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PMR? Rheumatoid Arthritis? Sciatica? What is this?
Was diagnosed with PMR in January, 2020. Put on 20mg Prednisone. Rheumatologist started lowering Prednisone by 1mg per month in February. Didn't do well. Was hospitalizedi in December 2020 with Covid. They took me off Pred. and put me on something else. Doctor put me on 10mg when went for next appointment
Was diagnosed with PMR in January, 2020. Put on 20mg Prednisone. Rheumatologist started lowering Prednisone by 1mg per month in February. Didn't do well. Was hospitalizedi in December 2020 with Covid. They took me off Pred. and put me on something else. Doctor put me on 10mg when went for next appointment
Pumpkin213
in
PMRGCAuk
2 years ago
Trial if rasagiline can reduce the progression from idiopathic REM sleep behavior disorder (RBD) to Parkinsons
https://clinicaltrials.gov/ct2/show/NCT05611372 To investigate whether a year of rasagiline may reduce the progression from idiopathic REM sleep behavior disorder (RBD) to Parkinson's disease (PD). https://twitter.com/ScienceofPD/status/1594676840001867779
https://clinicaltrials.gov/ct2/show/NCT05611372 To investigate whether a year of rasagiline may reduce the progression from idiopathic REM sleep behavior disorder (RBD) to Parkinson's disease (PD). https://twitter.com/ScienceofPD/status/1594676840001867779
Hidden
in
Cure Parkinson's
2 years ago
Finally makes sense
I started Firmagon about a year ago with great results for 5 months and then added Xtandi....Side effects from both were minimal due to weight training in gym 3x a week and aerobic running off days. I began researching the relatively newly FDA approved Orgovyx and it made sense to me to ask my MO to
I started Firmagon about a year ago with great results for 5 months and then added Xtandi....Side effects from both were minimal due to weight training in gym 3x a week and aerobic running off days. I began researching the relatively newly FDA approved Orgovyx and it made sense to me to ask my MO to
GSDF
in
Advanced Prostate Cancer
2 years ago
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Anyone BRCA opted for an elective mastectomy?
I have the dreaded appointment to discuss a potential double mastectomy on Thursday. (I'm BRCA2 and just reached 5 years with no recurrence so far.) I'm having a massive wobble I think caused by a c*ckup that now means any private medical recourse to PARP inhibitors is gone forever - A different story
I have the dreaded appointment to discuss a potential double mastectomy on Thursday. (I'm BRCA2 and just reached 5 years with no recurrence so far.) I'm having a massive wobble I think caused by a c*ckup that now means any private medical recourse to PARP inhibitors is gone forever - A different story
Emsymits
in
My Ovacome
2 years ago
Insomnia
Sometimes I find myself staying up almost 24 hours. Some days I have to force myself to go too sleep or I have to take a sleep aid: melatonin or a muscle relaxer for my back or a gabapentin. I don't get much rest when I have a lot on my mind sometimes u have to shut your thoughts off especially if your
Sometimes I find myself staying up almost 24 hours. Some days I have to force myself to go too sleep or I have to take a sleep aid: melatonin or a muscle relaxer for my back or a gabapentin. I don't get much rest when I have a lot on my mind sometimes u have to shut your thoughts off especially if your
Hidden
in
Anxiety and Depression Support
2 years ago
Melatonin
https://www.nature.com/articles/s41440-019-0223-9 I am wondering if anyone uses melatonin to slow progress of kidney disease? Although seen primarily as a sleep aid melatonin has many beneficial effects throughout the body. I have been taking 20 mg per night for 4 years for another issue with beneficial
https://www.nature.com/articles/s41440-019-0223-9 I am wondering if anyone uses melatonin to slow progress of kidney disease? Although seen primarily as a sleep aid melatonin has many beneficial effects throughout the body. I have been taking 20 mg per night for 4 years for another issue with beneficial
alexask
in
Kidney Disease
2 years ago
Excellent sleep aid
Hi gang. You all know the trouble I’ve had sleeping recently. Well last night I added two new elements to my routine: CBD oil and this product from a Canadian? firm called Comfort Linen . The sheets etc are designed to work together and I must say I was very impressed with the freeing up of my movements
Hi gang. You all know the trouble I’ve had sleeping recently. Well last night I added two new elements to my routine: CBD oil and this product from a Canadian? firm called Comfort Linen . The sheets etc are designed to work together and I must say I was very impressed with the freeing up of my movements
jeeves19
in
Cure Parkinson's
2 years ago
Recurrent DCIS
Hi all I had a lumpectomy and radiotherapy about eight years ago to deal with ductal carcinoma in situ (DCIS) it has now recurred, what an absolute pain. I’ve had a mammogram and ultrasound and the radiologist thinks I will need surgery. I won’t know for sure until next Wednesday. But in my experience
Hi all I had a lumpectomy and radiotherapy about eight years ago to deal with ductal carcinoma in situ (DCIS) it has now recurred, what an absolute pain. I’ve had a mammogram and ultrasound and the radiologist thinks I will need surgery. I won’t know for sure until next Wednesday. But in my experience
RestlessMe
in
My Breast Cancer Community
2 years ago
Angina and breast cancer
hi I was diagnosed with Angina in Sept 2020 I had 1 stent placed and have 3 other narrowing..In May 2022 i was diagnosedwith stage 3 advanced breast cancer .. I have been told by consultants that my option is a mastectomy and hormone treatment which i've already started.. My question is that there is
hi I was diagnosed with Angina in Sept 2020 I had 1 stent placed and have 3 other narrowing..In May 2022 i was diagnosedwith stage 3 advanced breast cancer .. I have been told by consultants that my option is a mastectomy and hormone treatment which i've already started.. My question is that there is
Benji2020
in
British Heart Foundation
2 years ago
would like some reassurance please!
so a little about me ~ I had dermoid cyst removal which resulted in a tube being removed in 2006. In 2013 I was diagnosed with hormone negative, HER2+breast cancer and underwent a mastectomy and diep flap recon followed by chemotherapy and 10 month of herceptin, I'm now nearly 9yr clear with no
so a little about me ~ I had dermoid cyst removal which resulted in a tube being removed in 2006. In 2013 I was diagnosed with hormone negative, HER2+breast cancer and underwent a mastectomy and diep flap recon followed by chemotherapy and 10 month of herceptin, I'm now nearly 9yr clear with no
Kelb123
in
My Ovacome
2 years ago
inflammatory breast disease possibly unknown primary?
Apologies for the confusing title. Hello to you all. I was diagnosed with MBC in October 2021 - unknown primary.mets in neck lymph nodes which then spread to bones and lungs. I'm on my 4th line of chemo - trodelvy. I will have a ct scan in a couple of weeks after I return from holiday. a few
Apologies for the confusing title. Hello to you all. I was diagnosed with MBC in October 2021 - unknown primary.mets in neck lymph nodes which then spread to bones and lungs. I'm on my 4th line of chemo - trodelvy. I will have a ct scan in a couple of weeks after I return from holiday. a few
FHgirl
in
SHARE Metastatic Breast Cancer
2 years ago
What to Expect During Quarterly Appointment with Surgical Oncologist?
Hello! I am here for my 84 year old mother who lives in India and is under the care of a Surgical/Medical Oncologist there for MBC, metastasized to liver and lungs. After undergoing a radical mastectomy (left breast) in May this year she was placed on a regimen of 1 mg Anastrozole/daily, on June 11
Hello! I am here for my 84 year old mother who lives in India and is under the care of a Surgical/Medical Oncologist there for MBC, metastasized to liver and lungs. After undergoing a radical mastectomy (left breast) in May this year she was placed on a regimen of 1 mg Anastrozole/daily, on June 11
ANKN25
in
SHARE Metastatic Breast Cancer
2 years ago
i have depression, suicidal ideation and I don't know what to do.
it took me two weeks to taper from lexapro to Cymbalta. I've now been on Cymbalta since 10.14.22 (2 weeks) at 60. I'm also on lithium. I have had very weird side effects. It was very hard for me to sleep. Sometimes 3 or 4 hours,sometimes up all night. We kept switching Cymbalta from day to night and
it took me two weeks to taper from lexapro to Cymbalta. I've now been on Cymbalta since 10.14.22 (2 weeks) at 60. I'm also on lithium. I have had very weird side effects. It was very hard for me to sleep. Sometimes 3 or 4 hours,sometimes up all night. We kept switching Cymbalta from day to night and
Joshgw
in
Anxiety and Depression Support
2 years ago
Mastectomy and MBC
Hey. I am so confused. I have had chemo and now on Herceptin, Prejeta and Zometa. Last scan NED. Onc says no benefit to have mastectomy. I am not wanting surgery but I hear so many taking about have mastectomy What is the answer? There is confusing online Thx .
Hey. I am so confused. I have had chemo and now on Herceptin, Prejeta and Zometa. Last scan NED. Onc says no benefit to have mastectomy. I am not wanting surgery but I hear so many taking about have mastectomy What is the answer? There is confusing online Thx .
Onedayatatime60
in
SHARE Metastatic Breast Cancer
2 years ago
My Long RLS + PLMD Story (so far) Half of a Victory
I've dealt with RLS since I was a teenager. It grew increasingly worse as I aged. (I just turned 63). I also suspected that my legs were twitching and moving around a lot in my sleep. Eventually I learned there was a clinical name for that, too: PLMD (Periodic Limb Movement Disorder) that frequently,
I've dealt with RLS since I was a teenager. It grew increasingly worse as I aged. (I just turned 63). I also suspected that my legs were twitching and moving around a lot in my sleep. Eventually I learned there was a clinical name for that, too: PLMD (Periodic Limb Movement Disorder) that frequently,
Wordsmith77
in
Restless Legs Syndrome
2 years ago
Artane
I was on Artane [Trihexyphenidyl ] for stiffness and within 2 weeks of taking it I had severe hallucinations , I thought the doctor would of decreased my dosage , but she increased it. I really wish I did not do that. It was a mistake and it took some time to get over it.
I was on Artane [Trihexyphenidyl ] for stiffness and within 2 weeks of taking it I had severe hallucinations , I thought the doctor would of decreased my dosage , but she increased it. I really wish I did not do that. It was a mistake and it took some time to get over it.
Annie81963
in
Cure Parkinson's
2 years ago
RLS or something else?
Hi, I started vaping to replace a tobacco habit and got carried away with the vaping taking in far too much. Started off a light tingle in the arms initially for a few weeks but then spread to the legs where it is focused most. It happens when i am about to fall into a deep sleep. I can lie in bed
Hi, I started vaping to replace a tobacco habit and got carried away with the vaping taking in far too much. Started off a light tingle in the arms initially for a few weeks but then spread to the legs where it is focused most. It happens when i am about to fall into a deep sleep. I can lie in bed
Hidden
in
Restless Legs Syndrome
2 years ago
Treating TBI sleep disorders
Hi folks. I'm currently in Uni and doing research for my master's thesis relating to my TBI experience. I came across a very recent study reviewing the history of sleep disorders following TBI and thought I'd share something that addresses insomnia which many people on here get (I had hypersomnia, excessive
Hi folks. I'm currently in Uni and doing research for my master's thesis relating to my TBI experience. I came across a very recent study reviewing the history of sleep disorders following TBI and thought I'd share something that addresses insomnia which many people on here get (I had hypersomnia, excessive
pinkvision
in
Headway
2 years ago
Intrusive thoughts
Hi I’m so sorry to hear about the intrusive thoughts that you have been going through .I also have experienced them since being diagnosed with PP last year.What I found helpful is someone’s comment to imagine physically putting them on a cloud and floating away.Also remembering that everyone gets intrusive
Hi I’m so sorry to hear about the intrusive thoughts that you have been going through .I also have experienced them since being diagnosed with PP last year.What I found helpful is someone’s comment to imagine physically putting them on a cloud and floating away.Also remembering that everyone gets intrusive
Raindropsonroses44
in
Action on Postpartum Psychosis
2 years ago
CLL & Mastectomy / Implants
I'm wondering if anyone here with CLL/SLL has undergone a breast reduction or mastectomy since diagnosis. If so, were you on treatment or WW at time of surgery? If you were on treatment, did you have to stop for surgery? How was your healing? If you had a mastectomy, did you get implants after
I'm wondering if anyone here with CLL/SLL has undergone a breast reduction or mastectomy since diagnosis. If so, were you on treatment or WW at time of surgery? If you were on treatment, did you have to stop for surgery? How was your healing? If you had a mastectomy, did you get implants after
Amberesque
in
CLL Support
2 years ago
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