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Amyloidosis
Has anyone been diagnosed with Amyloidosis of the heart which is causing Afib permanently? How are they being treated, etc?
Has anyone been diagnosed with Amyloidosis of the heart which is causing Afib permanently? How are they being treated, etc?
Flimmeri
in
AF Association
2 years ago
I’m drained and that blinking bus came back twice 😂
hey guys, I hop you are all coping and in a good place, I’m absolutely exhausted and if that blinking bus had stopped I would be ok 😂. Well some of you know about my daughter G, I will apologise if this offends anyone, and if admin want to take it down, so be it. So we traveled to hull/ York in Beverly
hey guys, I hop you are all coping and in a good place, I’m absolutely exhausted and if that blinking bus had stopped I would be ok 😂. Well some of you know about my daughter G, I will apologise if this offends anyone, and if admin want to take it down, so be it. So we traveled to hull/ York in Beverly
Hidden
in
Fibromyalgia Action UK
2 years ago
Trelstar Mixject
I received an insurance denial today for Trelstar Mixject. I was to have an Eligard shot in early December, but Dr office called the day before to reschedule for January 3rd. I was never told that they wanted to take me off Eligard, and why would they change if it is working? Mainly, I have never
I received an insurance denial today for Trelstar Mixject. I was to have an Eligard shot in early December, but Dr office called the day before to reschedule for January 3rd. I was never told that they wanted to take me off Eligard, and why would they change if it is working? Mainly, I have never
280scout
in
Advanced Prostate Cancer
2 years ago
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Update to Here We Go Again
There are 4 tumors, and the onc report says they are Stage II Grade II ER+ PR+ HER2- I hope this is accurate as the last breast cancer was a triple negative encasing a triple positive (hard to treat!) I am still going to Florida for the month of October; surgery is Nov 1. Need to recharge my batteries
There are 4 tumors, and the onc report says they are Stage II Grade II ER+ PR+ HER2- I hope this is accurate as the last breast cancer was a triple negative encasing a triple positive (hard to treat!) I am still going to Florida for the month of October; surgery is Nov 1. Need to recharge my batteries
anrean
in
SHARE Breast Cancer Support
2 years ago
Symptoms during B12 loading phase?
Just checking that my symptoms flare is usual with B12 loading doses. First dose last Thursday and on Saturday I had nerve pain across my mastectomy scar (surgery in 2019), dizzy spells/loss if balance, nausea, and intensifying of my existing peripheral neuropathy in my feet and legs. Second dose this
Just checking that my symptoms flare is usual with B12 loading doses. First dose last Thursday and on Saturday I had nerve pain across my mastectomy scar (surgery in 2019), dizzy spells/loss if balance, nausea, and intensifying of my existing peripheral neuropathy in my feet and legs. Second dose this
MyrtleMac
in
Pernicious Anaemia Society
2 years ago
A 2nd and Final Christmas Ditty (I have messaged Katrina)
A second and last offering to the alternative Christmas carols. This one is chirped along to The Calypso Carol, one if my favourites. See me lying on the bedroom floor, Palpitations I can feel once more. All kicked off by an apnoea snore, The joy called AF is to blame. Oh now carry me to A&E, By ambulance
A second and last offering to the alternative Christmas carols. This one is chirped along to The Calypso Carol, one if my favourites. See me lying on the bedroom floor, Palpitations I can feel once more. All kicked off by an apnoea snore, The joy called AF is to blame. Oh now carry me to A&E, By ambulance
Ducky2003
in
AF Association
2 years ago
genetic testing and circulating cell free dna
Hi lovely ladies Just want to say how extremely helpful and supportive this website is. I’m a nutshell my history is breast cancer grade 1, back in December 2001. Mastectomy, chemotherapy, radiotherapy plus 15 yrs of oestrogen suppressing medication. 2022 big shock, mets in bones, liver & lungs
Hi lovely ladies Just want to say how extremely helpful and supportive this website is. I’m a nutshell my history is breast cancer grade 1, back in December 2001. Mastectomy, chemotherapy, radiotherapy plus 15 yrs of oestrogen suppressing medication. 2022 big shock, mets in bones, liver & lungs
Sweep16
in
SHARE Metastatic Breast Cancer
2 years ago
Intralipid infussion
Good morning Lovely Girls, I am having my second transfer in Spain next Tuesday and yesterday I had my first intralipid infussion to treat for recurrent miscarriage. The Clinic told me that I would need to have the second one in 3 weeks time if I am pregnant. Please could you let me know if the
Good morning Lovely Girls, I am having my second transfer in Spain next Tuesday and yesterday I had my first intralipid infussion to treat for recurrent miscarriage. The Clinic told me that I would need to have the second one in 3 weeks time if I am pregnant. Please could you let me know if the
Strawberryice
in
Fertility Network UK
2 years ago
Coming off pramipexole but pausing for surgery
I was given a date for my mastectomy of October 4 so I decided to continue my pramipexole reduction until nearer the time. I am down to half a tablet a day, from a full tablet a day. I am going to pause now though as they brought my surgery forward to next week. 😬 eek Overall I am ok. I have had
I was given a date for my mastectomy of October 4 so I decided to continue my pramipexole reduction until nearer the time. I am down to half a tablet a day, from a full tablet a day. I am going to pause now though as they brought my surgery forward to next week. 😬 eek Overall I am ok. I have had
RestlessMe
in
Restless Legs Syndrome
2 years ago
Surgery date brought forward by two weeks
Surgery date brought forward by two weeks. Mastectomy was booked for October 4, but I’ve just had a call from the surgeon offering me a week today. I’ve accepted it but it’s left me quite shaky, no idea why. Perhaps because I thought I had three more weeks to prepare and I have less than a week. But
Surgery date brought forward by two weeks. Mastectomy was booked for October 4, but I’ve just had a call from the surgeon offering me a week today. I’ve accepted it but it’s left me quite shaky, no idea why. Perhaps because I thought I had three more weeks to prepare and I have less than a week. But
RestlessMe
in
My Breast Cancer Community
2 years ago
Ritalin (Methylphenidate)
I've saw a few post and some discussion about this, but my Oncologist suggested a low dose of Ritalin to ward off some of the fatigue and brain fog I was having from Firmagon and Zytiga. I had been reluctant to take "another pill" that comes with more side effects...so I said not for me. I know the
I've saw a few post and some discussion about this, but my Oncologist suggested a low dose of Ritalin to ward off some of the fatigue and brain fog I was having from Firmagon and Zytiga. I had been reluctant to take "another pill" that comes with more side effects...so I said not for me. I know the
Ron53
in
Advanced Prostate Cancer
2 years ago
New diagnosis of Hashimoto's disease
I just got diagnosed with Hashimoto's disease. I am in the beginning stage of it where my TSH levels are normal but I have high antibodies levels. I also have an enlarged thyroid and a decent size nodule on the left side. There are times where I feel like my thyroid is irritated and my throat feels tight
I just got diagnosed with Hashimoto's disease. I am in the beginning stage of it where my TSH levels are normal but I have high antibodies levels. I also have an enlarged thyroid and a decent size nodule on the left side. There are times where I feel like my thyroid is irritated and my throat feels tight
Scorpi00
in
Thyroid UK
2 years ago
RLS study
just completed phase 1 of an RLS study of a wearable e-stim device for RLS. For me, redults were mixed. Worked well on Right leg which has much milder symptoms than the left. The left did not respond well to the continuous stim. When I’ve used TNS in the past, a modulated wave form was more effective
just completed phase 1 of an RLS study of a wearable e-stim device for RLS. For me, redults were mixed. Worked well on Right leg which has much milder symptoms than the left. The left did not respond well to the continuous stim. When I’ve used TNS in the past, a modulated wave form was more effective
Hidden
in
Restless Legs Syndrome
2 years ago
How do you know your circadian rhythm?
This week I will be starting methadone, which may be the answer for me. If effective, it would give me a chance to change my sleeping pattern from 4am to noon to something more normal. My question is this: How do I determine what my current circadian rhythm is? It might be that I actually am still
This week I will be starting methadone, which may be the answer for me. If effective, it would give me a chance to change my sleeping pattern from 4am to noon to something more normal. My question is this: How do I determine what my current circadian rhythm is? It might be that I actually am still
ratfancy
in
Restless Legs Syndrome
2 years ago
Need Support
Hi They say if you want to hear God laugh, tell him your plans. Well, He is laughing mightily!! When the call came that I have breast cancer for the third time, I was adamant that I wouldn't undergo a mastectomy - unfortunately, the onc surgeon does not think she can do a lumpectomy because of a previous
Hi They say if you want to hear God laugh, tell him your plans. Well, He is laughing mightily!! When the call came that I have breast cancer for the third time, I was adamant that I wouldn't undergo a mastectomy - unfortunately, the onc surgeon does not think she can do a lumpectomy because of a previous
anrean
in
SHARE Breast Cancer Support
2 years ago
Hypothyroidism and sleep apnoea ...
I've received a letter from Guy's and St Thomas' about the home sleep study I did on 24th October. The letter says I have severe obstructive sleep apnoea. I have a provisional/suspected diagnosis of central hypothyroidism, and also have growth hormone deficiency. I have been titrating up on Levo, starting
I've received a letter from Guy's and St Thomas' about the home sleep study I did on 24th October. The letter says I have severe obstructive sleep apnoea. I have a provisional/suspected diagnosis of central hypothyroidism, and also have growth hormone deficiency. I have been titrating up on Levo, starting
UKmale_hypo
in
Thyroid UK
2 years ago
Aleve/Naproxin?
My rheumatologist told me not to take Ibuprofen while on Prednisone. I am at 10/mg per day of Prednisone. Last night I had a headache due to returning to our home at 9000ft in elevation. It takes me a couple of days to adapt. I drank a big glass of water and took one Aleve/Naproxen. My headache went
My rheumatologist told me not to take Ibuprofen while on Prednisone. I am at 10/mg per day of Prednisone. Last night I had a headache due to returning to our home at 9000ft in elevation. It takes me a couple of days to adapt. I drank a big glass of water and took one Aleve/Naproxen. My headache went
ProcrastiBaker
in
PMRGCAuk
2 years ago
Hello,I live in Bradenton Florida and go to Moffitt Cancer in Tampa
I once had two(2 )oncologists. l live in Bradenton and due to the drive to Moffitt in Tampa I once had another oncologist here at Florida Cancer. She once gave me a second opinion about immunotherapy which I was hesitant to try (it was new at the time so I didn't try that) She told me to just
I once had two(2 )oncologists. l live in Bradenton and due to the drive to Moffitt in Tampa I once had another oncologist here at Florida Cancer. She once gave me a second opinion about immunotherapy which I was hesitant to try (it was new at the time so I didn't try that) She told me to just
Figletf
in
SHARE Metastatic Breast Cancer
2 years ago
Quinidine Sulphate
About 11 years ago I was diagnosed with Brugada Syndrome and had a de-fib fitted as well as prescibed Quinidine and Bisoloprol which I have taken ever since. 4 years ago my de-fib activated so my Consultant increased the levles of Quinidine. However I am told by my Consultant & Pharmacy that they cannot
About 11 years ago I was diagnosed with Brugada Syndrome and had a de-fib fitted as well as prescibed Quinidine and Bisoloprol which I have taken ever since. 4 years ago my de-fib activated so my Consultant increased the levles of Quinidine. However I am told by my Consultant & Pharmacy that they cannot
LeeLowry1
in
Arrhythmia Alliance
2 years ago
Duloxetine for pain and anxiety.
I have been prescribed Duloxetine for pain, anxiety and depression. I have fibromyalgia and FND. I was taking 20mg twice a day, morning and evening but it was no longer effective. About a month ago the doctor raised it to 60mg, but said I must take 40 mg at night and 20mg in the morning. I am feeling
I have been prescribed Duloxetine for pain, anxiety and depression. I have fibromyalgia and FND. I was taking 20mg twice a day, morning and evening but it was no longer effective. About a month ago the doctor raised it to 60mg, but said I must take 40 mg at night and 20mg in the morning. I am feeling
Rebel1961
in
Fibromyalgia Action UK
2 years ago
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