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Good news/bad news
hi all. The nurse rang last week to say that my liver results had improved somewhat but were still outside normal range. Because I have such active disease she didn’t want to leave me with no meds at all, so we decided to restart the leflunomide and see how the blood results go in two week, then make
hi all. The nurse rang last week to say that my liver results had improved somewhat but were still outside normal range. Because I have such active disease she didn’t want to leave me with no meds at all, so we decided to restart the leflunomide and see how the blood results go in two week, then make
HeadInASpin
in
NRAS
13 days ago
Post covid oxygen levels.
Hi, I have recently had covid which left me with a dreadful COPD exacerbation. I was given anti virals and taken rescue pack followed by another course of Doxycycline. Although I feel a lot better my oxygen levels have dropped dreadfully. I am prescribed ambulatory oxygen but am finding I am using it
Hi, I have recently had covid which left me with a dreadful COPD exacerbation. I was given anti virals and taken rescue pack followed by another course of Doxycycline. Although I feel a lot better my oxygen levels have dropped dreadfully. I am prescribed ambulatory oxygen but am finding I am using it
Maggity
in
Lung Conditions Community Forum
13 days ago
Dreaded Covid
Having started with a bad cold last week after having a gastroscope, at my local hospital, I didn’t think too much about it at first, eventually went to doctors said it was a virus and chest was clear just drink plenty fluids, then my daughter thought best check covid and it was positive, can’t hear
Having started with a bad cold last week after having a gastroscope, at my local hospital, I didn’t think too much about it at first, eventually went to doctors said it was a virus and chest was clear just drink plenty fluids, then my daughter thought best check covid and it was positive, can’t hear
Alibongo60
in
Headway
14 days ago
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Angina and arthritis pain.
I have had for many years ischeamic heart disease (7 stents) damaged area of heart muscle due to two heart attacks back in 2014 plus AF. I also suffer with osteoarthritis in various joints the latest most recent in my right hip. This is constantly giving me severe pain that pain killers won't touch.
I have had for many years ischeamic heart disease (7 stents) damaged area of heart muscle due to two heart attacks back in 2014 plus AF. I also suffer with osteoarthritis in various joints the latest most recent in my right hip. This is constantly giving me severe pain that pain killers won't touch.
graemeparsons
in
British Heart Foundation
2 months ago
Severe pain in Hips
Hello all, I haven’t been on this section for a long time, due to my many other conditions like Rheumatoid Arthritis & newish one, Smouldering Myeloma affecting me. But I would be glad of any advice/contact on the Osteoarthritis. I started with Fibromyalgia in my mid-late 40’s, now aged 62 & as
Hello all, I haven’t been on this section for a long time, due to my many other conditions like Rheumatoid Arthritis & newish one, Smouldering Myeloma affecting me. But I would be glad of any advice/contact on the Osteoarthritis. I started with Fibromyalgia in my mid-late 40’s, now aged 62 & as
Shamrockgirl
in
NRAS
2 months ago
clonazepam lethargy
has anyone experienced extreme fatigue since taking Clonazepam. My husband has been taking this now for around 10 days. He seems to be sleeping better at night but extremely tired during the day and i think this might be impacting his ability to walk as he can barely stand up without falling backwards
has anyone experienced extreme fatigue since taking Clonazepam. My husband has been taking this now for around 10 days. He seems to be sleeping better at night but extremely tired during the day and i think this might be impacting his ability to walk as he can barely stand up without falling backwards
Licquoricelover
in
PSP Association
15 days ago
covid related?
does anyone feel ike the tinnitus started after covid? Just interested in any links, I’ve recently had a bad virus not tested for covid but it was quite nasty and I’m wondering if that’s why my tinnitus is worse
does anyone feel ike the tinnitus started after covid? Just interested in any links, I’ve recently had a bad virus not tested for covid but it was quite nasty and I’m wondering if that’s why my tinnitus is worse
Retailgirl
in
Tinnitus UK
15 days ago
Gods beautiful creations
Last week I was able to ski with a bunch of my grandkids and all my pics were of them. Some days I felt ill but it was so worth it Today I went snowshoeing in a snow storm. What a peaceful serene setting on those snow covered paths nestled in the pines. Even the village where the trail system begins
Last week I was able to ski with a bunch of my grandkids and all my pics were of them. Some days I felt ill but it was so worth it Today I went snowshoeing in a snow storm. What a peaceful serene setting on those snow covered paths nestled in the pines. Even the village where the trail system begins
skipro
in
CLL Support
5 months ago
Haemophilus influenzae
Has anyone been able to get immunised against haemophilus influenzae? I've just had a bad infection which has been hard to shake off and I don't want it again. I know there is a vaccine available for adults but my hospital seems never to have heard of it.
Has anyone been able to get immunised against haemophilus influenzae? I've just had a bad infection which has been hard to shake off and I don't want it again. I know there is a vaccine available for adults but my hospital seems never to have heard of it.
1234emc
in
CLL Support
2 months ago
How do you get diagnosed on the NHS
Hello all. I've just joined this forum and have a bit of a perplexing question. For years I've suffered from food intolerances and mild allergies. I have had (and still have) various autoimmune issues. Post Covid in 2020, I developed hay fever along with an increasing number of food intolerances qand
Hello all. I've just joined this forum and have a bit of a perplexing question. For years I've suffered from food intolerances and mild allergies. I have had (and still have) various autoimmune issues. Post Covid in 2020, I developed hay fever along with an increasing number of food intolerances qand
Treetop33
in
The UK Mastocytosis Support Group
18 days ago
vita health group physio? & Simponi question
Hi I have ankylosing spondylitis and inject 100ml of Simponi every 4 weeks, I just had MOHs surgery for skin cancer on my nose. I got an infection so this messed up my injections, did my injection then injected again 3 weeks later as pain was horrific. I have knee problems and went to rheumatology
Hi I have ankylosing spondylitis and inject 100ml of Simponi every 4 weeks, I just had MOHs surgery for skin cancer on my nose. I got an infection so this messed up my injections, did my injection then injected again 3 weeks later as pain was horrific. I have knee problems and went to rheumatology
Km27
in
NRAS
2 months ago
Covid, covid test and tapering
Very slow tapering (DL style and working well) currently at 5mg prednisolone. Just into my 3rd year PMR diagnosis, when I contracted covid. Staying put at 5 mg now. PMR bouts of fatigue and sleepiness much worse this time though just starting to improve a little. not the case on my previous covid infection
Very slow tapering (DL style and working well) currently at 5mg prednisolone. Just into my 3rd year PMR diagnosis, when I contracted covid. Staying put at 5 mg now. PMR bouts of fatigue and sleepiness much worse this time though just starting to improve a little. not the case on my previous covid infection
waltztherapy
in
PMRGCAuk
18 days ago
Started peginterferon alpha 2a treatment
Just recently started the above treatment on the 31st January this year but my oldest daughter has just found out shes 9weeks pregnant and i forgot to ask my consultant if it was ok that on my treatment day is it ok to be around her eg as in she comes to my house to visit or is it similar to chemo treatments
Just recently started the above treatment on the 31st January this year but my oldest daughter has just found out shes 9weeks pregnant and i forgot to ask my consultant if it was ok that on my treatment day is it ok to be around her eg as in she comes to my house to visit or is it similar to chemo treatments
Purplechoclover
in
MPN Voice
5 months ago
psoriasis flair and adalimumab
hi all, I am looking for some advice. I had severe psoriasis which was almost gone thanks to adalimumab. I saw my dermatology team back in April for my 6 monthly check where my psoriasis was flairing up. so I had an adalimumab blood test to see if it was meant to work. I got the results back a
hi all, I am looking for some advice. I had severe psoriasis which was almost gone thanks to adalimumab. I saw my dermatology team back in April for my 6 monthly check where my psoriasis was flairing up. so I had an adalimumab blood test to see if it was meant to work. I got the results back a
katienewland
in
Beyond Psoriasis
20 days ago
Has anyone gone from Pegasys to Besremi?
Hi all, I am a 65 year old woman in the US with ET. My hematologist has had me on Pegasys for 2 years now, starting with 45 mcg, then 90 mcg injected once a week. Originally my platelets were in the high 400's and have crept up even with the injections and are now at 610. He had me go up to 135 mcg
Hi all, I am a 65 year old woman in the US with ET. My hematologist has had me on Pegasys for 2 years now, starting with 45 mcg, then 90 mcg injected once a week. Originally my platelets were in the high 400's and have crept up even with the injections and are now at 610. He had me go up to 135 mcg
ET625
in
MPN Voice
5 months ago
reasons for bad balance/dizzziness
I have identified 5 possible reasons for dizziness/lack of balance. 1. decreasing rasagiline too quickly 2. too much carbidopa 3. nOH (neurogenic orthostatic hypotension) Can be caused by rasagilene+rytary) 4. side effect of midodrine (increases when combined with rasagiline) 5. BPPV (a sort
I have identified 5 possible reasons for dizziness/lack of balance. 1. decreasing rasagiline too quickly 2. too much carbidopa 3. nOH (neurogenic orthostatic hypotension) Can be caused by rasagilene+rytary) 4. side effect of midodrine (increases when combined with rasagiline) 5. BPPV (a sort
pmmargo
in
Cure Parkinson's
5 months ago
Taking Blood Sample (Help)
I recently took a blood sample for Monitor My Health - just to get my vitamin D done . I made a complete mess of it - (I should have used the simple method of the drops of blood on the card using another company but completely forgot about it). Something happened my blood in the process and they
I recently took a blood sample for Monitor My Health - just to get my vitamin D done . I made a complete mess of it - (I should have used the simple method of the drops of blood on the card using another company but completely forgot about it). Something happened my blood in the process and they
Sunflower535
in
Thyroid UK
5 months ago
Experience of Covid Vaccines and Adrenals
I know the covid vaccines are a hot topic here. I don’t know if mum’s experience is helpful to share. Last years jabs were both a nightmare - led to weakness, temperature, light headedness loss of mobility and a significant down step in her dementia. Despite being a real advocate for the jabs I was
I know the covid vaccines are a hot topic here. I don’t know if mum’s experience is helpful to share. Last years jabs were both a nightmare - led to weakness, temperature, light headedness loss of mobility and a significant down step in her dementia. Despite being a real advocate for the jabs I was
RT18
in
PMRGCAuk
22 days ago
turning off loved ones life support
hi all, I wrote a few weeks back about how my dad was in the ICU with a perforated duodenum ulcer and consequently got sepsis shock leading to multi organ failure. In total he was in hospital for over 3 weeks and had two surgery’s during this time. Through out the whole ordeal I had so much hope and
hi all, I wrote a few weeks back about how my dad was in the ICU with a perforated duodenum ulcer and consequently got sepsis shock leading to multi organ failure. In total he was in hospital for over 3 weeks and had two surgery’s during this time. Through out the whole ordeal I had so much hope and
Angelfran123
in
ICUsteps
5 months ago
Fibro fog or long Covid?
hi 👋 Hope you’re all doing as well as u can has anyone had both Fibro fog and long covid? I don’t know which is affecting me I have more issues with word finding and when speaking and writing how long does it last goes then affects me random I had issues trying to read consultants pain score thing
hi 👋 Hope you’re all doing as well as u can has anyone had both Fibro fog and long covid? I don’t know which is affecting me I have more issues with word finding and when speaking and writing how long does it last goes then affects me random I had issues trying to read consultants pain score thing
Geeforce99
in
LUPUS UK
22 days ago
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