Quinidine Sulphate

[LeeLowry1]

About 11 years ago I was diagnosed with Brugada Syndrome and had a de-fib fitted as well as prescibed Quinidine and Bisoloprol which I have taken ever since. 4 years ago my de-fib activated so my Consultant increased the levles of Quinidine. However I am told by my Consultant & Pharmacy that they cannot get hold of Quinidine (from the Dutch supplier) and I have taken no Quinidine for the last 2 weeks. Have others experienced the same problem?

[TracyAdmin Partner ArrhythmiaAlliance]

I am sorry to hear about the difficulties you are experiencing, please do not hesitate to contact your Doctor to discuss further.

[LeeLowry1 in reply to TracyAdmin]

Thanks Tracy. The Doctors don't want to know as the drug is unlicenced and only obtainable from the Consultant. Currently going through PALS at the Hospital.

[Delphiniumsblue]

Hi! This is a late reply to your post .

I have found the same problem in Sweden with quinidine. I have arrhythmia (ventricular bigeminy for a while there )

I stopped responding to beta blockers and the only other drug they could try as quinidine ( I was in my second trimester pregnancy )

It was so hard to obtain as it’s unlicensed in Sweden . My doctor being amazingly strong managed to find it and get it from Holland.

I took it for almost a year and it’s been great for me.

However I began to run low and they have just switched me to Tambocor this week which is doing terrible things to my mind and body.

I can’t get to sleep, I am dead tired by the afternoon, I am moody and irritable , my memory is foggy, and my appetite is confusing. I can’t gauge how hungry I am and when I’ve had enough food.

It’s terrible and it’s only 5 days in.

The pharmacy refused to order it for me before I went onto Tambocor saying the doctor must find another drug to put me on.

Did you end up finding a way to buy Quinidine again ?

What did you do if not ?

Cheers