquel to help with sleep. I've had pretty bad sleep since July. He set the dosage at 50 to 100mg, but the first dose that I took (last night
Hey there... As I said in an earlier post, I was back at work today and am glad for it. Here's why I'm writing now... My psychiatrist gave me a prescription for Seroquel to help with sleep. I've had pretty bad sleep since July. He set the dosage at 50 to 100mg, but the first dose that I took (last night
Hidden
in
Anxiety Support
6 years ago
Sleeping Pill Hazards
Since most of us take sleeping pills, here is an article from Dr. Weil I found useful (also copied and pasted below): https://www.drweil.com/blog/bulletins/sleeping-pill-hazards/?utm_medium=email&utm_campaign=Weekly%20Bulletin%2010182018&utm_content=Weekly%20Bulletin%2010182018+CID_38d4e82b15062a6aa15d1d1bf0525bab
Since most of us take sleeping pills, here is an article from Dr. Weil I found useful (also copied and pasted below): https://www.drweil.com/blog/bulletins/sleeping-pill-hazards/?utm_medium=email&utm_campaign=Weekly%20Bulletin%2010182018&utm_content=Weekly%20Bulletin%2010182018+CID_38d4e82b15062a6aa15d1d1bf0525bab
IFwczs
in
My MSAA Community
6 years ago
Insomnia
Hi everyone been awhile ... So iv had countless doctors appointments lately iv struggled with the chronic fatigue for years and waking in the night not being able to sleep and sleep disturbances lately I can’t sleep night or day and my body is so exhausted it shuts off but my brain is still going I hear
Hi everyone been awhile ... So iv had countless doctors appointments lately iv struggled with the chronic fatigue for years and waking in the night not being able to sleep and sleep disturbances lately I can’t sleep night or day and my body is so exhausted it shuts off but my brain is still going I hear
Loopylou89
in
Fibromyalgia Action UK
6 years ago
Prepectoral, immediate, direct to implant surgery
Hello, Has anyone had this type of mastectomy and immediate above the muscle reconstruction? I live in a small town in North Carolina and I am finding it hard to find a surgeon/patients who have had experience with this procedure. Thank you very much.
Hello, Has anyone had this type of mastectomy and immediate above the muscle reconstruction? I live in a small town in North Carolina and I am finding it hard to find a surgeon/patients who have had experience with this procedure. Thank you very much.
Claire1391
in
SHARE Breast Cancer Support
6 years ago
Hi I’m new 😁
Hi I’m 27 years old and was diagnosed with a high grade papillary carcinoma. I am a BrAc1 carrier also from my dads side. I had a double mastectomy in August and was told that was all I would need. However on removal of my breast tissue they found another lump at grade 3. I have now been told that that
Hi I’m 27 years old and was diagnosed with a high grade papillary carcinoma. I am a BrAc1 carrier also from my dads side. I had a double mastectomy in August and was told that was all I would need. However on removal of my breast tissue they found another lump at grade 3. I have now been told that that
JadeSlo16
in
My Breast Cancer Community
6 years ago
Ibrance break once NED for surgery ?
Has anyone had a short break from ibrance once NED to have any surgery ? I’m thinking of having a Breast reduction on my non affected side to rebalance smaller implant on my mastectomy side. Onc says If I decide to go ahead I would need to have a 2 week break from ibrance (1 week before and 1 after the
Has anyone had a short break from ibrance once NED to have any surgery ? I’m thinking of having a Breast reduction on my non affected side to rebalance smaller implant on my mastectomy side. Onc says If I decide to go ahead I would need to have a 2 week break from ibrance (1 week before and 1 after the
Teddielottie
in
SHARE Metastatic Breast Cancer
6 years ago
pain after mastectomy
6th day after the mastectomy, and something I didn't expect is strong burning pain under my shoulder and down the arm , along with a lot of discomfort from the drain which pulls at night I think when I turn in my sleep.. This morning it was really severe and seems to come out of nowhere , making the
6th day after the mastectomy, and something I didn't expect is strong burning pain under my shoulder and down the arm , along with a lot of discomfort from the drain which pulls at night I think when I turn in my sleep.. This morning it was really severe and seems to come out of nowhere , making the
Chick44nzrn
in
My Breast Cancer Community
6 years ago
Good scan results today ! 🙂
After 10 months on Ibrance / Letrozole I had my first scan results today and am very happy and wanted to share it with you lovely ladies ! I haven’t posted much recently (scanxiety !) but do follow you and it’s been a great help to me . So thank you ! My ct scan showed that Ibrance
After 10 months on Ibrance / Letrozole I had my first scan results today and am very happy and wanted to share it with you lovely ladies ! I haven’t posted much recently (scanxiety !) but do follow you and it’s been a great help to me . So thank you ! My ct scan showed that Ibrance
Teddielottie
in
SHARE Metastatic Breast Cancer
6 years ago
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